Strata RX 2013 | Designing for Dignity in Health Tech
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Strata RX 2013 | Designing for Dignity in Health Tech

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In this Strata RX presentation, Jen van der Meer of Luminary Labs challenges health tech startups to design for a higher aim, offering 8 design principals to enhance the lives of the patients they ...

In this Strata RX presentation, Jen van der Meer of Luminary Labs challenges health tech startups to design for a higher aim, offering 8 design principals to enhance the lives of the patients they serve.

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  • Leslie Patricelli <br />
  • ARIELY: We need to simulate a better future mental state for remembering. Data entry is not that simulation. <br /> Intrinsic information seems increasingly at risk <br /> Problem solving as pattern completion <br /> Alertness and resilience <br /> http://www.eecs.wsu.edu/~cook/pubs/ieee13.pdf <br /> A Survey on Ambient Intelligence in Health Care Giovanni Acampora, Member, IEEE, Diane J. Cook, Fellow, IEEE, Parisa Rashidi, Member, IEEE, Athanasios V. Vasilakos, Member, IEEE
  • HT: @lily <br /> ARIELY: We need to simulate a better future mental state for remembering. Data entry is not that simulation. <br /> <br /> Ambient Intelligence (AmI) is a new paradigm in information technology aimed at empowering people’s capabilities <br /> by the means of digital environments that are sensitive, adaptive, <br /> and responsive to human needs, habits, gestures, and emotions. <br /> Context Aware: It exploits the contextual and situational information. <br /> Personalized: It is personalized and tailored to the needs of each individual. <br /> Anticipatory: It can anticipate the needs of an individual without the conscious mediation of the individual. <br /> Adaptive: It adapts to the changing needs of individuals. <br /> Ubiquity: It is embedded and is integrated into our everyday environments. <br /> Transparency: It recedes into the background of our daily life in an unobtrusive way <br /> <br /> http://www.eecs.wsu.edu/~cook/pubs/ieee13.pdf <br /> A Survey on Ambient Intelligence in Health Care Giovanni Acampora, Member, IEEE, Diane J. Cook, Fellow, IEEE, Parisa Rashidi, Member, IEEE, Athanasios V. Vasilakos, Member, IEEE
  • From Ambient Commons: <br /> <br /> Soldiers and surgeons alike tend to prize their “situational awareness.” The ability to read a context on the fly can mean life or death to these experts. Where a merely competent person would play by the rules, and expert knows when not to and directly plays the situation. <br /> <br /> Andy Clark (philosopher and cog scientist) and David Chalmers (philosopher) call embodied skills “the extended mind” or “extended cognition.” Engaged action occurs in “memory as pattern re-creation instead of data retrieval; problem solving as pattern completion and transformation; the environment as an active resource, and not just a domain problem; and the body as part of the computational loop, not just an input device. _ <br />
  • http://www.aami.org/publications/bit/2012/JA_alarm_fatigue.pdf <br /> Monitor alarm fatigue: An Integrative Review. Maria Cvach, John’s Hopkins Hospital. <br /> http://www.farmpd.com/Portals/53820/images/auditory-perception-3.jpghttp://www.aami.org/publications/bit/2012/JA_alarm_fatigue.pdf <br /> The constant beeping of alarms on patient monitors de­sensitizes caregivers, causing them to ignore or even disable the sounds that signal that patients may be in danger. <br />
  • Today healthcare is episodic. Care happens in the doctor’s office, with big gaps between visits. It’s an incomplete picture. But what if we could fill those gaps with data from the sensors in your phone. <br /> <br /> This information helps us better understand the relationship between behavior and health.
  • http://irevolution.net/2013/09/23/principles-for-big-data-and-resilience/ <br /> Eliminating “preexisting conditions” under accountable care does not lead directly to people wanting to openly share all of their health data. There is still social stigma, fear that such information could make a person un or less employable or less desirable as a mate. <br /> This is critically important for new entrants in health tech – health has room for emergent outcomes, but not mercenary moral relativity.
  • Asthmopolis propeller <br /> <br /> <br />
  • Permission marketing is the privilege (not the right) of delivering anticipated, personal and relevant messages to people who actually want to get them. _Seth Godin <br /> Informed consent is a process for getting permission before conducting a healthcare intervention on a person. <br /> Internet kids need to pause before jumping in with nudge experiments and behavioral economics hacks. <br /> And not continue on the slippery path of moral relativity as it relates to personal privacy. <br /> There is much more at stake when we build these systems with our health in mind.
  • Increased chart reviewing led to decreases in patient understanding, possibly because this activity interferes with making eye-contact and communication in general. <br /> http://www.sciencedirect.com/science/article/pii/027795369400155M <br /> Goals for ambient intelligence: <br /> facilitate human contact. <br /> oriented towards community and cultural enhancement. <br /> help to build knowledge and skills for work, better quality of work, citizenship and consumer choice. <br /> inspire trust and confidence. <br /> be consistent with long term sustainability — personal, societal and environmental — and with lifelong learning. <br /> be made easy to live with and controllable by ordinary people. <br />

Strata RX 2013 | Designing for Dignity in Health Tech Strata RX 2013 | Designing for Dignity in Health Tech Presentation Transcript

  • LUMINARY LABS @JENVANDERMEER @LUMINARYLABS DESIGNING FOR DIGNITY IN HEALTH TECH Jen van der Meer STRATA RX - SEPTEMBER 2013
  • 2 Jen van der Meer @JENVANDERMEER
  • 3 Jen van der Meer @JENVANDERMEER
  • DOES THE TRIPLE AIM SEEM UNATTAINABLE Improve population health Improve the patient experience @JENVANDERMEER Reduce the per capita cost of health care
  • Leslie Patricelli
  • Meaningful use. Accountable care. Can we set the bar higher? The names of the following incumbent EMR/EHR providers and the names of patents and doctors are redacted to protect privacy and mediocrity.
  • HIGHER
  • HIGHER
  • HIGHER
  • THE COST OF TECHNOLOGY Thomas Murphy, MD 2001
  • So here come the startups. The internet kids. To the rescue. Full disclosure: I am one of those kids. @JENVANDERMEER
  • To change the world. And we actually think this way –as if we could hold the world in our hands. More ego-maniacal than surgeons, we are. We come, inspired. And improve human lives.
  • But we are not without fault. @JENVANDERMEER
  • We tend to design for the motivated, and the healthy.
  • We get too excited about startup traction, not excited enough about evidence-based outcome Paul Graham’s Startup Curve
  • We have a huge learning curve to figure out how to disrupt the cost curve Data: OECD Health Data 2005 and 2006. Commounwealth Fund National Scorecard on US Health Performance 2006.
  • Cost + Compliance Incumbents vs. New Entrants Lifestyle
  • LET’S SET A HIGHER BAR @JENVANDERMEER
  • @JENVANDERMEER For each solution born onto the health tech scene, we ask: Are patient’s lives enhanced by the addition of data? Do doctors become more wise? Do nurses feel more empowered? Do spouses know how to effectively intervene? Do adult children of aging parents get more time in their overly stretched days? And do these collective interactions actually result in improved population health?
  • DATA DESIGN PRINCIPLES THAT SET A HIGHER BAR FOR HEALTH AND HUMAN DIGNITY @JENVANDERMEER
  • 8 PRINCIPLES: DESIGNING DATA FOR DIGNITY Ethical Sharing Sacred Habits Deeper MotivationData Calming Eye Contact Double Loops The Herd Utility in Context Design for… @JENVANDERMEER @LUMINARYLABS
  • DESIGN FOR UTILITY, IN CONTEXT @JENVANDERMEER
  • mHealth apps are only beginning to show the benefits of contextual awareness
  • Ambient intelligence will become more anticipatory, adaptive, and transparent
  • Technology that knows to behave differently in context to where you are
  • Simulating a better future mental state
  • Ambient Commons, Malcolm McCullough “Preontological awareness is faster”
  • DESIGN FOR DATA CALMING @JENVANDERMEER
  • The problem of alarm desensitization
  • The problem of data noise
  • The problem of the quantified parent – how to become calm and engaged parent
  • The payoff when visualization delivers wisdom, not just noise
  • DESIGN FOR SACRED HABITS @JENVANDERMEER
  • The smart phone… The perfect BF Skinner box?
  • “You want minty refreshing taste now, you benefit from tooth health later.” – Dan Ariely
  • Right thing, wrong reason: quantified dog could lead to self-understanding
  • DESIGN FOR DEEPER HUMAN MOTIVATIONS @JENVANDERMEER
  • Insert gratuitous Fogg Behavioral Model chart here A Behavior Model for Persuasive Design. BJ Fogg. Stanford University 2009.
  • mHealth apps often fail the motivation test, never reaching the unhealthy
  • Deeper motivators: “It feels good to volunteer simple answer to real questions people have”
  • Will altruistic motivators be the most powerful? “Contribute to Science”
  • DESIGN FOR ETHICAL SHARING @JENVANDERMEER
  • You have the right to not be sensed From: Seven Principles for Big Data and Resilience Projects. 9/23/2013 By Kate Crawford, Patrick Meier, Claudia Perlich, Amy Luers, Gustavo Faleiros and Jer Thorp 2013 PopTech & Rockefeller Foundation Bellagio Fellows.
  • Even if the value of that data delivers a larger public good
  • Startups will not necessarily learn the difference between Informed consent and permission marketing
  • The true north: be transparent about data sharing
  • DESIGN FOR EYE CONTACT @JENVANDERMEER
  • Facilitate human contact: does this chart review increase or decrease their understanding?
  • Does this device increase engagement, understanding, and trust? Or distract?
  • Aim higher. Diminish the use of screens: wear and forget sensors
  • DESIGN FOR DOUBLE LOOP LEARNING @JENVANDERMEER
  • Single loop learning Consequences Feedback Decision Actions
  • Single loop results, where is the “why”
  • Double loop learning Consequences Feedback Decision Actions Mental Models Of Real World Decision Rules, Strategies
  • Time until death @amikahmad NYU ITP
  • Standing at work today
  • DESIGN FOR THE HERD @JENVANDERMEER
  • Social proof = Positive peer pressure
  • 60
  • Caregivers are not just a target segment, They are an interaction paradigm
  • VA Caregiver pilot distributing 1000 iPads to caregivers of veterans
  • My herd watches out for me
  • To save everything, click here: HealthDataChallenges.com @JENVANDERMEER | @LuminaryLabs | @HDChallenges
  • My herd come join us: