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BRAD ZEBRACK BRAD ZEBRACK Document Transcript

  • Curriculum Vitae<br />BRAD ZEBRACK<br />PERSONAL DATA<br />Business Address:University of MichiganSchool of Social Work1080 S. University, Room 2778Ann Arbor, MI 48109-1106(734) 615-5940zebrack@umich.eduHome:720 Fifth St.Ann Arbor, MI 48103(734) 929-5096(213) 200-4270 (cell)Spouse: Joanne KelleherDaughter: Sierra Grace (7 years)<br />EDUCATION<br />Advanced Degrees:Doctor of Philosophy, 1999<br />University of Michigan School of Social Work (Sociology)<br />Ann Arbor, Michigan<br />Master of Social Work, 1992<br />University of California School of Social Welfare<br />Berkeley, California<br />Master of Public Health, (Community Health Education) 1992<br />University of California School of Public Health<br />Berkeley, California<br />Baccalaureate Degree:Bachelor of Arts, 1982<br />UCLA<br />Los Angeles, California<br />Major: Sociology<br />PROFESSIONAL EXPERIENCE<br />1998-1999Clinical Social Worker, Division of Hematology/Oncology<br />University of Michigan Comprehensive Cancer Center<br />Ann Arbor, Michigan<br />1993-1994Clinical Social Worker, Department of Hematology/Oncology<br />Children’s Hospital Medical Center<br />Oakland, California<br />1993-1994Therapist Intern<br />The Wellness Community<br />Walnut Creek, California<br />PROFESSIONAL EXPERIENCE – (continued)<br />1992-1993Educational Programs Coordinator<br />American Cancer Society<br />San Francisco, California<br />1989-1990Social Services Intern, Client Services Department<br />San Francisco AIDS Foundation<br />San Francisco, California<br />1985-1988Youth Programs Coordinator<br />CYO-Caritas Creek Environmental Education Program<br />San Francisco, California<br />1984-1985Park Interpreter<br />US Department of Interior, National Park Service<br />Golden Gate National Recreation Area/Alcatraz Island<br />San Francisco, California<br />1981-1983Resident Assistant/Educational Programs Assistant<br />UCLA Office of Residential Life<br />Los Angeles, California<br />RESEARCH AND SCHOLARSHIP<br />ACADEMIC APPOINTMENTS<br />2008-presentAssociate Professor<br />Faculty Affiliate, Curtis Center for Social Work Research<br />University of Michigan School of Social Work<br />2008-presentAdjunct Associate Professor<br />University of Michigan School of Public Health<br />2008-presentMember, Socio-Behavioral Program<br />University of Michigan Comprehensive Cancer Center<br />2003-2008Assistant Professor/Sarnat Junior Faculty Scholar<br />University of Southern California School of Social Work<br />FELLOWSHIPS AND SCHOLARSHIPS<br />2009-2010Faculty Scholar, Faculty Scholars Program in Integrative Healthcare<br />University of Michigan<br />2005Research Fellow, Summer Institute<br />Office of Social Science and Behavioral Research, <br />Design and Conduct of Randomized Clinical Trials for Behavioral Interventions <br />1999-2003Post-Doctoral Research Fellow/Pennington Scholar<br />David Geffen School of Medicine at UCLA, Department of Pediatrics<br />1996-1999Pre-doctoral Training Fellow<br />National Institute of Aging (NIA) Training Grant -- “Social Research Training on Applied Issues of Aging.”<br />University of Michigan School of Social Work<br />HONORS AND AWARDS<br />National Academies of Practice, Social Work Academy, Distinguished Scholar Nominee, 2009<br />USC Mellon Award for Excellence in Mentoring, Nominee, 2008<br />Early Investigator Award, Society for Social Work and Research, Nominee, 2006<br />New Investigator Award, American Psychosocial Oncology Society (APOS), 2005<br />Best Scientific Poster Award, National Cancer Institute Office of Cancer Survivorship and American Cancer Society, 2004<br />American Cancer Society Quality of Life Award, Association of Oncology Social Work (AOSW), 2003<br />Oncology Social Work Research Award, Association of Oncology Social Work (AOSW), 2002<br />HONORS AND AWARDS – (continued)<br />Best Scientific Poster Award, University of Texas M.D. Anderson Cancer Center, Issues in Adolescent and Young Adult Leukemias, 2001<br />Merle-Carson Lectures Award, Southwest Pediatrics Society, 2001<br />Chancellor’s Award for Postdoctoral Research, Departmental Nominee (UCLA School of Medicine, Department of Pediatrics), 2001<br />Pennington Scholar, UCLA Jonsson Cancer Center Foundation, 1999<br />Student Award, Blue Cross Blue Shield of Michigan Foundation, 1995-‘96<br />Robert Murphy Memorial Fellowship, American Cancer Society, California Division, 1989<br />Cancer Communications Award, American Cancer Society, Alameda Unit, California, 1989<br />Alpha Kappa Delta International Sociology Honor Society, UCLA, 1979<br /> <br />GRANTS AWARDED<br />University of Michigan Comprehensive Cancer Center, “Epidemiology and Correlates of Posttraumatic Responses to Cancer Treatment in Young Adult Survivors of Childhood Cancer,” Principal Investigator, 11/09-10/10.<br />University of Michigan Comprehensive Cancer Center, Survivorship Initiative, “Quality of Life Assessment in Young Adult Cancer Survivors.” Principal Investigator, 5/1/09-4/30/10.<br />HopeLab, Inc.: “The Impact of Cancer for Older Adolescents and Young Adults: Measuring Outcomes and Enhancing Care.” Principal Investigator, 7/07-6/10.<br />NIH/NCI: “Quality of life assessment in childhood cancer survivors.” (K07CA100380). Principal Investigator, 9/03-8/09.<br />University of Southern California, Office of the Provost: Undergraduate Research Program, 8/07-5/08.<br />NIH/NCI: “Families of Childhood Cancer Survivors,” (R03CA113145-01A1). Principal Investigator, 2005-’07.<br />CDC/Lymphoma Research Foundation: “Assessing the Impact of Cancer for Young Adult Lymphoma Survivors,” (U58/CCU224305-02). Co-Investigator, 2005-’06.<br />University of Southern California, Office of the Provost: Undergraduate Research Program, 8/05-5/06.<br />Lance Armstrong Foundation: “Assessing the needs of adolescent and young adult cancer patients and survivors.” Principal Investigator, 2005-‘06.<br />Association of Oncology Social Work: “Member Survey.” Principal Investigator, 2005-‘06.<br />NIH: Student Loan Repayment Program, 2003-‘06<br />GRANTS AWARDED - (continued)<br />The John Randolph Haynes and Dora Haynes Foundation: “Evaluation of ‘Teen Impact’: A Program for Adolescents with Cancer.” Principal Investigator, 2004-’05.<br />University of Southern California, Office of the Provost: Undergraduate Research Program, 8/04-5/05.<br />Lance Armstrong Foundation: “Psychosocial, Behavioral, and Pain Outcomes in Long-term Survivors of Childhood Cancer.” Co-Investigator, 2002-’04.<br />American Cancer Society, Inc.: “Explaining psychosocial and behavioral outcomes in long-term survivors of childhood cancer.” Co-Investigator, 2002-’03.<br />NIH: “Childhood Cancer Survivor Study.” National Research Service Award (NRSA F32CA89875-01). Post-Doctoral Research Fellow, 2001-’03.<br />American Cancer Society, California Division: “Explaining Psychological and Health Behavior Outcomes In Long-Term Survivors of Childhood Cancer: A Comparison of Latino and Non-Latino Survivors.” Principal Investigator, 2000-’01.<br />American Cancer Society, Inc: “Childhood Cancer Survivor Study.” Post-Doctoral Fellow, 2000-’01.<br />American Cancer Society, Inc.: “Training Grant in Clinical Oncology Social Work: Advanced Clinical Practice and Research,” (PMSW-98-324-01). Clinical Research Pre-Doctoral Fellow, 1998-’99.<br />Rackham School of Graduate Studies, University of Michigan: Doctoral Dissertation Support Grant, 1998-’99.<br />Rackham School of Graduate Studies, University of Michigan, Office of the Vice President for Research, Faculty-Student Research Partnership, 1995-’96.<br />PEER REVIEW ACTIVITIES<br />External Reviewer, Tenure and Promotion Review, Dr. Shelby Langer, University of Washington School of Social Work, 2009<br />External Reviewer, Tenure and Promotion Review, Dr. Barbara Jones, University of Texas School of Social Work, 2009<br />Extramural Reviewer, National Institutes of Health, Special Emphasis Panel/Scientific Review Group 2009/10 ZRG1 BBBP-L (58), Recovery Act Limited Competition: NIH Challenge Grants in Health and Science Research (RC1), 2009.<br />Cochrane Childhood Cancer Protocol Review Group, Amsterdam, The Netherlands, " Psychosocial interventions for survivors diagnosed with cancer during adolescence or young adulthood,” 2009 <br />Ad hoc Reviewer, Society of Behavioral Medicine, 2009<br />Ad hoc Reviewer, Netherlands Organization for Scientific Research, 2008<br />PEER REVIEW ACTIVITIES – (continued)<br />Chair, American Cancer Society, Peer Review Committee on Research and Training Grants in Oncology Social Work, 2006-‘08<br />Grants Review Committee Member, American Cancer Society, Peer Review Committee on Research and Training Grants in Oncology Social Work, 2005-‘06<br />Reviewer, American Society of Clinical Oncology, “Clinical Practice Guidelines: Recommendations for the on-going care of adult cancer survivors: Cardiopulmonary late effects,” 2006.<br />Member, Scientific Review Group, National Institutes of Health, National Cancer Institute, Center to Reduce Cancer Health Disparities, “Special Populations Networks (SPNs) for Cancer Awareness Research and Training,” 2000-‘03<br />Extramural Reviewer, National Institutes of Health, National Cancer Institute, Scientific Review Group, Long-Term Cancer Survivors: Research Initiative (ZCA1 SRRB-Y F1 R), 2003.<br />Member, Panel Review and Site Visit Team, National Institutes of Health, National Cancer Institute, Molecular Targets of Germinal Center B-Cell Lymphomas (1 P01 CA092625-01), 2001.<br />Extramural Reviewer, National Institutes of Health, National Cancer Institute, Special Emphasis Panel, Innovative Technologies for the Molecular Analysis of Cancer (PAR 99-100, 101, 102, and 103), 1999.<br />Extramural Reviewer, National Institutes of Health, National Cancer Institute, Division of Extramural Activities, Scientific Review Group, Long-term Cancer Survivors: Research Initiatives (RFA-CA97-018), 1998.<br />CONSULTATION AND ADVISORY ACTIVITIES – SCHOLARLY/RESEARCH <br />Coordinator, Member Survey, American Psychosocial Oncology Society, “Assessing the state of psychosocial cancer support services in America,” 2009.<br />Consultant, National Cancer Institute/SEER Adolescent and Young Adult Cancer Survivor Patterns of Care and Feasibility Study, 2007-present<br />Data Safety Monitoring Committee, “ADAPT-C Study” (PI: Kathy Ell), 2005-‘08.<br />Consultant, “A website for outpatient quality of life assessment,” (P.I. John Wu). Johns Hopkins Bloomberg School of Public Health, Division of Health Policy and Management, Baltimore, MD, 2005-2007<br />Member and Chair, Psychosocial Working Group, Adolescent and Young Adult Oncology Program Review Group, National Institutes of Health, National Cancer Institute, 2005-2006.<br />Consultant, National Cancer Institute, Division of Cancer Control and Population Sciences, Cancer Outcomes Measurement Working Group, 2001-2002.<br />Consultant, Childhood Cancer Survivor Study (CCSS), (P.I. Leslie Robison), Psychosocial, Neurological, Neuropsychological Working Group, 1999.<br />EDITORIAL SERVICES<br />Journal of Psychosocial Oncology, Editorial Board, 2009-present<br />Journal of Cancer Survivorship, Editorial Board, 2006-present <br />Addiction<br />BMC Cancer<br />Cancer Practice<br />Cancer<br />Fertility and Sterility<br />Haematologica<br />Health and Quality of Life Outcomes<br />International Journal of Adolescent Medicine and Health<br />Journal of Clinical Oncology<br />Journal of Pediatric Psychology<br />Journal of Psychosocial Oncology<br />Journal of the American Medical Association<br />Journal of the National Cancer Institute<br />Medical and Pediatric Oncology<br />Patient Education and Counseling<br />Pediatric Blood and Cancer<br />Psychology and Health<br />Psycho-Oncology<br />Quality of Life Research<br />Social Science and Medicine<br />Social Work in Health Care<br />Supportive Care in Cancer<br />The Gerontologist<br />The Hospice Journal<br />The Journal of Crisis Intervention and Suicide Prevention<br />EXPERT TESTIMONY, PUBLIC/MEDIA PRESENTATIONS<br />Interview on “Cancer Survivorship: A Psychosocial Perspective” published in Oncology Issues, May/June, 2008, Association of Community Cancer Centers, Rockville, MD.<br />Cited in Special Report on Medicine and Health, The Guardian, United Kingdom. “A new study shows chatting to other cancer patients online can help young people's recovery,” Thursday November 16, 2006.<br />Interview, Oncology Times, “Improving the quality of young adult cancer care through communication,” May 10, 2007, p. 37.<br />Barriers to Translating Research into Reductions in the Burden of Cancer, Expert Testimony before the President’s Cancer Panel for the National Cancer Program, US Department of Health and Human Services, National Institutes of Health, National Cancer Institute, San Francisco, CA. August, 2004.<br />TEACHING<br />TEACHING EXPERIENCE - Courses<br />UM School of Social Work, SW 613, Psychological, Behavioral and Ecological Issues in Health, Winter, 2010<br />UM School of Social Work, SW 699, Social Work Practice in Health Promotion and Disease Prevention, Fall, 2009<br />UM School of Social Work, SW 613, Psychological, Behavioral and Ecological Issues in Health, Winter, 2009<br />USC School of Social Work, SOWK 690, Faculty-Initiated Research Project, 2007-‘08<br />USC School of Medicine, Department of Health Promotion, HP 490, Directed Research, 2006-‘07<br />USC School of Social Work, SOWK 690, Faculty-Initiated Research Project, 2006-‘07<br />USC School of Social Work, SOWK 200, Inequality in American Political and Social Policy, Fall, 2006<br />USC School of Social Work, SOWK 690, Faculty-Initiated Research Project, 2005-‘06<br />USC School of Medicine, Department of Health Promotion, HP 490, Directed Research, 2005-‘06<br />USC School of Social Work, SOWK 690, Faculty-Initiated Research Project, 2005-‘06<br />USC School of Social Work, SOWK 632, Program Planning and Evaluation in Health Settings, Fall, 2005<br />USC School of Social Work, SOWK 690, Faculty-Initiated Research Project, 2004-‘05<br />USC School of Medicine, Department of Health Promotion, HP 490, Directed Research, 2004-‘05<br />USC School of Social Work, SOWK 626, Research in Health Settings, Fall, 2004<br />USC School of Social Work, SOWK 626, Research in Health Settings, Fall, 2003<br />UM College of Letters, Science and Arts, Department of Sociology, Introduction to Medical Sociology, 1998<br />UM College of Letters, Science and Arts, Department of Sociology, Project Community, 1994<br />TEACHING EXPERIENCE – Guest Lectures<br />USC School of Social Work, SOWK 599, “Photovoice Methodology,” Fall, 2007<br />USC School of Social Work, SOWK 632, “Qualitative Research,” Fall, 2007<br />USC School of Social Work, SOWK 763, “Cancer Survivorship Research,” Fall, 2007<br />USC School of Social Work, Health Concentration Immersion, “Health, Medicine and Social Justice,” Fall, 2007<br />USC School of Social Work, Field Instructors Seminar, “Sharing the fruits of our success: Teaching for diversity and social justice,” May 7, 2007.<br />USC School of Social Work, SOWK 632, “Qualitative Research,” Fall, 2006<br />USC School of Social Work, SOWK 763, “Cancer Survivorship Research,” Spring, 2005<br />USC School of Social Work Field Instructors Seminar, “Medicine and Ethics: Where the Search for Cures and Cultures Collide,” Spring, 2004.<br />USC School of Social Work, All School Day, “Health Care and Civil Rights,” Spring, 2004.<br />USC School of Social Work, SOWK 629, “Using qualitative research software,” Fall, 2004<br />TEACHING EXPERIENCE – Student Advising and Mentoring<br />Faculty Mentor, Undergraduate Research Opportunity Program, University of Michigan, 2009-‘10<br />Faculty Mentor, Undergraduate Research Program, University of Southern California, Office of the Provost, 2007-‘08<br />Faculty Mentor, California Pre-doctoral Program, California State University Stanislaus (supervised summer intern), 2006-‘07<br />Faculty Mentor, University of Pittsburgh School of Social Work (supervised summer intern), 2006-‘07<br />Faculty Mentor, Undergraduate Research Program, Office of the Provost, University of Southern California, 2005-‘06<br />Faculty Mentor, University of Southern California, McNair Scholars Program, 2005-‘06<br />Faculty Mentor, University of Southern California, Keck School of Medicine, Baccalaureate/MD Program, 2005-‘06<br />SUPERVISION OF STUDENTS RECEIVING ADVANCED DEGREES<br />Pamela Leung, PhD, Dissertation Committee Member, Social Work, University of Hong Kong, 2007<br />Anjanette Wells, PhD, Social Work, University of Southern California, Qualifying Exam, 2007<br />Chris Thomson, PhD, Dissertation Committee Chair, Social Work, University of Southern California, 2007; and Qualifying Exam, 2006<br />Maanse Hoe, PhD, Dissertation Committee Member, Social Work, University of Southern California, 2007; and Qualifying Exam, 2005<br />Jung-won Lim, PhD, Dissertation Committee Chair, Social Work, University of Southern California, 2006; and Qualifying Exam Committee, Chair, 2004<br />Veronica Reis, PhD, Dissertation Committee Member, Educational Psychology, University of Southern California, 2006<br />E.Maxwell Davis, PhD, Social Work, University of Southern California, Qualifying Exam, 2005<br />Cathy Bauld, PhD, Dissertation Committee Member, Psychology, University of Melbourne, 2003 <br />Daniela Wittman, MSW, Social Work, Michigan State University, Lansing, MI; University of Michigan Comprehensive Cancer Center, Department of Urology, External Faculty Advisor.<br />Tara Schapmire, MSW, Social Work, University of Louisville, Louisville, KY, Qualifying Exam Committee, 2009<br />Jennifer Mills, MSW, MPH, Dissertation Committee Member, Doctoral Candidate, Social Work, New York University, New York, NY, 2009<br />Jaehee Yi, MSW, Doctoral Student, Dissertation Committee Chair (former), Social Work, University of Southern California; and Qualifying Exam Committee Chair, 2008; Doctoral Advisor, 2008-present <br />Frances Nedjat-Haiem, MSW, Doctoral Student, Social Work, University of Southern California, Qualifying Exam Committee, 2007 <br />Margarita Villagrana, MSW, Doctoral Student, Social Work, University of Southern California, Qualifying Exam Committee, 2006 <br />Karen Kirschbaum, MSW, Doctoral Candidate, Social Work, State University of New York Stony Brook<br />Joan Nee Wey Khng, Doctoral Candidate, Social Work and Social Administration, University of Hong Kong<br />Sage Bolte, MSW, Doctoral Candidate, Social Work, Catholic University, Washington, DC<br />Colin Goodwin, Masters Thesis Committee, California Lutheran College, 2009<br />SERVICE<br />UNIVERSITY ACTIVITIES<br />University of Michigan School of Social Work, Ann Arbor, Michigan <br />Member, Curriculum Committee, 2008-‘10<br />Chair, Health/Mental Health Special Interest Group, 2008-present<br />University of Michigan Comprehensive Cancer Center (UMCCC)<br />Research Consultant, Center for Sexual Health, University of Michigan Health System, 2009-present<br />Member, University of Michigan Comprehensive Cancer Center, 2008-present<br />Member, Breast Cancer Survivorship Research Group, 2008-present<br />Member, Quality of Life Research Group, 2008-present<br />Staff Training: Customer Service Orientation, Winter/Spring, 1997.<br />Planning Committee, Cancer Survivors Day Town Hall and Celebration, Ann Arbor, MI, 1996-‘97<br />University of Southern California, Los Angeles, California<br />Member, Health Professions Subcommittee, University Committee on Curriculum, Office of the President, 2007-‘08<br />Member, Strategic Planning Committee, University of Southern California, Office of the Provost, 2003.<br />USC School of Social Work, Los Angeles, California<br />Member, Sequence/Concentration Advisory Board, 2007-‘08<br />Member, Curriculum Policy and Review Committee, 2006-‘08<br />Chair, Health Concentration, 2005-‘08<br />Member, Hamovitch Research Center Advisory Committee, 2003-‘08<br />Member, Undergraduate Social Work Minor Development Committee, 2007<br />Co-Chair, Good Neighbors Campaign, 2007<br />Member, All School Day planning committee, 2005-‘07.<br />Doctoral Admissions Review, 2004-‘07<br />Member, Faculty Council, 2005-‘06.<br />Member, MSW Admissions Review Committee, 2004-‘06.<br />Member, Leadership Course Development, 2004-‘06<br />USC/Norris Comprehensive Cancer Center, Los Angeles, California<br />Associate Member, Cancer Control Research Program, 2004 -‘08<br />CONSULTATION AND ADVISORY ACTIVITIES <br />Co-Chair, Developing Standards of Care for Adolescent and Young Adult Oncology, Lance Armstrong Foundation, Bethesda, MD, June 7-8, 2009.<br />Member, Steering Committee and Co-Chair, Standards of Care Task Force, LiveStrong Young Adult Alliance, Lance Armstrong Foundation, 2006-2009<br />Educational Consultant, Strategic Planning, American Case Management Association, Little Rock, AK, April, 2009. <br />Chair, Annual Meeting Planning Committee, Lance Armstrong Foundation LiveStrong Young Adult Alliance, 2008<br />Member, Consumer Advocates in Research and Related Activities (CARRA) Program, Office of the Director, National Cancer Institute, 2001-2007.<br />Author for a commissioned white paper. National Cancer Institute, Office of Education and Special Initiatives: The impact of cancer on pediatric and young adult patients and their families: Psychosocial Issues, 2004.<br />National Cancer Institute, Liaison Activities Branch, Cancer Advocates in Research and Related Activities (CARRA) Evaluation Planning Group, 2002.<br />Federal Appointee, National Cancer Institute Director’s Consumer Liaison Group (DCLG), 1997-2002<br />Forum Planning Coordinator, National Cancer Institute, Office of the Director, “Promoting NCI/Advocacy Partnership to Eliminate Health Disparities in Cancer Outcomes,” 2000-2001<br />Consultant and Writer, Lance Armstrong Foundation, “LiveStrong” Program, 2001<br />Consultant, Strategic Planning Meeting, Lance Armstrong Foundation, Austin, TX, 2001<br />Consultant, Big Sky Cancer Recovery and Resource Center, Strategic Planning Meeting, Bozeman, MT, 2001.<br />Consultant, Candlelighters Childhood Cancer Foundation, You are Not Alone: A sourcebook for support groups for families of children with cancer, 2000<br />Consultant, Candlelighters Childhood Cancer Foundation, Know Before You Go: The Childhood Cancer Journey (A handbook for parents of children with cancer), 1998.<br />Consultant, Imperatives for Quality Cancer Care: Access, Advocacy, Action and Accountability. Washington, DC: National Coalition for Cancer Survivorship, 1996 <br />Consultant, The PLUS Program Educational Manuals (Non-Hodgkin’s Lymphoma; Hodgkin’s disease). Vancouver, WA: McCarthy Medical Marketing, Inc., 1996<br />CONSULTATION AND ADVISORY ACTIVITIES – (continued)<br />Consultant, Action Against Cancer: How you can be an advocate for change. Washington, DC: Center for the Advancement of Health, 1996.<br />Consultant, NCCS Town Hall Meeting Guide: Survivors Experiencing Empowerment Through Action. Washington, DC: National Coalition for Cancer Survivorship, 1995.<br />PROFESSIONAL AND PATIENT EDUCATION PROGRAMS<br />Workshop facilitator, “Running an effective support group for blood cancer survivors,” Family Support Group Facilitator Training Conference, Leukemia and Lymphoma Society, Orlando, FL, January 9, 2010.<br />Panelist, Leadership Webinar, “Healthcare in the 21st Century and the Impact on Case Management,” American Case Management Association, January 20, 2010.<br />Panelist, Social Justice Grand Rounds, University of Michigan Health System, Department of Social Work, November 3, 2009.<br />Panelist, Social Justice Grand Rounds, University of Michigan Health System, Department of Social Work, October 6, 2009.<br />Guest speaker, Contemporary Issues in Oncology Case Management: Cancer Survivorship, Case Management Society of America, St. Louis, MO, October 20, 2009.<br />Webinar guest speaker, Contemporary Issues in Oncology Case Management: Cancer Survivorship, Humana Corporation, September 28, 2009.<br />Workshop presenter, “Strategies and Resources for Integrating Social Work Research and Practice,” University of Michigan Health System, Department of Social Work, Ann Arbor, MI, October 15, 2009.<br />Faculty, Professional Education Symposium, Survivorship Education for Quality Cancer Care, City of Hope National Medical Center, Duarte, CA, 2006-2009<br />Focus Group Facilitator, Children’s Brain Tumor Foundation, Assessing Barriers to Employment, January 22-23, 2009, New York<br />Guest speaker, Life After Cancer: Shaken Up, Getting Back, Movin’ On, The Wellness Community of Southeast Michigan, February 19, 2009.<br />Pre-conference Workshop, “Integrating Research and Practice: Enhancing Oncology Social Workers’ Contribution to Practice-Relevant Knowledge,” Association of Pediatric Oncology Social Workers annual assembly, Bar Harbor, ME, May 15, 2008.<br />PROFESSIONAL AND PATIENT EDUCATION PROGRAMS – (continued)<br />Invited Keynote Speaker, Cancer Survivors Conference, The Pediatric Hematology Oncology Transplant Program and The Kids Cancer Care Foundation of Alberta, Calgary, Alberta, Canada. June, 2007.<br />Invited Keynote Address, Cancer Survivor Day Conference, St. Joseph’s Hospital, Atlanta, GA. April, 2007.<br />Health and Supportive Care Needs of Young Adult Cancer Patients and Survivors, American Cancer Society teleconference. April, 2007.<br />Young Adults with Cancer: On Being Young and Living Whole, North American Educational Forum on Lymphoma, Lymphoma Research Foundation, Los Angeles, CA. October, 2006.<br />Social Relationships and Peer Support, Life After Childhood Cancer: Implications for Care. A program for healthcare professionals, The Leukemia & Lymphoma Society, Mattel Children’s Hospital at UCLA, Los Angeles, CA. March, 2006.<br />Mentoring workshop, International Confederacy of Childhood Cancer Parent Organizations/Survivors group, 37th Congress of the International Society of Paediatric Oncology (SIOP), Vancouver, British Columbia, Canada. September, 2005.<br />USC School of Social Work, Staff training presentation. Men and Cancer, (PI: Kathy Ell), 2005<br />Mentoring Workshop and Relationships and Sexuality workshop Young Adult Survivor Conference, Camp Make-a-Dream, Gold Creek, MT. May, 2005.<br />Life After Cancer: Shaken Up, Getting Back, Movin’ On, Young Adult Survivors Conference, Children’s Oncology Camp Foundation/Camp Māk-a-Dream, Keynote Address, Gold Creek, MT. May, 2005.<br />USC/Children’s Hospital Los Angeles, Advanced Oncology Nursing Seminar, Guest Lecture, “Childhood Cancer Survivorship Research,” 2004.<br />Life After Cancer: Shaken Up, Getting Back, Movin’ On. St. Jude’s Children’s Hospital, Cancer Survivors Day Celebration Keynote Address, Memphis, TN. June, 2003.<br />Workshop, “and the survey says…Family Issues for survivors of childhood cancer.” St. Jude Children’s Research Hospital, Cancer Survivors Day Celebration Workshop, Memphis, TN. June, 2003.<br />USC/Children’s Hospital Los Angeles Teen Impact Program Annual Retreat, Survivorship Workshop, Anaheim/Disneyland, CA, November 23, 2003.<br />Cancer Survivorship and Quality of Life Issues. Chai Lifeline teleconference. October, 2001. <br />PROFESSIONAL AND PATIENT EDUCATION PROGRAMS – (continued)<br />Workshop coordinator, “Healing the Whole Self: Empowering the Body, Empowering the Mind: A workshop for those whose lives have been touched by cancer.” Cancer Survivors Network, Ann Arbor, Michigan, October 3, 1998.<br />Survivors of Childhood Cancer. Family Day ‘97: Families Surviving the Journey of Childhood Cancer, Families of Children with Cancer, Toronto, Canada. September, 1997.<br />PROFESSIONAL SOCIETIES<br />American Psychosocial Oncology Society (APOS)<br />Member, Board of Directors, 2007-‘09<br />Association of Oncology Social Work (AOSW)<br />Nominating Committee, 2007-‘09<br />Chair, Social Workers in Oncology Research Group (SWORG), 2003-‘08 <br />Member, Board of Directors, 2003-‘08 <br />Association of Pediatric Oncology Social Workers (APOSW)<br />National Association of Social Workers (NASW)<br />Invited Participant, National Association of Social Workers Social Work Congress, “A Coming Together of the Profession,” Washington, DC, 2005<br />COMMUNITY ORGANIZATIONS AND ACTIVITIES<br />Professional Advisory Board, The Wellness Community of Southeast Michigan, 2008-present<br />Professional Advisory Board, Children’s Brain Tumor Foundation, 2006-present <br />Medical Advisory Board, Planet Cancer, 2004-present <br />Advisory Board, Children’s Oncology Camp Foundation, 2003-present<br />Medical Advisory Board, Fertile Hope, 2005-2009<br />Member, Board of Directors, Planet Cancer, 2001-2004 <br />Program staff volunteer, Camp Māk-a-Dream, Missoula, MT, 2001-‘03<br />1st Vice President, Board of Directors, Candlelighters Childhood Cancer Foundation, 2000-2003<br />Founder and Chair, Cancer Survivors Network, Ann Arbor, MI, 1997-1999<br />Board of Directors, National Coalition for Cancer Survivorship, 1993-1998.<br />Cyclist, Conquer Cancer Coast-To-Coast National Bike Tour, Detroit, MI to Washington, DC, Fall, 1998.<br />Speakers’ Bureau, National Coalition for Cancer Survivorship, 1989-‘96<br />Program Advisory Board, Lymphoma Research Foundation of America, 1996<br />Nominating Committee Chair, National Coalition for Cancer Survivorship, 1994-’95.<br />Advisory Board, " Teens as Teachers" , Americans for Non-smokers' Rights, 1991-1994.<br />Camp Social Worker, Camp Okizu (for children with cancer), 1992-‘93 <br />Steering Committee, Bay Area Cancer Coalition, Berkeley, CA, 1992-‘93<br />National Assembly Planning Committee, National Coalition for Cancer Survivorship, 1992-‘93<br />Board of Directors, Northern California Society of Public Health Educators (NCSOPHE), 1991-‘92<br />Student Health Advisory Committee, University of California, Berkeley, 1990-‘91<br />Tour de Cure Bike-a-thon planning committee, American Cancer Society, Oakland, CA., 1990<br />Cancer Survivorship Celebration planning committee, American Cancer Society, Oakland, CA., 1987<br />CanSupport Program volunteer, American Cancer Society, Oakland, CA, 1986-‘88<br />INVITED ACADEMIC PRESENTATIONS AND SYMPOSIA<br />Keynote Address, Psychosocial Issues and Behavioral Risk Behaviors Among Young Adults with Cancer, 6th International Conference, Teenage Cancer Trust, Royal Society of Medicine, London, England, June 9, 2010.<br />Pre-conference workshop, Psychosocial issues for adolescent and young adult cancer patients: Research and clinical practice, American Psychosocial Oncology Society annual meeting, New Orleans, LA, February 18, 2010.<br />Plenary speaker, “The effect of cancer on the psychosocial development of young adults,” Family Support Group Facilitator Training Conference, Leukemia and Lymphoma Society, Orlando, FL, January 9, 2010.<br />Health Services Research Seminar, Living Beyond the Sword of Damocles: Childhood Cancer Survivorship, University of Michigan Health System, Department of General Pediatrics, Child Health Evaluation and Research Unite, May 12, 2009.<br />Guest speaker, “Cancer Survivorship Across the Lifespan,” University of Michigan Comprehensive Cancer Center, Quality of Life Research Group, October, 2008.<br />Psychiatry Rounds, The Unique Needs and Experiences of Young Adult Cancer Patients, Memorial Sloan-Kettering Cancer Center, New York, NY. February, 2008.<br />Plenary Speaker, Patient Perspectives on Patient-Reported Outcomes, International Society of Quality of Life Research annual program meeting, Budapest, Hungary. June, 2007.<br />Grand Rounds, Families of Childhood Cancer Survivors: Using Photovoice to Express the Impact of Cancer and Engage Health Care Providers in the Enhancement of Health Care Service Delivery, Division of Hematology/Oncology, Children’s Hospital Los Angeles, CA. March, 2007.<br />Childhood Cancer and Quality of Life, Department of Sociology, Peking University, Beijing, China. December, 2006.<br />Cancer Survivorship Across the Life Span, Paper presented at the 5th International Conference on Social Work in Health and Mental Health, Hong Kong, China. December, 2006.<br />Grand Rounds, Social Relationships and Peer Support, Life After Childhood Cancer, Cancer Prevention & Control/Population Sciences seminar series, H. Lee Moffitt Cancer Center, Tampa, Florida. October, 2006.<br />Cancer Survivorship and Quality of Life, USC Norris Cancer Center Survivorship Advisory Council, Los Angeles, CA. September, 2006.<br />Qualitative Methods in Cancer Survivorship Research: Understanding the Experience, UCLA Qualitative Research Interest Group, Los Angeles, CA. December, 2005.<br />INVITED ACADEMIC PRESENTATIONS AND SYMPOSIA – (continued)<br />Psycho-Oncology Rounds, Pediatric Cancer: Psychosocial Issues, City of Hope National Medical Center, Duarte, CA. May, 2005.<br />27th Annual Fiesta Educativa Conference at USC, “Long-term Care for Children with Special Health Care Needs.” Spring, 2005.<br />Grants for your Psychosocial Oncology Research Project, Society for Social Work Research Pre-conference seminar “Cancer and Health Disparities, Miami, FL. January, 2005.<br />Coming to Terms with Infertility and Parenthood after Cancer, University of Texas MD Anderson Cancer Center, Parenthood After Cancer: Today’s Options and Tomorrow’s Hopes, Houston, TX. March, 2004.<br />Sexual Functioning and Fertility, National Cancer Institute’s Office of Cancer Survivorship and the American Cancer Society’s Behavioral Research Program, “Cancer Survivorship: Pathways to Health after Treatment,” Washington, D.C. June, 2004.<br />Plenary Speaker, Living Beyond the Sword of Damocles: Quality of Life and Cancer Survivorship, Association for Pediatric Oncology Social Work annual assembly, St. Louis, MO. May, 2004.<br />Assessing the Impact of Cancer in Long-term Survivors: What should we ask and how should we ask it? Division of Cancer Prevention and Control Research, UCLA Jonsson Comprehensive Cancer Center, Los Angeles, CA. June, 2003.<br />American Cancer Society Quality of Life Award Presentation. Association of Oncology Social Workers, Salt Lake City, UT. April, 2003.<br />Assessing the Impact of Cancer in Long-term Survivors. Quality of Life Research Symposium, UCLA School of Nursing, Los Angeles, CA. June, 2002.<br />Living Beyond the Sword of Damocles: Surviving Childhood Cancer. Division of Cancer Prevention and Control Research, UCLA Jonsson Comprehensive Cancer Center, Monthly seminar. December, 2001.<br />Consumer Advocates in Research. National Cancer Institute Advocates in Research Workshop. Rockville, MD. September, 2000.<br />Living beyond the Sword of Damocles: Quality of life among long-term survivors of childhood cancer. Quality of Life Research Symposium, UCLA School of Nursing, Los Angeles, CA. September, 2000.<br />Clinical Trials: Building Partnerships for the Future. Michigan Society of Hematology and Oncology. Detroit, MI. March, 1999.<br />INVITED ACADEMIC PRESENTATIONS AND SYMPOSIA – (continued)<br />Living Beyond the Sword of Damocles: Cancer Survivorship, Quality of Life and Meaning-Making. Quality of Life Study Group, Division of Behavioral Research, University of Michigan Comprehensive Cancer Center, Ann Arbor, MI. February, 1999.<br />Quality of Life Issues for Cancer Patients and Their Families: Socio/Economic Issues. Children’s Leukemia Foundation of Michigan, Leukemia Society of Michigan, Michigan State University Office of Continuing Medical Education, Dearborn, MI. April, 1998.<br />Managed Care: The New Context for Social Work Practice in Health Care. Brown Bag series presentation, School of Social Work, University of Michigan, Ann Arbor, MI. April, 1998.<br />Cancer Diagnosis, Treatment and Survivorship: It’s a Family Affair. PLUS Lymphoma Support Group, Cleveland Clinic, Cleveland, OH. September, 1997.<br />Young Adulthood: Confronting Issues of Survivorship. Association of Oncology Social Workers, 10th Annual Assembly, Orlando, FL. May, 1994.<br />Men's Survivorship: For Men Only. National Coalition for Cancer Survivorship, 8th Annual Assembly, Seattle, WA. November, 1993.<br />Exploring Career Opportunities in Cancer Survivorship. National Coalition for Cancer Survivorship, 8th Annual Assembly, Seattle, WA. November, 1993.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters)<br />Elicing, Documenting, and Interpreting the Experience of Childhood Cancer Survivors Through Photovoice, Paper Presentation, Association of Pediatric Oncology Social Workers annual conference, Anaheim, CA, April 28-May 2, 2010.<br />Sexual functioning in young adult survivors of childhood cancer, Poster Presentation, Association of Pediatric Oncology Social Workers annual conference, Anaheim, CA, April 28-May 2, 2010.<br />Symposium: Evaluating Social Work Interventions for Breast Cancer Survivors, (Discussant), Society for Social Work Research, San Francisco, CA, January 14-17, 2010.<br />Developing a New Instrument to Assess the Impact of Cancer in Young Adult Survivors of Childhood Cancer, Paper Presentation, Society for Social Work Research, San Francisco, CA, January 14-17, 2010.<br />Self-Images of Cancer Survivorship in Emerging Adulthood, (Jaehee Yi, presenter), 4th Annual Conference on Emerging Adulthood, Atlanta, GA, October 29-30, 2009.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Prevalence and predictors of posttraumatic stress disorder in adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study, Poster Presentation, American Society of Clinical Oncology (ASCO), Orlando, FL, May 31-June 6, 2009.<br />Resilience and demographic predictors of psychological distress in childhood cancer survivors, Poster Presentation, Midwest Conference on Pediatric Psychology, Kansas City, MO April 2-4, 2009. <br />Sexual functioning in childhood cancer survivors, Poster Presentation, University of Michigan School of Social Work Research Retreat, Ann Arbor, MI, March 13, 2009.<br />Quality of Life Assessment of Childhood Cancer Survivors, Society for Social Work Research annual meeting, New Orleans, LA, January, 2009.<br />Disparities in Cancer, Symposium Organizer, Society for Social Work Research annual meeting, New Orleans, LA, January, 2009.<br />The Impact of Cancer Instrument: A New Assessment Tool for Long-Term Survivors of Childhood Cancer, 4th Biennial Cancer Survivorship Research Conference, Poster Session, National Cancer Institute Office of Cancer Survivorship, American Cancer Society, Lance Armstrong Foundation, Atlanta, GA. June, 2008.<br />The impact of cancer and quality of life for long-term survivors, Association of Oncology Social Work Annual Assembly, Louisville, KY. May, 2008.<br />Evidence-Based Practice in Oncology Social Work: extracted findings from the National Practitioner Information Needs Analysis study, Association of Oncology Social Work Annual Assembly, Louisville, KY. May, 2008.<br />Assessing the long-term impact of cancer: A new assessment tool for long-term survivors, Association of Pediatric Oncology Social Workers Annual Assembly, Bar Harbor, ME. May, 2008.<br />Impact of Cancer and Quality of Life, APOS Annual Assembly, Irvine, CA. February, 2008.<br />Information and Service Needs for Young Adult Cancer Patients and Survivors, International Psychosocial Oncology Society annual meeting, London, England. September, 2007.<br />Research Training Workshop. Educational training workshop presented at the Association of Oncology Social Work annual assembly, (with J. Mitchell as primary presenter). Portland, OR. May, 2007.<br />Advocacy for Women with Cancer. Paper presented at the Association of Oncology Social Work annual assembly, Portland, OR. May, 2007.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Assessing the Health Care Needs of Adolescent and Young Adult Cancer Patients and Survivors. Paper presented at the American Psychosocial Oncology Society (APOS) 4th Annual Conference, Austin, TX. March, 2007.<br />Cancer Survivorship Across the Life Span, Symposium chair, presented at the Society for Social Work Research annual meeting, San Francisco, CA. January, 2007.<br />Cultural Differences in Social Support and Quality of Life for Korean American and Korean Breast and Gynecologic Cancer Survivors, (with J. Lim as primary presenter). Paper presented at Society for Social Work Research annual meeting, San Francisco, CA. January, 2007.<br />The Impact of Cancer Instrument: Developing a new assessment tools for long-term survivors. Paper presented at the 5th International Conference on Social Work in Health and Mental Health, Hong Kong, China. December, 2006.<br />The impacts of social support on quality of life for breast and gynecologic cancer survivors: A cross cultural comparison between Korean Americans and Koreans, (with J. Lim as primary presenter). Paper presented at the 5th International Conference on Social Work in Health and Mental Health, Hong Kong, China. December, 2006.<br />Assessing the Health Care Needs of Adolescent and Young Adult (AYA) Cancer Patients and Survivors. Poster presented at “Cancer Survivorship: Embracing the Future,” National Cancer Institute (NCI), American Cancer Society, Lance Armstrong Foundation, Bethesda, MD. October, 2006.<br />Psychosocial Barriers to the Under-Representation of Racial/Ethnic Minorities in Cancer Clinical Trials, (with A. Wells as primary presenter). Poster presented at the Association of Oncology Social Work annual assembly, Minneapolis, MN. May, 2006.<br />The Impact of Social Support on Quality of Life for Korean Breast or Gynecological Cancer Survivors, (with J. Lim as primary presenter). Poster presented at the Association of Oncology Social Work annual assembly, Minneapolis, MN. May, 2006.<br />Fewer Than Six Degrees of Separation (with P. Fobair as primary presenter, and H. Hill). Poster presented at the Association of Oncology Social Work annual assembly, Minneapolis, MN. May, 2006.<br />The effect of post-traumatic stress and post-traumatic growth on health-related quality of life in adult childhood cancer survivors, (with D. Sanchez as primary presenter, and J. Casillas and L.K. Zeltzer). Paper presented at the Western Society for Pediatric Research annual meeting, Carmel, CA. February, 2006.<br />Advocacy Skills Training for Young Adult Cancer Survivors: The Young Adult Survivors Conference (YASC) at Camp Make-a-Dream. Paper presented at the American Psychosocial Oncology Society annual program meeting, Amelia Island, Florida. February, 2006.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Psychosocial Barriers Contributing to Under-Representation of Racial/Ethnic Minorities in Cancer Clinical Trials: Implications for Social Work Education, (with A. Wells as primary presenter). Paper presented at the Council on Social Work Education annual program meeting, Chicago, Illinois. February, 2006.<br />Psychosocial Barriers Contributing to the under-Representation of Racial/Ethnic Minorities in Cancer Clinical Trials: Implications for Research, (with A. Wells as primary presenter). Poster presented at the Society for Social Work Research annual meeting, San Antonio, TX. January, 2006.<br />Health care for childhood cancer survivors: Insights and perspectives from a Delphi panel of young adult survivors of childhood cancer, Poster presented at the International Society for Pediatric Oncology (SIOP) 37th Annual Congress, Vancouver, British Columbia, Canada. September, 2005.<br />Planet Cancer and Peer Support for Young Adult Cancer Patients and Survivors, Plenary presentation at the Association of Oncology Social Work annual assembly, Austin, TX. May, 2005.<br />Approaches to Improving Long-Term Follow-up Care for Adult Childhood Cancer Survivors, (with J. Casillas as primary author, and D. Buchbinder, L. Ly, & L.K. Zeltzer), Abstract #91, published in the Proceedings of the American Society of Preventive Oncology Meeting, San Francisco, CA. March, 2005.<br />Adult Childhood Cancer Survivors’ Approaches to Improving Long-term Follow-up Care, (with J. Casillas as primary presenter, and D. Buchbinder, L. Ly, & L.K. Zeltzer). Poster presented at the Western Society of Pediatric Research. February, 2005.<br />Social Networks and Quality of Life among Long-Term Survivors of Leukemia and Lymphoma, (with J. Lim as primary presenter). Poster presented at the Society for Social Work and Research annual meeting, Miami, FL. January, 2005.<br />Pain Prevalence and Retrospective Incidence in Childhood Cancer Survivors:  A Report from the Childhood Cancer Survivor Study, (with J. Owen as primary presenter). Paper presented at the American Psycho-Oncology Society, Phoenix, AZ. January, 2005.<br />Fertility issues for long-term survivors of childhood cancer. Paper presented at “Cancer Survivorship: Pathways to Health after Treatment,” sponsored by the National Cancer Institute’s Office of Cancer Survivorship and the American Cancer Society’s Behavioral Research Program, Washington, D.C. June, 2004.<br />Pain prevalence among long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS), (with Q. Lu as primary presenter and C.D. Myers, J. Owen, M. Zevon, A. Mertens, L. Robison, & L.K. Zeltzer). Poster presented at the 23rd annual meeting of the American and Canadian Pain Society, Vancouver, B.C., Canada. May, 2004.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Advocacy Needs of Late Adolescent and Young Adult Cancer Survivors. Paper presented at the Association for Oncology Social Work annual meeting, Washington, DC. May, 2004.<br />The Impact of Cancer and Quality of Life in Long-term Survivors. Paper presented at the Association for Oncology Social Work annual meeting, Washington, DC. May, 2004.<br />Fertility issues for long-term survivors of childhood cancer. Paper and poster presented at the M.D. Anderson Cancer Center, Parenthood After Cancer conference, Houston, TX. March, 2004.<br />The Impact of Cancer Instrument: A new assessment tool for long-term survivors. Society for Social Work and Research annual meeting, New Orleans, LA. January, 2004.<br />Assessing the Impact of Cancer: Developing a new instrument for long-term survivors. Poster Presentation, American Society of Clinical Oncology, Chicago, IL. June, 2003.<br />Fertility issues for young adult survivors of childhood cancer. Sixth World Congress in Psycho-Oncology, Banff, Alberta, Canada. April, 2003.<br />Impact of cancer in long-term survivors. Association of Oncology Social Workers annual meeting, Salt Lake City, UT. April, 2003.<br />Parry, C, Chesler, M, & Zebrack, B. Clinical versus statistical analyses of quality of life: What do different methods tell us about the experiences of long-term survivors of childhood cancer? Poster Presentation, International Society for Pediatric Oncology (SIOP), Porto, Portugal. September, 2002.<br />Psychological outcomes in long-term survivors of leukemia, Hodgkin’s disease, and non-Hodgkin’s lymphoma. A Report from the Childhood Cancer Survivors Study. International Society for Pediatric Oncology (SIOP), Porto, Portugal. September, 2002.<br />Psychological outcomes in long-term survivors of CNS/Brain tumors. A Report from the Childhood Cancer Survivors Study. International Society for Pediatric Oncology (SIOP), Porto, Portugal. September, 2002.<br />Parry, C, Chesler, M, & Zebrack, B. Clinical versus statistical analyses of quality of life: What do different methods tell us about the experiences of long-term survivors of childhood cancer? Poster Presentation, Cancer Survivorship: Resilience across the Lifespan, a research conference sponsored by the National Cancer Institute’s Office of Cancer Survivorship and the American Cancer Society, Washington, DC. June, 2002. <br />A psychometric analysis of the Quality of Life – Cancer Survivors in survivors of childhood cancer. Poster Presentation, Cancer Survivorship: Resilience across the Lifespan, a research conferences sponsored by National Cancer Institute’s Office of Cancer Survivorship and the American Cancer Society, Washington, DC. June, 2002. <br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin’s disease, and non-Hodgkin’s lymphoma and their siblings: A report from the Childhood Cancer Survivors Study. Poster Presentation, American Society of Clinical Oncology, Orlando, FL. May, 2002.<br />Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin’s disease, and non-Hodgkin’s lymphoma and their siblings: A report from the Childhood Cancer Survivors Study. Poster Presentation, Issues in Adolescent and Young Adult Leukemias, University of Texas M.D. Anderson Cancer Center, Houston, TX. September, 2001.<br />Managed Care: Implications and Challenges for Oncology Social Work. Association of Oncology Social Work Annual Conference, Cleveland, Ohio. May, 2001.<br />Quality of Life in Long-Term Survivors of Leukemia and Lymphoma. Association of Oncology Social Work Annual Conference, Cleveland, Ohio. May, 2001.<br />Living Beyond the Sword of Damocles: Quality of Life Among Long-term Survivors of Childhood Cancer. Society for Social Work and Research 5th Annual Conference, Atlanta, GA. January, 2001.<br />Quality of Life in Long-Term Survivors of Leukemia and Lymphoma. Cancer Survivorship Throughout the Lifespan: Challenges for the 21st Century, New Jersey Commission on Cancer Research and The Tomorrows Children’s Institute, Hackensack University Medical Center, Atlantic City, NJ. October, 2000.<br />Living beyond the Sword of Damocles: Quality of life among long-term survivors of childhood cancer. Quality of Life Symposium paper presentation, 32nd Meeting of the International Society of Paediatric Oncology, Amsterdam, The Netherlands. October, 2000.<br />Positive coping and service needs of long-term survivors of childhood cancer. Psychosocial Issues Symposium paper presentation, 32nd Meeting of the International Society of Paediatric Oncology, Amsterdam, The Netherlands. October, 2000.<br />The Psychosocial Outlooks of Long-Term Survivors of Childhood Cancer: Parent and Child Self-Reports. Health Symposium paper presentation, Council on Social Work Education, Annual Program Meeting, San Francisco, CA. March, 1999.<br />Quality of Life and Related Service Needs of Long-Term Survivors of Leukemia and Lymphoma. European Society for Paediatric Haematology and Immunology, XVII Scientifica Congress, Washington, DC. May, 1999.<br />Managed Care: The New Context for Social Work Practice in Health Care. Health Symposium presentation, Council on Social Work Education, Annual Program Meeting, Orlando, FL. March, 1998.<br />Care for the Caregiver.” National Coalition for Cancer Survivorship, Annual Assembly, Albuquerque, NM. October, 1996.<br />CONFERENCE PRESENTATIONS (Refereed Papers and Posters) – (continued)<br />Psychosocial Outlooks of Long-Term Survivors of Childhood Cancer. Association of Pediatric Oncology Social Workers, annual conference, Philadelphia, PA. April, 1996.<br />BIBLIOGRAPHY<br />Peer-reviewed Publications<br />Zebrack, B., Foley, S., Wittmann, D., & Leonard, M. (In Press). Sexual Functioning in Young Adult Survivors of Childhood Cancer, Psycho-Oncology.<br />Zebrack, B., Chesler, M.A., Kaplan, S. (In Press). To Foster Healing Among Adolescents and Young Adults with Cancer: What helps? What hurts? Supportive Care in Cancer. DOI: 10.1007/s00520-009-0719-y<br />Burg MA, Zebrack BJ, Maramaldi P, Walsh K, Lim J, Smolinksi K, & Lawson K. (In Press).  Barriers to quality cancer care:  Results of a survey of members of the Association of Oncology Social Workers. Social Work in Health Care.<br />Zebrack, B. (2009). Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer. Journal of Cancer Survivorship 3(3); 174.<br />Smith, S., Zimmerman, S., Williams, C.S., & Zebrack, B. (2009). Health Status and Quality of Life among non-Hodgkin Lymphoma Survivors, Cancer, 115; 3312-3323.<br />Zeltzer, L.K., Recklitis, C., Buchbinder, D., Zebrack, B., Casillas, J., Tsao, J., Lu, Q., & Krull, K. (2009). Psychological status in childhood cancer survivors: a report from the Childhood Cancer Survivor Study, Journal of Clinical Oncology, 27(14); 2396-2404.<br />Gurney, J.G., Krull, K.R., Kadan-Lottick, N., Nicholson, H.S., Nathan, P.C., Zebrack, B., Tersak, J.M. & Ness, K.K. (2009). Social outcomes in long-term survivors of childhood cancer, Journal of Clinical Oncology, 27(14); 2390-2395 .<br />Zebrack, B.J. (2009). Information and service needs for young adult cancer survivors, Supportive Care in Cancer, 17, 349-357.<br />Lohr, K.N. & Zebrack, B. (2009). Using patient-reported outcomes in clinical practice: Challenges and Opportunities, Quality of Life Research, 18, 99-107.<br />Zebrack, B.J. (2008). Information and service needs for young adult cancer patients, Supportive Care in Cancer, 16, 1353-1360. <br />King, L.M., Quinn, G.P., Vadaparampil, S.T., Miree, C.A., Clayton, H.B., Wilson, C. & Zebrack, B. (2008). Oncology social workers’ perceptions of barriers to discussing fertility preservation with cancer patients, Social Work in Health Care, 47(4), 479-501.<br />Zebrack, B., Walsh, K., Burg, M., Maramaldi, P. & Lim, J. (2008). Oncology social worker competencies and implications for education and training, Social Work in Health Care, 47(4), 355-375.<br />Peer-reviewed Publications – (continued)<br />Zebrack, B., Yi, J., Petersen, L, & Ganz, P. (2008). The impact of cancer and quality of life for long-term survivors. Psycho-Oncology, 17(9), 891-900.<br />Lim, J. & Zebrack, B. (2008). Different pathways in social support and quality of life between Korean-American and Korean Breast and Gynecological Cancer Survivors, Quality of Life Research, 17, 679-689.<br />Lim, J., Yi, J. & Zebrack, B. (2008). Acculturation, Social Support, and Quality Of Life for Korean Immigrant Breast and Gynaecological Cancer Survivors, Ethnicity and Health, 13(5), 1-18.<br />Wells, A.A., & Zebrack, B.J. (2008). Psychosocial barriers contributing to the under-representation of racial/ethnic minorities in cancer clinical trials, Social Work in Health Care, 46(2), 1-14.<br />Gudbergsson SB, Fosså SD, Ganz PA, Zebrack BJ, Dahl AA. (2007). The associations between living conditions, demography, and the 'impact of cancer' scale in tumor-free cancer survivors: a NOCWO study. Supportive Care in Cancer, 11, 1309-18.<br />Schultz, K.A.P., Ness, K.K., Whitton, J. Recklitis, C., Zebrack, B., Robison, L.L. Zeltzer, L., Mertens, A.C. (2007). Behavioral and Social Outcomes in Adolescent Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study, Journal of Clinical Oncology, 25(24), 3649-3656. <br />Zebrack, B.J., Zevon, M.A., Turk, N., Nagarajan, R., Whitton, J., Robison, L.L., & Zeltzer, L.K. (2007). Psychological distress in long-term survivors of solid tumors diagnosed in childhood: A report from the Childhood Cancer Survivor Study. Pediatric Blood and Cancer, 49, (1), 47-51.<br />Zebrack, B.J., Mills, J., & Weitzman, T.S. (2007). Health and supportive care needs of young adult cancer patients and survivors, Journal of Cancer Survivorship, 1, (2), 137-145.<br />Zebrack, B., Bleyer, A., Albritton, K., Medearis, S., & Tang, J. (2006). Assessing the health care needs of adolescent and young adult (AYA) cancer patients and survivors, Cancer, 107(12), 2915-2923.<br />Zebrack, B.J., Ganz, P.A., Bernaards, C.A., Petersen, L., & Abraham, L. (2006). Assessing the impact of cancer: Development of a new instrument for long-term survivors. Psycho-Oncology, 15(5), 407-421.<br />Casillas, J.N., Zebrack, B.J., & Zeltzer, L.K. (2006). Health-related quality of life for Latino survivors of childhood cancer. Journal of Psychosocial Oncology, 24(3), 125-145.<br />Zebrack, B., Oeffinger, K., Hou, P., & Kaplan, S. (2006). Advocacy skills training for young adult cancer survivors: The Young Adult Survivors Conference (YASC) at Camp Māk-a-Dream. Supportive Care in Cancer, 14, 779-782.<br />Peer-reviewed Publications – (continued)<br />Lim, J. & Zebrack, B. (2006). Social networks and quality of life for long-term survivors of leukemia and lymphoma. Supportive Care in Cancer, 14(2), 185-192.<br />Zebrack, B. & Chesler, M. (2005). To achieve (e)quality health care for childhood cancer survivors. Cancer, 104(12), 2647-2649.<br />Zebrack, B., Gurney, J.G., Oeffinger, K., Whitton, J., Packer, R.J., Mertens, A., Turk, N., Castleberry, R., Dreyer, Z., Robison, L.L., & Zeltzer, K. (2004). Psychological outcomes in long-term survivors of childhood brain cancer: a report from the Childhood Cancer Survivor Study. Journal of Clinical Oncology, 22(6), 999-1006.<br />Zebrack, B.J., Eshelman, D., Hudson, M.M., Mertens, A.C., Cotter, K.L., Foster, B.M., Loftis, L., Sozio, M., & Oeffinger, K.C. (2004). Health care for childhood cancer survivors: Insights and perspectives from a Delphi panel of young adult survivors of childhood cancer. Cancer, 100(4), 843-850. <br />Mertens, A.C., Cotter, K.L., Foster, B.M., Zebrack, B.J., Hudson, M.M., Eshelman, D., Loftis, L., Sozio, M., & Oeffinger, K. (2004). Improving health care for adult survivors of childhood cancer: Recommendations from a Delphi panel of health policy experts. Health Policy, 69, 169-178.<br />Zebrack, B., Casillas, J., Nohr, L., Adams, H., & Zeltzer, L. (2004). Fertility issues for young adult survivors of childhood cancer. Psycho-Oncology, 13, 689-699.<br />Zebrack, B. & Walsh-Burke, K. (2004). Advocacy needs of adolescent and young adult cancer survivors: Perspectives of pediatric oncology social workers. Journal of Psychosocial Oncology, 22(2), 75-87.<br />Lim, J., & Zebrack, B. (2004). Caring for family members with chronic physical illness: A critical review of caregiver literature. Health and Quality of Life Outcomes, 2, 50.<br />Zebrack, B. (2003). Reflections of a cancer survivor/research scientist. Cancer, 97(11), 2707-2709.<br />Zebrack, B., Zeltzer, L., Whitton, J., Mertens, A., Odom, L., Berkow, R., Robison, L. (2002). Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin’s disease and non-Hodgkin’s lymphoma: A report from the Childhood Cancer Survivor Study. Pediatrics, 110(1), 42-52.<br />Zebrack, B. & Chesler, M. (2002). Quality of life in childhood cancer survivors. Psycho-Oncology, 11(2), 132-142.<br />Zebrack, B., Chesler, M., Orbuch, T., & Parry, C. (2002). Mothers of survivors of childhood cancer: Their worries and concerns. Journal of Psychosocial Oncology, 20(2), 1-26.<br />Zebrack, B. & Chesler, M. (2001). Health-related worries, self-image and life outlooks of long-term survivors of childhood cancer. Health and Social Work, 26(4), 245-56.<br />Peer-reviewed Publications – (continued)<br />Zebrack, B. & Chesler, M. (2001). A psychometric analysis of the Quality of Life—Cancer Survivors in survivors of childhood cancer. Quality of Life Research, 10, 319-329. <br />Zebrack, B. (2001). An advocate’s perspective on cancer survivorship. Seminars in Oncology Nursing, 17(4), 284-287.<br />Zebrack, B. (2000). Cancer survivor identity and quality of life. Cancer Practice, 8(5), 238-242.<br />Zebrack, B. (2000). Cancer survivors and quality of life: A critical review of the literature. Oncology Nursing Forum, 27(9), 1395-1401.<br />Zebrack, B. (2000). Quality of life of long-term survivors of leukemia and lymphoma. Journal of Psychosocial Oncology, 18(4), 39-59.<br />Zebrack, B. & Chesler, M. (2000). Managed care: The new context for social work in health care. Implications for survivors of childhood cancer and their families. Social Work in Health Care, 31(2), 89-103.<br />Weigers, M., Chesler, M., Zebrack, B., & Goldman, S. (1998). Self-reported worries among long-term survivors of childhood cancer and their peers. Journal of Psychosocial Oncology, 16(2), 1-25.<br />Zebrack, B. (1993). Adolescents talk about the psychosocial impact of cancer. Survivorship, Special Interest Group Newsletter, Oncology Nursing Society, 2(2), 1-3.<br />Book Chapters/Technical Reports<br />Zebrack, B. & Hamilton, R. (In Press). Dating and Disclosure for the Cancer Patient. In J. Mulhall (ed.) Sexuality and Cancer, Springer.<br />Santacroce, S. & Zebrack, B. (In Press). Adolescent and Young Adult Patients. In J. Holland (ed.), Psycho-oncology, New York, Oxford University Press.<br />Zebrack, B.J. (2007). Cancer. In A. Martin & F.R. Volkmar (Eds.), Lewis’s Child and Adolescent Psychiatry: A Comprehensive Textbook, Fourth Edition, Chapter 7.1.3.1. Baltimore, MD: Lippincott Williams & Wilkins.<br />Zebrack, B., Chesler, M., & Penn, A. (2007). Psychosocial support. In Bleyer, A., Barr, R., Albritton, K., Phillips, M., & Siegel, S. (Eds.), Cancer in Adolescents and Young Adults, Heidelburg: Springer Verlag Publishers. <br />Zebrack, B. (2006). Young adult cancer survivors: Pathways to parenthood. In R. Balen & M. Crawshaw (Eds.), Sexuality and Fertility in the Developing Years: The Invisible Side of Illness and Disability, London: Jessica Kingsley Publishers.<br />Book Chapters/Technical Reports – (continued)<br />Zebrack, B. & Lim, J. (2006). Advocacy for women with cancer. In K. Dow (Ed.), Nursing Care of Women with Cancer, St. Louis, MO: Mosby Elsevier.<br />Zebrack, B.J. & Chesler, M.A. (2005). The Impact of Cancer on Pediatric and Young Adult Patients and their Families: Psychosocial Issues. Ann Arbor, MI: Community Resources Ltd.<br />Zebrack, B. & Cella, D. (2005). Evaluating quality of life in cancer survivors. In J. Lipscomb, C. Gotay & C. Snyder (Eds.), Outcomes Assessment in Cancer: Measures, Methods, and Applications, London: Cambridge University Press.<br />Roberts, C., BrintzenhofeSzoc, K., Zebrack, B., & Behar, L. (2003). A Social Work Guide to Conducting Research in Psychosocial Oncology. Philadelphia, PA: Association for Oncology Social Workers.<br />Ganz, P.A. & Zebrack, B. (2001). Long-term impact of cancer therapy in adults. In M.C. Perry (Ed.), American Society of Clinical Oncology Educational Book, Proceedings of the 37th annual meeting, Spring 2001, Alexandria, VA: American Society of Clinical Oncology.<br />Zebrack, B. & Chesler, M. (2000). Managed care: The new context for social work in health care. Implications for survivors of childhood cancer and their families. In G. Rosenberg & A. Weissman (Eds.), Behavioral Social Work in Health Care Settings. The Social Work in Health Care Monographic Series (Vol. 31, No. 2, 2000), Binghamton, NY: The Haworth Press, Inc.<br />Zebrack, B. & Chesler, M. (1999). Psychosocial outcomes and reported service needs of long-term survivors of childhood cancer. A report to the quality of life working group, European Society of Pediatric Hematology and Immunology. Published in a monograph: Quality of Life. L’Envol pour les enfants europeens, Echouboulains, France.<br />Zebrack, B. & Chesler, M. (1999). Psychosocial outcomes and reported service needs of long-term survivors of childhood cancer. International Confederation of Childhood Cancer Parent Organizations newsletter, 6(3).<br />Chesler, M., Weigers, M., Zebrack, B., & Trever, K. (1996). A Brief Review of the Psychosocial Literature and Our Research Plans/Progress with Adolescent/Young Adult Survivors of Childhood Cancer. Published in The Working Paper Series, #531, Ann Arbor, MI: Center for Research on Social Organization.<br />Zebrack, B. (1992). Report on the 4th Current Concepts in Psycho-Oncology Symposium, Memorial Sloan-Kettering Cancer Center, New York City, October 10-12, 1991. The Challenge of the Cancer Federation, 14(1), 21-22.<br />Invited Journal Articles<br />Zebrack, B., Hamilton, R. & Wilder-Smith, A. (2009). Psychosocial outcomes and service use among young adults with cancer. Seminars in Oncology, 36(5), 468-477.<br />Zebrack, B. (2009). Survivor’s perspective. Oncology, Nurse Edition, 23(2), 44-45.<br />Bolte, S. & Zebrack, B. (2008). Sexual issues in special populations: Adolescents and young adults. Seminars in Oncology Nursing, 24(2),115-119.<br />Zebrack, B. & Kirby, L. (2007). Leukemia survivors’ perspectives on personal care needs and preferences for peer support programs. American Journal of Hematology/Oncology, 6(4, Supplement 5), 10-13.<br />Zebrack, B., Chesler, M., Penn, A., & Katz, E. (2005). Psychosocial issues in adolescent cancer patients and survivors. Current Problems in Pediatric and Adolescent Health, 35(5), 195-201.<br />Zebrack, B. & Zeltzer, L. (2003). Quality of life issues and cancer survivorship. Current Problems in Cancer, 27(4), 198-211.<br />Zebrack, B. & Chesler, M. (2003). Childhood cancer survivors report life changes. California Pediatrician, 3-4.<br />Zebrack, B. (2002). Journey to parenthood. Cure: Cancer Updates, Research, and Education, 1(4), 23.<br />Zebrack, B. & Zeltzer, L. (2001). Editorial: Living beyond the Sword of Damocles: Surviving childhood cancer. Expert Review of Anticancer Therapy, 1(2), 163-164.<br />Zebrack, B. & Anduri, J. (1995). Men's Survivorship. Illness, Crises and Loss, 5(1), 92-94.<br />Editorials, Letters to the Editor, Book Reviews, and Writings for Popular Press<br />Zebrack, B. & Serrano, M.S. (2007, March/April). Young adults facing the challenges of cancer. Coping, 20.<br />Zebrack, B.J., Ell, K., & Smith, W.B. (2007). Suicide risk in childhood cancer survivors, (Letter to the EditorJournal of Clinical Oncology, 25(6), 732-733.<br />Zebrack, B., Zeltzer, L., Whitton, J., Berkow, R., & Chesler, M. (2003). Survivors of childhood cancer: Using siblings as a control group, (Letter to the Editor). Pediatrics, 112, 1454-55.<br />Zebrack, B. (2001). How you can achieve quality of life after a cancer diagnosis. Coping.<br />Editorials, Letters to the Editor, Book Reviews, and Writings for Popular Press – continued<br />Zebrack, B. (2000). Book Review [Review of the book Understanding Cancer: A Patient’s Guide to Diagnosis, Prognosis, and Treatment, by C. Norman Coleman], Journal of Psychosocial Oncology, 18(2): 86-89.<br />Zebrack, B. (1998). On the road to a new beginning. Coping, 56-57.<br />