Web 2.0 In Clinical Research


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Web 2.0 In Clinical Research

  1. Web 2.0 in Clinical Research <ul><li>John Sharp, MSSA, PMP </li></ul><ul><li>Manager, Research Informatics </li></ul><ul><li>Quantitative Health Sciences </li></ul><ul><li>July 31, 2008 </li></ul>
  2. Web 2.0 in Clinical Research - Outline <ul><li>Introduction to Web 2.0 </li></ul><ul><li>Web 2.0 in Healthcare – Health 2.0 </li></ul><ul><li>Web 2.0 as a disruptive technology </li></ul><ul><li>Current Applications to Research </li></ul><ul><li>Future Possibilities </li></ul>
  3. Core Principles of Web 2.0 <ul><li>The Web as Platform </li></ul><ul><li>You control your own data </li></ul><ul><li>Services, not packaged software </li></ul><ul><li>Architecture of participation </li></ul><ul><li>Cost-effective scalability </li></ul><ul><li>Remixable data source and data transformation </li></ul><ul><li>Harnessing collective intelligence </li></ul>oreilly.com Tim O’Reilly
  4. <ul><li>Blogs – own content </li></ul><ul><li>Wiki – participatory content </li></ul><ul><li>Google, Gmail, maps, Ajax – enriching the user experience </li></ul><ul><li>Social networking - MySpace </li></ul><ul><li>Photo sharing, tagging - Flickr, del.icio.us </li></ul><ul><li>Video, tagging, social network – Youtube </li></ul><ul><li>Podcasting </li></ul><ul><li>RSS – Real Simple Syndication – subscribing to the content you want </li></ul>
  6. From Web 2.0 to Health 2.0 <ul><li>First Health 2.0 conference - September 2007 </li></ul><ul><li>Application of Web 2.0 tools to health care, especially consumers </li></ul><ul><li>Social networks for those with the same condition </li></ul><ul><li>Blogs to record their experiences </li></ul><ul><li>Vertical search – healthcare-specific </li></ul><ul><li>Consumer Driven Healthcare, Hospital and provider ratings </li></ul>
  7. Self Care Management - Health 2.0
  8. PatientsLikeMe.com - Detail on condition Progression Rate
  9. Genetics – Personalized Testing - 23andMe
  10. Health Care Blogs – Patients
  11. Health Care Blogs - Physicians
  12. Blogs – Healthcare Information Technology
  13. Vertical Search – Healia.com
  14. Google Health From PHR
  15. RevolutionHealth.com – Hybrid example
  16. Physician/Provider Tools For physicians only, provides profile, publications, clinical trials, and connections with others.
  17. Physician Social Networks <ul><li>Great potential for knowledge sharing, solving rare cases </li></ul><ul><li>Limited to physicians only – allows for more openness </li></ul><ul><li>Time challenge for physicians </li></ul><ul><li>Opportunity to get referrals </li></ul><ul><ul><li>Based on profile </li></ul></ul><ul><ul><li>Based on publications </li></ul></ul><ul><ul><li>Based on clinical trials, research interests </li></ul></ul>
  18. Wikis for knowledge sharing in medicine
  19. Web 2.0 as a disruptive technology
  20. Applications to Medical Research <ul><li>Social Networking </li></ul><ul><li>Knowledge sharing </li></ul><ul><li>Tagging </li></ul><ul><li>Image sharing </li></ul><ul><li>Videos and podcasts for education </li></ul><ul><li>Research tools – Google Maps, other mashups </li></ul><ul><li>As a topic of research </li></ul><ul><li>Future of publishing </li></ul>
  21. Social Networking in Research – CTSC
  22. Social Networking - Research
  23. Public Library of Science – Also on Facebook
  24. Wikis for Technical Knowledge Sharing
  25. Tagging – del.icio.us.com
  26. Image Sharing
  27. http://www.bigthink.com/science-technology/medicine-biology Knowledge Sharing Through Videos
  28. Research Tools – Google Maps - HealthMap - mashup
  29. Recommendations for Consumer Health Research <ul><ul><li>Addresses the social and emotional aspects of information seeking and acquisition behaviors. </li></ul></ul><ul><ul><li>A wide range of tools and resources should also be used to educate consumers about health issues and improve health literacy. </li></ul></ul><ul><ul><li>Patients' and consumers' information needs and usability concerns </li></ul></ul><ul><ul><li>Resources should aim at tailoring information content and presentation to intended users, or targeted audiences. </li></ul></ul><ul><ul><li>Consumer health vocabularies, information retrieval, and readability. </li></ul></ul><ul><ul><li>More accurate, well-publicized information quality indicators will benefit health consumers. </li></ul></ul><ul><ul><li>Health information needs of caregivers, family members, and peer groups. </li></ul></ul>Health 2.0 as a Research Topic
  30. Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data <ul><li>Results: Qualitative analysis of a sample of 123 comments (about 2% of the total) posted within the community revealed a variety of commenting and questioning behaviors by patient members. Members referenced data to locate others with particular experiences to answer specific health-related questions, to proffer personally acquired disease-management knowledge to those most likely to benefit from it, and to foster and solidify relationships based on shared concerns. </li></ul><ul><li>Conclusions: Few studies examine the use of personal health information by patients themselves. This project suggests how patients who choose to explicitly share health data within a community may benefit from the process, helping them engage in dialogues that may inform disease self-management. </li></ul><ul><li>J Med Internet Res 2008;10(3):e15 </li></ul>Health 2.0 as a Research Topic
  31. Web 2.0 in Research – Available Now <ul><li>RSS feeds as a method of notification </li></ul><ul><li>Collaborative writing – Google Docs </li></ul><ul><li>Bookmarks, tags for relevant articles </li></ul><ul><li>Slide sharing </li></ul><ul><li>Open Access </li></ul>
  32. Using RSS feeds to scan Journal articles
  33. Use of Google Docs in Collaborative Authoring
  34. Knowledge Sharing – SlideShare.net
  35. The Future of Medical Publishing – Open Access <ul><li>The Case in Favor: Unrestricted Information </li></ul><ul><ul><li>Documenting the talks and discussions that take place around articles (e.g., in Web communities) expands the original content, facilitating scientific collaboration and furthering research </li></ul></ul><ul><li>The Case Against: Unsustainable Idealism </li></ul><ul><ul><li>there is no evidence to prove that it increases the dissemination of information, speeds research, or improves patient care </li></ul></ul>
  36. Web 2.0 in Clinical Research - Conclusions <ul><li>Many useful tools – need to be utilized as solutions, not just because they are new </li></ul><ul><li>Innovative – helpful in creating an “architecture of participation” but can cause disruptive change in health care </li></ul><ul><li>Enhanced knowledge sharing through all mediums </li></ul><ul><li>Limited business model – some will fail, some will consolidate </li></ul><ul><li>Potential subject for research in the future </li></ul>
  37. Web 2.0 - Where to start <ul><li>Create RSS feeds to topics of interest </li></ul><ul><li>Read and comment on blogs </li></ul><ul><li>Create your own blog </li></ul><ul><li>Contribute to a Wiki in your knowledge area </li></ul><ul><li>Check out podcasts, video sites </li></ul><ul><li>Join a social network – LinkedIn.com, BiomedExperts, Within3 </li></ul><ul><li>Evaluate the value for yourself </li></ul>
  38. Web 2.0 Books <ul><li>Wikinomics - How Mass Collaboration Changes Everything by Don Tapscott & Anthony Williams </li></ul><ul><li>Everything is Miscellaneous: The Power of the New Digital Disorder by Dan Weinberger </li></ul><ul><li>The World is Flat by Tom Friedman </li></ul><ul><li>“ In the flat world, more and more business will be done through collaborations within and between companies for a very simple reason: </li></ul><ul><li>“ The next layers of value creation… are becoming so complex that no single firm or department is going to be able to master them alone.” </li></ul>