“ Beginning to Understand Health Information Privacy” HINZ seminar series, 29 February 2008, Wellington Dr Inga Hunter Department of Management, Massey University [email_address] Prof. Tony Norris Institute of Information and Mathematical Sciences Dr Dick Whiddett Department of Management (ex-Department of IS) Mr John Waldon School of Maori Studies Dr Barry McDonald Institute of Information and Mathematical Sciences BETTER CARE WITHOUT COMPROMISING PERSONAL PRIVACY - THE CONSUMERS' VIEWPOINT
while patients were willing to give consent for their health information to be used in the ways described, this consent may not be informed.
NHS survey 4 (2003)
security and privacy of their information would be a major concern.
3. Shickle D, Carlisle J, Wallace S et al. (2002). Patient Electronic Record; Information and Consent (PERIC) - Public attitudes to protection and use of personal health information. ScHARR Report Series No: 7. Sheffield: School of Health and Related Research, University of Sheffield. Available at http://www.shef.ac.uk/~scharr/publich/research/peric2.html
4. National Health Service. The public view on electronic health records . 2003. Accessed 4 Sep 2005.
Unless a patient can be sure that personal information will not be distributed against their wishes, they may delay or forego treatment, or be reluctant to disclose sensitive information that may in fact be crucial to their correct treatment 5,6 .
5. NZHIS (1995) Health Information Privacy and Confidentiality, New Zealand Health Information Service, Wellington.
6. Sankar, P., Moran, S., Merz, J. and Jones, N. (2003) "Patient Perspectives on Medical Confidentiality. A Review of the Literature", Journal of General Internal Medicine, 18, 659-669.
73% concerned about the privacy and security of their medical information.
40% concerned that EHRs would lead to sensitive medical information from leaking out
42% concerned that EHRs would result in allowing the sharing of their medical information without their knowledge
13. Prajesh Chhanabhai, Alec Holt (2006). “EHR’s Fear of breach? The New Zealand public’s opinion”, Department of Information Science, University of Otago. http://www.hinz.org.nz/media/2006_conference/2006ConferencePDFS/Prajesh%20Chhanabhai%20-%201120%20Thurs.pdf
14. Whiddett, R., Hunter, I ., Engelbrecht, J., Handy, J., “Patients’ Attitudes towards sharing their health information”. International Journal of Medical Informatics, Volume 75, Issue 7, July 2006, Pages 530-541.
15. Hunter, I., Engelbrecht, J., Handy, J., and Whiddett, R., ‘The complexity of managing patient information’. Proceedings of the Royal New Zealand College of General Practitioners Conference, July, 2004, Wellington, New Zealand. (Abstract).
<person requesting information> would like to access your medical notes which contain <content of medical information> as <reason for request>. The information about you would contain <type of identification details>