CHANGES AFOOT: A NEW MODEL
OF INTERACTION BETWEEN
DOCTORS AND ENGAGED
PATIENTS
H. Jack West, MD
Swedish Cancer Institute
S...
The Unidirectional Model

Requires:
•a finite amount of medical information
•only the physician having access to it
NOBODY Can Keep Up with the
Torrent of New Medical Information
• Rate of new content more
than doubling in last 20 yrs
• M...
Before and After Molecular Oncology
Before

After

Large populations

Small Populations

Marginal effects

Major benefits
...
25%
2000

81%
2011
Physicians may be concerned about
losing control over the discussion
Physicians remain the most trusted
source of information about medical
issues

From Fox, Peer to Peer Healthcare,
Pew Inte...
www.CancerGRACE.org
a 501(c)3 nonprofit
Bidirectional Model
Network Model
Patients are HIGHLY MOTIVATED
to help themselves

www.CancerGRACE.org
a 501(c)3 nonprofit
Adapting to a new model:
Disruption comes with opportunities
• Relationships between patients and physicians
are changing
...
Changes Afoot: Changing Relationships between Engaged Patients and Docs in Cancer Care
Changes Afoot: Changing Relationships between Engaged Patients and Docs in Cancer Care
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Changes Afoot: Changing Relationships between Engaged Patients and Docs in Cancer Care

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Discussion of how online patient communities and social media are changing relationships between engaged patients and oncologists, improving quality of cancer care.

Published in: Health & Medicine
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Changes Afoot: Changing Relationships between Engaged Patients and Docs in Cancer Care

  1. 1. CHANGES AFOOT: A NEW MODEL OF INTERACTION BETWEEN DOCTORS AND ENGAGED PATIENTS H. Jack West, MD Swedish Cancer Institute Seattle, WA Global Resource for Advancing Cancer Education (GRACE) www.cancerGRACE.org
  2. 2. The Unidirectional Model Requires: •a finite amount of medical information •only the physician having access to it
  3. 3. NOBODY Can Keep Up with the Torrent of New Medical Information • Rate of new content more than doubling in last 20 yrs • More & more journals, especially in oncology (>180) (courtesy of Jason Priem/blog) No wonder it feels overwhelming
  4. 4. Before and After Molecular Oncology Before After Large populations Small Populations Marginal effects Major benefits Trials in hundreds of sites Trials in very few sites Generally rely on oncologists to enroll May well fall to patients and caregivers to seek out
  5. 5. 25% 2000 81% 2011
  6. 6. Physicians may be concerned about losing control over the discussion
  7. 7. Physicians remain the most trusted source of information about medical issues From Fox, Peer to Peer Healthcare, Pew Internet and American Life Project, 2011
  8. 8. www.CancerGRACE.org a 501(c)3 nonprofit
  9. 9. Bidirectional Model
  10. 10. Network Model
  11. 11. Patients are HIGHLY MOTIVATED to help themselves www.CancerGRACE.org a 501(c)3 nonprofit
  12. 12. Adapting to a new model: Disruption comes with opportunities • Relationships between patients and physicians are changing • Bidirectional • Physicians no longer expected to know everything out there to know • Patients/caregivers will increasingly turn to social networks and searchable online content www.CancerGRACE.org • Physicians will have a critical role, even if it a 501(c)3 nonprofit changes fundamentally in coming years
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