Your SlideShare is downloading. ×
0
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
+1 Patient, SoCRA 21st Annual Conference
Upcoming SlideShare
Loading in...5
×

Thanks for flagging this SlideShare!

Oops! An error has occurred.

×
Saving this for later? Get the SlideShare app to save on your phone or tablet. Read anywhere, anytime – even offline.
Text the download link to your phone
Standard text messaging rates apply

+1 Patient, SoCRA 21st Annual Conference

642

Published on

The +1 Patient

The +1 Patient

Published in: Health & Medicine, Technology
0 Comments
1 Like
Statistics
Notes
  • Be the first to comment

No Downloads
Views
Total Views
642
On Slideshare
0
From Embeds
0
Number of Embeds
0
Actions
Shares
0
Downloads
0
Comments
0
Likes
1
Embeds 0
No embeds

Report content
Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
No notes for slide
  • 23% of social network site users, or 11% of adults, have followed their friends’ personal health experiences or updates on the site.17% of social network site users, or 8% of adults, have used social networking sites to remember or memorialize other people who suffered from a certain health condition.
  • And getting news in more personal ways – sharing through Facebook, for example.
  • Searching for health information is the 3rd most popular internet activity – following using a search engine and checking email.
  • Other activities: 18% have gone online to find others who might have health concerns similar to theirs.16% have consulted online rankings or reviews of doctors or other providers.15% have consulted online rankings or reviews of hospitals or other medical facilities.
  • 25% of all smartphone owners say their phones are their main source of internet access.9% increase in tablet ownership in ONE MONTH!25% The percentage of cell owners who, during the 2011 holiday season, used their phone inside storesto gather price comparisons
  • Pew Internet research shows that one in five internet users have gone online to find others who might have health concerns similar to theirs.Also makes someone more likely to blog.
  • Eight in ten caregivers (79%) have access to the internet. Of those, 88% look online for health informationCaregivers outpace other internet users on every health topic, from looking up certain treatments to hospital ratings to end-of-life decisions.
  • You can add in the next slide the tweet chats calendar for September 2012. http://www.symplur.com/healthcare-hashtags/tweet-chats/
  • Enable commentsHave a strategy for handling content and feedback – especially negative feedbackRESPONDConsistency in postingCross-post on multiple channels – use widgetsCommunity providers mean access to the best (curated) resources for the patient!--http://socialmediatoday.com/node/545540Start a digital dialogue using Facebook, Twitter, and YouTubeBecome an online voice for your community – start conversationsFind ways to connect / interactShare something of valueRecommend other sites, articles, links, tools, tips Collaborate and encourage participationBuild relationships – communicate“Engage and educate” your community with timely informationShare your opinion on healthcare policy Encourage your staff to participate in posting their helpful healthcare tips Do not blog about specific cases, or reveal any customer dataDo not offer medical advice! (educate, don't diagnose)
  • Transcript

    • 1. The +1 Patient Social Media and the Disease Experience Leslie Hammersmith eLearning Analyst and Cancer Research Advocate University of Illinois at Urbana-ChampaignSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 2. Who Am I? THE +1 PATIENTSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 3. @piaffeatx• 5 year breast cancer survivor• eLearning Analyst in higher education• Trained cancer research advocate • AACR • Research Advocacy Network • NCCTG • Young Survival Coalition
    • 4. Pew Research Center’s Internet And American Life Project TECHNOLOGY AND SOCIAL MEDIA IN OUR LIVESSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 5.  THE MAJORITY  74% of American adults use the internetSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 6. Use social networking sites 66% of adult internet users use social network sites – about half of all adults *as of February 2012SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 7. Changes in news consumption.Source: Nielsen Media Research, the Audit Bureau of Circulation and Arbitron, http://stateofthemedia.org/2012/overview-4/key-findings/#fn-10479-1
    • 8. ALL generations going online for news.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 9. 46%Of all Americanadults now own asmartphone ofsome kindSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 10. Who Are ePatients? EPATIENTS MEDICINE 2.0 PEER-TO-PEER HEALTH CARESoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 11.  American adults who are online  80% say they have looked online for information about health, such as a specific disease or treatmentSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 12. Internet Users and Health Information• 34% have read someone else’s commentary or experience about health or medical issues on an online news group, website, or blog.• 25% have watched an online video about health or medical issues.• 24% have consulted online reviews of particular drugs or medical treatments.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 13. your topic goes here• YOUR SUBTOPICS GO HERE
    • 14. Finding ePatients• Society for Participatory Medicine, http://participatorymedicine.org/• Partnership With Patients, http://partnershipwithpatients.com• E-patients.net• Patientslikeme.com Frost JH, Massagli MP. Social Uses of Personal Health ? Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data. J Med Internet Res 2008;10(3):e15. URL: http://www.jmir.org/2008/3/e15/ doi: 10.2196/jmir.1053 PMID: 18504244SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 15. ” When you hand someone a smartphone they are more likely to share, to create – to participate, not just consume.” – Susannah Fox THE MOBILE DIFFERENCESoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 16. The Mobile Difference1 in 4 cell owners used their phone inside stores to gather pricecomparisons during the 2011 holiday season.42% of smartphone owners between the ages 18-29 say theirphones are their main source of internet access.19% The percentage of adults who own a tablet computer as of mid- January 2012, up from 10% in mid-December 2011.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 17. Healthcare ExtendersFrom: HealthEd Academy. How Patients Learn in the Digital Age. Healthcare Extender Lens Report.http://www.hitconsultant.net/2012/07/25/how-patients-learn-in-the-digital-age-infographic/. Accessed July 25 2012.
    • 18. “…[H]aving a chronic disease significantly increases an internet users likelihood to say they both contribute and consume user-generated content related to health. They are learning from each other, not just from institutions.” –Susannah Fox THE DIAGNOSIS DIFFERENCESoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 19. 1 in 4 of those living with chronic disease, those who are caringfor a loved one, and those who have experienced a significantchange in their physical health go online to find others who havesimilar chronic conditions. – Popularity of blogging sites such as CarePages and CaringBridge, for example. – Many other patient- and disease-centered sites.
    • 20. Caregivers outpace other internet users Eight in ten caregivers (79%) have access to the internet. Of those, 88% look online for health information.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 21. Communities and Value Networks IMPROVING THE DISEASE EXPERIENCESoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 22. My experience as an engaged patient.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 23. Pre-Diagnosis• Every website I could find on breast cancer detection, pathology, and next steps. “breast cancer ultrasound images” “needle biopsy” “breast cancer young women”• Most of my information came from organizations like Susan G. Komen and Young Survival Coalition – not from my healthcare providers.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 24. Post Diagnosis• Understanding MY breast cancer• Treatment Options and Clinical Trials• Finding Other Young Survivors• Eventually, understanding research and improving survivorshipSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 25. YSC is the premier international organizationdedicated to the critical issues unique to young women and breast cancer.YSC works withsurvivors, caregiversand the medical,research, advocacy andlegislative communitiesto increase the qualityand quantity of life forwomen diagnosed withbreast cancer beforeage 45.
    • 26. SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 27. I use TrialX app on my smartphone (free).SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 28. Enter my disease details, desired study type, and location.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 29. And find clinical trials in my area that fit my personal situation.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 30. Curating Information via Crowdsourcing• Microblogging, Tweet Chats, Facebook, Bulletin Boards• Finding professional networks – Conference and topic hashtags (#) – Professional Networking Sites• Connecting with other patients and advocates – Patient-Centered Sites – Training and education through professional organizations Tip: Starting point for Healthcare Hashtags and Topics on Twitter, http://www.symplur.com/healthcare-hashtags/regular/SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 31. ExamplesSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 32. Patient Engagement EMERGING OPPORTUNITIESSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 33. Listen and Engage• Pay attention to your networks. Listen!• Engage your connections and patients frequently. Support them!• Embrace social media as a collaborative tool to unite staff, volunteers, and patients.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 34. Engage and Educate• Make your presence about educating your community with timely information. Share general, informative, interesting content!• Engage – don’t diagnose.• Demonstrate your value – share your success storiesSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 35. Patient Recruitment?• FDA requirements and IRB approvals still pose many challenges for using social media for patient recruitment. But I want it!SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 36. Compliance and Access?• Can Social Media help manage compliance with state and federal laws? – Solutions that enable social interaction while at the same time help address compliance issues. (OpenQ?)• Connecting clinical trials to mobile devices, and using mobile devices to track compliance, send reminders to patients, collect feedback.SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 37. EHR Possibilities? From Juhan Sonin,http://www.flickr.com/photos/juhansonin/3093096757/in/set-72157610925772960/
    • 38. Value Networks EXAMPLESSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 39. Example: Webicina
    • 40. Example: Partnership With PatientsSoCRA 21st Annual Conference Las Vegas, NV September 21, 2012
    • 41. Thank You! Leslie Hammersmith @piaffeatx Lhammersmith@yahoo.com 217.689.1030SoCRA 21st Annual Conference Las Vegas, NV September 21, 2012

    ×