Palliative vs Hospice Care

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Hospice care and palliative care: Is there a difference between the two, and if so, what? …

Hospice care and palliative care: Is there a difference between the two, and if so, what?

Many people still think that palliative care means hospice care. But today, hospice is only a small part of palliative care.

The goal of palliative care is to prevent or treat the symptoms and side effects of a disease; and it should be part of the picture from the first day a serious illness is diagnosed.

Dr. Jim Meadows, Director of Hospice and Palliative Care at Tennessee Oncology, will discuss this important topic. How does a family and a health care team best work together to guide a patient through a terminal illness? How does everyone continue to support quality, patient-centered, end-of-life care?

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  • 1. Welcome! Palliative Care vs. Hospice Care Part of Fight Colorectal Cancer’s Monthly Patient Webinar Series Our webinar will begin shortlywww.FightColorectalCancer.org877-427-2111
  • 2. Fight Colorectal Cancer1. Tonight’s speaker: Dr. Jim Meadows2. Archived webinars: Link.FightCRC.org/Webinars3. Follow up survey to come via email. Get a free Blue Star ofHope pin when you tell us how we did tonight.4. Ask a question in the panel on the right side of your screen5. Or call the Fight Colorectal Cancer Answer Line at 877-427-2111 www.FightColorectalCancer.org 877-427-2111
  • 3. Fight Colorectal Cancer Upcoming Webinars Sex After Rectal Cancer Dr. Joel Tepper, UNC October 17, 2012 8 - 9:30 PM Eastern time Talking Turkey and Lynch Syndrome Variety of speakers November 14, 2012 8-9:30PM EasternTime Register at www.FightColorectalCancer.org 1-877-427-2111
  • 4. Fight Colorectal Cancer Funding Research Directly Lisa Dubow Fundhttp://fightcolorectalcancer.org/research/lisa-fund
  • 5. Fight Colorectal CancerDisclaimerThe information and services provided by Fight ColorectalCancer are for general informational purposes only.The information and services are not intended to be substitutesfor professional medical advice, diagnosis, or treatment.If you are ill, or suspect that you are ill, see a doctorimmediately. In an emergency, call 911 or go to the nearestemergency room.Fight Colorectal Cancer never recommends or endorses anyspecific physicians, products or treatments for any condition.www.FightColorectalCancer.org877-427-2111
  • 6. Fight Colorectal Cancer Dr. Jim Meadows Director of Palliative Medicine Tennessee OncologyBoard certified in Palliative Medicine & Family Medicine www.FightColorectalCancer.org 877-427-2111
  • 7. Palliative vs. Hospice Care Jim Meadows, MD Director of Palliative Medicine Tennessee Oncology
  • 8. Acknowledgement• Certain topics must be approached carefully
  • 9. Objectives• What is Palliative Medicine?• Who can receive Palliative Medicine?• What are the benefits and risks of Palliative Medicine?• Is Palliative Medicine simply hospice care?• How can I see a Palliative Medicine team?
  • 10. What is it?• Palliative care is a medical specialty focused on aggressive symptom management.• Experts whose primary goal is to improve quality of life.
  • 11. What is it?Palliative care is patient and family-centeredcare that optimizes quality of life byanticipating, preventing, and treating suffering.Palliative care throughout the continuum ofillness involves addressingphysical, intellectual, emotional, social, andspiritual needs to facilitate patientautonomy, access to information, and choice.
  • 12. Why have a specialty?
  • 13. Why have a specialty?• Diseases are complex• Treatments are complex• Symptoms are complex• Patients are complex• The system is complex
  • 14. Evolution• With time, new needs are realized• Focus on quality is growing• Knowledge is rapidly expanding• Benefits are being discovered
  • 15. Who can receive PMAnyone with a serious condition inneed of improved quality of life,regardless of prognosis or diagnosis.
  • 16. What’s Quality of LifeHow do you measure quality?Typically includes Pain Shortness of Nausea Breath Anxiety Caregiver Distress Depression Spiritual Suffering Fatigue Financial Difficulty Constipation Loss of Control Poor Appetite Insomnia
  • 17. Palliative Medicine in Action• A patient is referred to a Palliative specialist• Palliative visits tend to focus less on the actual disease and more on what impact it has on the patient’s life• Together, a plan of action is reached, which includes multiple modalities
  • 18. Benefits• Better control of symptoms• Better understanding of what effects a disease has on the patient• Better communication among the patient, caregivers, and treatment team
  • 19. Patient Benefit: Proof Palliative Medicine Works “Do Palliative Consultations Improve Patient Outcomes?” Casarett D, et al, Journal of the American Geriatrics Society 56 (4) (April): 593-599 (2008) In a multivariable linear regression model, after adjusting for the likelihood of receiving a palliative consultation (propensity score), palliative care patients had higher overall scores: 65 (95% confidence interval (CI)=62-66) versus 54 (95% CI=51-56; P<.001) and higher scores for almost all domains. Earlier consultations were independently associated with better overall scores (beta=0.003; P=.006), a difference that was attributable primarily to improvements in communication and emotional support.CONCLUSION: Palliative consultations improve outcomes of care, and earlier consultations may confer additional benefit.
  • 20. Patient Benefit Phase II Study of an Outpatient Palliative Care Intervention in Patients With Metastatic Cancer Follwell, et al. JCO January 10, 2009 vol 27 no. 2 206-213This study assessed prospectively the efficacy of an Oncology Palliative Care Clinic (OPCC) in improving patient symptom distress and satisfaction.• 150 patients enrolled, 123 completed 1-week assessments, and 88 completed 4-week assessments• The mean improvement in EDS was 8.8 points (P < .0001) at 1 week and 7.0 points (P < .0001) at 1 month• Statistically significant improvements were observed for pain, fatigue, nausea, depression, anxiety, drowsiness, appetite, dyspnea, insomnia, and constipation at 1 week (all P ≤ .005) and 1 month (all P ≤ .05)• The mean improvement in FAMCARE score was 6.1 points (P < .0001) at 1 week and 5.0 points (P < .0001) at 1 month.
  • 21. Patient Preference Symptom management needs of oncology outpatients Whitmer K, Et al. J Palliat Med. 2006 Jun;9(3):628-30More than half of surveyed patients would attend a symptom management clinic, if offered, for the following:• Pain (50%)• Fatigue (40%)• Nausea/Vomiting (30%)• Insomnia (30%)
  • 22. Caregiver Benefit• 34 million households with caregivers deliver care at home to a seriously ill older relative (Houser and Gibson 2008)• On average they’re spending about 21 hours per week in caregiving• Nearly one-half of all caregivers consider their caregiving responsibilities to be highly stressful, which puts them at a significantly increased risk for death, major depression, and other serious illness (Schulz and Beach 1999)• A very conservative estimate suggests that family caregivers’ unpaid contributions are approximately $375 billion per year (Houser and Gibson 2008)
  • 23. Caregiver BenefitPatients’ families are not very happy with us as a health care industry either• Joan Teno and colleagues (2004) studied caregivers of people who died in various institutions in the United States.• 80% reported that patients and families didn’t have enough contact with their physician and didn’t get enough support• Half the patients didn’t have enough support or enough information about what to expect in a setting of serious illness• Thirty-eight percent of families said they didn’t get enough support and one in five said they didn’t get enough help with their own emotional needs.
  • 24. Landmark Research “Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer.” Temel JS, et al. New England Journal of Medicine 363 (8) (August 19 2010): 733-742.• Patients assigned to palliative care had better quality of life, reflected in a mean FACT-L score of 98.0 at 12 weeks compared with 91.5 for the control group (P=0.03)• Additionally, only 16% of the palliative care group had depressive symptoms versus 38% of the control group (P=0.01)• Palliative-care patients were also less likely to receive aggressive end-of-life care. The authors reported that 33% of patients receiving palliative care had aggressive end-of-life care versus 54% of the standard-care group (P=0.05).• Median survival in the patients who received early palliative care was 11.6 months compared with 8.9 months in the control group (P=0.02).
  • 25. Landmark Research
  • 26. Landmark Research
  • 27. ASCOProvisional Clinical Opinion: Based on strong evidence from a phase IIIRCT, patients with metastatic non–small-cell lung cancer should be offeredconcurrent palliative care and standard oncologic care at initial diagnosis.While a survival benefit from early involvement of palliative care has not yetbeen demonstrated in other oncology settings, substantial evidencedemonstrates that palliative care–when combined with standard cancer care oras the main focus of care–leads to better patient and caregiver outcomes.These include improvement in symptoms, QOL, and patient satisfaction, withreduced caregiver burden. Earlier involvement of palliative care also leads tomore appropriate referral to and use of hospice, and reduced use of futileintensive care. While evidence clarifying optimal delivery of palliative care toimprove patient outcomes is evolving, no trials to date have demonstratedharm to patients and caregivers, or excessive costs, from early involvement ofpalliative care. Therefore, it is the Panels expert consensus that combinedstandard oncology care and palliative care should be considered early in thecourse of illness for any patient with metastatic cancer and/or high symptomburden. Strategies to optimize concurrent palliative care and standardoncology care, with evaluation of its impact on important patient and caregiveroutcomes (eg, QOL, survival, health care services utilization, and costs) andon society, should be an area of intense research.
  • 28. Palliative vs. Hospice• Both focus on improved qualify of life• Both are delivered by specialists• Both have been shown to improve survival
  • 29. Palliative vs. Hospice• Both tend to be delivered by a team of individuals with knowledge of complex symptom management• Both work with the patient’s other clinicians to provide an additional layer of patient care
  • 30. Palliative vs. Hospice• Hospice is a medical insurance benefit, with its own set of regulations• Hospice care is typically provided in the home, whereas palliative tends to be hospital or clinic based
  • 31. Palliative vs. Hospice• Hospice specifically cares for patients with terminal conditions where survival is typically <6 months• Palliative medicine is delivered irrespective of prognosis• Both are provided regardless of diagnosis
  • 32. Palliative vs. Hospice
  • 33. Palliative vs. Hospice
  • 34. Palliative vs. Hospice
  • 35. Involving Palliative Care• Talk with your oncologist • Palliative Care and Medical Oncology work as a team• Use online resources to find local programs • www.getpalliativecare.org• Once arranged, have open, honest dialogue
  • 36. Fight Colorectal Cancerwww.FightColorectalCancer.org877-427-2111
  • 37. Fight Colorectal Cancer CONTACT US Fight Colorectal Cancer 1414 Prince Street, Suite 204 Alexandria, VA 22314 (703) 548-1225 Toll-Free Answer Line: 1-877-427-2111 www.FightColorectalCancer.orgEmail us: Info@FightColorectalCancer.org