Recruitment Consume Perspectives

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Recruitment Consume Perspectives

  1. 1. Consumer Perspectives Recruitment
  2. 2. Introduction <ul><li>Recruitment bridges both issues of science and implementation of study </li></ul><ul><li>Ethical issues focus on vulnerable groups that are unable to exercise their rights adequately </li></ul><ul><ul><li>Unfairly excluded </li></ul></ul><ul><ul><li>Unfairly targeted </li></ul></ul>
  3. 3. Recruitment & Safety <ul><li>Carefully develop inclusion/exclusion criteria that is sensitive to different groups and individuals </li></ul><ul><li>Researchers need to understand biological and cultural characteristics of diverse populations </li></ul>
  4. 4. Social Context of Recruitment <ul><li>Politics of poverty </li></ul><ul><li>High cost of bringing a drug to market </li></ul>
  5. 5. Motivating Participation <ul><li>Offering financial compensation </li></ul><ul><li>Providing access to treatment </li></ul><ul><li>Involving community leaders </li></ul><ul><li>Involving consumers as recruiters </li></ul><ul><li>Marketing research effort </li></ul><ul><ul><li>Newspaper & television advertisements, flyers, websites </li></ul></ul>
  6. 6. Motivating Participation (2) <ul><li>Ethical problems with recruitment strategies to motivate participation </li></ul><ul><ul><li>Undue influence of motivators may result in potential risks of research ignored by participants </li></ul></ul>
  7. 7. Motivating Participation (3) <ul><li>Make it hard for people to say “No” </li></ul><ul><ul><li>Multiple contacts </li></ul></ul><ul><ul><ul><li>Postcards & letters </li></ul></ul></ul><ul><ul><ul><li>Telephone calls and face-to-face encounters </li></ul></ul></ul><ul><ul><li>Train recruiters to have aggressive presentation </li></ul></ul><ul><ul><li>Evaluate recruiter job performance </li></ul></ul><ul><ul><ul><li>Track refusal rates </li></ul></ul></ul>
  8. 8. Declining Participation <ul><li>Recruitment strategies can cross an ethical line and become an undue influence by making too hard for a person to refuse participation </li></ul><ul><li>Do researchers have the responsibility to empower potential participants to decline participation? </li></ul>
  9. 9. Dialogue Discussion Group <ul><li>Consumers indicate two reasons for participation: </li></ul><ul><ul><li>Help others, altruism </li></ul></ul><ul><ul><ul><li>Need intrinsic benefit in addition to compensation </li></ul></ul></ul><ul><ul><ul><li>“ Its not just the money, it’s the knowledge or learning going on” </li></ul></ul></ul><ul><ul><li>Financial compensation </li></ul></ul><ul><ul><ul><li>“ You want to grab at the money, gobs of it” </li></ul></ul></ul><ul><ul><ul><li>“ Money can make you get involved in a study and then you realize the merits” </li></ul></ul></ul><ul><ul><ul><li>“ People with mental illness have monetary problems because of work histories” </li></ul></ul></ul><ul><ul><ul><li>“ People with good paying jobs with great medical health plan don’t go into studies” </li></ul></ul></ul><ul><ul><ul><li>“ There is a pressure because you need money or care” </li></ul></ul></ul>
  10. 10. Dialogue Discussion Group <ul><li>Participants see no problem with doing research for money </li></ul><ul><ul><li>“ You (IRB members, researchers) talk about the problems of people who are in a study for the money, but the people who are doing the study get paid. They aren’t volunteering to ask questions.” </li></ul></ul>
  11. 11. A Question of Fairness <ul><li>Need to recognize context in which research is conducted </li></ul><ul><ul><li>Research participants often lowest tier of society </li></ul></ul><ul><ul><li>Research is conducted within a capitalistic society </li></ul></ul><ul><ul><ul><li>Why should research participation be motivated solely by altruism? </li></ul></ul></ul><ul><ul><li>IRB concern for “undue influence” ignores concept of participants as collaborators </li></ul></ul><ul><ul><ul><li>Need to pay for time, information </li></ul></ul></ul>
  12. 12. Thinking Outside the Box <ul><li>Separate issue of payment from appreciation of risk </li></ul><ul><li>Minimal risk research may not be a problem if participants go into a study for money </li></ul><ul><li>If risky science, researchers can work to reduce risks where possible </li></ul><ul><li>If money an “undue influence”, deal with the undue influence as a competency issue on a case-by-case situation </li></ul>
  13. 13. Collaborative Recruitment Partnering Practical Promoting Positions Collaborative Strategies
  14. 14. Targeted Recruitment Aiming For Graduates Technicians Professionals
  15. 15. Comprehensive Recruitment Diversity Specialty Experience

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