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Alzheimers Innovation 2013

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Join us as Griswold Home Care’s Christopher Kelly M.Ed., Director of Learning & Development and dedicated family caregivers share the latest research and innovative best practices in Alzheimer’s …

Join us as Griswold Home Care’s Christopher Kelly M.Ed., Director of Learning & Development and dedicated family caregivers share the latest research and innovative best practices in Alzheimer’s Disease treatment and support. You will also benefit from a review of the National Alzheimer’s Project Act (NAPA) and a 2013 update to the National Alzheimer’s Plan.

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  • 1. Alzheimer’s Disease Innovation 2013 A National Plan to Fight Back © 2013 Griswold International, LLC
  • 2. November is National Alzheimer’s Disease Awareness Month “During National Alzheimer's Disease Awareness Month, we stand united in our commitment to improve care for Alzheimer's patients, identify new therapies for the disease, and support all those whose lives have been touched by this tragic ailment.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC
  • 3. November is National Family Caregivers Month “Family members, friends, and neighbors devote countless hours to providing care to their relatives or loved ones. During National Family Caregivers Month, we recognize and thank the humble heroes who do so much to keep our families and communities strong.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC
  • 4. Goals for Today • Review the National Alzheimer’s Plan 2013 and share tools for reaching key goals and overcoming challenges • Share innovative non-medical Alzheimer’s treatment approaches • Empower clients and their family/professional caregivers to fight Alzheimer’s Disease through quality care, advocacy, education and support © 2013 Griswold International, LLC
  • 5. Presented by: Linda Barba Family Caregiver, Advocate and Support Group Facilitator Chris Kelly, MEd Director of Learning and Development Griswold Home Care © 2013 Griswold International, LLC
  • 6. Thank you for your courage, energy, and dedication! Healthcare Providers Professional Caregivers Family Caregivers Clients Living with Alzheimer’s © 2013 Griswold International, LLC
  • 7. Orange Arrow Button: Minimizes or expands the GoToWebinar control panel. BRAIN WRITING Solutions Brainwriting is… • a fun, engaging way to brainstorm • sharing as many ideas as possible within a short timeframe Brainwriting Process • Listen for our questions • When prompted, enter your solutions using the webinar chat function • Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes • Peer-to-peer learning and sharing • A publication that benefits others who are living with Alzheimer’s Important • Avoid sharing any information that you would not want others to see © 2013 Griswold International, LLC
  • 8. Lit Review Social Media Advocacy Solutions Webinar & Toolkit © 2013 Griswold International, LLC
  • 9. Challenging Symptoms Memory loss that disrupts life Decreased or poor judgment Problems with planning and problem-solving Changes in movement/ coordination Struggle to complete familiar tasks Changes in mood or personality Confusion with person, place and time Agitation and/or aggression New problems with reading, writing or speaking Misplacing things in unusual places Sundowning Wandering Inability to eat or swallow © 2013 Griswold International, LLC
  • 10. “I feel like I have been hearing about ‘plaques’ and ‘tangles’ for 15 years. Isn’t there anything new that would generate hope and excitement for people living with this horrible disease? All you hear is the negative. You can’t help but develop a sense of helplessness. Helplessness can be paralyzing.” Family caregiver quote © 2013 Griswold International, LLC
  • 11. A National Plan to Address Alzheimer's Disease Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf © 2013 Griswold International, LLC
  • 12. USDHHS Identifies 5 Key Priorities Prevent and Effectively Treat Alzheimer’s Disease by 2025 Enhance Care Quality and Efficiency Expand Support for People with Alzheimer’s Disease and Their Families Enhance Public Awareness and Engagement Improve Data to Track Progress © 2013 Griswold International, LLC
  • 13. Alzheimer’s Association 10 Core Challenges A lack of public awareness Specific challenges facing diverse communities Insufficient research funding Specific challenges facing those with younger-onset Alzheimer’s Difficulties with diagnosis Unprepared caregivers Inadequate treatments Ill-equipped communities Poor dementia care Mounting costs Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf © 2013 Griswold International, LLC
  • 14. Real Stories Linda Barba Family Caregiver, Advocate and - Lou Gehrig Support Group Facilitator © 2013 Griswold International, LLC
  • 15. Prevent & Effectively Treat Alzheimer's Disease A Focus on Non-Medical Treatment Approaches © 2013 Griswold International, LLC
  • 16. "If you say Alzheimer's, everyone immediately thinks that it's the plaques that actually cause the disease. That couldn't be further from the truth… the data actually suggests these plaques are a form of protection that the body tries to put on.” “While research on AD has made steady progress, there are no pharmacological or other interventions to definitively prevent, treat, or cure the disease.” National Alzheimer’s Plan excerpt Andrew Dillin, of the Salk Institute in California and the Howard Hughes Medical Institute © 2013 Griswold International, LLC
  • 17. “NPTs emerge as a useful, versatile and potentially costeffective approach to improve outcomes and quality of life for both the person with dementia and caregivers.” Javier Olazarán Neurologist and NPT Researcher © 2013 Griswold International, LLC
  • 18. Improve Cognitive Symptoms Cognitive training and rehab (individual and group) Physical activity/ Staying active Reminiscence Support groups Personalized music Yoga/Tai Chi/ Meditation Creative expression (writing, scrapbooking) Combining all of the above Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efficacy.pdf © 2013 Griswold International, LLC
  • 19. Improve Activities of Daily Living (ADLs) ADL training Guided performance Yoga/Tai Chi Physical activity/ Staying active © 2013 Griswold International, LLC
  • 20. Improve Mood and Peace of Mind Cognitive Behavioral Therapy (CBT) Meditation/Yoga/Tai Chi Meaningful diversion Validation therapy Personalized music Adult day care Support Memory care center © 2013 Griswold International, LLC
  • 21. Improve Quality of Life for Family Caregivers In-home counseling sessions Online connection with peers/HCPs Cognitive Behavioral Therapy (CBT) Education: - Coping skills - Problem solving Ongoing telephone support/coordination Support groups (with and w/o client) © 2013 Griswold International, LLC
  • 22. Alzheimer’s Disease Treatment Toolkit The Society for Cognitive Rehabilitation Recollection Connection NICE.org.uk Latest Treatment Options http://bit.ly/1fx7kK8 http://bit.ly/1cOTZiY http://bit.ly/1isrbga http://bit.ly/1aGi5rZ © 2013 Griswold International, LLC
  • 23. Enhance Care Quality & Efficiency A Focus on Care Coordination, Empowerment & Recognition © 2013 Griswold International, LLC
  • 24. Effective Care Coordination Practices Learn from best practice dementia care models: Develop a single point of contact for clients/families Form a multi-disciplinary care team that communicates effectively Develop a personalized action plan for clients/families Offer ongoing, dynamic Learning/Development opportunities for dementia care professionals © 2013 Griswold International, LLC
  • 25. A Dynamic Dementia Care Team Massage Therapist Home care Professional Nurse Recreational Therapist Social Worker/ Geriatric Care Manager Neurologist/Geriatrician Geriatric Psychiatrist PCP/NP/PA Rehab Professionals: OT/PT/Speech Facility Professionals Adult Day Care Professional Cognitive Behavioral Therapist (CBT) Dietician Cognitive Rehabilitative Therapist (CRT) © 2013 Griswold International, LLC
  • 26. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  • 27. Care Coordination Toolkit Alzheimer’s Quality of Care CDPH.ca.gov Working With Providers http://bit.ly/17lKTT2 http://bit.ly/1aR0IHw http://bit.ly/1a0Nq9f © 2013 Griswold International, LLC
  • 28. Quality Care Toolkit AD Research Centers IPCed Professional Training http://1.usa.gov/1e1fQAE http://bit.ly/1fT52W4 Alzheimer’s Association Professional Training http://bit.ly/17JB2qq © 2013 Griswold International, LLC
  • 29. Expand Support for People with Alzheimer’s Disease & Their Families © 2013 Griswold International, LLC
  • 30. Improving the Experience Core challenges: Widespread lack of knowledge/understanding about Alzheimer’s Disease High level of public/professional stigma Negative experiences for people living with AD Poor understanding of the scope of Alzheimer’s Disease Isolation for clients and caregivers Lack of targeted services and support for those living with Younger-Onset AD © 2013 Griswold International, LLC
  • 31. Expanding Support Toolkit Overcoming Stigma Confronting Ageism and Stigma http://bit.ly/1aCBXIT http://bit.ly/1hCSeHI Early Onset AD Info AD Support Groups http://bit.ly/1hIafBU http://bit.ly/16YR1mY © 2013 Griswold International, LLC
  • 32. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  • 33. Enhance Public Awareness & Engagement © 2013 Griswold International, LLC
  • 34. Understand the Scope PBS: The Forgetting Alzheimer’s Basics http://to.pbs.org/1cjMpI7 http://1.usa.gov/1a10RWQ What is Alzheimer’s? About Alzheimer’s http://bit.ly/HPpewl http://bit.ly/1bzGLBJ © 2013 Griswold International, LLC
  • 35. Enhance Engagement Alz Assoc Advocacy: Join The Cause http://bit.ly/HS1KXK Fisher Center for AD Alz. Foundation of America http://bit.ly/17ROVbJ http://bit.ly/HV5zKU © 2013 Griswold International, LLC
  • 36. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  • 37. Key Takeaways Review the National Alzheimer’s Plan and get involved Non-medical treatment approaches DO offer promise and hope today Effective care coordination is critical Let’s work together to “improve the experience” for those who are living with AD © 2013 Griswold International, LLC
  • 38. Open Q&A 1. Click to expand if necessary 2. Type questions here © 2013 Griswold International, LLC
  • 39. Brought to you by: Griswold Home Care offers access to affordable non-medical care options to assist your loved one. CareAssure Screening System™ The Griswold Golden Rule: We only approve caregivers we would trust in our own homes. Extraordinary Home Care at Affordable Rates Since 1982 QuickCare Placement™ We give each family access to the most experienced caregivers available. ValueCare Commitment™ Simple Rates. Unmatched Value. Our allinclusive rates are among the most affordable. National 24x7 Care Line: 800-GRISWOLD www.GriswoldHomeCare.com © 2013 Griswold International, LLC