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Health Datapalooza 2013: Blue Button Plus For Data Holders - Craig Lipset
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Health Datapalooza 2013: Blue Button Plus For Data Holders - Craig Lipset

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Health Datapalooza IV: June 3rd-4th, 2013 …

Health Datapalooza IV: June 3rd-4th, 2013
Unlocking Clinical & Claims Data by Giving Consumers Access: Blue Button Plus For Data Holders
Moderator:
Ryan Panchadsaram, Senior Advisor, White House Office of Science and Technology Policy
Speakers:
Kym Martin, Three-time cancer survivor
Jon R. Cohen, Chief Medical Officer, Quest Diagnostics
Craig Lipset, Head of Clinical Innovation, Pfizer
Mark Savage, Director of Health IT Policy and Programs, National Partnership for Women & Families

Consumers can be engaged, active participants in their own health and partners in reducing health care costs. But first, they need access to their own personal health information, and they need tools and services that use this information to help them make better choices. The panel will bring together payers, providers, and other data holders who will discuss the value proposition for sharing data with consumers. They will demonstrate Blue Button Plus, which makes it easy for data holders to share personal health information with consumers and their applications in a standardized, automated format.

Published in Business , Health & Medicine
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  • 1. Unlocking Data to Transform the Role of PatientsFrom Subjects to Participants in Clinical ResearchCraig H LipsetHealth Data Initiative IV, June 3 2013The PfizerBlue Button®Project
  • 2. The PfizerBlue ButtonProject
  • 3. The PfizerBlue ButtonProjectonly 5% participate in clinical researchhundreds of pieces of data generateddata aggregated for researchvery little given to patient in returna subject of researchyesterday
  • 4. The PfizerBlue ButtonProjectfirst of its kind projectenable patient to download herindividual clinical data at study endprovide patient with lay languagesummary of study resultsimprove her health & decision-makingshare data with her treating cliniciansa participant in researchtoday
  • 5. The PfizerBlue ButtonProjectRole of thepatient and herdata inradicallyacceleratingthedevelopmentof newmedicalbreakthroughsRole of thepatient and herdata inradicallyacceleratingthedevelopmentof newmedicalbreakthroughs
  • 6. The PfizerBlue ButtonProjectlow participation a challenge to all research sponsors(universities, government, and pharma)less than 4% of US physicians participatein clinical trials as an investigatoronly 7% of Americans say their physician has talkedto them about research participationlack of engagement and participation delaysthe development of new medicines
  • 7. The PfizerBlue ButtonProjectUnlocking datatransforms the roleof the patient in researchWhen given access and controlover their health data,91% of patients are willing to sharemedical information for researchWhen given access and controlover their health data,91% of patients are willing to sharemedical information for research
  • 8. The PfizerBlue ButtonProjectEarn Trust By Sharing FirstEarn Trust By Sharing FirstUse Data and Information to Transform theRole of the Patient in Clinical ResearchUse Data and Information to Transform theRole of the Patient in Clinical ResearchIndividual Study DataStudy Results
  • 9. The PfizerBlue ButtonProjectIn 2012,Pfizer Completedover 100 clinical trialswith over 50,000patientsincluding over37,000,000data points*In 2012,Pfizer Completedover 100 clinical trialswith over 50,000patientsincluding over37,000,000data points*If Successful…beyond U.S.additionalcutting-edgedata types(such as precision medicine)If Successful…beyond U.S.additionalcutting-edgedata types(such as precision medicine)*significant investment in clinical trial data to ensurethe highest quality for regulatory scrutiny
  • 10. The PfizerBlue ButtonProjectPartnering withthe Health DataCommunity
  • 11. The PfizerBlue ButtonProject“…I, the patient, can share whatever healthinformation I want. It can be scrubbed ornot. I share this with you to help othersand aid in the aggregation of data. And all Iask of you, is that you do the same for me.I ask you to share the data and conclusionsthat you have reached…We are no longer subjects. We arepartners in care. Let patient’s help, that isall we ask.”Regina Holliday“Subjects”September 5, 2011http://reginaholliday.blogspot.com/2011/09/subjects.html
  • 12. The PfizerBlue ButtonProjectAcknowledgmentsJennifer WulffMunther Baara