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Jason Turner - NL Islet Presentation

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A copy of my presentation in St Johns NL for World Diabetes Day

A copy of my presentation in St Johns NL for World Diabetes Day

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  • ResultsBefore – let me remind you of beforeA1C at the worst was 12.7 – or about 19.5 on the meterAfterA1C of 5.5, under the recommended guidelines of 6.0

Jason Turner - NL Islet Presentation Jason Turner - NL Islet Presentation Presentation Transcript

  • Jason TurnerMy Life and My Islets
  • Agenda
    Talk about my life with T1 Diabetes
    Talk about my transplants
    Pictures!
    Take away
    I would hope you can see an example of someone real that research dollars has helped
    Sense of hope that a cure will one day come.
  • Getting to know you!
    If anyone would like to self-identify as a……
    Diabetes Caregiver – raise an arm
    Person with T1 diabetes – raise an arm
    Person with T2 diabetes – raise an arm
    Someone who loves someone else with diabetes… stand up!
  • Getting to know me!
    Born October 26, 1971 in Edmonton AB
    Diagnosis on March 3, 1983 – that’s 10,119 days ago.
    Symptoms
    Adjustment process
    ‘Brittle’
    A word about numbers
  • The Roaring 20’s
  • Complications and Beyond
    ED
    Neuropathy
    Retinopathy
    Gastro Issues
    Mental Health!
    All leading up to thoughts of the transplant program
  • The Journey Back to Careor how I became (more) compliant in 5 not so easy steps
    I was motivated
    Found the right doctor
    I had the right team
    I wanted to see my friends/families kids grow up
    Scared
  • Some of my numbers
    Typical Glucose Values Pre Transplant
  • Milestone Dates
    August 2003 – Applied to Edmonton Islet Transplant Program
    April 20, 2004, - Started intensive testing
    September 2004 – Accepted into program
    July 12, 2005 – ITX#1
    November 2005 – Weaned off insulin
  • Islet Cell Transplant in pictures
  • Getting the call
    I get the call, my wife gets the camera.
  • Off to the Transplant Unit
    Not plastic surgery!
  • Organ Donation works
    there are many of us who are living proof
  • Hooked up to 3 IV’s before the transplant
    One arm was for in, and the other was for out
  • The Islets arrive in the blue cooler
  • On the way….
  • The radiology suite
  • The fluoroscope image
    My liver, portal vein and catheter can all be seen clearly
  • My Spine!!
    Portal Vein
    Catheter
    My Liver
  • The islets make their appearance
    343,620 islets are in the bag
  • The islets are starting their descent into my liver,
    even now I can manage a smile
  • The hole is plugged
  • After
    The islets are working immediately after transplantation!!
  • The Results
    Sugars Before TX
    HgbA1C = 12.7 (17.6 mmol/L)
    Sugars After TX
    HgbA1C = 5.5 (6.2 mmol/L)
  • More Results
    HbA1C
    Ranging from 5.5 to 6.5 since my transplants!
    Blood Glucose
    Ranges from 4.5 to 6.0 most pre-meals
    May spike up to 12.4 two hrs after a high carb meal
    But within 30 minutes back to the 6’s
    Only 5 low blood sugars in 5 years
    Clinic Testing
    • All post-transplant tests that have been done prove that my islets are functioning just fine
  • What would a cure mean to you?
    Tristan’s Mom - A cure would mean a safer, healthier life for him.  No more tears at site change, no more sleepless nights, no more frightening lows.  More freedom, more spontaneity.  With a cure Tristan would have the chance at a normal childhood where he could share his food with his friends, he would be the same as his brother. The idea of a sleepover at a friend’s house didn’t send me in a panic attack.  A cure would be the greatest gift that our family has ever received.
    What would a cure for diabetes mean for me? I am 39, and have had T1 diabetes for almost 28 years.  I have had the good fortune to have had an islet transplant, and as such maybe approach this question from a slightly different angle then most people.   I have already directly benefited from ground breaking diabetes research.
    First of all – I would like to thank you.   Because of people like you, the research that eventually became the Edmonton Protocol was supported, and has helped people just like me, who have struggled with Diabetes.   Can you imagine how you will feel, knowing that you have contributed to “The Cure”?
    A cure for me means not seeing any more kids on a pump. 
    It would mean no more worries about my sister-in-lawwho has had diabetes for 21 years, since she was 3 years old.  Seeing her throw away her box of diabetes supplies would be awesome.
    It would mean peace of mind for people with diabetes who are not fortunate enough to be born in a developed country, and struggle to even get insulin – let alone proper medical care.
    A cure would mean the world to me.  What would it mean to you?
    Tristan - almost 7 yrs old - It would make me really happy and we could throw away everything that I need (diabetes supplies).  I wouldn’t have any lows.  It would make me happy not to have diabetes anymore because everybody that I know with diabetes would be cured and we would be able to celebrate.
  • Final Thoughts
  • For more about My life and my islets....
    Web: www.jasonturner.ca/blog
    Twitter: @jason_turner
    Email: jason@jasonturner.ca
    YouTube: youtube.com/islet79