The Data Linkage and Extract Service 
Dave Cronin, Business Change Lead
What is it? 
• Unique service enabling new insights into patient care 
• Adds significant value to individual sets of data...
Types of data 
1. De-identified data for publication 
Accessed via the HSCIC catalogue: 
www.hscic.gov.uk/searchcatalogue ...
Data Linkage and Extract Service products 
• Tabulations 
• Standard extracts 
• Bespoke extracts 
• Bespoke data linkage ...
Examples of data available 
• Hospital Episode Statistics 
• Mental Health Minimum Data Set 
• NHS Registration Data from ...
Routinely Linked Data Sets 
• Hospital Episode Statistics linked to Mental Health 
Minimum Data Set 
• Hospital Episode St...
In the pipeline 
Jan 
2014 
Dec 
2016 
Quarter 1 
2014/15 
Primary Care 
to HES 
linkage 
Quarter 1 
2015/16 
CAMHS to 
MH...
Ensuring appropriate access 
Application guidance and forms available 
at: www.hscic.gov.uk/dlesaac 
We review requests an...
Case Study - The ‘Million Women’ Study 
Oxford University 
• A national study of women’s health involving more than 
one m...
Case study – Do hormonal treatments for assisted reproduction 
increase risk of cancer of mortality? A national cohort stu...
Find out more 
0845 300 6016 
www.hscic.gov.uk/dles 
@hscic 
@HSCICOpenData
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HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service

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Dave Cronin (HSCIC, Business Change Lead, Data Linkage and Extract Service) provides an overview of the Data Linkage and Extract Service. He also discusses a new ground breaking development programme; making available new datasets, subject to robust information governance controls.

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Transcript of "HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service"

  1. 1. The Data Linkage and Extract Service Dave Cronin, Business Change Lead
  2. 2. What is it? • Unique service enabling new insights into patient care • Adds significant value to individual sets of data by combining and matching them in a secure environment • Flexible range of products that can be tailored to meet your data needs • Ground breaking development programme, making available new datasets, subject to robust information governance controls
  3. 3. Types of data 1. De-identified data for publication Accessed via the HSCIC catalogue: www.hscic.gov.uk/searchcatalogue 2. De-identified data for limited disclosure or access Accessed via the Data Linkage and Extract Service subject to IG controls: www.hscic.gov.uk/dles 3. Personal confidential data Accessed via the Data Linkage and Extract Service subject to IG controls: www.hscic.gov.uk/dles
  4. 4. Data Linkage and Extract Service products • Tabulations • Standard extracts • Bespoke extracts • Bespoke data linkage • Patient status and tracking
  5. 5. Examples of data available • Hospital Episode Statistics • Mental Health Minimum Data Set • NHS Registration Data from the Personal Demographics Service • Secondary Uses Service Payment by Results • Patient Reported Outcome Measures • Diagnostic Imaging Dataset • Mortality Data from the Office for National Statistics • Cancer Data from the Office for National Statistics
  6. 6. Routinely Linked Data Sets • Hospital Episode Statistics linked to Mental Health Minimum Data Set • Hospital Episode Statistics linked to Patient Reported Outcome Measures • Hospital Episode Statistics linked to Mortality Data from the Office for National Statistics • Hospital Episode Statistics linked to the Diagnostic Imaging Dataset
  7. 7. In the pipeline Jan 2014 Dec 2016 Quarter 1 2014/15 Primary Care to HES linkage Quarter 1 2015/16 CAMHS to MHMDS linkage CAMHS to HES linkage Quarter 3 2015/16 Child Health to HES Quarter 2 2015/16 Maternity to HES linkage CAMHS data available Child Health data available Maternity data available
  8. 8. Ensuring appropriate access Application guidance and forms available at: www.hscic.gov.uk/dlesaac We review requests and assess: • The legal basis to permit the processing and subsequent release of data. • The legal basis for the customer to access the data. • The level and source of data being used and released. • The purpose and intended reuse of the data. • The security assurance and controls in place. • Advise/facilitate any further approvals.
  9. 9. Case Study - The ‘Million Women’ Study Oxford University • A national study of women’s health involving more than one million UK women aged 50 and over • Partnership between Cancer Research UK and the NHS with funding from the Medical Research Council and the Health and Safety Executive • Since 1998 we have: • Traced and followed 1,251,920 women • Patient Tracking reporting on; cause of death, cancer, NHS registrations. • Providing over 294,000 event notifications
  10. 10. Case study – Do hormonal treatments for assisted reproduction increase risk of cancer of mortality? A national cohort study The Institute of Child Health, University College London • To investigate the relationship between hormonal treatment and site specific risks of cancer incidence, especially reproductive related cancers, in relation to type of treatment, duration and age of exogenous hormone exposure. • To establish if there is any link between cause-specific mortality and ART exposure. • The HSCIC provided a de-identified output to the researcher • Patient Status reporting on; cause of death, cancer, NHS registrations and HES data.
  11. 11. Find out more 0845 300 6016 www.hscic.gov.uk/dles @hscic @HSCICOpenData

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