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Sue Nunn

                                   A patient’s
                                   Experience




Page 1 The Young Foundation 2009
“Patients will get more choice and control,
                                   backed by an information revolution, so that
                                   services are more responsive to patients and
                                   designed around them, rather than patients
                                   having to fit around services. The principle
                                   will be "no decisions about me without me".



                                               Equity and excellence: Liberating the NHS -




Page 2 The Young Foundation 2009
What do I want?
        • Expert advise to help me understand my condition          Diagnosis
        • Information on evidence, risks and benefits of
          treatment
        • Tools and information to help me self-manage
        • Easy access to advice when I’m unwell
        • Minimum trips to see Doctors / others
        • Easy communication methods
        • A sense of my long-term prognosis / disease trajectory
        • To be treated like an intelligent partner not a passive
          recipient
        • Ideally access at a time convenient to me




Page 3 The Young Foundation 2009
Medical        Chest       Nurse??
                                               Physio Sec            Physician
                                        Physio Sec
                                                           Radiologist
                                           Physio
                                           appts
                                                    Out-patient             ?
                                                    Appts     GP      GP
                                                            reception Sec
                                         Pharmacist           GP in
                                                              practice
                                                                            GP
                                                GP out
                                                of hours
        CT scan of the chest: 6.6 mSv




Page 4 The Young Foundation 2009
Vision of Integrated Care




Page 5 The Young Foundation 2009
Value Framework


                                          Health                             Value                Cost
                                         Outcomes                =
                 £8320 – cost of         Patient defined Health Outcomes
                                         bundle of care Cost of delivering
                 6 monthly outpatients                      Outcomes


                 Until age 80
                                           Porter ME; Lee TH NEJM 2010;363:2477-2481; 2481-2483




Page 6 The Young Foundation 2009
Patient-controlled
                                        records




Page 7 The Young Foundation 2009
ABOUT US / Our products                                      KREDIT
                                                                                         Kindness
                                    Patient-controlled records
                                                                                         Respect
                                    Two principles allow
                                    integrated care across
                                    CCGs:                                                Empathy
                                    1. The patient owns the
                                       data, so they decide who
                                       it goes to                                        Dignity
                                    2. PKB will integrate with
                                       any other system so that
                                       the data flows to                                 Interest
                                       wherever the patient
                                       chooses
                                                                                         TRUST

                                                                             Respiratory Teams’ Shared Values:
                                                                  15
                                                                           Whittington Health, London Respiratory Team and …




Page 8 The Young Foundation 2009
Questions

                 sue.nunn@youngfoundation.org




Page 9 The Young Foundation 2009

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Breakout 2.3 Sue Nunn - A patient’s Experience

  • 1. Sue Nunn A patient’s Experience Page 1 The Young Foundation 2009
  • 2. “Patients will get more choice and control, backed by an information revolution, so that services are more responsive to patients and designed around them, rather than patients having to fit around services. The principle will be "no decisions about me without me". Equity and excellence: Liberating the NHS - Page 2 The Young Foundation 2009
  • 3. What do I want? • Expert advise to help me understand my condition Diagnosis • Information on evidence, risks and benefits of treatment • Tools and information to help me self-manage • Easy access to advice when I’m unwell • Minimum trips to see Doctors / others • Easy communication methods • A sense of my long-term prognosis / disease trajectory • To be treated like an intelligent partner not a passive recipient • Ideally access at a time convenient to me Page 3 The Young Foundation 2009
  • 4. Medical Chest Nurse?? Physio Sec Physician Physio Sec Radiologist Physio appts Out-patient ? Appts GP GP reception Sec Pharmacist GP in practice GP GP out of hours CT scan of the chest: 6.6 mSv Page 4 The Young Foundation 2009
  • 5. Vision of Integrated Care Page 5 The Young Foundation 2009
  • 6. Value Framework Health Value Cost Outcomes = £8320 – cost of Patient defined Health Outcomes bundle of care Cost of delivering 6 monthly outpatients Outcomes Until age 80 Porter ME; Lee TH NEJM 2010;363:2477-2481; 2481-2483 Page 6 The Young Foundation 2009
  • 7. Patient-controlled records Page 7 The Young Foundation 2009
  • 8. ABOUT US / Our products KREDIT Kindness Patient-controlled records Respect Two principles allow integrated care across CCGs: Empathy 1. The patient owns the data, so they decide who it goes to Dignity 2. PKB will integrate with any other system so that the data flows to Interest wherever the patient chooses TRUST Respiratory Teams’ Shared Values: 15 Whittington Health, London Respiratory Team and … Page 8 The Young Foundation 2009
  • 9. Questions sue.nunn@youngfoundation.org Page 9 The Young Foundation 2009