Web 2.0 In Clinical Research
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Web 2.0 In Clinical Research






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  • Great presentation. I did one similar in Mar 08, but yours is more comprehensive. I'd e interested to know how you've found clinical research professionals take to presentations like this.
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  • Health 2.0 is here. Welcome.
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    Web 2.0 In Clinical Research Web 2.0 In Clinical Research Presentation Transcript

    • Web 2.0 in Clinical Research
      • John Sharp, MSSA, PMP
      • Manager, Research Informatics
      • Quantitative Health Sciences
      • July 31, 2008
    • Web 2.0 in Clinical Research - Outline
      • Introduction to Web 2.0
      • Web 2.0 in Healthcare – Health 2.0
      • Web 2.0 as a disruptive technology
      • Current Applications to Research
      • Future Possibilities
    • Core Principles of Web 2.0
      • The Web as Platform
      • You control your own data
      • Services, not packaged software
      • Architecture of participation
      • Cost-effective scalability
      • Remixable data source and data transformation
      • Harnessing collective intelligence
      oreilly.com Tim O’Reilly
      • Blogs – own content
      • Wiki – participatory content
      • Google, Gmail, maps, Ajax – enriching the user experience
      • Social networking - MySpace
      • Photo sharing, tagging - Flickr, del.icio.us
      • Video, tagging, social network – Youtube
      • Podcasting
      • RSS – Real Simple Syndication – subscribing to the content you want
    • From Web 2.0 to Health 2.0
      • First Health 2.0 conference - September 2007
      • Application of Web 2.0 tools to health care, especially consumers
      • Social networks for those with the same condition
      • Blogs to record their experiences
      • Vertical search – healthcare-specific
      • Consumer Driven Healthcare, Hospital and provider ratings
    • Self Care Management - Health 2.0
    • PatientsLikeMe.com - Detail on condition Progression Rate
    • Genetics – Personalized Testing - 23andMe
    • Health Care Blogs – Patients
    • Health Care Blogs - Physicians
    • Blogs – Healthcare Information Technology
    • Vertical Search – Healia.com
    • Google Health From PHR
    • RevolutionHealth.com – Hybrid example
    • Physician/Provider Tools For physicians only, provides profile, publications, clinical trials, and connections with others.
    • Physician Social Networks
      • Great potential for knowledge sharing, solving rare cases
      • Limited to physicians only – allows for more openness
      • Time challenge for physicians
      • Opportunity to get referrals
        • Based on profile
        • Based on publications
        • Based on clinical trials, research interests
    • Wikis for knowledge sharing in medicine
    • Web 2.0 as a disruptive technology
    • Applications to Medical Research
      • Social Networking
      • Knowledge sharing
      • Tagging
      • Image sharing
      • Videos and podcasts for education
      • Research tools – Google Maps, other mashups
      • As a topic of research
      • Future of publishing
    • Social Networking in Research – CTSC
    • Social Networking - Research
    • Public Library of Science – Also on Facebook
    • Wikis for Technical Knowledge Sharing
    • Tagging – del.icio.us.com
    • Image Sharing
    • http://www.bigthink.com/science-technology/medicine-biology Knowledge Sharing Through Videos
    • Research Tools – Google Maps - HealthMap - mashup
    • Recommendations for Consumer Health Research
        • Addresses the social and emotional aspects of information seeking and acquisition behaviors.
        • A wide range of tools and resources should also be used to educate consumers about health issues and improve health literacy.
        • Patients' and consumers' information needs and usability concerns
        • Resources should aim at tailoring information content and presentation to intended users, or targeted audiences.
        • Consumer health vocabularies, information retrieval, and readability.
        • More accurate, well-publicized information quality indicators will benefit health consumers.
        • Health information needs of caregivers, family members, and peer groups.
      Health 2.0 as a Research Topic
    • Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data
      • Results: Qualitative analysis of a sample of 123 comments (about 2% of the total) posted within the community revealed a variety of commenting and questioning behaviors by patient members. Members referenced data to locate others with particular experiences to answer specific health-related questions, to proffer personally acquired disease-management knowledge to those most likely to benefit from it, and to foster and solidify relationships based on shared concerns.
      • Conclusions: Few studies examine the use of personal health information by patients themselves. This project suggests how patients who choose to explicitly share health data within a community may benefit from the process, helping them engage in dialogues that may inform disease self-management.
      • J Med Internet Res 2008;10(3):e15
      Health 2.0 as a Research Topic
    • Web 2.0 in Research – Available Now
      • RSS feeds as a method of notification
      • Collaborative writing – Google Docs
      • Bookmarks, tags for relevant articles
      • Slide sharing
      • Open Access
    • Using RSS feeds to scan Journal articles
    • Use of Google Docs in Collaborative Authoring
    • Knowledge Sharing – SlideShare.net
    • The Future of Medical Publishing – Open Access
      • The Case in Favor: Unrestricted Information
        • Documenting the talks and discussions that take place around articles (e.g., in Web communities) expands the original content, facilitating scientific collaboration and furthering research
      • The Case Against: Unsustainable Idealism
        • there is no evidence to prove that it increases the dissemination of information, speeds research, or improves patient care
    • Web 2.0 in Clinical Research - Conclusions
      • Many useful tools – need to be utilized as solutions, not just because they are new
      • Innovative – helpful in creating an “architecture of participation” but can cause disruptive change in health care
      • Enhanced knowledge sharing through all mediums
      • Limited business model – some will fail, some will consolidate
      • Potential subject for research in the future
    • Web 2.0 - Where to start
      • Create RSS feeds to topics of interest
      • Read and comment on blogs
      • Create your own blog
      • Contribute to a Wiki in your knowledge area
      • Check out podcasts, video sites
      • Join a social network – LinkedIn.com, BiomedExperts, Within3
      • Evaluate the value for yourself
    • Web 2.0 Books
      • Wikinomics - How Mass Collaboration Changes Everything by Don Tapscott & Anthony Williams
      • Everything is Miscellaneous: The Power of the New Digital Disorder by Dan Weinberger
      • The World is Flat by Tom Friedman
      • “ In the flat world, more and more business will be done through collaborations within and between companies for a very simple reason:
      • “ The next layers of value creation… are becoming so complex that no single firm or department is going to be able to master them alone.”