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IBES Health and biomedical informatics

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Presentation given by Fernando Martin-Sanchez and Kathleen Gray at IBES (Institute for the Broadband-Enabled Society) Annual Symposium - Sept 2011

Presentation given by Fernando Martin-Sanchez and Kathleen Gray at IBES (Institute for the Broadband-Enabled Society) Annual Symposium - Sept 2011

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  • 1. IBES Annual Symposium 2011Health and Wellbeing14 September 2011Prof. Fernando Martin-Sanchez & Dr. Kathleen GrayHealth and Biomedical Informatics Research Unit
  • 2. Outline•  Youth Mental Health•  Telemedicine•  Electronic Health Records•  Health and Biomedical Informatics Research
  • 3. Introduc)on  •  Broadband  can  provide  many   opportuni)es  for  the  health   sector:   –  Monitoring  health  condi)ons       –  enabling  shared  electronic  health   records     –  Improving  youth  mental  health   services  •  Broadband  technologies  are   revolu)onising  the  delivery  of   medicine.  
  • 4. Youth  Mental  Health  •  Providing  opportuni)es  for  young  people  who   are  socially  isolated  to  develop  online   networks  and  ac)vi)es  that  connect  them   with  peers,  clinicians  and  the  broader  social   community.  
  • 5. Youth  Mental  Health   Projects  –  Promo%ng  Guideline  Concordant  Care  for  Young   People  with  Depressive  Disorders  –  Social  Networking  Applica%ons  for  Young  People   with  Disabili%es  from  Ethnic  Communi%es  –  HORYZONS:  broadband  for  first  episode  psychosis  
  • 6. Telemedicine  •  The  delivery  of   healthcare   remotely  opens   up  a  number  of   opportuni)es  for   people  to  engage   with  their   prac))oners  over   a  broadband   connec)on.  
  • 7. Telemedicine   Projects  –  The  Telestroke  Solu%on  to  Rural  Thrombolysis  –  Hap%c  Tele-­‐Rehabilita%on:  Latency  implica%ons  for  system   stability  and  clinical  communica%on  –  Concordance  between  real-­‐%me  teleden%stry  assessments   and  face-­‐to-­‐face  examina%on  –  Virtual  visits:  Inves%ga%ng  the  acceptability  of  webcam   consulta%ons  for  young  adults’  sexual  health  –  Wireless  broadband  monitoring  of  knee  osteoarthri%s  –  Overcoming  geographical  barriers  for  community  health   through  3D  
  • 8. Electronic  Health  Records  •  Electronic  health  records  are  transforming   healthcare,  altering  doctor-­‐pa)ent  rela)onships   and  empowering  individuals  to  take  a  more   proac)ve  approach  towards  their  health.  
  • 9. Electronic  Health  Records   Projects  – Mul%-­‐site  records  for   immigrants  and  refugees   requiring  specialist  care  – Making  Pathology   Reports  Smarter  – Ethical  and  Social  Issues  
  • 10. Health and BiomedicalInformatics Research
  • 11. Health  and  biomedical  informa)cs    •  The  science  and  prac)ce  around  informa)on  in   health  that  leads  to  informed  and  assisted   healthcare  (Health  Informa)cs  Society  of   Australia,  2010).    •  It  is  the  body  of  knowledge  that  concerns  the   acquisi)on,  storage,  retrieval  and  use  of   informa)on  in,  about  and  for  human  health,   and  the  design  and  management  of  related   informa)on  systems  to  advance  the   understanding  and  prac)ce  of  healthcare.  
  • 12. Synergies  between  Health  and  Biomedical  Informa)cs     and  the  NBN  
  • 13. Health  and  biomedical  informa)cs   and  the  NBN  •  Health  and  biomedical  informa)cs  is   underpinned  by  the  availability  of  ultra-­‐high-­‐ speed,  high-­‐capacity,  ubiquitous,  ‘always-­‐on’   broadband  connec)vity  that  enables  the   transmission  of  health  informa)on  between   different  points  in  the  healthcare  system.  
  • 14. Public  health  informa)cs  •  Tracking  outbreaks  •  Real-­‐)me  health  surveillance  •  Emergency  preparedness  and   disasters  response  •  Recent  examples  with   outbreak  of  Shiga  toxin-­‐ producing  E.  coli  in  Germany.   Open  source  genome   sequencing  and  data  sharing.  
  • 15. Social  media  and  biomedical  and     clinical  research  •  Social  media  as  a  research  tool  •  Clinical  Research  with  the  pa)ents,  not  on  the  pa)ents  •  Examples   –  23andMe  –  Parkinson’s  Disease  –  PLoS  Gene)cs,  2  new   gene)c  associa)ons   –  Pa)entsLikeMe  –  Nature  Biotech.  Self-­‐reported  data  from   600  pa)ents  on  the  use  of  lithium  for  Amyotrophic  Lateral   Sclerosis  (ALS)   –  Genomera,  CollabRX,     –  Gene)c  Alliance,    SAGE   –  DIYGenomics  
  • 16. Digitally  enabled  personalised  medicine    •  Personalized  medicine  refers  to  the  tailoring  of  medical   treatment  to  groups  of  pa)ents  with  similar  gene)c  or   molecular  profiles.    •  Enabling  technologies:     –  personal  genome  sequencing   –  integrated  personal  health  records  and     –  sensor  technology.  •  Ultra  high  speed  broadband  networks  will  be  required  to   transmit  enormous  volumes  of  data  from  pa)ents’  homes   to  health  prac))oners  and  vice  versa  in  a  )mely  manner,   and  to  enable  the  processing  of  this  deluge  of  data.  •  Personalised  medicine  offers  enormous  opportuni)es  for   improving  preven)ve,  diagnos)c  and  therapeu)c  solu)ons   à  improving  healthcare  outcomes,  reducing  costs  and   increasing  pa)ent  safety.  
  • 17. Remote  pa)ent  data  monitoring  and  data  collec)on   Environmental sensors Genomic sensors Phenomic sensorsEnvironmental risk factors Biomarkers (DNA sequence,(pollution, radiation, toxic agents, …) proteins, gene expression, epigenetics Physiological, biochemical parameters (cholesterol, temperature, glucose, heart rate…) Integrated personal health record
  • 18. Data  flows   across  the   NBN  to   facilitate  personalised   medicine  
  • 19. NBN  and  pa)ent  empowerment  Current   NBN-­‐enabled   Driving  forces:  pa;ent  empowerment,  networks   personalized  medicine,  social  networks  EHR  –  Electronic   Personally   Ci)zens  are  able  to  maintain  and  control  their  Health  Record     Controlled  EHR     own  health  informa)on  Gene-­‐disease   Personal   Ci)zens  ask  for  gene)c  analysis  of  their  DNA  associa)on   genomics     through  the  Internet  and  receive  reports  on  studies     various  aspects  of  their  health  Clinical  trials     Crowdsourced   The  pa)ent  voluntarily  shares  informa)on  on   clinical  trials     treatments  and  evolu)on  of  his/her  illness   with  other  pa)ents  
  • 20. Model  for  the  Centre  for  HBIR  @UniMelb   Academic home Funding Agencies (competitive Grants) Foundational Foundational Contributing Contributing member memberSupport of specific activities Liaison with medical specialties
  • 21. Thank you for your attention!