Social media in clinical trials

Social Media inClinical Trial Recruitment John Sharp 10/28/2011

The Big 3 – Twitter, Facebook,YouTube  Pervasive  Patients follow organizations, academic medical centers – interested in discoveries  FDA watching Pharma’s use of social media  Always link back to more information and a contact person

Engagement with online patientcommunities  Patients discussing the latest treatments, trials  Rare diseases particularly effective – NORD  More common diseases – DiabetesMine.com – thousands of visitors daily  Breast cancer communities active  ALS, MS – PatientsLikeme.com  Peer-to-peer healthcare  Mayo Clinic – rare cardiac disease community eager to engage

More recruits that you canaccommodate News travels quickly via Twitter, Facebook Army of Women – with Susan Love  12 studies and 12,000 signed up in 2009 alone  Breast cancer, lung cancer, obesity studies

What does the Institutional ReviewBoard think?  Yet to be approved  How is this different from traditional advertising for clinical trials?  Need social media experts on the IRB  Need to begin to define best practices  What are adverse events in online research, what should be reported?

References (1) National Organization for Rare Diseases (NORD) Facebook page: https://www.facebook.com/NationalOrganizationforRa reDisorders Online Patient communities: http://www.rarediseases.org/patients-and- families/online-communities PatientsLikeMe.com Clinical Trials Tool: http://www.patientslikeme.com/clinical_trials Engaging E-Patients in Clinical Trials through Social Media Blue Chip Marketing report: http://bluechipmarketingworldwide.com/BCPR_form/B lueChip_SocialMedia_5-2011.pdf Can Breaking Oncology News Spread Socially? From the blog, 33Charts: http://33charts.com/2010/10/can- breaking-oncology-news-spread-socially.html

References (2) E-Patient White Paper Chapter 6 – e-Patients as Medical Researchers http://e-patients.net/e-Patients_White_Paper.pdf Mind the Gap: Peer-to-peer Healthcare From Pew Internet & American Life Project http://www.pewinternet.org/Reports/2011/20-Mind-the- Gap.aspx Social Media Valuable Tool for Recruiting Study Participants Mayo Clinic Proceedings, 8/29/11 http://www.mayoclinic.org/news2011-rst/6420.html

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Social media in clinical trials

by John Sharp on Oct 28, 2011

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Social media in clinical trials — Presentation Transcript