Forum IV: Administration forChildren and Families (ACF) HealthData InitiativeMiya Cain,Health Policy Analyst and Special A...
ACF MissionResponsiblefor federal programsthat promote theeconomic, social andhealth well-being offamilies, children,indiv...
Who ACF Serves
Office of the Chief Medical OfficerRole: Serves as the main advisor to theAssistant Secretary regarding health-related ini...
ACF Health Data Strategy1. Gathered senior staff to introducehealthdata.gov2. Presented to program office heads3. Designat...
ACF Outcomes 3 pilot data sets on healthdata.gov29 data sets now availablein usable format Increased ACF awareness about...
O F F I C E O F H E A D S T A R TO F F I C E O F F A M I L Y A S S I S T A N C EO F F I C E O F C O M M U N I T Y S E R V ...
Office of Head Start Data Set Online Head Start Locator Allows users to search for Head Start and Early Head StartCenter...
Office of Family Assistance Temporary Assistance for Needy Families Caseload Data Number of TANF Recipients by State and...
Office of Family Assistance Temporary Assistance for Needy Families Caseload Data Number of TANF Recipients by State and...
ACF Uploaded Data…Now What? Offer clear, easy to find eligibility guidelines Create easily accessible network of communi...
Who is the Target Audience for HDI? General Public Recipients of Services Grantees State and Local Agencies Health Ca...
Community Commons What is Community Commons?“An interactive mapping, networking, and learning utility for thehealthy, sus...
Example from Community Commons
Health Leads Organization’s Goal To connect patients at hospitals/clinics with humanservices to address social/economic ...
Civic Hacking “Citizens, software developers, and entrepreneurscollaboratively create and build new solutions usingpublic...
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Health Datapalooza 2013: Datalab - Miya Cain

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Health Datapalooza IV: June 3rd-4th, 2013
Datalab

Moderator:
Todd Park, Chief Technology Officer, United States
Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services

Speakers:
Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation
Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality
Rick Moser, National Institutes of Health
Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT
Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services
Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services
Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration
Robert Post, Environmental Protection Agency (EPA)
Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA)
Jim Craver, Center for Disease Control and Prevention (CDC)
David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer
Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health
Steven Edwards, Environmental Protection Agency
Steve Emrick, National Library of Medicine
Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control

This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

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Health Datapalooza 2013: Datalab - Miya Cain

  1. 1. Forum IV: Administration forChildren and Families (ACF) HealthData InitiativeMiya Cain,Health Policy Analyst and Special Assistant tothe Chief Medical OfficerJune 3, 2013
  2. 2. ACF MissionResponsiblefor federal programsthat promote theeconomic, social andhealth well-being offamilies, children,individuals, andcommunities.
  3. 3. Who ACF Serves
  4. 4. Office of the Chief Medical OfficerRole: Serves as the main advisor to theAssistant Secretary regarding health-related initiatives.ACF and OCMO are concerned with “thesocial determinants of health.”Priorities: Coordinating agency and inter-agencyefforts to best connect people withhealthcare under the ACA Improving health efforts for thepopulations served by ACF programs
  5. 5. ACF Health Data Strategy1. Gathered senior staff to introducehealthdata.gov2. Presented to program office heads3. Designated “data liaisons” in eachoffice4. Compiled data into spreadsheet toevaluate value5. Continued to meet to build enthusiasm6. Prioritized data sets7. Approved and uploaded!
  6. 6. ACF Outcomes 3 pilot data sets on healthdata.gov29 data sets now availablein usable format Increased ACF awareness about data and its uses Created maps of services using health data Partnered with private/nonprofit organizations tofind best uses for data
  7. 7. O F F I C E O F H E A D S T A R TO F F I C E O F F A M I L Y A S S I S T A N C EO F F I C E O F C O M M U N I T Y S E R V I C E SACF Programs and Data
  8. 8. Office of Head Start Data Set Online Head Start Locator Allows users to search for Head Start and Early Head StartCenters using multiple criteria and displaying results in mapsand lists Format .csv (Excel) API in development Potential Uses Services Locator/ Map for use by general public, servicerecipients, health care and service providers
  9. 9. Office of Family Assistance Temporary Assistance for Needy Families Caseload Data Number of TANF Recipients by State and by County Updated Quarterly Format Raw data (Text File) Potential Uses Researchers, policy makers, and State social services workers canmap trends among TANF recipients Overlay TANF recipients with the American Community Survey tosee where there are gaps in TANF eligible recipients
  10. 10. Office of Family Assistance Temporary Assistance for Needy Families Caseload Data Number of TANF Recipients by State and by County Updated Quarterly Format Raw data (Text File) Potential Uses Researchers, policy makers, and State social services workers canmap trends among TANF recipients Overlay TANF recipients with the American Community Survey tosee where there are gaps in TANF eligible recipients
  11. 11. ACF Uploaded Data…Now What? Offer clear, easy to find eligibility guidelines Create easily accessible network of communityresources Allow researchers/service providers to easily findand use ACF data Promote the case for impact of social factors onhealth outcomes
  12. 12. Who is the Target Audience for HDI? General Public Recipients of Services Grantees State and Local Agencies Health Care Professionals Social Workers Researchers Policy Makers
  13. 13. Community Commons What is Community Commons?“An interactive mapping, networking, and learning utility for thehealthy, sustainable, and livable communities’ movement” ACF Data Partnership Created a map of Head Start centers and other granteelocations from the data on Healthcare.gov Brainstormed more uses for ACF data Communitycommons.org
  14. 14. Example from Community Commons
  15. 15. Health Leads Organization’s Goal To connect patients at hospitals/clinics with humanservices to address social/economic determinants ofhealth Needs that can be Filled by Use of Data Eligibility determination application Better Resource Catalogue Cataloguing takes up excessive time and energy because ofhigh resource turnover 40% of information about resources changes every year,and about 20% are brand new
  16. 16. Civic Hacking “Citizens, software developers, and entrepreneurscollaboratively create and build new solutions usingpublicly-released data to solve challenges relevant toneighborhoods, cities, states and country.” Example of some of the challenges: 1) build a common directory of community resources 2) visualize/explore hospital charges data 3) create downloadable a healthdata.gov catalogue 4) facilitate home visits
  17. 17. Thank you!

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