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The Invisible Side of MS – Understanding and Treating Psychosocial Barriers

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A look at recent findings related to the impact of psychosocial factors on quality of life for people living with MS.

A look at recent findings related to the impact of psychosocial factors on quality of life for people living with MS.

Published in: Health & Medicine

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  • 1. Understanding and Treating Psychosocial Barriers Brought to you by: © 2013 Griswold International, LLC
  • 2. What is Multiple Sclerosis (MS)?Multiple Sclerosis (MS) is a chronic, often disablingdisease that attacks the central nervous system(CNS), which is made up of the brain, spinal cord,and optic nerves.Symptoms may be mild, such as numbness in thelimbs, or severe, such as paralysis or loss of vision.The progress, severity, and specific symptoms ofMS are unpredictable and vary from one person toanother. Today, new treatments and advances inresearch are giving new hope to people affected bythe disease. National MS Society www.nationalmssociety.org © 2013 Griswold International, LLC
  • 3. “The quality of life in patients with MS is not solely determined by physical disability, but rather by the level of social support, living area, depression, level of education,employment, fatigue and religiosity… we suggest that these should be evaluated in every patient with MS as they may be modified by targeted interventions.” (Yamout et al, 2013) © 2013 Griswold International, LLC
  • 4.  “Depression and MS” “Newbie with “Anxiety or questions” MS...Scared”SubjectsMatterPatient discussionboard subjectsuncover “invisible”symptoms “Am I just crazy?”  “Scared of romance” “Taking meds through airport security?” © 2013 Griswold International, LLC
  • 5. Shifting the Focusfrom Medicalto Psychosocial © 2013 Griswold International, LLC
  • 6. Psychosocial factors are predictorsof quality of life in MS Values, Emotions, Beliefs, and Attitudes Surrounding Anxiety, depression, uncertainty, fear, Environment anger, isolation Financial issues,competing needs, access to care/services Knowledge Understanding of MS and how to self-manage Support Network Awareness and access to family, friends, peers, advocacy Self-Efficacy Confidence in diagnosis, care team, treatment, ability to manage MS/treatment © 2013 Griswold International, LLC
  • 7. Highlighting a disconnect between Patients and Prescribers Prescriber PatientPrimary focus on managing Primary focus on managingphysical symptoms with psychosocial (“Invisible”)medication due to time symptoms yet reluctant tolimitations discuss with their prescriber• Numbness or weakness in one or • Overwhelmed with diagnosis more limbs • Overloaded by amount of information• Partial or complete loss of they are given central vision • Depression due to isolation and• Double vision or blurring of vision Disconnect mounting losses• Tingling or pain in parts of your body Medical • Fear and uncertainty about the future• Electric-shock sensations that occur with certain head movements vs. • Loss of roles: parent, spouse, worker, active member of society• Tremor, lack of coordination or Psychosocial • Impact on family and relationships unsteady gait • Concern about financial issues• Slurred speech • Difficulty with activities of daily living• Fatigue • Travel concerns• Dizziness © 2013 Griswold International, LLC
  • 8. Bring on the Healthcare Extenders!:Professionals who focus primarily on psychosocial issues Nurse PT/OT/Speech (RN, LPN, APN) Pharmacist Advocacy Griswold Government Home Care Agencies Family/Friends Discharge Planner Counselor, Social Worker © 2013 Griswold International, LLC
  • 9. MS Non-Medical Toolkit Solutions VideosMood Changes and MS: Understanding Depression – National MS Society: http://bit.ly/Z0gmobMood Changes and MS: Managing Anxiety – National MS Society: http://bit.ly/X7yxIYCareer Crossroads: Employment and MS Part 1 – National MS Society: http://bit.ly/Z0gyniMS in a Personal Relationship – National MS Society: http://bit.ly/YbkkuU Tools ResourcesMS Quality of Life Inventory: http://bit.ly/Ya0a7x MS Connections:PlainTalk: A booklet about MS for families: http://bit.ly/ZLn3Pb http://bit.ly/ZAeO5aClinical Practice Guidelines: http://bit.ly/XuId66 Living with MS: http://bit.ly/Z0gXWT MS Learn Online: http://bit.ly/YseGDZ © 2013 Griswold International, LLC
  • 10. TakeawaysPoints to remember Quality of life for MS patients is directly related to psychosocial issues that are rarely addressed or discussed with prescribers Health care extenders can play a key role in helping to uncover these “invisible” symptoms and providing tools to overcome themJoin the conversation What best practices could you share on this topic? How helpful is this information? What other information would be helpful in the future? GriswoldHomeCare.com/Blog © 2013 Griswold International, LLC
  • 11. Thank you for viewing our presentation!Brought to you by: Griswold Home Care offers access to affordable non-medical care options to assist your loved one. CareAssure Screening System™ The Griswold Golden Rule: We only approve caregivers we would trust in our own homes.Extraordinary Home Care QuickCare Placement™ We give each family access to the mostat Affordable Rates Since 1982 experienced caregivers available.Griswold Home Care is committed to ValueCare Commitment™being the best care service option for Simple Rates. Unmatched Value. Our all-non-medical home care. We refer only inclusive rates are among the most affordable.the most experienced, compassionatecaregivers in the industry to help eachclient maintain the dignity, safety, National 24x7 Care Line:independence, and peace of mind they 800-GRISWOLDdeserve – regardless of where theycall home. GriswoldHomeCare.com © 2013 Griswold International, LLC
  • 12. SourcesYamout, B et. al. (2013)Predictors of quality of life among multiple sclerosis patients: a comprehensive analysis; EuropeanJournal of Neurology, DOI: 10.1111/ene.12046.http://onlinelibrary.wiley.com/doi/10.1111/ene.12046/abstractHealthboards.comhttp://www.healthboards.com/boards/multiple-sclerosis/index425.htmlNational MS Societyhttp://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/index.aspx © 2013 Griswold International, LLC