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Power to change: in your hands

Power to change: in your hands



NCT's Big Weekend 2010

NCT's Big Weekend 2010
Power to change: in your hands
Presented by Anne Fox, Head of Campaigns & Public Policy, NCT



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  • What needs to change

Power to change: in your hands Power to change: in your hands Presentation Transcript

  • Power to change: in your hands Anne Fox Head of Campaigns & Public Policy NCT
  • Speaking out; using parents’ experiences to create change
    • We campaign in various ways so the experiences of parents are at the heart of services.
    • Services should aim to give parents a good experience as well as using these experiences to review and improve their services, as an indicator of effectiveness.
  • Every year thousands of parents tell part of the NCT their story
    • Helplines
    • Branch events
    • Antenatal classes
    • Drop-ins
    • Early days courses
    • Over a cup of tea…
  • Collecting them together and communicating them in different ways – we can change services for parents for the better
  • We tell these stories on through…
    • face to face contact
    • meetings
    • campaigns
    • research
  • Gathering stories together, lets us know …
  • How do we gather stories and put them to use ?
    • NCT has a successful record of using stories in research based campaigns
    • With proven results
  • Better Birth Environment Campaign
    • Women told us about the environments in which they gave birth
    • What helped
    • What hindered
  • All over the UK the NCT community and those interested in improving environments used this tool… with impressive results
  • Dundee Community Midwifery Unit
  • Home from Home, Ulster Hospital, Belfast
  • St. Mary’s birth centre, London
  • Cardiff & Vale midwifery unit
  • Location, location, location Campaign
    • Despite policy promises
    • Parents told us repeatedly that choice of place of birth was not offered or available
    • We investigated these stories
    • We researched the availability of choice
  • Location, location, location Campaign
    • We are calling for every woman and her partner to be able to choose where they have their baby
    • The choice needs to exist
    • It needs to be informed by evidence
    • The pressure needs to come locally
  • We have gathered more stories
    • To assess to what extent women’s needs for information, practical and emotional support were being met during the first month after birth
    • To compare the findings with women-centred quality standards on postnatal care in policy
  • Early results
    • Preliminary analysis indicates women's needs are not being met:
        • First time mothers
        • Those who have complex births
    • Less than 50% of women said that they received all the information they needed about their own health.
    • 23% said that they had received “a little” or “did not get” the information they needed.
    Early results – information
    • Just over half felt they got all the physical care they needed in the first 24hrs and 2-7 days
    • On average approx 20% felt they got “a little” or “did not get” the care needed
    Early results – physical care
    • Women were least satisfied with the emotional support they received
    • On average approx 30% felt they got “a little” or “did not get” the emotional support they needed
    Early results – emotional support
    • We were moved to postnatal ward where we received very little support… I found the midwives often rude and very stressed . My medication for my blood pressure was 5 hours late. I had to ask 4 times over a period of 5 hours for clean sheets for my baby as he had been sick. This experience left me feeling low, guilty, angry and whole other range of emotions. I have been failed by the NHS to extent that my husband and I do not feel that we can consider having another child. (first time mother)
    • Throughout the whole of the first month after birth those who experienced complications were less likely to feel that they had:
    • all the information they needed about their own health
    • all the physical care they needed
    • all the emotional support they needed
  • … as soon as the baby was born I felt I was on my own . I spent the first night on the ward less than 2 hours after the birth of my son in floods of tears…every time I closed my eyes the nightmare of my birth experience came flooding back . Nobody came to check on me even though I know I was sobbing loudly and uncontrollably. Every single night of the 3 nights I spent in the hospital were the same. The first morning I stood up from the bed and bled all over the floor– I didn’t know what to do and again nobody came I was appalled by the language used in my notes – the reason for my forceps intervention – described wonderfully as “ lack of maternal effort” a phrase that still haunts me. (First time mother- assisted delivery in hospital)
    • Published later in the year
    • Poster at RAIT stand in NCT Village
  • Stories are important
    • We need to know what’s going on
    • We need to know what parents think of the services and supports available
    • We need you to collect these stories
  • Download your story sheet today
    • www.nct.org.uk/active
    • Tell us your story
    • Collect stories from the parents you meet in your NCT work
    • Send them to us
    • [email_address]
    • Change will not come if we wait for some other person or some other time. We are the ones we've been waiting for. We are the change that we seek.
    • Barack Obama