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Doing it Together? An Aspie eye on the neurotypical researcher’s analysis

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A presentation by Hanna Bertilsdottir about her experiences of doing participatory research with students with Aspergers' Syndrome. This presentation was part of a seminar, funded by the ESRC, …

A presentation by Hanna Bertilsdottir about her experiences of doing participatory research with students with Aspergers' Syndrome. This presentation was part of a seminar, funded by the ESRC, focusing on participatory data analysis with people with learning disabilities

Published in Health & Medicine , Technology
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  • 1. Doing it Together? An Aspie eye on the neurotypical researcher’s analysis Hanna Bertilsdotter Rosqvist Associate Professor in Sociology, Senior Lecturer in Social Work, Umeå University (hanna.bertilsdotter@soc.umu.se) Hanna Bertilsdotter Rosqvist, Umeå University 1
  • 2. Researcher´s background • Activist in the Swedish bisexual movement 1999-2002 • Studies of bisexuality • Studies of autism Hanna Bertilsdotter Rosqvist, Umeå University 2
  • 3. Asperger Syndrome as practice, identity and politics: Data - Fieldwork in a Swedish school Interviews with Asperger activists The magazine Empowerment (2002-2009) Extra data: articles on autism/people with autism in Swedish news papers, Swedish blogs, webpages and webcommunities for people with autism Hanna Bertilsdotter Rosqvist, Umeå University 3
  • 4. Research circles • The first idea: research circles Hanna Bertilsdotter Rosqvist, Umeå University 4
  • 5. ”We talk about what we want to” • Fieldnotes on the electronic learning forum (”I did not see it in the way you did” versus ”you got the story about the bird wrong here is the correct version”) • Focus group discussion: ”What do you want to know?” versus ”We talk about what we want to” Hanna Bertilsdotter Rosqvist, Umeå University 5
  • 6. • First versions of paper in Swedish - How to represent the fieldwork (”we liked you”) - The analyses (”why do you use so many citations from Helena?”) • Dissemination? - the book in Swedish versus research papers in English - ideas for the future: podcast in Swedish Hanna Bertilsdotter Rosqvist, Umeå University 6
  • 7. Reflections/Power • Analyses: Part of the research process • Participating, what´s in for us?: for fun, for pay or while you are supposed to • To learn a language • Choice of analyses/researcher´s view of knowledge – ‘realistic’ versus ‘non-realistic’ • Matter of education and time/energy level Hanna Bertilsdotter Rosqvist, Umeå University 7