HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service
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HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service

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Dave Cronin (HSCIC, Business Change Lead, Data Linkage and Extract Service) provides an overview of the Data Linkage and Extract Service. He also discusses a new ground breaking development ...

Dave Cronin (HSCIC, Business Change Lead, Data Linkage and Extract Service) provides an overview of the Data Linkage and Extract Service. He also discusses a new ground breaking development programme; making available new datasets, subject to robust information governance controls.

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HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service HSCIC Data Linkage Stakeholder Forum Nov 2013: The Data Linkage and Extract Service Presentation Transcript

  • The Data Linkage and Extract Service Garry Coleman: Head of Data Service / Open Data Lead
  • What is it? • Unique service providing new insights into patient care • Adds significant value to individual sets of data by combining and matching them in a secure environment • Flexible range of products that can be tailored to meet your data needs • Ground breaking development programme, making available new datasets, subject to robust information governance controls
  • Types of Data 1. De-identified data for publication Accessed via the HSCIC catalogue: www.hscic.gov.uk/searchcatalogue 2. De-identified data for limited disclosure or access Accessed via the Data Linkage and Extract Service: www.hscic.gov.uk/dles 3. Personal confidential data Accessed via the Data Linkage and Extract Service: www.hscic.gov.uk/dles
  • Data Linkage and Extract Service Products • Tabulations • Standard extracts • Bespoke extracts • Bespoke data linkage • Patient status and tracking
  • Examples of Data Available • Hospital Episode Statistics • Mental Health Minimum Data Set • NHS Registration Data from the Personal Demographics Service • Secondary Uses Service Payment by Results • Patient Reported Outcome Measures • Diagnostic Imaging Dataset • Mortality Data from the Office for National Statistics • Cancer Data from the Office for National Statistics
  • Ensuring Appropriate Access We review requests and assess: • The legal basis to permit the processing and subsequent release of data. • The legal basis for the customer to access the data. • The security assurance and controls in place. • Advise/facilitate any further approvals.
  • Routinely Linked Datasets • Hospital Episode Statistics linked to Mental Health Minimum Data Set • Hospital Episode Statistics linked to Patient Reported Outcome Measures • Hospital Episode Statistics linked to Mortality Data from the Office for National Statistics • Hospital Episode Statistics linked to the Diagnostic Imaging Dataset
  • Find Out More 0845 300 6016 www.hscic.gov.uk/dles @hscic @HSCICOpenData
  • Case Study: The “Million Women” Study Oxford University • A national study of women’s health involving more than one million UK women aged 50 and over • Partnership between Cancer Research UK and the NHS with funding from the Medical Research Council and the Health and Safety Executive Since 1998 we have: • Traced and followed 1,251,920 women • Patient Tracking reporting on; cause of death, cancer, NHS registrations • Providing over 294,000 event notifications
  • Case Study – Do hormonal treatments for assisted reproduction increase risk of cancer of mortality? A national cohort study The Institute of Child Health, University College London • To investigate the relationship between hormonal treatment and site specific risks of cancer incidence, especially reproductive related cancers, in relation to type of treatment, duration and age of exogenous hormone exposure. • To establish if there is any link between cause-specific mortality and ART exposure. • The HSCIC provided a de-identified output to the researcher • Patient Status reporting on; cause of death, cancer, NHS registrations and HES data.