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Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
Involving People in Data Analysis: The All We Want To Say Project
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Involving People in Data Analysis: The All We Want To Say Project

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Presentation by Marie Wolfe, Josephine Flaherty, Siobahn O’Doherty & Edurne Garcia Iriarte (The Irish Inclusive Research Network) about their experiences of doing participatory data analysis. This …

Presentation by Marie Wolfe, Josephine Flaherty, Siobahn O’Doherty & Edurne Garcia Iriarte (The Irish Inclusive Research Network) about their experiences of doing participatory data analysis. This presentation was part of a seminar, funded by ESRC, focusing on participatory data analysis with people with learning disabilities

Published in: Health & Medicine, Education
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  • We are going to talk about the project and how we all took part in the analysis of data. We did two easy to read reports and a DVD.
  • We came up with the questionsWE did training on how to run the focus groupsand applied for ethics at TCDWE asked people to take part in the studyWe run 23 focus groupsWe analysed the data:University co-researchers wrote word by word what people said in the focus groups and said there were 19 important thingsWe all met together (co-researchers with intellectual disabilities, university co-researchers, and supporters). We said that out of the 19, 8 were the most important. 4 groups of co-researchers and supporters prepared presentations of 1 or 2 of these things We put all the presentations together in a DVDWe showed the DVD in our local communities
  • The research questions the members asked wereWe run 23 focus groups. Focus groups were facilitated by
  • Everyone got together(co-researchers with intellectual disabilities; supporters, university co-researchers)We asked the question:What was core to your group?
  • EveryoneWhat was core to your group?8 main themes
  • What do know about self-advoacy? 6:28
  • 2 quotes on the slides – As a supporter Accessibility – brining back tothem (knows their stories)Real life examplesGeneral or broader context for changes in their lives DirectionReflective thoughtCollect information  lots of changes happening now People learning from each other (empowers, raises expectations)More chance of systems getting it right (service), informed by the lived experience of PWID Problems  getting the information, only a small group get the analysis Dissemination to people taking part in the research?? Hands on for us, not for the people  not Quotes – sent to people, nobody responded – people came to the meetingGood support  conducting researchNot so much for the analysis Speak about the All We Want to Say process 19  8 themes written upAll We The action of making the DVD 
  • 2 quotes on the slides – As a supporter Accessibility – brining back tothem (knows their stories)Real life examplesGeneral or broader context for changes in their lives DirectionReflective thoughtCollect information  lots of changes happening now People learning from each other (empowers, raises expectations)More chance of systems getting it right (service), informed by the lived experience of PWID Problems  getting the information, only a small group get the analysis Dissemination to people taking part in the research?? Hands on for us, not for the people  not Quotes – sent to people, nobody responded – people came to the meetingGood support  conducting researchNot so much for the analysis Speak about the All We Want to Say process 19  8 themes written upAll We The action of making the DVD 
  • 8 most important findings for the groupOwn presentations and interpretations And it is you that you have to tell people…. Roy 5:09
  • Local communities, services, Austria.Valuable learning tool.
  • Time:To involve everyone in all aspects of the processTo do things fast enough for people to rememberDifferent degrees of knowledge of people coming to the analysis session
  • Transcript

    • 1. Involving people in data analysis: The All We Want to Say Project
    • 2. Marie Wolfe Siobhain O’Doherty Josephine Flaherty Edurne Garcia
    • 3. Our presentation
    • 4. The All We Want to Say Project It was an inclusive research project that looked at how life was like in Ireland for people with intellectual disabilities and how it could be better.
    • 5. How life is like in Ireland for people with intellectual disabilities? How life could be better? Co-Researcher with intellectual disability We run 23 focus groups Supporter University CoResearcher
    • 6. We recorded the focus groups
    • 7. When we got the audio files from all the focus groups… Analyse the data
    • 8. 1. University co-researchers  Wrote word by word what people said  Pointed at 19 important things that people had said
    • 9. 2. We all got together and talked about the 19 important things Co-Researcher with intellectual disability Supporter University CoResearcher
    • 10. 3. We said that there were 8 very important things
    • 11. 4. We asked the question: How could life be better?
    • 12. We said that life could be better becoming… a self advocate a partner in a relationship a person who enjoys leisure time a good communicator a house owner, flatmate a money manager a paid employee a respected citizen
    • 13. 5. We asked the question: What could we do next? We suggested: Create a presentation to talk about these findings to advocacy groups, government officials, and service agencies throughout Ireland.
    • 14. 6. Four groups of coresearchers worked on presentations
    • 15. Each group picked:
    • 16. Each group picked:
    • 17. Each group picked:
    • 18. The Galway Research into Action Group – Staff interviews (self-advocacy)  Why did we choose self-advocacy?  Why did we do the interviews?  What does the video tell?  Who are people working for?  Choosing staff – We are in control  We now use the DVD regularly for staff training
    • 19. The Galway Research into Action Group Supporters:  Know their stories – give real life examples  Give direction – broader context, policy and services  Facilitate reflective thought  People learning from each other  Making the DVD brought everybody’s ideas together and that’s become a way of sharing it with others
    • 20. 7. We did a report and a DVD with all the presentations http://vimeo.com/album/166266/video/7980723
    • 21. We presented the DVD at our local communities, Dublin Community TV for a month, and we keep showing it.
    • 22. Each group picked:
    • 23. We found challenges  Time  Accessibility  Communication  Thinking about analysis alone
    • 24. Thank you! iriartee@tcd.ie mariewolfe510@gmail.com josephineflaherty@gmail.com siodoher@tcd.ie http://www.tcd.ie/niid/research/irn/

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