Director Lee Rainie presented to physicians, administrators, and staff at Providence St. Joseph Medical Center in Burbank, California on January 12 on understanding social networking and online health ...
Director Lee Rainie presented to physicians, administrators, and staff at Providence St. Joseph Medical Center in Burbank, California on January 12 on understanding social networking and online health information seeking.
The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking Lee Rainie Director, Pew Internet & American Life Project
This is the way Pew Internet measures content creation….
Citation: “The Social Life of Health Information” http://pewinternet.org/Reports/2011/Social-Life-of-Health-Info.aspx
http://www.e-patients.net/AMA_Dec2001.pdf
Health apps Health apps are of particular interest to those in the public health and epidemiology arenas, and Pew Internet has been measuring use of these apps for more than a year. In September 2010, data showed that 9% of all adult cell users had an app that “helped them track or manage their health.” This captures a wide range of software applications, from those that count calories and help manage an exercise routine, to more advanced apps that monitor vital signs and help individuals manage serious health conditions. In 2010, cell users who reported having health apps on their phones were disproportionately young, African-American, and living in urban areas. Specifically, 15% of cell phone users age 18-29 reported having mobile health apps, compared with 8% of cell users ages 30-49. And while 15% of African-American cell users had a health app on their phone, the same was true of just 7% of white and 11% of Latino cell phone users. Figure 12: Demographic groups most likely to download an app that helps them track or manage their health % of app downloaders in each group who have downloaded a health app… Source: Pew Research Center's Internet & American Life Project, July 25-August 26, 2011 Tracking Survey. N=658 app downloaders. Interviews conducted in English and in Spanish. An asterisk (*) indicates a significant difference at the 95% confidence level. In August 2011, the question was asked of adults who have downloaded an app to a cell phone or tablet computer, rather than all cell phone users. More than a quarter of this population (29%) report downloading a health app. Looking just at adults who download apps to a cell phone, this translates to 11% of all adult cell phone users having downloaded an app that helps them manage their health, a statistically insignificant difference from the 9% of adult cell users who reported having a mobile health app in September 2010. 2011 results are also similar in the sense that adults living in urban areas are most likely to report downloading an app that helps them track or manage their health. And again, younger adults are more likely than older adults to download this type of app; however, in the current survey, 30-49 year-olds are as likely as 18-29 year-olds to download a health app. It is only adults age 50 and older who lag behind. Also, in August 2011, there are no significant differences across racial/ethnic groups where downloading health apps is concerned. “ Mobile Health 2010,” available at http://pewinternet.org/Reports/2010/Mobile-Health-2010.aspx.
The Rise of the e-Patient Understanding Social Networks and Online Health Information Seeking Lee Rainie, Director, Pew Internet Project 1.12.12 Providence St. Joseph Medical Center, Burbank Email: [email_address] Twitter: @Lrainie
The story of e-patients (and netweavers) Trudy and Peter Johnson-Lenz
New social operating system: Networked Individualism
Social networks are more important
Social networks are differently composed
Social networks perform different functions
Social networks are more vivid and tied to creation of information/media
Implications of networking individualism for health care
Social networks (and the internet) provide “second opinions” – and can be sources of misinformation
Providers are necessarily “nodes” in people’s social networks
Social networks are allies and complements for care delivery
Those in acute care use their networks differently from those with chronic conditions
Providers are assessed and judged in more public ways
Digital Revolution 1 Internet (83%) and Broadband at home (67%) 71% 67%
Networked creators among internet users
65% are social networking site users
55% share photos
33% create content tags
32% contribute rankings and ratings
30% share personal creations
26% post comments on sites and blogs
15% have personal website
15% are content remixers
14% are bloggers
13% use Twitter
6% location services – 9% allow location awareness from social media – 23% maps etc.
55% of adults own laptops – up from 30% in 2006 45% of adults own MP3 players – up from 11% in 2005 50% of adults own DVRs – up from 3% in 2002 42% of adults own game consoles 18% of adults own e-book readers - Kindle 20% of adults own tablet computer – iPad, Kindle Fire - doubled in 1 month
Empowered and engaged – 61% of all adults get health info online (80% of internet users)
Participatory e-patients – 60% consume social media; 29% have contributed content
Crowd-sourced via e-patients: 19% consult rankings/reviews of providers (5% post them); 18% consult reviews of hospitals (4% post them)
Impact on health
Anti-Hippocratic Age
I SWEAR … I will impart a knowledge of the Art to my own sons, and those of my teachers, and to disciples bound by a stipulation and oath according to the law of medicine,
but to none others.
AMA press release December 20, 2001 6. Remember that the Internet cannot replace a physician’s expertise and training …. If you have questions, trust your physician, not a chat room
Demographic factors correlated w/ broadband adoption Source: Pew Internet Project, August, 2011 tracking survey 10/5/2010 Trends in Home Broadband Adoption Positive correlation (in order of importance) Negative correlation (in order of importance) Household income of $75,000 or more per year Having high school degree or less College degree Senior citizen (age 65+) Parent with minor child at home Rural resident Married or living with partner Disabled Employed full time African-American
By the numbers: Who’s not online? Source: Pew Internet Project, May 2010 tracking survey 10/5/2010 Trends in Home Broadband Adoption 17% … of American adults are not online 34% of them have some past or current contact w/ internet 10% of them want to use the internet in the future 61% of them would need assistance getting online
Relevance & digital literacy are primary factors for not going online Source: Pew Internet Project, May 2010 tracking survey 10/5/2010 Trends in Home Broadband Adoption
Digital Revolution 2 Mobile – 84% 327.6 Total U.S. population: 315.5 million
Mobile internet connectors – 63% adults
The rise of apps culture - 50% of adults
Mobile health apps
Real-time – 35+% use mobile phone for health info; 29% have health apps on handhelds
Place-less and time-less
Over-represented among young, minorities, urban residents, upper SES
NO FEMALE/MALE DIFFERENCES
Impact on health
Digital Revolution 3 Social networking – 50% of all adults % of internet users
“ Last search”: 48% for others; 36% for self; 11% for both
Read others’ commentaries: 34%
Find others who have same condition: 18%
Get info from social networking site: 11% SNS users
Get info from Twitter: 8% of Twitter users
Impact on health
How people make medical decisions
Mindset – general approach to medicine
Data/Numbers – and how they are presented
Stories
What technology has done to social networks and the role providers can play in them
Made it possible for experts to become “nodes” in people’s networks that can help them solve problems, make decisions
Allowed for immediate, spontaneous creation of networks that can include professionals
Given people a sense that there are more “friends” in their networks like professionals whom they can access when they have needs
June 25, 2010
How online searches affect decisions (1)
60% of e-patients say the information found online affected a decision about how to treat an illness or condition .
56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.
53% say it lead them to ask a doctor new questions , or to get a second opinion from another doctor.
49% say it changed the way they think about diet, exercise, or stress management .
38% say it affected a decision about whether to see a doctor.
38% say it changed the way they cope with a chronic condition or manage pain.
How online searches affect decisions (2)
The networked world of e-patients
What providers are good for
Diagnosis / treatments
Prescriptions
Recommendation for specialist
Recommendation for hospital
Info on alternative treatments
What others are good for
Emotional support
Practical advice for day-to-day coping
Recommendation for quick remedy for everyday issue
What’s a doctor to do about e-patients?
Minimum engagement
“ Tell me what you’re thinking” - Groopman
Ask about patients’ internet use, exposure on social networking, what they post and read
Medium engagement
Ask if patients would be willing to be let you/staff be a node on social media
Heavy engagement
Do it yourself
What social networks do for patients: Why physicians can be “nodes”
Attention – act as sentries
alerts, social media interventions, pathways through new influencers
Assessment – act as trusted, wise companion
help assess the accuracy of info, timeliness of info, transparency and rigor of info
Action – act as helpful producers/enablers
help give people outlets for expression, interpretation of their creations
Health outcomes payoff
Monitoring
Interventions and reinforcement
Skills training – meds/devices
Emotional and social support among peers
“ Information prescriptions”
Amateur research contributions – online recruitment, communities and clinical trials
Health outcomes payoff
Have you or has anyone you know been HELPED by following medical advice or health information found on the internet?
Major help – 10%
Moderate help – 20%
Minor help – 11%
No help – 50%
Don’t know – 4%
Have you or has anyone you know been HARMED by following medical advice or health information found on the internet?
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