The route to success in end of life care – achieving quality for lesbian, gay, bisexual and transgender people
21 June 2012 - National End of Life Care Programme
This guide has been developed following consultation with stakeholders at a series of discussion groups held around the country. It offers guidance and advice for those working with lesbian, gay, bisexual and transgender (LGBT) people, and for LGBT people themselves, whether giving or receiving end of life care.
It provides case studies, key recommendations and issues for health and social care professionals to consider, such as:
The importance of avoiding the assumption that someone is heterosexual.
The enhanced privacy rights for transgender people provided by the Gender Recognition Act (2004).
Avoiding the common misunderstanding that a next of kin needs to be a person related by blood or marriage.
Challenges faced if a person has not previously 'come out' - the need for end of life care can mean private domestic arrangements are subject to wider scrutiny.
Recognising that 'coming out' may result in LGBT people being isolated from their families of origin and therefore relying on other support networks.
The danger of not recognising the significance of a relationship, which may result in a bereaved person's grief going unrecognised.
The report calls for organisations and the people within them to have an LGBT-friendly culture and use education and training to positively address communication skills and attitudes. It urges organisations to have a clear confidentiality policy, involve LGBT people in services and promote the use of inclusive language at the end of life, with phrases that do not inadvertently make someone feel like they must reveal their sexual orientation and gender identity.
Publication by the National End of Life Programme which became part of NHS Improving Quality in May 2013