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Setting: Bayou
 

Setting: Bayou

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Setting: Bayou Setting: Bayou Presentation Transcript

  • What do patients need patients 2.0 Patient Needs WG
  • GOAL is same
  • How do we achieve this goal?Healthy people Sick people• access your health data • research in• add to your health data o biomarkers• diet  genetic• exercise  proteomic o education on which exercise  other platforms are good for them o systemic understandin o gym/exercise plans o diagnostics o money for gym/plans o prognostics o time for gym/plans o treatments o community based on  side effects exercise goals  efficacy • education • community/support • resources
  • e(mpowered)-Patient• Education o content (i.e., genetics education, diet/nutrition education, treatment education, diagnostic education, disease/ ailment education) o delivery• Legislative and political empowerment (e.g., the Abigail Alliance, American Cancer Society) o access to experimental therapies o access your entire medical staffs contact information• Financial, entrepreneurial, and stakeholder empowerment o Communities (e.g., Crohnology.com, ACOR.org, Caringbridge.org, PatientsLikeMe.com) o Research (e.g., PXE International, Addi and Cassi Fund) o Culture shifts  Collaborative care / shared-decision making  Access and ownership of health data