Aspergillosis Patients Support Outreach Meeting Edinburgh Introduction - Graham Atherton

Aspergillosis Patients Meeting3rd October 2010Edinburgh
“Advice, information and mutual support”

www.aspergillus.org.uk/newpatients
Aspergillosis Patients Meeting
Format
10.00 Introductory talk
10.20 Steph Smith Appeal
10.40 Group discussion on problems you face using our service because of the distance involved
11.00-12.00 Social chat, cup of tea
12.00 Lunch served in this room
1-4pm Another Kingdon Exhibition

Purpose of the Meeting
The principle purpose of these meetings is to give patients and their carers an opportunity to:
meet fellow patients for mutual support
ask questions of staff
for you to tell us how we can improve what we do: clinic or website
for us to tell you how we are trying to improve our service

Staff present
Georgina, Marie & Debbie: Aspergillosis Specialist Nurses
Chris Harris: National Aspergillosis Centre Manager – in charge of centre admin, receives calls to clinic
Graham Atherton: Aspergillus Website, patient information, clinical support, this meeting

Meeting Information
Newsletter given out at clinic every month
If you have a computer:
http://www.aspergillus.org.uk/newpatients/patientsmeeting.php
You will be able to find:
Past meeting minutes, archive of newsletters & video recordings of talks
Full details of this and more on our monthly newsletter available in clinic and at every meeting

View Meeting via your PC
If you can’t make the meeting you can view it & listen in using our new computer facilities.
Go to http://www.livestream.com/nationalaspergillosiscentre
This will work with any modern internet browser or computer, no software downloads. You will probably need a broadband connection to the internet.
You can chat by text to other viewers during the meeting

Asthma – UK hotspot (2004)

Asthma – Scotland worst in UK

Aspergillus & Scotland
Survey in 1999 - 74 per cent of homes in Scotland had significant levels of airborne Aspergillus compared with 9-29% in US (Piecková and Jesenská, 1999
Conditions are cool, dark, damp, buildings lack ventilation, ideal for mould & other asthma triggers e.g. bed mites, tobacco smoke, poor diet, Industrial irritants (air pollution)
Damp buildings are strongly linked to childhood asthma *World Health Organisation www.who.int

History of Aspergillosis
John Hughes Bennett 1812-1875 Eminent Edinburgh physician
In his 1842 paper Bennett gave the earliest description of pulmonary aspergillosis. Bennett was one of the first to recognise the importance of the microscope in the clinical investigation of disease.

John Hughes Bennett Laboratory
Originally opened in 1901 in honour of the man who first described pulmonary aspergillosis & leukemia
The new John Hughes Bennett Laboratory (JHBL) is situated on one floor of a new building (completed in 1997) on the site of the Western General Hospital, Edinburgh, Scotland.

Contribution
Scotland is the birthplace of modern Aspergillus genetics
Guido Pontecorvo (“Ponte”), 1907–1999
1937 – Institute of Animal Genetics Edinburgh
1943 – fungal genetics – penicillin development
1945 – Lecturer in Genetics, Glasgow
1953 – comprehensively established Aspergillus as a model system to study micorbial & eukaryotic genetics

Fungal Research Trust
A leading UK charity funding research into fungal diseases. Spends £400 000 p.a.
Established in 1991
>150 research papers published
Also funds much of our patient information services & Aspergillus Website
2008 – voluntary donations raised a few hundred pounds per year
2010 – voluntary donations raised now exceed £10,000

Aspergillosis Patients Support Outreach Meeting Edinburgh Introduction - Graham Atherton

by Graham Atherton on Jul 29, 2011

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