Patient and doc engagement online west

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Patient and doc engagement online west

  1. 1. CHANGES AFOOT: A NEW MODEL OF INTERACTION BETWEEN DOCTORS AND ENGAGED PATIENTS H. Jack West, MD Swedish Cancer Institute Seattle, WA Global Resource for Advancing Cancer Education (GRACE) www.cancerGRACE.org
  2. 2. The Unidirectional Model Requires: •a finite amount of medical information •only the physician having access to it
  3. 3. NOBODY Can Keep Up with the Torrent of New Medical Information • Rate of new content more than doubling in last 20 yrs • More & more journals, especially in oncology (>180) (courtesy of Jason Priem/blog) No wonder it feels overwhelming
  4. 4. Before and After Molecular Oncology Before After Large populations Small Populations Marginal effects Major benefits Trials in hundreds of sites Trials in very few sites Generally rely on oncologists to enroll May well fall to patients and caregivers to seek out
  5. 5. 25% 2000 81% 2011
  6. 6. Physicians may be concerned about losing control over the discussion
  7. 7. Physicians remain the most trusted source of information about medical issues From Fox, Peer to Peer Healthcare, Pew Internet and American Life Project, 2011
  8. 8. www.CancerGRACE.org a 501(c)3 nonprofit
  9. 9. Bidirectional Model
  10. 10. Network Model
  11. 11. Patients are HIGHLY MOTIVATED to help themselves www.CancerGRACE.org a 501(c)3 nonprofit
  12. 12. Adapting to a new model: Disruption comes with opportunities • Relationships between patients and physicians are changing • Bidirectional • Physicians no longer expected to know everything out there to know • Patients/caregivers will increasingly turn to social networks and searchable online content www.CancerGRACE.org • Physicians will have a critical role, even if it a 501(c)3 nonprofit changes fundamentally in coming years

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