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MS Advocacy

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This is a sample presentation created during an internship with the National MS Society, Michigan Chapter. This particular presentation is tailored to those living with MS in Saginaw, MI and aims to …

This is a sample presentation created during an internship with the National MS Society, Michigan Chapter. This particular presentation is tailored to those living with MS in Saginaw, MI and aims to increase knowledge of what advocacy is and how to start being an advocate.
The presentation has accompanying instructional handouts.

Published in: Health & Medicine

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  • Transcript

    • 1. jf Fixler & ASSOCIATES Advocacy and You A sample advocacy training presentation tailored for those living with MS in Saginaw, MI Lauren Hansen 2008, All rights reserved
    • 2. Until a cure for MS is found, activism is a concrete way that YOU can help improve the lives of others living with multiple sclerosis.
    • 3. What would you like to see?
      • A new curb cut?
      • A disabled parking spot closer to the mall?
      • A wheelchair accessible bathroom at the movie theater?
      • Improvement of an existing city service?
      • Increased medication coverage by your health plan?
      • Flex time at work?
      Activism can help you achieve it!
    • 4. What would you like to see? Advocacy can help you achieve it! Closer disabled parking at the mall! Flex time at work! A new curb cut on my street! Wheelchair accessible bathroom at the movie theater! Better insurance coverage!
    • 5. The “dos” of advocacy
      • Do:
        • Access the appropriate resources
        • Value your own experience and wisdom
        • Ask for help when needed; work with others
        • Practice your public speaking
        • Speak up when conditions are unsatisfactory; be diplomatic
        • Document your efforts
      • Don’t give up!
    • 6. Advocacy arenas Federal Action Alerts (email, letter, phone) Legislative visits State Action Alerts(email, letter, phone) Legislative visits Local Local issue task force Community committee or council Op-ed articles Local government visit Private Letter writing campaign In-person visit
    • 7. Action alert network
    • 8. FEDERAL action alert
      • Sent via msactionnetwork.org
      • Contains graphics
      • Follow link & enter zip code to access pre-written email to your legislator
      • To sign up: http://capwiz.com/nmss/mlm/signup/
    • 9. Recent FEDERAL action alerts
      • Make MS therapies more affordable
        • Biologic generics
      • Increase federal funding for MS research
        • Succeeded in making MS research eligible to receive funding from DOD!
      • Urge funding to assist family caregivers
        • Respite for caregivers
      • Congressional MS caucus in Senate
        • Kildee is not signed up
      • Support the ADA Amendments Act of 2008
      Source: http://capwiz.com/nmss/home /
    • 10. Your FEDERAL legislators - Senate
      • Carl Levin
        • [email_address]
        • levin.senate.gov/contact/index.cfm
        • (313) 226-6020
        • 477 Michigan Ave. Suite 1860, Detroit, 48226
      • Debbie Stabenow
        • [email_address]
        • stabenow.senate.gov/email.htm
        • (313) 961-4330
        • 234 W. Congress Suite 550, Detroit, 48226
      www.senate.gov
    • 11. Your FEDERAL legislators - House district 5
      • Dale E. Kildee
        • [email_address]
        • (800) 662-2685
        • Local Address
          • 515 N. Washington Ave. Suite 401
          • Saginaw, MI 48607
        • Washington Mailing Address
          • 2107 Rayburn House Office Building
          • Washington, DC 20515
      www.house.gov
    • 12. STATE action alert
      • Sent via [email_address]
      • No graphics (yet)
      • Local/statewide issues
      • Provides talking points for you to craft your own email
      • Link provided to find your legislator
      • To sign up: www.nationalmssociety.org => advocacy => action alert
    • 13. Recent STATE action alerts
      • Home care services/support expansion
        • Increase funding for MI Choice
        • Improve hourly wage of home health workers
      • Individual insurance market reform
    • 14. Your STATE legislators - Senate district 32
      • Roger Kahn MD
        • (866) 305-2132
        • [email_address]
        • Local Address
          • 3177 Monticello
          • Saginaw, MI 48603
        • Lansing Mailing Address
          • 420 Farnum Building
          • P.O. Box 30036
          • Lansing, MI 48909-7536
      www.senate.mi.gov
    • 15. Your STATE legislators - House district 95
      • Andy Coulouris
        • [email_address]
        • (888) 617-ANDY
        • Local Address
          • P.O. Box 2005
          • Saginaw, MI 48605
        • Lansing Office Mailing Address
          • N1199 House Office Building
          • PO Box 30014
          • Lansing, MI 48909-7514
      www.house.mi.gov
    • 16. Contact Decision Tree
    • 17. Legislative Visits
    • 18. Legislative visits - beforehand
      • Make an appointment
      • Get to know your legislator
        • Establish a relationship before you ask for support
      • Be prepared
        • Know the issue you are presenting
        • Know your legislator’s position on the issue
    • 19. Legislative visits - during
      • Be on time, dress appropriately, sign guest book
      • Introduce yourself as a constituent
      • Tell your personal story
      • Be organized in your presentation
        • Longer is not necessarily better
      • Don’t be afraid to say you don’t know
        • Use as a chance to follow-up
    • 20. Legislative visit - after
      • Document:
        • With whom you spoke
        • Date of contact
        • Send documentation to ruth.linnemann@mig.nmss.org
      • Send follow-up thank you card
        • Refer to specifics about the issue and your conversation
      • Let this meeting be the start of ongoing contact with your legislator
    • 21. Letter Writing
    • 22. Letter writing
      • Basic Format
        • Your name, address, phone
        • Date letter is sent
        • Reference contract, bill number or law (as appropriate)
        • Your signature
    • 23. Letter writing
      • Content
        • Be concise
          • 1 main point
        • Be diplomatic
        • 1-2 sentences up front stating your position
        • Brief description of the problem
        • If letter about policy, include personal example
        • Closing statement: response you expect and by what date
    • 24. How to address a letter
      • U.S. Senator
      • The Honorable (full name)
      • United States Senator
      • Address
      • ****
      • Dear Senator (last name):
      • U.S. Representative
      • The Honorable (full name)
      • United States Representative
      • Address
      • ****
      • Dear Congressman/woman (last name):
      State Senator The Honorable (full name) State Senator State Capitol P.O. Box 30036 Lansing, MI 48909-7536 **** Dear Senator (last name): State Representative The Honorable (full name) State Representative State Capitol P.O. Box 30014 Lansing, MI 48909-7514 **** Dear Representative (last name):
    • 25. Letter writing
      • Follow-up
        • Keep a copy of your letter
        • If you get a positive response, send thank-you
        • If you get no response, follow-up. Cite your first letter or include a copy.
    • 26. Private Sector Restaurant, School, Cinema, Shopping Center, Health Plan, Employer, Bank, etc.
    • 27. Private sector
      • Ask:
        • For the name of the manager or supervisor
        • About the formal grievance/appeal process
      • Follow-up with a letter
        • attn: actual person
      • Document:
        • With whom you spoke
        • Their phone #
        • On what date contact is made
      • Keep a copy of your letter
    • 28. The Approach
      • Be positive
      • Express what you need
      • Give suggestions
    • 29. Resources
      • www.nationalmssociety.org/advocacy
      • http://msactivist.blogspot.com/
      • http://www.saginawcounty.com/
        • All cities must have an ADA Coordinator
      • Communities of Power/Michigan Disability Rights Coalition
        • http://www.copower.org/
      • Federal government
        • http://senate.gov
        • http://www.house.gov
      • State government
        • http://senate.mi.gov
        • http://house.mi.gov