Reflections on ‘freedom to live a valued life’ - Dr Lynne Friedli

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Dr Lynne Friedli's presenation at North Lanarkshire Council's event Self Directed Support: The Bigger Picture on 8th November 2011.

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  • Born in Persia (now part of Afghanistan) – last year 800th anniversary of his birth. Lived most of his life in Turkey – but wrote in Persian, and hence is generally claimed by Iran.How we interpret mental distress – Rumi’s crowd of sorrows
  • Equality and human rights commissionDisability as a motivating factor in incidents of crime, bullying, anti social behaviour
  • At heart – this is about what hasn’t been valued - above all about assets outside money/market economyAnd that these are precisely the areas that are crucial to well-being: Social – core economy Solidarity – identifying common interests and mutual responsibility Collective – coming together (to change things, improve things, protect things)We’ve seen a recognition of the social nature of wellbeingWhich raises questions about what protects the social – the role of Equity and Social Justice
  • Hartwood Hospital in Lanarkshire. Its founding inspiration was Archie Meek (aged 91), a patient on a geriatric ward who suggested it to Tommie Ritchie, another detained patient, when Tommie was helping Archie shave. This was some time between 1969 and 1971, a few years before the London-based Mental Patients Union formed. Tommie Ritchie was also one of the founding members of the 1973 union and his records of SUMP are part of the union's archive. They include the initiating words of Archie Meek "Christ yam,", he demanded, "Whit are us auld men tae dae if ye ever leave us - We're a divided frae yin anither. Kin ye no start up a Union afore ye go? Fur divided we fall."
  • Scotland had pioneered user action in the United Kingdom. In 1971, SUMP, The Scottish Union of Mental Patients, was the first recorded mental patients' union. By 1974 there was a Federation of Mental Patients Unions. Now Glasgow mental patients lit the fire that became the Survivors Speak Out movement. Two of the service users, Tam Graham and Charlie Reid, became founding members of Survivors Speak Out in 1986. They used the tape-slide programme in group training and education workshops at a number of the early conferences where users started "getting a voice". Charlie Reid died in the early 1990s. He was so well known and respected in Glasgow that he subsequently had a day centre in Glasgow named after him.
  • Trends over time – shrinking of spatial boundaries – decline of adult free spaces
  • Reflections on ‘freedom to live a valued life’ - Dr Lynne Friedli

    1. 1. Reflections on ‘freedom to live a valued life’ Dr Lynne Friedli North Lanarkshire Council The bigger picture: self directed support in North Lanarkshire 8th November 2011
    2. 2. This being human is a guest house. Every morning a new arrival. A joy, a depression, a meanness, Some momentary awareness comes As an unexpected visitor. Welcome and entertain them all. Even if they’re a crowd of sorrows, Who violently sweep your house Empty of its furniture. Still treat each guest honourably. He may be clearing you out for some new delight. The dark thought, the shame, the malice, Meet them at the door laughing, And invite them in. (Jelaluddin Rumi, 1207-73)Self directed support: the bigger picture lynne.friedli@btopenworld.com
    3. 3. ‘Of the community, not just in it...’ ‘Those most at risk are those without committed, unpaid relationships in their life . However good the service provider, people who have no one in their life who is not paid to be with them are vulnerable not only to abuse, but to gentle neglect and complacency.’ Source: Julia Fitzpatrick 2010 Personalised SupportSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    4. 4. Source: Ingram Pinn, Financial TimesSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    5. 5. ‘The bigger challenge is totransform the way disabledpeople are viewed, valuedand included in society.’ Self directed support: the bigger picture
    6. 6. Return to the social.... And what I shall endure, you shall endure For every atom belonging to me as good belongs to you...... Walt Whitman Equity and Freedom Solidarity Social to live a and the core Justice valued life economy I am, because we are...Self directed support: the bigger picture lynne.friedli@btopenworld.com
    7. 7. "Christ yam,Whit are us auld men tae dae if ye ever leave us - were a divided frae yin anither. Kin ye no start up a Union afore ye go? Fur divided we fall." Archie Meek (91) to Tommie Ritchie Petition for the Redress of Grievances put forward by the patients in Hartwood Hospital, Lanarkshire 18 August 1971 Source: The Survivors’ History Group Pageant of Survivor History http://studymore.org.uk/mpu.htmSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    8. 8. ‘It gets so lonelyaround here that Iphone myselfseven or eighttimes a day, just tosee how I am’Phantom TolboothDeclaration of Intent of the Mental Patients Union•We proclaim the dignity of societys so-called mental patients.•We challenge repressive psychiatric practice and its ill-defined concepts of mental illness•We state that the present appalling situation in mental health primarily arises fromthe acute problems in housing, unemployment and social inequality•Mental patients in our society are treated as people with no human rights Self directed support: the bigger picture lynne.friedli@btopenworld.com
    9. 9. Something to hold on to …. I did not hear the bird sounds They had left. I did not see the speechless clouds. I saw only the little white dish of my faith, breaking in the crater. I kept saying: I’ve got to have something to hold on to. Anne SextonSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    10. 10. All societies cater for the disabilities of the average person Martha NussbaumSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    11. 11. So many roads, so much at stakeSo many dead ends, I’m at theedge of the lakeSometimes I wonder what it’sgonna takeTo find dignity Bob DylanSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    12. 12. Self directed support: the bigger picture lynne.friedli@btopenworld.com
    13. 13. Well-being depends on certain freedoms being upheld, as well as on economic assets Amartya Sen Source: Jumpers for goal posts GRID Architects: forgotten spacesSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    14. 14. Source: What if projects http://www.what- lynne.friedli@btopenworld.comif.info/20_vacant_lots.html
    15. 15. Self directed support: the bigger picture lynne.friedli@btopenworld.com
    16. 16. Source: What if projects: Sit in http://www.what-if.info/SIT_IN.htmlSelf directed support: the bigger picture lynne.friedli@btopenworld.com
    17. 17. Self directed support: the bigger picture
    18. 18. Keep on making waves - without which no tide can turn…… That’s it folks!Self directed support: the bigger picture lynne.friedli@btopenworld.com

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