Disability Rights and Social Media
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CFILC

CFILC
Statewide Executive Directors
Presentation: Disability Rights and Social Media
2/8/10
Marsha Lanier, MSW

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  • A Social Media for Social Justice Presentation Marsha Lanier, MSW www.SpiritBodyMind.org Community Organizing Consultant [email_address] Twitter: @CommunityBldr 415-678-6303 Picture: multicultural hands logo
  • Social Media for CFILC Picture: website of CFILC Link: http://www.cfilc.org/
  • What is Web 2.0? Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Web. 1.0 versus Web 2.0 Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Definitions: Folksonomy “ The spontaneous cooperation of a group of people to organize information into categories.” en.wiktionary.org/wiki/folksonomy Less reliable and predictable but more organic. Portals versus RSS: A web portal , also known as a links page, presents information from diverse sources in a unified way. Apart from the standard search engine feature, web portals offer other services such as e-mail, news, stock prices, information, databases and entertainment. Portals provide a way for enterprises to provide a consistent look and feel with access control and procedures for multiple applications and databases, which otherwise would have been different entities altogether. Examples of public web portals are MSNBC , Yahoo! , AOL , iGoogle and Netvibes . [1] RSS (most commonly expanded as "Really Simple Syndication") is a family of web feed formats used to publish frequently updated works—such as blog entries, news headlines, audio, and video—in a standardized format. Slide Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Picture: Logos of major social media sites Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Link: http://www.slideshare.net/jmortonscott/social-media-and-inclusion-3008420 Source: Using Inclusive Social Media in National Service to Recruit Individuals with Disabilities January 27, 2010 Presenters: Mr. Jason Scott Mr. Jeff Coburn
  • Article which Ana Acton, ED Freed CIL, posted on our FB page. Picture: A person with a disability who uses social media. Story of how people with disabilities and seniors are using social media to stay connected. Link: http://www.starnewsonline.com/article/20100126/ARTICLES/100129756/1177?p=all&tc=pgall
  • Source: FrogLoop, a Nonprofit Online Marketing Blog Return on Investment = ROI Staff time calculator Link: http://www.frogloop.com/social-networks-calculator Picture: graph of staff time input and benefits of social media use
  • Each social media site will request that you create a profile. Once you learn how, it’s easy to use other sites. The design may look different but the basic components are all there. It’s like driving a car: if you can drive a Toyota, you can also drive a Chevy. Or like using a particular kind of wheelchair, you know certain components are there and you look for those with different types of wheelchairs. Eg: If you can create a profile on Facebook, you can create one on Twitter.
  • Picture: shows the basic components of an account creation page on Facebook. Link: http://www.facebook.com/
  • (Note: image of Dela: courtesy of artist Brian Kolm) Picture: Dela Francisco Oday’s profile – the avatar of the ILRCSF on Facebook. Link: http://www.facebook.com/delasanfrancisco
  • Example of Facebook Group creating “User Generated Content.” Picture: Facebook Group Reframing Disability’s discussion thread with 18+ different posters; almost 1000 members; however still slow activity. Link to UA project: http://www.ualr.edu/disability/ Links to Groups and/or Pages on Facebook about Disability: Disability Rights California http://www.facebook.com/DisabilityRightsCalifornia Center on Human Policy, Law and Disability Studies http://www.facebook.com/group.php?gid=92415562423 Reframing Disability http://www.facebook.com/group.php?gid=18131376733&ref=search Disability Rights Education and Defense Fund http://www.facebook.com/group.php?gid=8181303604 Community Choice Act http://www.facebook.com/group.php?gid=13846759460 Independent Living Resource Center of San Francisco (Note: image of Dela: courtesy of artist Brian Kolm) http://www.facebook.com/delasanfrancisco?__a=1 Berkeley Center for Independent Living http://www.facebook.com/group.php?gid=35163752790
  • Picture: Facebook Fan Page – Red Cross Link: http://www.facebook.com/redcross
  • Picture: Facebook Fan Page – Red Cross Discussion in which Red Cross responds to critique. Link: http://www.facebook.com/redcross
  • Picture: Example of Notes on Facebook where you can upload your blog from another site automatically or blog directly. Link: http://www.facebook.com/marsha.lanier Go to Notes section or use this link: http://www.facebook.com/marsha.lanier?v=app_2347471856&ref=profile#!/notes/marsha-lanier/social-media-for-social-justice-presentation-notes-nctweetup/93093210204 Other links for social media resources for people with disabilities Virtual Support Groups http://www.gamepolitics.com/2009/05/28/army-building-virtual-support-group-amputee-soldiers WII for people with disabilities http://disabilities.suite101.com/article.cfm/wiihab Second Life Disability Forum w/ Virtual Guide Dog http://www.flickr.com/photos/10250706@N08/3574695110/ http:// www.massively.com /tag/virtual-guide-dog/
  • Source: Beth Kanter Link: http://beth.typepad.com/beths_blog/2009/05/so-you-want-a-facebook-fan-page-.html
  • Link for How to Make a Custom Twitter Feed for your Website: http://blog.mivamerchant.com/478/how-to-make-custom-twitter-feed-for-your-website/ Link for Twitter Widgets: http://twitter.com/goodies/widgets NOTE: Test accessibility before using any widgets. Adapted from Heather Braum.
  • Link: http://twitter.com/Independence1st Picture: Independence First’s page on Twitter
  • Link: http://twitter.com/Independence1st/disability Independence First uses lists: gives them power as a curator of “Tweeps” (people who “tweet” on “Twitter.”) who blog about disability. Anyone can follow this list now. Example of the exponential power of social web!
  • Link: http://twitter.com/DeafnessGuide
  • Picture: International Justice Central’s website with live map showing their international Twitter feed. Good example of cross platform integration. Link: http://ijcentral.org/ Featured video on NetSquared’s Channel Link: http://www.youtube.com/watch?v=PE_1fCroKR0
  • Picture: Rolling Rains, Traveling with a Disability Group page on Flickr. Link: http://www.flickr.com/groups/rollingrains/ 328 members build community via photo sharing.
  • Picture: Liz Henry’s Hack Ability “Do it yourself” Blog Link: http://www.hackabilityblog.com/ Note her links to other great blogs about disability rights.
  • You can use Trendpedia to create interesting visuals examining keyword statistics about topics in your field. Picture: Graph showing how often the term “handicapped” is used in blog posts compared to the term “disability.” Good news: “Disability” is used considerably more often! Link: http://www.trendpedia.com/ Source: http://mashable.com/2008/08/28/how-to-find-statistics-on-social-media/
  • Delicious is a social bookmarking tool. Picture: Michele Martin’s Delicious List. Link: http://delicious.com/michelemmartin/ilru Michele did a Social Media training for NCIL. One accessibility resource she recommends, Web AIM: Link: http://www.webaim.org/
  • Wikis are shared documents that live online; here’s an example of what one menu looks like. Access can be shared or private. Some wiki sites charge a fee. Some are free, like Google Docs. Picture: a directory of documents in Google Docs. Link: http://docs.google.com/support/bin/topic.py?hl=en&topic=15114 Note: you need a free Google account to use Google Docs. Google will prompt you to create one.
  • Picture: A document created in Google docs. This Google Doc was created by ShesGeeky.org. Those engaged in PR for the event gained access to the document via an emailed invitation from the creator who provided a password. We were then asked to Tweet, blog and Facebook the info x number of times prior to the event. Very easy and effective!
  • Source: CIL-Net Wiki Social Media Trainig Link: http://cilnetsocialmedia.org/wiki/Fundraising Picture: Wiki page of the CIL-Net Social Media Training with tips on fundraising and other resources.
  • Picture: Care2 home page with links to resources on fundraising and creating online community. Link: http://www.care2.com/ “ Care 2 make a difference” 12 million people and growing: Easy, simple actions for busy activists.
  • Picture: Ticket sales site on EventBrite.com Link: http://www.eventbrite.com/ EventBrite has reasonable pricing based on a percentage of your ticket sales and is free to use for free events. A great fair trade alternative is Brown Paper Tickets. Link: http://www.brownpapertickets.com/ Consumers can “share” events easily.
  • Picture: Ticket sales site on EventBrite.com showing links for popular social media. Link: http://www.eventbrite.com/ EventBrite uses cross platform integration by making it easy to share your event; simply click on the logo of your favorite social media site and you will be logged in and able to post this event.
  • Picture: Slide showing potential pitfalls of social media from NCIL’s Social Media training. Check the link to see more slides with remedies to help you avoid these pitfalls. Source: Carol Voss’s NCIL Social Media Training Link: http://www.ncil.org/training/SocialMediaPart2Presentation.pdf
  • Link: http://www.frontlinesms.com/ Picture: FrontlineSMS’s home page showing users with mobile phones receiving texts. FrontlineSMS is award-winning free, open source software that turns a laptop and a mobile phone into a central communications hub. Once installed, the program enables users to send and receive text messages with groups of people through mobile phones. What you communicate is up to you, making FrontlineSMS useful in many different ways.
  • Picture: Map of NGOs using SMS (texting) from FrontlineSMS’s website. Another example of cross-platform integration; note the link to Twitter in the bottom right. Link: http://www.frontlinesms.com/
  • Picture: 2 types of Accessible Touch Screen Phones: Android and IPhone Slide Source: Michelle Lentz Link: http://www.slideshare.net/writetech/social-media-accessibility-for-nonprofits
  • Source: Beth's Blog: How Nonprofit Organizations Can Use Social Media to Power Social Networks for Change ; A place to share learning about nonprofits and social media, ROI, culture change, strategy, and more Picture: Entry in Beth Kanter’s Blog about how to use Social Media in Non-profits. Link: http://beth.typepad.com/beths_blog/
  • Picture: Online Marketing Cheat Sheet with links for many free resources from Social Edge website. Link: http://www.socialedge.org/features/issue-areas/online_marketing
  • NetSquared (Project of TechSoup) hosts an annual conference and does year round training on tech resources for nonprofits. They feature cutting edge tech tools and offer monetary awards for development and implementation. Picture: Website of NetSquareds showing award winners from 2009. Link: http://www.netsquared.org/blog/amy-sample-ward/n2y4-your-big-wrap
  • Picture: TechSoup’s website featuring the Learning Center page. TechSoup (formerly Compumentor) is a leading source of tech info and resources, including free and low cost software, for non-profits. Link: http://www.techsoup.org/learningcenter/?cg=lnav
  • Picture: Home page of Idealist.org Idealist.org is an online community and information portal for nonprofits. Great way to find employees, volunteers and ideas for fundraising. Link: http://www.idealist.org/
  • Picture: NTEN’s website home page. Link: http://www.nten.org/ “ NTEN aspires to a world where all nonprofit organizations skillfully and confidently use technology to meet community needs and fulfill their missions. We are the membership organization of nonprofit technology professionals. Our members share the common goal of helping nonprofits use all aspects of technology more effectively.”
  • Picture: Link: http://www.slideshare.net/writetech/social-media-accessibility-for-nonprofits
  • Examples of businesses on social media (please note: this is for learning; these businesses are not necessarily ones to emulate for sustainability or accessibility or for privacy issues.) http://mashable.com/2009/02/06/social-media-smartest-brands/
  • http://www.linkedin.com/groupAnswers?viewQuestionAndAnswers=&discussionID=13174761&gid=148346&trk=EML_anet_qa_ttle-cThOon0JumNFomgJt7dBpSBA Businesses and nonprofits are struggling with this topic. Lesson: Your organization is NOT ALONE. Use social media to develop internal strategies. This is a new area. Here is a great place to post questions and get links to articles with answers. Note the Mashable article links.
  • http://www.coyotecommunications.com/culture/online2offline.shtml
  • Source for stats: http://www.pewinternet.org/Static-Pages/Data-Tools/Get-the-Latest-Statistics/Latest-Research.aspx
  • One of many great presentations on disability: http://www.slideshare.net/writetech/social-media-accessibility-for-nonprofits
  • Link to articles from Proceedings of the 2009 International Cross-Disciplinary Conference on Web Accessibility (W4A) http://portal.acm.org/citation.cfm?id=1535666 http://portal.acm.org/toc.cfm?id=SERIES12382&coll=GUIDE&dl=GUIDE&type=series&idx=SERIES12382&part=series&WantType=Proceedings&title=W4A&CFID=75123864&CFTOKEN=19735964
  • http://www.accessibletwitter.com/about.php
  • Example of HTML version of FB which is compatible with screen readers. (Same version which is used on mobile phones.) http://m.facebook.com/home.php
  • Article: http://www.eweek.com/c/a/Search-Engines/Google-Automates-Captions-in-YouTube-For-The-Deaf-113049/ Video: http://www.youtube.com/watch?v=OpXieOSyV6A
  • http://accessify.com/
  • http://delicious.com/michelemmartin/ilru+accessibility
  • Accessibly Retweet button from Even Grounds’ Developer’s Corner http://www.evengrounds.com/developers/accessible-retweet-button

Disability Rights and Social Media Presentation Transcript

  • 1. A Social Media for Social Justice Presentation Marsha Lanier, MSW www.SpiritBodyMind.org Community Organizing Consultant Twitter: @CommunityBldr 415-678-6303
  • 2. Social Media for CFILC February 8, 2010
  • 3. What is Web 2.0?
  • 4. Web 1.0 versus Web 2.0
  • 5. What is Social Media?
  • 6. Social Media Stats
  • 7. Social Media Stats
  • 8. Social Media Heavy Hitters
  • 9. Accessibility
  • 10. Why Now?
  • 11. Why does it matter?
  • 12. “Social media opens social world”
  • 13. How much staff time does it take?
  • 14. Basic components of Profiles
    • User Name
    • Email address
    • Password
    • Picture
    • Interests
    • Birth date
    • Gender
  • 15. Facebook: Getting Started: Creating a Profile
  • 16. Facebook: Avatar Activism ILRCSF View upon log-in
  • 17. Facebook: Group Discussions Reframing Disability: UA Pace Project
  • 18. Facebook Fan Page: Red Cross
  • 19. Facebook Fan Page: Red Cross responds to critique
  • 20. Facebook Notes = Blogging
  • 21. Facebook: How to create a Fan Page for your Nonprofit
  • 22. Twitter Tips: Twitter.com
    • Fully fill out your profile.
    • Listen first. Follow before you lead.
    • Utilize Twitter Search.
    • Use Hashtags. Eg: #Disability
    • Make sure you tweet and respond to others.
    • Don’t just gather followers; follow back.
    • Twitter is a two-way conversation.
    • Set up your website and/or blog to post new items to Twitter.
    • Get listed.
    • If you use it regularly, use TweetDeck or other organizing tool.
    • Adapted from H. Braum
  • 23. Independence First Milwaukee on Twitter @Independence1st
  • 24. @Independence1st List: Disability Curator function
  • 25. Find new activists: @DeafnessGuide on Twitter
  • 26. Twitter Vision: GeoMapping with IJC
  • 27. Photo Sharing: Flickr Rolling Rains: Traveling with a disability
  • 28. Blogs: Liz Henry Hack Ability “DIY”
  • 29. Blogs Cool Tool: Trendpedia
  • 30. Social Bookmarking: Delicious
  • 31. Using a Wiki: Google Docs
  • 32. Using Google Docs & other Wikis to Create a Nationwide Strategy
  • 33. Social Media and Fundraising: CIL-Net Wiki
  • 34. Social Media and Fundraising: Care2
  • 35. Ticket Sales become PR events on Social Media
  • 36. Making your event easy to “share” online
  • 37. Potential Pitfalls of Social Media
  • 38. Future Trends: Mobile Advocacy Frontline SMS
  • 39. Mobile Advocacy: Who uses SMS?
  • 40. Accessible Touch Screen Phones
  • 41. Learning Resource: Beth Kanter’s Blog
  • 42. Learning Resource: Social Edge
  • 43. Learning Resource: NetSquared
  • 44. Learning Resource: TechSoup
  • 45. Learning Resource: Idealist.org
  • 46. Learning Resources NTEN
  • 47. Learning Resource: Slideshare
  • 48. Learning Resource: Mashable
  • 49. Expert advice: Measuring ROI LinkedIn
  • 50. Expert advice: Measuring ROI Consultant’s Blog via Social Media
  • 51. Finding Demographics: PewInternet.Org
  • 52. Learning Resources: Slideshare
  • 53. Social Media and Accessibility
  • 54. About Accessible Twitter
  • 55. Facebook and Accessibility
  • 56. Google Automates Captions in YouTube for Accessibility
  • 57. Social Media and Accessibility: Accessify
  • 58. Accessibility Resource: Delicious List
  • 59. Accessibility Resource: Even Grounds
  • 60. Organizational Support
    • Make your CIL Web 2.0 friendly.
    • If you don’t do it, some other group will.
    • Ask staff, volunteers and consumers: who’s using social media? How? (Doesn’t have to be the ED.)
    • Invest in tech conferences for staff and internet access for consumers and volunteers.
    • Create a “wifi café” event.
    • Ask staff, volunteers and consumers: commit to Tweet, FB, Blog or text about our issue x times.
    • Nurture and reward rock stars.
    • Never underestimate the power of youth.
    • Invite other social media activists to your events; Cross issue = FREE publicity and coalition building.
  • 61. A Social Media for Social Justice Presentation Marsha Lanier, MSW www.SpiritBodyMind.org Community Organizing Consultant Twitter: @CommunityBldr 415-678-6303