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This presentation is by Dr.Zinobia Madan at the Putting Patients First Conference on 20th Oct,10. Topic "Patient Empowerment - An evolving idea towards reforming current healthcare". HELP is the …

This presentation is by Dr.Zinobia Madan at the Putting Patients First Conference on 20th Oct,10. Topic "Patient Empowerment - An evolving idea towards reforming current healthcare". HELP is the world's largest the worlds largest free patient education library - www.healthlibrary.com

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  • 1. PATIENT EMPOWERMENT – AN EVOLVING IDEA TOWARDS REFORMING CURRENT HEALTHCARE DR ZINOBIA MADAN PhD, MAMS, FIMSA, FICN FOUNDER & MANAGING DIRECTOR CLINOMA HEALTHCARE
  • 2. PATIENT EMPOWERMENTPATIENT EMPOWERMENT  A CONCEPT RECENTLY EMERGED IN THE HEALTHA CONCEPT RECENTLY EMERGED IN THE HEALTH SCENESCENE  EMBRACES THE IDEA THAT EVERYONE HAS THEEMBRACES THE IDEA THAT EVERYONE HAS THE RIGHT TO MAKE THEIR OWNRIGHT TO MAKE THEIR OWN CHOICES ABOUT THEIR HEALTHCHOICES ABOUT THEIR HEALTH CARECARE
  • 3. PATIENT EMPOWERMENT – A NEW EMERGING CONCEPT ….  PATIENT TAKING AN ACTIVE ROLE IN HIS / HER OWN DISEASE MANAGEMENT  UNTIL PAST FEW YEARS, PATIENT’SUNTIL PAST FEW YEARS, PATIENT’S PARTICIPATION WAS UNHEARD OFPARTICIPATION WAS UNHEARD OF  TODAY, MANY PATIENTS REALIZE THAT THISTODAY, MANY PATIENTS REALIZE THAT THIS LEVEL OF PARTICIPATION IS VITAL TOLEVEL OF PARTICIPATION IS VITAL TO MAINTAINING HEALTH IN LIGHT OF MEDICALMAINTAINING HEALTH IN LIGHT OF MEDICAL CHALLENGESCHALLENGES
  • 4. PATIENT EMPOWERMENTPATIENT EMPOWERMENT  MODEL BASED ON ASSUMPTION THAT TO BE TRULYMODEL BASED ON ASSUMPTION THAT TO BE TRULY HEALTHY, PATIENTS MUST BRING ABOUT CHANGES INHEALTHY, PATIENTS MUST BRING ABOUT CHANGES IN THEIR PERSONAL BEHAVIOUR, SOCIAL SITUATIONS &THEIR PERSONAL BEHAVIOUR, SOCIAL SITUATIONS & ENVIRONMENT THAT INFLUENCES THEIR LIVESENVIRONMENT THAT INFLUENCES THEIR LIVES  MODEL HAS EVOLVED OUT OF THE REALIZATION THATMODEL HAS EVOLVED OUT OF THE REALIZATION THAT PATIENTS CANNOT BE FORCED TO FOLLOW A LIFESTYLEPATIENTS CANNOT BE FORCED TO FOLLOW A LIFESTYLE DICTATED BY OTHERSDICTATED BY OTHERS
  • 5. PATIENT EMPOWERMENT—A PATIENT-PATIENT EMPOWERMENT—A PATIENT- CENTRED APPROACH TO IMPROVE CARECENTRED APPROACH TO IMPROVE CARE  KEY TENETS OF PATIENTKEY TENETS OF PATIENT EMPOWERMENT :EMPOWERMENT :  PATIENTS HAVE RIGHT TO MAKE THEIRPATIENTS HAVE RIGHT TO MAKE THEIR OWN CHOICES AND THE ABILITY TO ACTOWN CHOICES AND THE ABILITY TO ACT ON THEMON THEM  THE EMPOWERMENT MODEL IS THUS ONETHE EMPOWERMENT MODEL IS THUS ONE OF MUTUAL RESPECTOF MUTUAL RESPECT  THE RESPECT DERIVES FROM VALUING OFTHE RESPECT DERIVES FROM VALUING OF HUMAN LIFE AND BUILDING OF A GOODHUMAN LIFE AND BUILDING OF A GOOD CLINICIAN-PATIENT RELATIONSHIPCLINICIAN-PATIENT RELATIONSHIP
  • 6. WAYS OF PATIENT EMPOWERMENT …..WAYS OF PATIENT EMPOWERMENT …..  CAN BE ACHIEVED THROUGH TRAINING AND SUPPORTCAN BE ACHIEVED THROUGH TRAINING AND SUPPORT  OPTIONS AVAILABLE - PROVIDING INFORMATION SHEETS,OPTIONS AVAILABLE - PROVIDING INFORMATION SHEETS, MULTIMEDIA PROGRAMS, INFORMATION TECHNOLOGY ANDMULTIMEDIA PROGRAMS, INFORMATION TECHNOLOGY AND SKILL BUILDING TECHNIQUES SUCH AS A DIABETES SELF-SKILL BUILDING TECHNIQUES SUCH AS A DIABETES SELF- MANAGEMENT PROGRAMMEMANAGEMENT PROGRAMME  LOW HEALTH LITERACY MAY ADVERSELY IMPACT ONLOW HEALTH LITERACY MAY ADVERSELY IMPACT ON PATIENT EMPOWERMENTPATIENT EMPOWERMENT
  • 7. WAYS OF PATIENT EMPOWERMENT …..WAYS OF PATIENT EMPOWERMENT …..  IMPORTANT STEP IN PATIENT EMPOWERMENT IS TO SOLICITIMPORTANT STEP IN PATIENT EMPOWERMENT IS TO SOLICIT PATIENTS’ VIEWS AND LISTEN TO WHAT THEY SAYPATIENTS’ VIEWS AND LISTEN TO WHAT THEY SAY  MULTIPLE STUDIES DEMONSTRATED THAT PATIENTS WHOMULTIPLE STUDIES DEMONSTRATED THAT PATIENTS WHO ARE INVOLVED WITH MANAGEMENT DECISIONS HAVEARE INVOLVED WITH MANAGEMENT DECISIONS HAVE BETTER OUTCOMES THAN THOSE WHO ARE NOT INVOLVEDBETTER OUTCOMES THAN THOSE WHO ARE NOT INVOLVED
  • 8. EMPOWERMENT THROUGH INFORMATIONEMPOWERMENT THROUGH INFORMATION  MEANS SEEKING INFORMATION FIRSTMEANS SEEKING INFORMATION FIRST  THEN ACTING ON THE INFORMATIONTHEN ACTING ON THE INFORMATION PATIENTS FIND MOST PERTINENT TO THEMPATIENTS FIND MOST PERTINENT TO THEM  INFORMED PATIENT IS BETTER EQUIPPEDINFORMED PATIENT IS BETTER EQUIPPED TO ASK QUESTIONS TO HIS/HER DOCTORTO ASK QUESTIONS TO HIS/HER DOCTOR AND CONTRIBUTE TO TREATMENTAND CONTRIBUTE TO TREATMENT  PATIENT HAS EVERY RIGHT TO EVERYPATIENT HAS EVERY RIGHT TO EVERY SOURCE OF INFORMATIONSOURCE OF INFORMATION  FOR THE TREATING DOCTOR, THE PATIENTFOR THE TREATING DOCTOR, THE PATIENT IS ONE ANOTHER PATIENTIS ONE ANOTHER PATIENT
  • 9. Channeling web information to promote PatientChanneling web information to promote Patient EmpowermentEmpowerment
  • 10. CAUTION !!!CAUTION !!! PATIENTS USE INTERNET TO MAKEPATIENTS USE INTERNET TO MAKE SELF –DIAGNOSIS !!!SELF –DIAGNOSIS !!!
  • 11. KEY ELEMENTS OF EMPOWERMENT :KEY ELEMENTS OF EMPOWERMENT :  KNOWLEDGEKNOWLEDGE  BEHAVIOURAL SKILLSBEHAVIOURAL SKILLS  SELF-RESPONSIBILITYSELF-RESPONSIBILITY
  • 12. TRANSLATING THE PATIENT EMPOWERMENTTRANSLATING THE PATIENT EMPOWERMENT CONCEPT INTO DAILY PRACTICE……CONCEPT INTO DAILY PRACTICE……  PATIENT EMPOWERMENT MOVEMENT STARTED INPATIENT EMPOWERMENT MOVEMENT STARTED IN EARLY 1970S, ADVOCATING THE RIGHTS OF THEEARLY 1970S, ADVOCATING THE RIGHTS OF THE PATIENTPATIENT  GOALS OF PATIENT EMPOWERMENT :GOALS OF PATIENT EMPOWERMENT : TO HELP PATIENTS BECOME ACTIVE PHYSICIAN – PARTNERS CONTRIBUTING TO A WIDER PERSPECTIVE IN THE HEALTHCARE SYSTEM
  • 13. WHAT IS EXPECTED OF AN EMPOWEREDEMPOWERED PATIENT ?PATIENT ?  TAKE RESPONSIBILITY :TAKE RESPONSIBILITY : REALIZING THAT YOU KNOW YOURREALIZING THAT YOU KNOW YOUR BODY BETTER THAN ANYONE ELSE,BODY BETTER THAN ANYONE ELSE, MAKE APPROPRIATE DECISIONSMAKE APPROPRIATE DECISIONS ABOUT YOUR TREATMENTABOUT YOUR TREATMENT  SET GOALS :SET GOALS : SET A TREATMENT GOAL ANDSET A TREATMENT GOAL AND WORK TOWARD THAT GOALWORK TOWARD THAT GOAL
  • 14. WHAT IS EXPECTED OF AN EMPOWEREDEMPOWERED PATIENT ?PATIENT ?  COLLABORATE WITH OTHERS :COLLABORATE WITH OTHERS : ACTIVELY PARTICIPATE WITH YOURACTIVELY PARTICIPATE WITH YOUR HEALTHCARE TEAM TO HELP IN DIAGNOSISHEALTHCARE TEAM TO HELP IN DIAGNOSIS AND TREATMENTAND TREATMENT  GATHER EVIDENCE :GATHER EVIDENCE : INFORMATION FROM ALL RESOURCESINFORMATION FROM ALL RESOURCES  STAY SAFE IN THE HEALTHCARESTAY SAFE IN THE HEALTHCARE ENVIRONMENT :ENVIRONMENT : PROTECT YOURSELF FROM MEDICAL &PROTECT YOURSELF FROM MEDICAL & SURGICAL ERRORS, ADMINISTRATION OFSURGICAL ERRORS, ADMINISTRATION OF DRUGS AT INAPPROPRIATE DOSES /DRUGS AT INAPPROPRIATE DOSES / INAPPROPRIATE DRUGS, ACQUIRED HIGHINAPPROPRIATE DRUGS, ACQUIRED HIGH RISK INFECTIONS IN HOSPITALSRISK INFECTIONS IN HOSPITALS
  • 15. PATIENTS ‘ RIGHTS :PATIENTS ‘ RIGHTS :  DIAGNOSIS & TREATMENT INFORMATIONDIAGNOSIS & TREATMENT INFORMATION  INFORMATION DECISIONS & INFORMEDINFORMATION DECISIONS & INFORMED CONSENTCONSENT  PRIVACY & CONFIDENTIALITYPRIVACY & CONFIDENTIALITY  ACCESS TO MEDICAL RECORDSACCESS TO MEDICAL RECORDS  TO BE INFORMED ABOUT HOSPITALTO BE INFORMED ABOUT HOSPITAL POLICY & COMPLAINT PROCESSPOLICY & COMPLAINT PROCESS
  • 16. PATIENTS ‘ RIGHTS :PATIENTS ‘ RIGHTS :  TO BE INFORMED ABOUT ALLTO BE INFORMED ABOUT ALL TREATMENT OPTIONS INCLUDING RIGHTTREATMENT OPTIONS INCLUDING RIGHT TO REFUSE TREATMENTTO REFUSE TREATMENT  TO KNOW NAMES, CREDENTIALS &TO KNOW NAMES, CREDENTIALS & EXPERIENCE LEVEL OF STAFF MEMBERSEXPERIENCE LEVEL OF STAFF MEMBERS  TO KNOW FINANCIAL INFORMATION IN INTO KNOW FINANCIAL INFORMATION IN IN ADVANCEADVANCE  TO RECEIVE CONSIDERATE,TO RECEIVE CONSIDERATE, RESPECTFUL & EFFECTIVE CARERESPECTFUL & EFFECTIVE CARE
  • 17. PATIENT’S RESPONSIBILITIES :PATIENT’S RESPONSIBILITIES :  BE HONEST & COMPLETE ABOUT YOUR MEDICALBE HONEST & COMPLETE ABOUT YOUR MEDICAL HISTORY & FRANK ABOUT YOUR VICESHISTORY & FRANK ABOUT YOUR VICES  VOICE ALL CONCERNS, DOUBTS & FEARSVOICE ALL CONCERNS, DOUBTS & FEARS  ASK QUESTIONS & TELL STAFF MEMBERSASK QUESTIONS & TELL STAFF MEMBERS WHEN YOU DO NOT UNDERSTAND WHATWHEN YOU DO NOT UNDERSTAND WHAT IS HAPPENINGIS HAPPENING  BE AN ACTIVE PARTICIPANT IN YOURBE AN ACTIVE PARTICIPANT IN YOUR MEDICAL CAREMEDICAL CARE  UNDERSTAND WHAT IS EXPECTED OF YOUUNDERSTAND WHAT IS EXPECTED OF YOU AS A PATIENTAS A PATIENT  FOLLOW THE TREATMENT PLAN ORFOLLOW THE TREATMENT PLAN OR COMMUNICATE IF YOU ARE NOT FOLLOWING ITCOMMUNICATE IF YOU ARE NOT FOLLOWING IT
  • 18. PATIENT EMPOWERMENT: HOW NOT TO FALLPATIENT EMPOWERMENT: HOW NOT TO FALL VICTIM TO A HOSPITAL MISTAKE!VICTIM TO A HOSPITAL MISTAKE!  KEEPING YOURSELF SAFE FROM HOSPITALKEEPING YOURSELF SAFE FROM HOSPITAL MISTAKESMISTAKES  GIVE YOUR NAME, DOB AND SURGERYGIVE YOUR NAME, DOB AND SURGERY  FIND OUT WHAT PROCEDURE YOU ARE HAVINGFIND OUT WHAT PROCEDURE YOU ARE HAVING AND ON WHICH SIDE?AND ON WHICH SIDE?  MARKING THE SURGICAL SITEMARKING THE SURGICAL SITE  BE VERY CLEAR ABOUT YOURBE VERY CLEAR ABOUT YOUR PERSONAL DETAILSPERSONAL DETAILS
  • 19. BY EMPOWERING PATIENTS AS PARTNERSBY EMPOWERING PATIENTS AS PARTNERS WE TARGET TO IMPROVE HEALTHCAREWE TARGET TO IMPROVE HEALTHCARE OUTCOMES ……OUTCOMES ……  EFFICIENT DOCTOR-PATIENT CONSULTATIONSEFFICIENT DOCTOR-PATIENT CONSULTATIONS  LEADS TO BETTER PATIENT–PHYSICIANLEADS TO BETTER PATIENT–PHYSICIAN UNDERSTANDINGUNDERSTANDING  RAPID DIAGNOSIS & NEGOTIATED TREATMENTRAPID DIAGNOSIS & NEGOTIATED TREATMENT OPTIONS THAT ARE MORE LIKELY TO BEOPTIONS THAT ARE MORE LIKELY TO BE ADHERED TOADHERED TO  GREATER PATIENT SATISFACTION  IMPROVED HEALTH OUTCOMES
  • 20. NOVEL LIFESTYLE CLINIC – FOR PATIENT CARENOVEL LIFESTYLE CLINIC – FOR PATIENT CARE
  • 21. EMPOWERING PATIENTS AT CLINOMAEMPOWERING PATIENTS AT CLINOMA HEALTHCAREHEALTHCARE
  • 22. EMPOWERING PATIENTS AT CLINOMAEMPOWERING PATIENTS AT CLINOMA HEALTHCAREHEALTHCARE  PATIENTS WITH ALL COMMON LIFESTYLE DISEASES WHOPATIENTS WITH ALL COMMON LIFESTYLE DISEASES WHO REQUIRE DIET, FITNESS & LIFESTYLE MODIFICATIONSREQUIRE DIET, FITNESS & LIFESTYLE MODIFICATIONS NEED TO BE EMPOWERED TO HANDLE THEIR DISEASENEED TO BE EMPOWERED TO HANDLE THEIR DISEASE EFFECTIVELYEFFECTIVELY  COMMON LIFESTYLE PROBLEMS AT CLINOMA HEALTHCARE :COMMON LIFESTYLE PROBLEMS AT CLINOMA HEALTHCARE : DIABETES, OBESITY, HYPERTENSION,, ORTHO INCLUDINGDIABETES, OBESITY, HYPERTENSION,, ORTHO INCLUDING BACK PAINS, SEVERAL GASTROINTESTINAL CONDITIONS,BACK PAINS, SEVERAL GASTROINTESTINAL CONDITIONS, INSOMNIA, PCOD, MENOPAUSE, UNDERWEIGHT, STRESS,INSOMNIA, PCOD, MENOPAUSE, UNDERWEIGHT, STRESS, DEPRESSION & OTHERSDEPRESSION & OTHERS  THIS NOVEL APPROACH ENDEAVORS TO COMPLEMENT THETHIS NOVEL APPROACH ENDEAVORS TO COMPLEMENT THE DOCTOR'S PRESCRIPTION OF THE APPROPRIATEDOCTOR'S PRESCRIPTION OF THE APPROPRIATE MEDICATIONMEDICATION
  • 23. CONCLUSIONS  MEDICAL KNOWLEDGE HAS LONG BEEN USED IN CLINICALMEDICAL KNOWLEDGE HAS LONG BEEN USED IN CLINICAL PRACTICE FOR PROFESSIONALSPRACTICE FOR PROFESSIONALS  ITS TIME TO SHIFT THE BALANCE OF POWER TO INCLUDEITS TIME TO SHIFT THE BALANCE OF POWER TO INCLUDE PATIENTS AND THEIR CARERSPATIENTS AND THEIR CARERS  PATIENTS ARE EXPERTS OF THEIR OWN BODY & ILLNESS ANDPATIENTS ARE EXPERTS OF THEIR OWN BODY & ILLNESS AND HEALTH CARE PROFESSIONALS ARE EXPERTS ON THEHEALTH CARE PROFESSIONALS ARE EXPERTS ON THE MEDICAL CONDITIONS AND MANAGEMENT RESOURCESMEDICAL CONDITIONS AND MANAGEMENT RESOURCES  COMBINING BOTH AND SHARING THE EXPERTISE COULDCOMBINING BOTH AND SHARING THE EXPERTISE COULD ACHIEVE THE INTENDED PLATFORM FOR MANAGING ILLNESSACHIEVE THE INTENDED PLATFORM FOR MANAGING ILLNESS
  • 24. CONCLUSIONS  PATIENTS HAVE RIGHT TO BE PRIMARY DECISION MAKERSPATIENTS HAVE RIGHT TO BE PRIMARY DECISION MAKERS ON THEIR MEDICAL CONDITIONSON THEIR MEDICAL CONDITIONS  ALTHOUGH PHYSICIAN SHOULD BE INVOLVED IN DECISION-ALTHOUGH PHYSICIAN SHOULD BE INVOLVED IN DECISION- MAKING , THE PATIENT ‘S DECISION IS FINALMAKING , THE PATIENT ‘S DECISION IS FINAL  PATIENTS MUST ACTIVELY SEARCH INFORMATION ONPATIENTS MUST ACTIVELY SEARCH INFORMATION ON THEIR HEALTH CONDITIONS AND TREATMENT PLANSTHEIR HEALTH CONDITIONS AND TREATMENT PLANS
  • 25. "The more we realize that our sense of"The more we realize that our sense of self-worth comes from within, that theself-worth comes from within, that the ability to feel fulfilled is already insideability to feel fulfilled is already inside us, the more autonomous we become,us, the more autonomous we become, and the more fully empowered we are."and the more fully empowered we are." -- Dean Ornish-- Dean Ornish
  • 26. “If you have health, you probably will be happy, and if you have health and happiness, you have all the wealth you need.” ~Elbert Hubbard
  • 27. “GOD AND THE DOCTOR WE ALIKE ADORE BUT ONLY WHEN IN DANGER, NOT BEFORE; THE DANGER O'ER, BOTH ARE ALIKE REQUITED, GOD IS FORGOTTEN, AND THE DOCTOR SLIGHTED.” ~ ROBERT OWEN
  • 28. THANK YOU !!THANK YOU !!

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