eHealth Services: How Library and Information Workers Can  Make a Positive Contribution       to Patient Health           ...
Benefiting Patients: LIS      Workers & eHealth               @MariaJGrant     Research Fellow, University of SalfordEdito...
http://bit.ly/nCJnET
http://usir.salford.ac.uk/12138/
What is eHealth?              http://bit.ly/pGY3Uq   ‘All applications of informationcommunication technology (ICT) which ...
Review Aim(Hardiker et al 2009)         • To examine literature           relating to the use of           eHealth service...
2622 Unique Abstracts•       MEDLINE, CINAHL, EMBASE    –     Computer applications    –     Modes of evaluation    –     ...
Four Named or Identifiable     eHealth Services• Health information on  the Internet• Bespoke online health  information• ...
Barriers, Facilitators and         Motivators• 100 themes emerged from the literature• 29 higher level categories• 5 overa...
29 Higher Level Categories •   Access to information    •   Operational issues •   Access to resource       •   People as ...
One-to-One Training             (Edgar et al 2002)• Canadian study• One-to-one training delivered by a health  librarian• ...
Quality of Internet Access              (Skinner et al 2003)•   Canadian study•   27 focus groups held in 2000•   210 youn...
Literature Review 1985-2005                 (McMullan 2006)• Methodology ambiguous    – English language papers    – Datab...
People as Adjuncts to  eHealth Services    •   Coaches    •   Enablers    •   Gatekeepers    •   Trainers
http://bit.ly/mTHZYF
Supplementary Searches•   Reworked original searches, November ’09•   Library and Information Science Abstracts    (LISA) ...
324 Unique Records•   Independently reviewed by me•   16 papers were obtained for further analysis•   5 meeting ALL of the...
LIS Worker as Facilitator                        (Edgar et al 2002)•   Canadian study•   One-to-one training delivered by ...
LIS Worker as Researcher              (Williams et al 2003)• Scotland based study• Department of Health funded study      ...
Library as a Construct              (Diefenbach et al 2004)•   USA based study•   Evaluation of an interactive educational...
Advocating the Role of a  Library/Information Service          (Bonniface et al 2007)• Australian based mixed method study...
LIS Worker as Provider                       (Becker et al 2010)•   3 part study of free internet use in public libraries ...
Emerging Findings on   Current and Future Roles• Evidence of diversity of roles for LIS services and  workers   – Library ...
‘No decision about                         me without me’                              p13http://bit.ly/c7Dfen
‘Increase NHS                          spending in real                         terms to meet the                       co...
‘We will make care                          more accessible                            by… using                        te...
CILIP Statement on thePosition of the Public Library     Service in England                           ‘Public library serv...
“Consideration should                         also be given to the                             creation of a              ...
What Makes a Good Library        Service?• ‘A good library service will deliver  against key policy objectives and  provid...
‘A Programme of Activities        and Events’• Health Improvement and Wellbeing• Programmes to develop information  litera...
http://bit.ly/l80wIeGeneral social outcomes ‘can provide a framework for  enabling public libraries to show social return ...
Valuing Knowledge & Expertise• Employs existing skills base• Provides a valued non-  illness-focused environment• Exposing...
ReferencesBecker, S., Crandall, M. D., Fisher, K. E., Kinney, B., Landry, C. & Rocha, A. Opportunity for all: how the Amer...
Benefiting Patients: LIS      Workers & eHealth               @MariaJGrant     Research Fellow, University of SalfordEdito...
Upcoming SlideShare
Loading in …5
×

eHealth Services: How Library and Information Workers Can Make a Positive Contribution to Patient Health

505 views
418 views

Published on

Presented at the Umbrella 2011 conference, 12 - 13 July 2011, University of Hertfordshire, Hatfield, UK.

Published in: Health & Medicine, Education
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
505
On SlideShare
0
From Embeds
0
Number of Embeds
0
Actions
Shares
0
Downloads
3
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

eHealth Services: How Library and Information Workers Can Make a Positive Contribution to Patient Health

  1. 1. eHealth Services: How Library and Information Workers Can Make a Positive Contribution to Patient Health @MariaJGrant Research Fellow, University of SalfordEditor, Health Information and Libraries Journal
  2. 2. Benefiting Patients: LIS Workers & eHealth @MariaJGrant Research Fellow, University of SalfordEditor, Health Information and Libraries Journal
  3. 3. http://bit.ly/nCJnET
  4. 4. http://usir.salford.ac.uk/12138/
  5. 5. What is eHealth? http://bit.ly/pGY3Uq ‘All applications of informationcommunication technology (ICT) which relate to health care.’
  6. 6. Review Aim(Hardiker et al 2009) • To examine literature relating to the use of eHealth services • To identify and explore factors (barriers and facilitators) that may influence engagement with those services by the public
  7. 7. 2622 Unique Abstracts• MEDLINE, CINAHL, EMBASE – Computer applications – Modes of evaluation – Health services• 70 papers were obtained for further analysis• 50 identified as meeting ALL of the review inclusion criteria: – Named or identifiable examples of eHealth services – Used by the public – Barriers or facilitating factors influencing use – Readily and freely available online – Published in English http://bit.ly/qjZHuU
  8. 8. Four Named or Identifiable eHealth Services• Health information on the Internet• Bespoke online health information• Online support, mailing lists and online communities http://bit.ly/ntkPxZ• Telehealth services
  9. 9. Barriers, Facilitators and Motivators• 100 themes emerged from the literature• 29 higher level categories• 5 overarching themes – Characteristics of users – Technological issues – Characteristics of eHealth services – Social aspects of use – eHealth services in use
  10. 10. 29 Higher Level Categories • Access to information • Operational issues • Access to resource • People as enablers • Age • Physical distance • Belonging • Reassurance • Content issues • Security and privacy • Educational attainment • Shared experience • Empowerment • Shared responsibility • Ethnicity • Skills and knowledge • Fit with everyday life • Social contact • Health status • Socio-economic status • Information needs • Technological issues • Interpersonal issues • Trust • Literacy levels • Usability and usefulness • Miscellaneous • User response • Motivation
  11. 11. One-to-One Training (Edgar et al 2002)• Canadian study• One-to-one training delivered by a health librarian• 28 one hour sessions – Searching for cancer-related information web sites – Appraising cancer-related information• The teaching sessions were reported as being well received – Would register for another session http://bit.ly/oji58B
  12. 12. Quality of Internet Access (Skinner et al 2003)• Canadian study• 27 focus groups held in 2000• 210 young participants http://bit.ly/nXdng0• Health and education professionals as ‘gatekeepers and solution enablers’ – Fostering their use the Internet effectively and safely – Recommending quality health information web sites
  13. 13. Literature Review 1985-2005 (McMullan 2006)• Methodology ambiguous – English language papers – Database searches of PubMed, British Nursing Index, CINAHL (Ovid), AMED – Inclusion criteria?• Active consumers of Internet-based health information http://bit.ly/pC5LOY• Health professionals collaborate in obtaining and analysing information• Guide patients to reliable resources (Internet prescription)
  14. 14. People as Adjuncts to eHealth Services • Coaches • Enablers • Gatekeepers • Trainers
  15. 15. http://bit.ly/mTHZYF
  16. 16. Supplementary Searches• Reworked original searches, November ’09• Library and Information Science Abstracts (LISA) – 324 records• Library, Information Science & Technology Abstracts (LISTA) – 4042 records• Citation tracking
  17. 17. 324 Unique Records• Independently reviewed by me• 16 papers were obtained for further analysis• 5 meeting ALL of the review inclusion criteria: • Named or identifiable examples of eHealth services • Used by the public • Library or information worker or setting • Published in English• Content summarised• 5 themes/roles emerged
  18. 18. LIS Worker as Facilitator (Edgar et al 2002)• Canadian study• One-to-one training delivered by a health librarian• 28 one hour sessions – Searching for cancer-related information – Appraising cancer-related information http://bit.ly/nihCYI• Sessions includes: – Booklet on finding quality health information and list of recommended sites/resources – Presentation/demonstration – Hands-on searching tailored to patient need• Pre- and Post- evaluation• 2-3 month telephone follow-up• The teaching sessions were reported as being well received – Would register for another session• Patients felt empowered and in a better position to ask questions of clinicians Library provided a valued non-illness-focused environment
  19. 19. LIS Worker as Researcher (Williams et al 2003)• Scotland based study• Department of Health funded study http://bit.ly/qIdDEv• Investigated use of health information kiosks in GP surgeries• In-depth interviews with females aged 55-74 (identified as an under-represented group)• 13 non-kiosk-using, primary-care out-patients• 2 consecutive days• Unaware of the presence of the kiosk or assumed that it was not for patient use Researcher based in a Dept. of Information Science
  20. 20. Library as a Construct (Diefenbach et al 2004)• USA based study• Evaluation of an interactive educational system mimicking a ‘virtual health centre’ for survivors of prostate cancer• Focus groups – 3 with prostate cancer survivors (n=18) – 2 with prostate cancer survivor spouses (n=15) http://bit.ly/pnjZGn• 473 questionnaires (70% response rate)• Overall, participants were very interested in the software and appeared to prefer it to print material• Tailoring of information according to individual needs• Ability to access information in any order Respondents appreciated the use of metaphors, that is, the notion of a virtual health centre with a consulting room, a library and a support group room
  21. 21. Advocating the Role of a Library/Information Service (Bonniface et al 2007)• Australian based mixed method study of the HeartNET online support group – 50 semi-structured in-depth interviews http://bit.ly/q7Ht4O – Analysis of 600+ members discussion board data – Other information exchanges• Dealing collectively with difficult questions• Patients may benefit from being given a contact point to communicate with others in similar situationsAdvocate that a library could signpost these resources
  22. 22. LIS Worker as Provider (Becker et al 2010)• 3 part study of free internet use in public libraries in the USA – Dual-frame random digit dialling telephone survey and a cell phone sample • 1,131 service users and 2,045 non-users. Calls were places from April 28, 2009 through August 1, 2009. – Web survey in 401 public libraries across the country • N= 45,000 between 6 April 2009 - 12 June 2009 – Case studies in 4 public libraries • One-week long site visits which included interviews and focus groups with service users, staff and local agencies between March and May, 2009 and http://bit.ly/pnjZGn resulted in 280 interviews• Expertise of librarians in directing enquirers to reputable resources – Online and print materials• Two levels of expertise – How to use computers – A model of good practices in finding quality sources of health information ‘Many librarians have embraced this change as a natural extension of their role as highly trained information guides’
  23. 23. Emerging Findings on Current and Future Roles• Evidence of diversity of roles for LIS services and workers – Library as a Construct; Advocates – Facilitators; Providers; Researchers• Across the academic, health service and public library sectors• Global phenomenon – Australia, Canada, Scotland, United States• Practice level – Some embracing an extension of their role http://bit.ly/nQNmnr
  24. 24. ‘No decision about me without me’ p13http://bit.ly/c7Dfen
  25. 25. ‘Increase NHS spending in real terms to meet the costs of demographic and technological change’. p14http://bit.ly/c7Dfen
  26. 26. ‘We will make care more accessible by… using technology to help people communicate with their clinicians.’ p21http://bit.ly/c7Dfen
  27. 27. CILIP Statement on thePosition of the Public Library Service in England ‘Public library services should be needs driven rather than demand led.’ Brian Hall, CILIP President 5th February 2011 http://bit.ly/qaSvPX
  28. 28. “Consideration should also be given to the creation of a designated health and well-being function within library structures’ and the ‘setting up of “health zones” in [public] libraries.” p8http://bit.ly/nUuaV8
  29. 29. What Makes a Good Library Service?• ‘A good library service will deliver against key policy objectives and provide… a programme of activities and events that reflect the important role of the library in the local community.’
  30. 30. ‘A Programme of Activities and Events’• Health Improvement and Wellbeing• Programmes to develop information literacy, ICT proficiency and skills for life
  31. 31. http://bit.ly/l80wIeGeneral social outcomes ‘can provide a framework for enabling public libraries to show social return on investment’
  32. 32. Valuing Knowledge & Expertise• Employs existing skills base• Provides a valued non- illness-focused environment• Exposing potential non-users to eHealth services improves both the perceptions of non- users and their frequency of use• Empowers patients to be http://bit.ly/drLtAE in a better position to ask questions in consultations, optimising their contact with services
  33. 33. ReferencesBecker, S., Crandall, M. D., Fisher, K. E., Kinney, B., Landry, C. & Rocha, A. Opportunity for all: how the American public benefit from Internet access at US public libraries. 2010. Web site: http://tascha.washington.edu/usimpact/projects/us-public-library-study/Bonniface, L. & Green, L. Finding a new kind of knowledge on the HeartNET website. Health Information and Libraries Journal 2007, 24(Suppl 1), 67-76.Chartered Institute of Library and Information Professionals. Equity and excellence: liberating the NHS. Response of the Chartered Institute of Library and Information Professionals (CILIP), London: CILIP, 2010.Chartered Institute of Library and nformation Professionals. What makes a good library service? Guidelines on public library provision in England for portfolio holders in local councils, London: CILIP, 2010. Revised.Department of Health. Equality and excellence: liberating the NHS, London: HMSO, 2010.Diefenbach, M.A. & Butz, B. P. A multimedia interactive education system for prostate cancer patients: Development and preliminary evaluation. Journal of Medical Internet Research 2004, 6(1), 25-31.EBLIP6. 6th International Evidence Based Library and Information Practice (EBLIP6) conference: valuing knowledge and expertise, Salford, 27th-30th June 2011. Web site: http://www.eblip6.salford.ac.uk/Edgar, L., Greenberg, A. & Remmer, J. Providing Internet lessons to oncology patients and family members: a shared project. Psycho- Oncology 2002, 11(5): 439-446.Hardiker, N. & Grant, M. J. Factors that affect public engagement with eHealth services: a literature review, Salford: University of Salford, School of Nursing, 2009.Hicks, D., Creaser, C., Greenwood, H., Spezi, V., White, S. & Frude, N. Public library activity in the areas of health and well-being: final report, London: Museums, Libraries & Archives, 2010.McMullan, M. Patients using the Internet to obtain health information: how this affects the patient-health professional relationship. Patient Education & Counseling, 2006, 63(1-2), 24-28.NHS Connecting for Health. Including everyone in electronic health information services, London: NHS Connecting for Health.Royal College of Nursing. What is eHealth? 2007/08/09. Web site: http://www.rcn.org.uk/development/practice/e-health 2007/08/09Skinner, H., Biscope, S. & Poland, B. Quality of internet access: barrier behind internet use statistics. Social Science & Medicine 2003, 57(5), 875-880.Williams, P., Nicholas, D. & Huntington, P. Non use of health information kiosks examined in an information needs context. Health Information & Libraries Journal 2003, 20(2), 95-103.
  34. 34. Benefiting Patients: LIS Workers & eHealth @MariaJGrant Research Fellow, University of SalfordEditor, Health Information and Libraries Journal

×