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  • 1. FORCE : Facing Our Risk of Cancer Empowered - Overview
  • 2. FORCE: Facing Our Risk of Cancer Empowered
    • FORCE is an international nonprofit
    • organization devoted to individuals and
    • families affected by hereditary breast
    • and ovarian cancer.
  • 3.  
  • 4. FORCE FORCE is the only organization of its kind. Each year FORCE reaches thousands of people with life-saving information and support.
  • 5.  
  • 6. FORCE For many people, FORCE is the only way to connect with others who are facing hereditary cancer risk.
  • 7.  
  • 8. Our Mission To improve the lives of individuals and families affected by hereditary breast and ovarian cancer.
  • 9. Our Mission FORCE’s mission extends beyond support—we provide up-to-date information about research, risk management and treatment options
  • 10. www.FacingOurRisk.org Receives over 1.5 million hits-per-month, and over 50,000 sessions-per-month Our Website
  • 11.  
  • 12.
    • Hereditary cancer and cancer genetics
    • Assessing your risk and genetic counseling
    • Family history
    • Genetic testing
    FORCE Website: Information on Hereditary Cancer
  • 13.  
  • 14.  
  • 15.
      • Breast and ovarian cancer risks
      • Other cancer risks
      • Chemoprevention
      • Surveillance
      • Risk-reducing surgery
      • Reconstruction
      • Surgical menopause
    FORCE Website : Information on Cancer Risk Management
  • 16.  
  • 17.  
  • 18.  
  • 19.
      • Finding specialists in cancer genetics
      • Finding gynecologic-oncologists
      • Special clinics devoted to high-risk women
      • Clinical trials enrolling high-risk and BRCA patients
      • Insurance coverage for genetic testing
      • Financial help for genetic testing and health care
      • Genetic information and discrimination
    FORCE Website Information on Finding Health Care
  • 20.  
  • 21.  
  • 22.  
  • 23.  
  • 24. The only website with separate sections on hereditary cancer devoted to pre-vivors, breast cancer survivors, and ovarian cancer survivors. FORCE Website
  • 25.  
  • 26. Information on the latest policy and advocacy issues affecting our community FORCE Website
  • 27.  
  • 28.
    • Providing peer support for thousands of people and families affected by hereditary breast and ovarian cancer
    • Over 100,000 postings. Largest data-base of personal experiences from people with BRCA mutations or family history of hereditary cancer
    FORCE Website Message Boards
  • 29.  
  • 30.
    • Quarterly Newsletter
      • Circulation of over 7000 copies per issue
    • Topics:
      • Latest research on hereditary cancer
      • New resources for the high-risk community
      • Clinical trials enrolling high-risk women
      • Targeted therapy for BRCA cancers
      • Cancer prevention options
      • Exercise and cancer prevention
      • Reconstruction options
      • Access to genetic testing in underserved populations
      • Personal accounts sharing stories of hope and support
    Newsletter: Joining FORCEs
  • 31.  
  • 32.  
  • 33. 866-824-RISK (866-824-7475) FORCE Toll Free Helpline
  • 34.
    • Established as collaboration with University of Pennsylvania, Abramson Cancer Center
    • Reaching hundreds of callers yearly with peer support, resources, and information
    • The only help-line of it’s kind, for people concerned about hereditary breast and ovarian cancer and cancer risk
    FORCE Helpline
  • 35.  
  • 36.  
  • 37.  
  • 38.
    • Joining FORCEs Conference on Hereditary Breast and Ovarian Cancer: www.facingourrisk.org /conference
    • Established as collaboration with H. Lee Moffitt Cancer Center and Research Institute
    • Patient-focused conference with topics of interest to our community
    • 2006 conference attracted 250 attendees from 5 countries and 28 states
    Conference: Joining FORCEs
  • 39. May 18-19, 2007 Open to 400 attendees
    • www.facingourrisk.org /conference
    TOPICS Modifiers of risk Cancer early detection options New treatment for BRCA cancers Cancer prevention options Coping with risk Diet and lifestyle Relaxation Managing menopause Reconstruction options Fertility and adoptions
  • 40.  
  • 41. Free webcast of 2006 conference available on-line www.facingourrisk.org/webcast Joining FORCEs Conference – 2006
  • 42.
    • Available free to health-care providers, facilities, and people concerned about their risk for cancer
    FORCE Brochures
    • Genetic Information, Privacy and Discrimination” developed as a collaboration with the National Society of Genetic Counselors. only national brochure on genetic information and discrimination
    • Over 100,000 brochures have already been distributed throughout the United States and Canada
  • 43.  
  • 44.
    • An event to raise awareness of the link between hereditary breast and ovarian cancer
    • In 2006, events were held in Boston, Tampa, and in Ft. Lauderdale (Ft. Lauderdale event was a collaboration with the National Ovarian Cancer Coalition).
    Passing of the Torch
  • 45. Information available on-line at: www.facingourrisk.org/torch Passing of the Torch
  • 46.
    • Spanish-language booklet and website
    • Articles to highlight the importance of genetic counseling in conjunction with genetic testing (collaboration with the National Society of Genetic Counselors)
    • Looking Back, Living Forward Program to promote sharing of family stories and family medical information
    Developing Programs