Understanding and Treating Psychosocial Barriers
Patient discussion board subjects uncover “invisible” symptoms
“Anxiety o...
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[INFOGRAPHIC] The “Invisible” Side of Multiple Sclerosis: Understanding and Treating Psychosocial Barriers

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“The quality of life in patients with MS is not solely determined by physical disability, but rather by the level of social support, living area, depression, level of education, employment, fatigue and religiosity. Accordingly, we suggest that these should be evaluated in every patient with MS as they may be modified by targeted interventions.” (Yamout et al, 2013)

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Transcript of "[INFOGRAPHIC] The “Invisible” Side of Multiple Sclerosis: Understanding and Treating Psychosocial Barriers"

  1. 1. Understanding and Treating Psychosocial Barriers Patient discussion board subjects uncover “invisible” symptoms “Anxiety or MS...Scared” “Newbie with questions” Shifting the Focus from Medical to Psychosocial Psychosocial factors are predictors of quality of life in MS Bring on the Healthcare Extenders! Professionals who focus primarily on psychosocial issues Pharmacist Griswold Home Care Counselor, Social Worker Discharge Planner Nurse (RN, LPN, APN) What is Multiple Sclerosis? (MS) “The quality of life in patients with MS is not solely determined by physical disability, but rather by the level of social support, living area, depression, level of education, employment, fatigue and religiosity… we suggest that these should be evaluated in every patient with MS as they may be modified by targeted interventions.” (Yamout et al, 2013) Subjects Matter Highlighting a Disconnect with Patients & Prescribers - Numbness or weakness in one or more limbs - Partial or complete loss of central vision - Double vision or blurring of vision - Tingling or pain in parts of your body - Electric-shock sensations that occur with certain head movements - Tremor, lack of coordination or unsteady gait - Slurred speech - Fatigue - Dizziness - Overwhelmed with diagnosis - Overloaded by amount of information they are given - Depression due to isolation and mounting losses - Fear and uncertainty about the future - Loss of roles: parent, spouse, worker, active member of society - Impact on family and relationships - Concern about financial issues - Difficulty with activities of daily living - Travel concerns Prescriber Patient Disconnect Medical vs. Psychosocial Primary focus on managing physical symptoms with medication due to time limitations Primary focus on managing psychosocial (“invisible”) symptoms yet reluctant to discuss with their prescriber Advocacy/Support Groups “Am I just crazy?”  “Depression and MS” “Taking meds through airport security?”  “Scared of romance” Family and Friends Government Agencies PT/OT/ Speech MS Non-medical Toolkit Solutions © 2013 Griswold International, LLC Support Network Awareness and access to family, friends, peers, advocacy Surrounding Environment Financial issues, competing needs, access to care/services Values, Emotions, Beliefs, and Attitudes Anxiety, depression, uncertainty, fear, anger, isolation Knowledge Understanding of MS and how to self-manage Self-efficacy Confidence in diagnosis, care team, treatment, ability to manage MS/treatment • Multiple Sclerosis (MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. • Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. • The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease. National MS Society - www.nationalmssociety.org MS Connections: http://bit.ly/ZAeO5a Living with MS: http://bit.ly/Z0gXWT MS Learn Online: http://bit.ly/YseGDZ Mood Changes and MS: Understanding Depression – National MS Society: http://bit.ly/Z0gmob Mood Changes and MS: Managing Anxiety – National MS Society: http://bit.ly/X7yxIY Career Crossroads: Employment and MS Part 1 – National MS Society: http://bit.ly/Z0gyni MS in a Personal Relationship – National MS Society: http://bit.ly/YbkkuU MS Quality of Life Inventory: http://bit.ly/Ya0a7x PlainTalk: A booklet about MS for families: http://bit.ly/ZLn3Pb Clinical Practice Guidelines: http://bit.ly/XuId66 Videos Tools Resources Sources: Yamout, B et. al. (2013) Predictors of quality of life among multiple sclerosis patients: a comprehensive analysis; European Journal of Neurology, DOI: 10.1111/ene.12046. http://onlinelibrary.wiley.com/doi/10.1111/ene.12046/abstract Healthboards.com http://www.healthboards.com/boards/multiple- sclerosis/index425.html National MS Society http://www.nationalmssociety.org/about- multiple-sclerosis/what-we-know-about-ms/index.aspx

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