It all started Summer 2005. I needed a college project to do. I wanted to do something that I had first hand experience, and something that would make a difference. For a long time before this I was frustrated at CLAPA lack of interest in providing support for Adults.
At the time the only thing we had that enabled us to communicate with each other was smartgroups. Which was unreliable and badly formatted message board, with no features to enrich the group.
I then decided to create a brand new website for Adults, which offered people the chance to communicate with each other without any of the problems that smartgroups suffered from.
I had the site up and running by Christmas, and within time proved to be successful. The idea was CLAPA would take it on, unfortunately this did not happen as the site proved to be popular, they were worried people still associate the site with me. I decided to carry on with it, and register a domain name for it. Due to the success of the site, it wasn’t long before the parents were asking if something could be set up for them. I did this and the parent board remains more popular than the adult board.
The Next Project will be to get more professionals joining, and answering questions people post on the boards.
Medical Professionals Surgeons Speech Therapist Counsellor Help with emotional issues Cleft Nurse Speech Cleft Surgeon Oral & Maxillofacial Surgeon Day to day cleft care. I.e. bottles, feeding Answer Surgical Questions Other Orthodontics Genetics Audiologist Common problems Associated with cleft