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215806 riley 215806 riley Document Transcript

  • C O N T E N T S Magic through a Most girls aren’t con- cerned with prom before their 16th birthday, but for 3-year-old Olivia Pierce of Hobart, Ind., the dress shopping and magical evening arrived much sooner than expected. On May 7, 2010, Olivia and more than 325 Riley Hospital cancer patients, their families and staff danced the night away at the inaugural Riley Cancer 5 Riley hits high note with Center Prom. Women for Evansville family Riley, Riley Children’s Lifesaving care inspires dad to Foundation and the Riley give back. Cancer Center organized the event to give patients and families an enchanted 7 Riley’s driving force evening to celebrate life. “We wanted to provide a special night for them,” said Krysta Fox, a John Andretti, Jeff Gordon Women for Riley member. and Tony Stewart join in Boys and girls of all ages including Olivia were fitted with prom supporting Riley. attire three weeks before the big day during “Promingdales.” Riley social workers and Women for Riley members helped each child find 11 Creating rhythm for Riley the perfect outfit from the more than 1,000 dresses, suits, shoes, purses and accessories that were donated. Patients also enjoyed special treat- Indiana students dance for Riley. ment right before prom as local stylists provided manicures, makeup and hair styling. 13 Instant bonds and lifelong Fairbanks Hall was transformed for the big night with Harry Potter friendships inspired touches. Inpatients arrived via “Hogwarts Express,” the Riley families find comfort and monorail connecting Riley to Fairbanks and other locations. Prom attendees enjoyed dancing, face-painting, a magician, food and much more. support from each other. But it wasn’t the disco ball or spinning lights that made the dance floor sparkle; it was the bright and shining smiles of children. Olivia 16 Hope amid destruction was particularly gifted on the dance floor. Pretty in pink, she was Riley pediatric cardiothoracic accompanied by her mother and grandmother, a first-time experience surgeon Dr. John Brown helps a for all three. At 3 months old, Olivia received a shocking diagnosis of retinoblas- Haitian earthquake survivor. toma, cancer in her left eye. Her mom Shannon had noticed something odd about Olivia’s eye in photographs. The family left their Disney Cover: NASCAR champion and Riley advocate vacation early to see their pediatrician. Olivia was immediately referred Jeff Gordon takes a moment to meet Camp to Riley Hospital. Tests confirmed the heartbreaking news. “I felt Riley veteran Matt Goodsman. completely helpless,” added Shannon. “My 3-month-old had cancer.” Within weeks Olivia was scheduled for surgery to remove her left
  • child’s eyes eye, as her cornea was a massive tumor. Her Riley surgeons, Dr. David Plager and Dr. Daniel Neely, believed the cancer had been present since birth and that she never had full eyesight. They also discovered Olivia had cancer in her right eye – bilateral retinoblastoma. Surgery was postponed to begin chemotherapy coupled with Exam Under Anesthesia (EUA) procedures every three weeks to monitor the tumors. Her left eye was successfully removed, and doctors continue to watch her right eye. “Today, Olivia is still fighting her battle, but she’s leading a normal life. She plays basketball and soccer, and loves to ride her bike,” says Shannon. “She has overcome so much in her short life.” At prom, Olivia wasn’t a girl who Upper right: Olivia Pierce had endured 29 eye procedures. There enjoys being dipped by Riley Children’s Foundation staff were no IV’s, monitors or hospital member Elizabeth Jacques. gowns – just three generations of Middle: Riley families enjoy the women dancing the night away. And Riley Cancer Center Prom. for a few hours, cancer didn’t exist. Bottom left: Jalaia Anderson is picture perfect. Bottom right: Olivia Pierce and Emma McCalister dancing on air together. Visit RileyKids.org/prom or email RileyProm@RileyKids.org for information on the 2011 Riley Cancer Center Prom. Autumn 10 2
  • N E W S B R I E F S Accomplished Hoosiers join Board of Governors Two business leaders joined the Riley Children’s Foundation Board of Governors in May. The Foundation is fortunate to have their astute leadership. John T. Thompson is the chairman and CEO of First Electric Supply Company, LLC; Thompson Distribution Company, Inc.; CMID, Inc.; and BC Countertops, Inc. He is a graduate of Cornell University and Columbia Camp Riley builds University. He serves on numerous nonprofit boards and government committees. His role confidence that lasts with Riley Children’s Foundation includes serving a lifetime on the Camp Riley committee. John resides in Camp Riley for Youth with Indianapolis. John T. Thompson Physical Disabilities has provided Rick Johnson is the president of Johnson new experiences, new friends and Ventures. He is a graduate of Indiana University. new achievements to kids for 56 The Johnson family has philanthropically sup- years. Camp Riley takes place at ported the IU Kelley School of Business, site of Bradford Woods, Indiana University’s the Johnson Center for Entrepreneurship and outdoor recreation center located 20 Innovation. He will serve on the Riley Children’s miles southwest of Indianapolis. Foundation finance committee. Rick resides in Nearly 225 children attended six Columbus. different Camp Riley sessions during Rick Johnson a five-week span this summer. Each session focused on a different theme, but all included traditional camping activities like horseback riding, arts Indiana communities and crafts, canoeing, swimming and celebrate Riley Hospital outdoor games. With the help of a $1.75 million Lilly Endowment Riley family reunions, annual luncheons and ice cream socials are popping grant through Riley Children’s Foun- up throughout Indiana thanks to regional Riley leadership teams. The events dation, future campers will soon celebrate Riley families, local referring physicians, regional Riley clinics and enjoy an indoor riding facility and generous donors. The goal is to unite Riley families and create greater aware- covered sports court. ness of Riley’s partnerships around the state. I On June 26, the Lafayette community hosted a Riley family reunion at Columbian Park with ice cream and free passes to the zoo/waterpark. Beat the summer heat I On August 4, Evansville Riley families and business leaders gathered for with a Blizzard dinner and a special program at Old National Bank overlooking the Ohio During the fifth annual River. Deaconess Gateway Hospital in Evansville offers nearly 20 Riley Miracle Treat Day on clinics. Thursday, August 5, proceeds I On September 30, the second annual Fort Wayne Luncheon will from Blizzard® sales take place on the IPFW campus. Local Riley families and referring benefited Children’s Miracle physicians will share their stories. Network hospitals. Last year, Dairy Queen locations I On November 17, 1,300 donors and partners will attend the Riley throughout Indiana raised Annual Luncheon in Indianapolis. This year’s luncheon will celebrate nearly $200,000 in one day the successful completion of the Hope Happens Here campaign. for Riley Hospital. 3 3 R ii ll e y M e s s e n g e r R ey Messenger
  • KCS is back in season Administrators and faculty will again teach students the value of philanthropy through Kids Caring & Sharing (KCS) this year. Last year, We Love nearly 600 Riley! schools raised more than $600,000 for Riley 2009 Riley Champions (L to R): Cleat Winkler, Tatum Parker, Jac’Quel Jones, Nick Long, Sarah Heimann and Joel Paschen Hospital. Is your school involved? Become Nominate your Riley Champion a Miracle School by raising $1 per Riley Children’s Foundation launched the Riley Champions program in student. For free fundraising supplies 2008 to honor Riley Hospital for Children patients who have inspired com- and assistance to start a KCS munities with their courage and commitment to help others, despite facing program at your school, visit difficult medical challenges. Do you know a deserving Riley kid between www.RileyKids.org/kcs or contact 8 and 18? Visit www.RileyKids.org/champions to nominate your Riley the KCS coordinator at Riley Champion. Nominations are accepted year round. 2010 Riley Champions Children’s Foundation at will be announced in November. 877-867-4539. Proceeds from golf tournament aid purchase of diagnostic camera A new diagnostic camera in the Pediatric Ophthalmology Clinic at Riley Hospital is the result of a dare made years ago by a Greencastle, Ind., man. Blind in one eye from a childhood injury, Terry Clodfelter challenged his friends to wear bandanas while playing golf after he was chastised for his poor performance. That was 17 years ago and the beginning of the One-Eyed Golf Tournament held every summer in Greencastle. Clodfelter recently delivered a $15,500 check to help cover the cost of a new diagnostic camera. The camera can photograph the eyes of patients as young as 2, making their visits to the ophthalmologist less stressful. The 2010 tournament will be held on September 11. For information visit www.clodysoneeyegolf.com/. More than 4,000 expected at Don Schumacher Racing Open House For the fifth-straight year, Don Schumacher Racing (DSR) is teaming up with its NHRA Full Throttle Drag Racing Series sponsors and drivers to provide another spectacular Open House for NHRA fans and sup- porters. The event will be held at its Brownsburg, Ind., race shop before the U.S. Nationals on Friday, September 3, from 10 a.m. to 3 p.m. With more than 4,000 attendees expected, the Indy Hi-Winders Car Club will highlight the event with its popular Car and Motorcycle Show as DSR aims to exceed a five-year event total of $100,000 in funds voluntarily raised for Riley Hospital for Children. Autumn 10 4
  • Riley’s care strikes a chord with Evansville family N No one would call a stroller collapse their appointment with a surgeon. follow-up, and her facial scar is fad- a fortunate incident. But for 2-1/2- Ella’s cyst ruptured that night at ing. “You wouldn’t really even know year-old Ella Dyer, a seemingly in- the hotel. Unfamiliar with the city it’s there unless you got up close,” nocent bump on the nose led to and panic-stricken that the break Logan says. early treatment of a potentially would open Ella’s brain to infection, “She’s the coolest little cucumber serious medical condition – and her Logan called an ambulance to take ever,” Sarah adds. “Miss Cool” father’s musical thank you to Riley her to the Riley Hospital emergency wears pink strap-on sunglasses Hospital for Children. room. “At that point, we didn’t know around the house, totes a purse and After Ella and her twin sister if the situation was life-threatening,” loves dressing up in big shoes. “I’m Emma tumbled from their stroller Sarah recalls. worried about when she’s 16,” her in May 2009, their parents, Logan Within days, Ella underwent sur- mother laughs. Dyer and Sarah Karim, thought the geries to remove the cyst from two Logan is a talented musician who mark on Ella’s nose was a bruise. directions. Pediatric otolaryngologist plays saxophone and several other But the little red bump kept grow- Bruce Matt, M.D., worked first instruments, gives private lessons, ing. Her concerned parents took through an “H”-shaped incision and works as a woodwind and Ella to the emergency room at their across her nose. Then pediatric brass repair technician. Last fall, he hospital in Evansville and then to an neurosurgeon Laurie Ackerman, organized a concert to benefit Riley ear, nose and throat specialist. A CT M.D., accessed Ella’s frontal lobe Hospital and is planning an even scan confirmed missing bone and a through a wavy incision from ear to bigger one in September. He has saclike growth called a dermoid cyst. ear across the top of her head. contacted potential sponsors, and An MRI through Deaconess Riley “She was blind for 24 hours, and local music stores are helping him Children’s Specialty Center in that was the worst part of it for me,” promote the family friendly event. Evansville revealed that the growing Sarah says. “But she didn’t miss a “I hope it will keep growing every cyst had pushed toward Ella’s brain. beat. She was released from the year,” he says. “I feel like I should Faced with their daughter needing hospital four days later, and we give back for what Riley did for Ella pediatric neurosurgery, the family went to dinner on the way home.” – they saved my daughter’s life.” drove to Indianapolis a day before Ella was “all clear” at her one-year While he’s practicing, two little girls are underfoot and making music, too – blowing raspberries Visit RileyKids.org/stories to watch Ella’s story. on their hands in pretend trumpet practice. Emma Dyer sweetly hugs her twin sister Ella, who received lifesaving care at Riley Hospital. 5 Riley Messenger
  • “ I feel like I should give back for what Riley did for Ella – they saved my daughter’s life.” - Logan Dyer Autumn 10 6
  • Noah Sowder and John Andretti Jeff Gordon and Bailey Moore Braden Tamosaitis and Tony Stewart Andretti, Gordon and Stewart drive home support for Riley C heckered flags wave in Indy during May and July, but racing’s support of Riley Hospital is a year-round spectacle. Riley benefits from close relationships with drivers John Andretti, Jeff Gordon and Tony Stewart – not just financially, but “There are a lot of great things to give to, but to me, there’s nothing more important than making a child well,” he says. “Now it’s a real mis- sion to raise money and awareness.” Andretti calls visiting Riley patients “life-changing” for himself and others he has drawn into his efforts: “As diagnosed with leukemia. The foun- dation focuses on funding programs that improve pediatric cancer patients’ quality of life, treatment programs that increase survivorship, and medical research to find a cure. Gordon’s ninth annual Celebrity Bowl in Indianapolis this summer also by their hands-on commitment competitors we see these kids added more than $300,000 to the and support from fans and colleagues fighting a much more difficult fight $1.5 million that the event already throughout the racing industry. than we’ll ever have, with commit- has raised for the Jeff Gordon Chil- Fourteen years ago, Andretti and ment, passion and a positive attitude.” dren’s Foundation Pediatric Research then WIBC radio host Dave Wilson Four-time NASCAR champion Fund at Riley. envisioned “a fun little match race,” Jeff Gordon would agree that meeting Gordon involves many other Andretti recalls. In 2009, their annual patients, families, physicians and drivers and personalities to make Kroger Race for Riley presented by researchers at Riley Hospital reminds his Celebrity Bowl a success. He also Cheerios at New Castle Motorsports him why his fundraising efforts are shares his own interest in Riley Park raised a record $207,586. important. “Jeff is thankful for his Hospital with his huge fan base. “We’ve been able to grow Race for healthy family and for a wonderful “NASCAR is, at its core, a family, Riley through great partners and career, and he would be the first to and a very generous family at that,” great relationships, especially Kroger tell you that he takes more away Kriger says. and General Mills,” Andretti says. from every visit than the kids and Tony Stewart established his “It’s not proceeds,” he adds. “It’s their families do,” says Trish Kriger, foundation in August 2004 – the 100 percent going directly to the excutive director of the Jeff Gordon second of about 18 drivers who now hospital.” Children’s Foundation. have done so, according to Joni Andretti has long personally Gordon launched his Charlotte- Thompson, executive director of the supported Riley Hospital, where his based foundation in 1999, after the Tony Stewart Foundation. Stewart brother and sister once were patients. son of his former crew chief was chose to support three causes near As racers and competitors we see these kids than we’ll ever have, with commitment, 7 Riley Messenger
  • to his heart: children who face hard- ships because of medical difficulties or disabilities; the protection of animals; and fellow drivers injured in motorsports activities. Camp Riley for Youth with Physical Disabilities is among many specialty camps in several states that Stewart’s foundation helps. “Tony wants these kids to have the chance, in the summer, to simply be a kid,” Thompson says. Stewart’s personal involvement also ensures the success of fundraisers like the sixth annual Gillette Fusion ProGlide Prelude to the Dream. Held in June at Stewart’s Eldora Speedway in Rossburg, Ohio, the all-star race benefited four children’s hospitals, including Riley. The five previous races have collectively raised more than $2.5 million. Thompson attributes the close relationship between the racing industry and children’s hospitals like Riley to a culture among the drivers: “The drivers are so visible. They have such a huge fan base, and they’re following the examples of these leaders.” Top: Tony Stewart chats with Camp Riley regulars Alex Nodine (left) and Caleb Lammert (right). Middle: Jeff Gordon visits with Tatum Gumpf (left) and Tatum Parker (right). Bottom: Andretti’s annual Kroger Race for Riley gives fan a chance to challenge the driver on the track and support Riley. fighting a much more difficult fight passion and a positive attitude.” - John Andretti Autumn 10 8
  • Riley runs interference for teen C Cody Mitro, 17, “eats, breathes ing his usual mile home from East and sleeps football,” says his mom Noble High School but didn’t have Terri Mitro. When he can, Cody the energy to make it; a police plays football himself, and his bed- officer brought him home. Terri had room is a Colts shrine. So imagine already scheduled an appointment his excitement in November 2006, with Cody’s doctor, thinking her when the Make-a-Wish Foundation son looked pale and lethargic. The arranged for Cody to watch his doctor arranged Cody’s admission favorite team practice. to Riley Hospital for Children The autographed jersey and team within the hour. members’ photos Cody received that “This kid’s been through the day are still part of his room décor mill,” Terri says. Cody has had two at home in Woodburn, Ind., near ports, two central lines and countless Fort Wayne. They mark a bright transfusions. Two ATG (antithymo- spot in four tough years that Cody cyte globulin) treatments were un- has battled severe aplastic anemia, a successful. He continues to fight off disease in which the bone marrow fungal, viral and bacterial infections. stops making enough red blood cells, His medications have caused kidney white blood cells and platelets for damage that will require ongoing the body. treatment. Cody was admitted to On April 27, 2006, the day before Riley Hospital on January 5 of this he was diagnosed, Cody was walk- year and underwent a stem cell transplant on January 15. Through Memorial Day, the high school “Everything about Cody makes me proud, junior had only been home 13 days. Cody is currently battling but the most is how he’s endured this. graft versus host disease of the skin and gut along with He is so modest, he doesn’t Aspergillus lesions on his brain. Through every test and proce- realize how much he has dure, Terri has made herself a strong and proactive advocate for her son. She believes that Cody has inspired people.” received excellent care from Dr. Robert Fallon, director of pediatric hematology-oncology; Dr. Paul - Terri Mitro, Cody’s mother Haut, director of pediatric stem cell transplantation; and his team 9 Riley Messenger
  • of physicians and nurses. “The doc- Cody couldn’t attend the Riley Prom tors are awesome, but sometimes in May, but the two upheld the they don’t want to worry the par- spring tradition by getting dressed ents,” she says. “They’ve learned to up, walking around the hospital and communicate closely with me.” enjoying some ice cream. “He looked Terri, a single mom who has lost so handsome in his tux, and they her job, relies on support from her had a really good time,” his mom daughter Christine and son-in-law says. Steve; son Joe and daughter-in-law Coping with Cody’s illness has Kristin; and her mother and sister, given both teenagers maturity beyond who live in Toledo. “Cody is close their years, she adds. “Everything with his family, and they’ve been about Cody makes me proud, but awesome,” she says. the most is how he’s endured this. Cody also counts on Karly, his He is so modest, he doesn’t realize girlfriend of two-and-a-half years. how much he has inspired people.” Cody and his girlfriend Karly share a Because of the risk of infection, warm embrace. A u t u m n 1 0 10
  • Student leaders choreograph $1. 8 million in support for Riley t age 2, Eric Davis was diagnosed with aplastic anemia, a rare blood disorder. He was treated until age 15, when doctors determined Eric needed a stem cell transplant and referred him to Riley Hospital. Eric received the transplant in 2004. The two-year recovery con- sisted of three rounds of chemotherapy and 10 stays at Riley Hospital. “Riley Hospital is a very special place to me,” said Davis, now a senior at Indiana University and president of the 2010 Indiana University Dance Marathon (IUDM). “I owe my life to Riley.” Eric’s medical journey inspired him to make a difference for other Riley families. He participated in the inaugural Carmel High School Dance Marathon and now leads IUDM’s student executive committee that has nearly 350 members. In November 2009, nearly 1,500 IUDM participants celebrated a record $1.5 million in proceeds for the Ryan White Infectious Disease Center at Riley Hospital. Building on prior successes, Eric’s team remains determined to raise an unprecedented new level. Roots of the Riley Dance Marathon Program date back 20 years. Then a sophomore at IU, Jill Stuart Waibel started IUDM in honor of her friend – Riley patient and AIDS advocate Ryan White. Ryan died in 1990. Even Jill, a true visionary, 11 Riley Messenger
  • “ Riley Hospital is a very special place to me. I owe my life to Riley.” - Eric Davis of Franklin Central High School in incredible young lady and loved Riley Indianapolis, is responsible for her more than any person I will ever school’s dance marathon. She was a know.” patient at Riley Hospital and provided These student efforts extend leadership and inspiration for the statewide. event. A few years ago Bailey was “Riley Hospital is the only compre- hooked up to the Berlin Heart. The hensive children’s hospital in the state, machine kept her alive for five months and many families turn to Riley in times before her heart was strong enough to of crisis,” said Kelly Deranek, former survive. She spent those months and Saint Mary’s College Dance Marathon many other visits to Riley Hospital president and a South Bend native. being treated for aortic stenosis, which More than anything, students are was diagnosed when she was only a driven by a common motto: “We few days old. stand for those who cannot.” “Imagine what this world would be “We are always inspired by Riley like without the benefit of Riley Hospital. kids – their ability to overcome any- It’s not only the fact that sick children thing and dream big,” said Lindsay have Riley heroes, it’s the fact that Van Houten, president, Purdue those heroes won’t quit until they are University Dance Marathon. no longer needed,” Hunsberger said. The young leaders are reminded of could not have predicted that IUDM Ben Cohen, president of the 2009 the important role they play when would raise more than $8.5 million Butler University Dance Marathon, their hard work pays off in a life- in 19 years. raised more than $16,000 to support enriching experience known as a dance Since then, student leaders at Butler’s student-run event. marathon. 27 Indiana high schools, colleges His sister, Sarah, was a Davis emphatically said it best, “I and universities have produced Riley patient who died of don’t know of a greater cause.” amazing results. During the 2009-10 Ewing’s sarcoma on Main: Students at Marian High School in academic year, $1.89 million was August 13, 2009. During Mishawaka do a dance for Riley. raised for research and clinical the event Ben was given Left: IUDM participants proudly display the amount they raised for Riley Hospital. programs at Riley. Often times, those the Sarah Michelle Cohen Middle: Bremen High School students influential young leaders have their Spirit Award in her honor. performing their student-choreographed dance. own Riley stories. “She is my inspiration,” Right: IU students celebrate another successful Bailey Hunsberger, a 2010 graduate said Cohen. “She was an Riley dance marathon. A u t u m n 1 0 12
  • Common circumstances cultivate remarkable bond among Riley families F Four kids whose paths never would have crossed if not for a common enemy – acute myeloid leukemia (AML) – formed a close bond on the fifth-floor oncology unit at Riley Hospital for Children earlier this year. Matt Donovan, 17; Evan Meade, 16; Jeffrey Crowder, 10; and Keely Quinn, 3½, all have AML. Jeffrey is eager to go home, having completed five rounds of chemotherapy, while Evan is in the midst of his five rounds. Keely is receiving six rounds of Elementary School in Martin County, came to Riley Hospital first on December 17, 2009. Jeffrey is “a loving, caring boy who’s always think- ing of someone else,” says his mom Stacey. During his Riley stays, he especially misses his friends and pets. Matt, a senior at Evansville North High School, and his mother Shelly Linenburg arrived on January 16. Matt’s three siblings were tested as potential bone marrow donors; Lindsay, 21, was a perfect match. Matt’s mom first saw Evan’s mom Patty Meade in the hallway. “I remember feeling exactly the way she looked,” said Shelly, who of- fered a listening ear. Matt and Evan also clicked right away. The Quinns arrived from South Bend last and were assigned the room between Matt and Evan. Keely has been a Riley kid since she was born prematurely with Down syndrome and several serious medical issues. chemotherapy over roughly eight Evan, a junior at Franklin Since Keely was diagnosed with AML months. Matt received three rounds in Community High School, arrived in February, her mom Michelle has advance of his June 4 bone marrow January 27 but spent most of his first rarely left her side. Shelly and Michelle transplant. The average hospital stay 42-day stay in the ICU with a range of are both nurses. for each treatment is 28 days. life-threatening complications before Michelle describes Keely as “a very Jeffrey, a fifth grader at Shoals he was transferred to the fifth floor. social 3-year-old who will not stay in “The agony of diagnosis and the months at a time in the hospital – that will all go away,” Michelle says. “All I’ll remember are these great people.” 13 Riley Messenger
  • her room. She just walked into Evan’s room and said hi. He was very sick at the time, but he leaned over and said hi back.” Left: Matt, Keely and Evan passing the time together. Middle: Evan and Matt surrounded Keely ran back to her room, got a by IU football players. Right: Jeffrey and Evan at the 2010 Riley Cancer Center Prom. flower and took it to Evan. “The bond Above: Matt and Keely bonded immediately and definitely know how to lift each other’s spirits. was immediate,” Patty says. The boys soon were entertaining thought I’d be with small kids so it friends are special because they “get Keely with bubbles, markers and toys. was good to have someone my age.” it,” the women agree. When they took up Nerf guns, they Evan is a football player who excels “I just wanted to get done and get made sure Keely had one, although in academics and plans to become a home,” Stacey Crowder says. “That’s she could barely hold it. doctor. “Meeting Matt was good where you belong. But friends here Keely also was the catalyst for because I finally found someone my understand. You don’t always talk Jeffrey joining the group. “Jeffrey age in sports and going through the about leukemia; after you’re here and didn’t start hanging out with the same stuff,” Evan says. As for Keely deal with it for the first month, you older boys until Keely came in,” “it’s been something special since the talk about common interests.” Stacey says. “It’s done him a world first time we met.” “The agony of diagnosis and the of good. He understands other “She has them twisted around her months at a time in the hospital – that people are in the same situation.” little finger,” Shelly laughs. will all go away,” Michelle says. “All Matt, a gifted athlete who hopes to As the mothers became friends, I’ll remember are these great people.” study business at Indiana Tech in Fort their families followed suit. At home, “This will be forever,” she adds: Wayne and play lacrosse with his they stay in touch and follow each “Their graduations. Their weddings. older brother, says of his Riley other through CaringBridge.com. Milestones for Keely. I know I can friends: “Keely is very energetic. While each family appreciates tremen- count on them.” Evan is funny and outgoing. I dous community support, Riley A u t u m n 1 0 14
  • implemented the inaugural music My Camp Riley experience program at Bradford Woods. Facili- tating Riley campers painting with by Ben Goshorn-Maroney drums, playing songs with boomwhackers and recording their W When I was 8 years old, I distinctly The following summer after I had own CDs was an amazing experience remember my parents sitting me down turned 9, I attended a two-week that I wouldn’t trade for anything. on the couch between them. They Camp Riley session and experienced The smiles on the campers’ paint- showed me a brochure with pictures my first extended time away from splattered faces and their excitement of trees, lakes and happy smiles and home. As soon as my parents left, I at playing musical instruments asked if I’d be interested in a camp felt homesick and lonely. confirmed that they felt the same for kids with disabilities. The next morning, we went to joy I did. This summer my involve- I was born with a rare genetic breakfast and started activities. After ment with Camp Riley continued disease that caused the bones in my archery and swimming, I had my as an intern at Riley Children’s hands and legs to either grow irregu- own group of friends. By the time Foundation. larly, or not at all. At 9 months old, camp ended, I had canoed for the Camp Riley has been one of the I underwent surgery at Riley Hospital first time and swam across the lake. best influences in my life. The social to have my legs amputated. I received I couldn’t wait for the next summer challenges of college and work feel my first set of prosthetic legs three so I could see my friends again. easy now, and I can hardly think months later and began learning to I attended camp every summer of a time when I felt like a person walk. My parents decided to home until I turned 18. In 2007, I returned living with a disability. school me so I never understood the to Camp Riley as a cabin counselor I hope I was able to give to others, concept of being different, disabled and enjoyed working with campers in some capacity, the wonderment or even bullied. My brothers and sis- throughout the summer. The following that I myself felt as a Riley camper. ters were my playmates. So when my year I was promoted to the program parents showed me pictures of this staff and ran the various programs Above: Ben combines his passion for camp, I simply asked, “Will there be Bradford Woods offers Riley kids. Camp Riley and music to bring joy to lots of other kids there?” Last summer, I designed and campers like Lauren Coles. 15 Riley Messenger
  • Hospital to ensure a full recovery. The reality that doctors had no way of pinpointing the initial cause of damage to her heart made her case more difficult to remedy. Six of the 25 cords that support her heart’s mitral valve were fractured, allowing blood to leak into her heart and fluid into her lungs. Her small heart is finally pumping strongly for the first time. On January 12, 2010, Jovanie and her mother were on their way to visit the hospital in Port-au-Prince. The earthquake caused the building to collapse and tragically took her mother’s life. Ironically, that same disaster provided the rare opportunity for Jovanie to receive the needed treatment and care that her family had been unable to access previously. Jovanie was taken in by her aunt, who teaches at a local orphanage. A team of doctors from New Jersey learned of Jovanie’s condition and Hope finds Haitian communicated her story to Dr. Deon Vigilance, a Clarian cardiothoracic surgeon, who in turn reached out to girl amid destruction Dr. Brown. Dr. Brown contacted the Rotary Club’s Gift of Life program, which Eight months ago, Jovanie Mogene was found buried helped obtain a visa for Jovanie to travel to Indianapolis and partially among rubble following the catastrophic earthquake in Haiti. covered her medical costs. “Jovanie is For three days her small body fought before she was miracu- the fourth child treated this year,” said Jim Graham, local coordinator for the lously rescued. Three months ago the 4-year-old was again program. fighting hard for life, this time a far distance from home. At first sight, Jovanie walked away with nothing from the rubble of the J Jovanie continues to recover Riley Hospital who led a team of 10 earthquake. But through the course of from open heart surgery she had at doctors throughout the four-hour trauma and devastation, caring and Riley Hospital for Children on April procedure. “She was one of the generous hearts emerged to put her 29, 2010. Doctors anticipate the sickest children I have ever seen in skilled hands. While it’s early to surgery will remedy a heart condi- suffering from severe heart failure.” determine if more surgeries are in tion that has hindered her for a Jovanie and her aunt Dalianie Jovanie’s future, the prognosis is majority of her young life. Surgeons Mogene stayed at the Ronald hopeful. are pleased with her progress thus McDonald House at Riley Hospital far and hope to see her fully recover. for several weeks following the sur- “This was quite a dramatic gery before she was released from case,” said Dr. John Brown, a care. Doctors felt it was crucial pediatric cardiothoracic surgeon at for her to remain close to Riley A u t u m n 1 0 16
  • Maple Creek Islanders beat their drums for Riley families Maple Creek Islanders, the school’s steel Middle School princi- drum band, drove from pal Mark Seele places Fort Wayne to Indianapolis great emphasis on to perform for Riley families teaching students at the Indianapolis Motor the value of helping Speedway. The group others without enjoyed the experience expecting anything despite encountering a in return. Seele also flat tire. understands the “Nothing could’ve important role that stopped us from being Riley Hospital plays there,” said Seele. “I was around the state, so glad our kids had the which is why he has chance to gain perspective been a longtime sup- from the Riley families porter of Kids Caring & Sharing. For for Riley Hospital. present. It was a great learning the past couple of years, Maple Creek In May, the school had a unique experience and rewarding chance has earned Miracle School status by opportunity to support Riley. to act as service ambassadors on raising at least $1 per enrolled student Seele and the Maple Creek behalf of our school.” Concord High School potters craft $20,000 for Riley On his drive home in the fall of energetic students agreed to pioneer sale in December go to Kids Caring 1999, Bob Beiber pondered a way to the first marathon. They raised & Sharing. foster arts awareness in the Elkhart nearly $2,200 and created more than This year’s 35-member varsity community and engage his students 140 pieces of pottery during the team generated 500 pieces of on a new level. He noticed a 24-hour, non-stop spinning event. pottery and $20,000. To date, the Marathon gas station across the That was 11 years annual event has raised street, and suddenly his plan became ago. Now each Novem- more than $100,000 for clear. The chair of Concord High ber Beiber and his team Riley. School’s art department would spin pottery while on- “These students organize the first ever “Potter’s lookers encourage their display the definition of Marathon” with proceeds benefiting efforts. When the pot- hard work and integrity,” Riley Hospital. tery dries, the students Beiber said. “These un- He presented the idea to school tool, fire and glaze the sung heroes of the school administrators, colleagues and pieces. Proceeds from a are motivated by nothing students the next day. A team of 10 student-hosted pottery other than their hearts.” 17 Riley Messenger
  • THE FINAL WORD Mission drives fundraising efforts Indianapolis is known as the racing capital of the world. For Riley, being located in the racing capital has translated into years of opportunities and generosity for the children and families at Riley Hospital and Camp Riley. Tony George and the Hulman-George family, John Andretti, Jeff Gordon and Tony Stewart have led the way in reaching out to Riley Messenger children. This issue pays tribute to their AU T U M N 2 0 1 0 efforts and to the hope that they have given 2009 Riley Champion Tatum Parker and Jeff Gordon Dedicated to friends and partners of to so many. Individually they have raised Riley Children’s Foundation hundreds of thousands of dollars to support the general benefit of Riley Hospital and Riley Children’s Foundation 30 S. Meridian St., Suite 200 pediatric cancer research and to send children with physical disabilities to Camp Riley. Indianapolis, IN 46204-3509 Just as importantly for these children, many of whom face difficult daily challenges, Jeff RileyKids.org and John have spent many hours at the hospital with patients, and Tony has invited Riley E-mail: riley@RileyKids.org campers to participate with him in several events. Jim Morris At Riley Children’s Foundation, we believe that donors like John, Jeff and Tony stay Chairman, Board of Governors involved because they know their contributions directly support the causes in which Kevin O’Keefe President and CEO they believe. Since founding and building Riley Hospital 86 years ago, Riley Children’s Stephen Bariteau Foundation and the hospital have established a trust with the people of Indiana. We feel Vice President, Development a strong responsibility to the children, families and communities throughout the state Maureen Manier who look to Riley to care for the sickest-of-the-sick, most chronically ill and seriously Vice President, Communications, Marketing and Donor Engagement injured children. Equal to our responsibility to children and families is our commitment Vicki Mech Hester to steward the gifts that donors generously give to support the Riley mission. Chief Strategy Officer and Vice President, Keeping fundraising costs as low as possible remains a high priority for all of us at Human Resources the Foundation. Our current fundraising costs are 15 cents per dollar raised. We bench- David Schapker mark our fundraising operations against the 27 most prominent children’s hospitals in Vice President, Finance and Administration, CFO the country. In this group, Riley ranks fifth in overall lowest cost-per-dollar raised. We Greg Williamson promise all of our donors, from the students who give $1 to the members of the racing Vice President, Regional Development community and friends throughout the state, that we will continue to challenge our- selves to find additional ways to reduce costs and increase support for Riley Hospital Editor and the children we are privileged to serve. Lisa Dudeck Last year families from all 92 Indiana counties made more than 250,000 inpatient Associate Editor Jason Mueller and outpatient visits to Riley Hospital. Thousands more patients were seen by Riley physicians in clinics conducted throughout the state. The compelling needs of these Art Director David Birke children and families are what drive our mission. With Hoosiers’ tremendous generosity we are determined to continue to meet these needs while representing the best interests Contributing Writers Nancy Alexander of our donors, friends and partners. Elizabeth Jacques Photography Gratefully, David Jaynes Linda Tipton Kevin O’Keefe President and CEO Connect with us Riley Children’s Foundation on Facebook facebook.com/rileykids A u t u m n 1 0 18
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