Web 2.0 In Clinical Research

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  • + jb2009 jb2009 8 months ago
    Great presentation. I did one similar in Mar 08, but yours is more comprehensive. I’d e interested to know how you’ve found clinical research professionals take to presentations like this.
  • + abhishekshah Abhishek Shah 2 years ago
    Health 2.0 is here. Welcome.
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Web 2.0 In Clinical Research - Presentation Transcript

  1. Web 2.0 in Clinical Research
    • John Sharp, MSSA, PMP
    • Manager, Research Informatics
    • Quantitative Health Sciences
    • July 31, 2008
  2. Web 2.0 in Clinical Research - Outline
    • Introduction to Web 2.0
    • Web 2.0 in Healthcare – Health 2.0
    • Web 2.0 as a disruptive technology
    • Current Applications to Research
    • Future Possibilities
  3. Core Principles of Web 2.0
    • The Web as Platform
    • You control your own data
    • Services, not packaged software
    • Architecture of participation
    • Cost-effective scalability
    • Remixable data source and data transformation
    • Harnessing collective intelligence
    oreilly.com Tim O’Reilly
    • Blogs – own content
    • Wiki – participatory content
    • Google, Gmail, maps, Ajax – enriching the user experience
    • Social networking - MySpace
    • Photo sharing, tagging - Flickr, del.icio.us
    • Video, tagging, social network – Youtube
    • Podcasting
    • RSS – Real Simple Syndication – subscribing to the content you want
  4.  
  5. From Web 2.0 to Health 2.0
    • First Health 2.0 conference - September 2007
    • Application of Web 2.0 tools to health care, especially consumers
    • Social networks for those with the same condition
    • Blogs to record their experiences
    • Vertical search – healthcare-specific
    • Consumer Driven Healthcare, Hospital and provider ratings
  6. Self Care Management - Health 2.0
  7. PatientsLikeMe.com - Detail on condition Progression Rate
  8. Genetics – Personalized Testing - 23andMe
  9. Health Care Blogs – Patients
  10. Health Care Blogs - Physicians
  11. Blogs – Healthcare Information Technology
  12. Vertical Search – Healia.com
  13. Google Health From PHR
  14. RevolutionHealth.com – Hybrid example
  15. Physician/Provider Tools For physicians only, provides profile, publications, clinical trials, and connections with others.
  16. Physician Social Networks
    • Great potential for knowledge sharing, solving rare cases
    • Limited to physicians only – allows for more openness
    • Time challenge for physicians
    • Opportunity to get referrals
      • Based on profile
      • Based on publications
      • Based on clinical trials, research interests
  17. Wikis for knowledge sharing in medicine
  18. Web 2.0 as a disruptive technology
  19. Applications to Medical Research
    • Social Networking
    • Knowledge sharing
    • Tagging
    • Image sharing
    • Videos and podcasts for education
    • Research tools – Google Maps, other mashups
    • As a topic of research
    • Future of publishing
  20. Social Networking in Research – CTSC
  21. Social Networking - Research
  22. Public Library of Science – Also on Facebook
  23. Wikis for Technical Knowledge Sharing
  24. Tagging – del.icio.us.com
  25. Image Sharing
  26. http://www.bigthink.com/science-technology/medicine-biology Knowledge Sharing Through Videos
  27. Research Tools – Google Maps - HealthMap - mashup
  28. Recommendations for Consumer Health Research
      • Addresses the social and emotional aspects of information seeking and acquisition behaviors.
      • A wide range of tools and resources should also be used to educate consumers about health issues and improve health literacy.
      • Patients' and consumers' information needs and usability concerns
      • Resources should aim at tailoring information content and presentation to intended users, or targeted audiences.
      • Consumer health vocabularies, information retrieval, and readability.
      • More accurate, well-publicized information quality indicators will benefit health consumers.
      • Health information needs of caregivers, family members, and peer groups.
    Health 2.0 as a Research Topic
  29. Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data
    • Results: Qualitative analysis of a sample of 123 comments (about 2% of the total) posted within the community revealed a variety of commenting and questioning behaviors by patient members. Members referenced data to locate others with particular experiences to answer specific health-related questions, to proffer personally acquired disease-management knowledge to those most likely to benefit from it, and to foster and solidify relationships based on shared concerns.
    • Conclusions: Few studies examine the use of personal health information by patients themselves. This project suggests how patients who choose to explicitly share health data within a community may benefit from the process, helping them engage in dialogues that may inform disease self-management.
    • J Med Internet Res 2008;10(3):e15
    Health 2.0 as a Research Topic
  30. Web 2.0 in Research – Available Now
    • RSS feeds as a method of notification
    • Collaborative writing – Google Docs
    • Bookmarks, tags for relevant articles
    • Slide sharing
    • Open Access
  31. Using RSS feeds to scan Journal articles
  32. Use of Google Docs in Collaborative Authoring
  33. Knowledge Sharing – SlideShare.net
  34. The Future of Medical Publishing – Open Access
    • The Case in Favor: Unrestricted Information
      • Documenting the talks and discussions that take place around articles (e.g., in Web communities) expands the original content, facilitating scientific collaboration and furthering research
    • The Case Against: Unsustainable Idealism
      • there is no evidence to prove that it increases the dissemination of information, speeds research, or improves patient care
  35. Web 2.0 in Clinical Research - Conclusions
    • Many useful tools – need to be utilized as solutions, not just because they are new
    • Innovative – helpful in creating an “architecture of participation” but can cause disruptive change in health care
    • Enhanced knowledge sharing through all mediums
    • Limited business model – some will fail, some will consolidate
    • Potential subject for research in the future
  36. Web 2.0 - Where to start
    • Create RSS feeds to topics of interest
    • Read and comment on blogs
    • Create your own blog
    • Contribute to a Wiki in your knowledge area
    • Check out podcasts, video sites
    • Join a social network – LinkedIn.com, BiomedExperts, Within3
    • Evaluate the value for yourself
  37. Web 2.0 Books
    • Wikinomics - How Mass Collaboration Changes Everything by Don Tapscott & Anthony Williams
    • Everything is Miscellaneous: The Power of the New Digital Disorder by Dan Weinberger
    • The World is Flat by Tom Friedman
    • “ In the flat world, more and more business will be done through collaborations within and between companies for a very simple reason:
    • “ The next layers of value creation… are becoming so complex that no single firm or department is going to be able to master them alone.”

+ John SharpJohn Sharp, 2 years ago

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