Transcript of "Fight Colorectal Cancer Who We Are Presentation"
What You Need To Know AboutColorectal Cancer www.fightcolorectalcancer.org
Our MissionFight Colorectal Cancer demands acure for colon and rectal cancer.We educate and support patients,push for changes in policy that willincrease and improve research, andempower survivors to raise theirvoices against the status quo.
We have 3 goalsPatient Support and AwarenessWe provide services to educate, assist, and informpatients through our Answer Line, monthly webinars,Fight Colorectal Cancer newsletter, e-news, and website.AdvocacyWe provide education and training for passionate peopleto work with law makers and the research community.ResearchTo date, we have given over $250,000 in research grantsthrough our Lisa Fund in hopes of finding a cure.
What is colorectal cancer• Colorectal cancer is cancer that occurs in the colon or rectum.• Colorectal cancer usually starts from polyps in the colon or rectum.• A polyp is a small growth that over time can turn into cancer. There are several different screening options available.• Screening tests can find polyps, so they can be removed before they turn into cancer.• Screening tests can also find colorectal cancer early, when the chance of being cured is good.The good news is that colorectal cancer is PREVENTABLE if caught early.
What are the risk factorsThe risk of colorectal cancer increases with age; more than90% of people diagnosed with colorectal cancer are over50 years old. Family history of polyps or colorectal cancer.Personal history of polyps, colorectal cancer, inflammatoryintestinal conditions (ex: ulcerative colitis, Crohn’s disease,etc), or inherited syndromes (ex: Lynch syndrome, FamilialAdenomatous Polyposis [FAP], etc)A diet high in red meats (beef, pork, lamb), processedmeats, and fat can increase colorectal cancer risk.Physical inactivity, obesity, smoking, and heavy alcohol useare also linked to an increase risk for colorectal cancer.
What are some signs and symptomsAlthough the signs can vary, common symptoms of colorectal cancer mayinclude the following:•A change in bowel habits. Blood (either bright red or very dark) in thestool. Diarrhea, constipation, or feeling that the bowel does not emptycompletely.•Stools that are narrower than usual .•Frequent gas pains, bloating, fullness, or cramps.•Weight loss for no known reason.•Feeling very tired.Check with your doctor if you are noticing any of these signs. Remembercolorectal cancer is preventable
How do you get screenedRegular screening, beginning at age 50, is the key to preventing colorectalcancer. The U.S. Preventive Services Task Force (USPSTF) recommendsscreening for colorectal cancer with the following tests.People at higher risk of developing colorectal cancer should begin screeningat a younger age, and may need to be tested more frequently. Stool test: Thismethod checks your bowel movements for blood.Your doctor may recommended one of the following:•fecal occult blood test (FOBT),•fecal immunochemical test (FIT) and stool DNA test (sDNA).•Sigmoidoscopy: This test uses a flexible small scope to look at the lower partof your colon. This test looks at one-third of the large intestine (colon).•Colonoscopy: A colonoscopy is similar to a sigmoidoscopy, but the entirecolon can be viewed. You will be mildly sedated during a colonoscopy.If you’re over the age of 50, it’s time to talk to your medical provider to findout which screening test or combination of tests is best for you.
Who can you call if you have questions?• Call our toll-free Answer Line at 877-427-2111. You are not alone.• We are for you and your family.• We work with patients who need to be screened, who may have been initially diagnosed with colorectal cancer to those facing ongoing treatment.• We support and enrich their discussions with their medical team.• We help patients be their own best advocate so they can receive the best treatment based on their type of cancer, how far it has spread, and other important factors like your age and general health.Answer Line associates stay as current as possible on both traditional therapies (such as surgery, chemotherapy, and radiation therapy), and newer forms of treatment such as targeted therapy.We refer patients to credible resources locally and nationally. For more resources, visit www.FightColorectalCancer.org.
Free resources & tools• Call our toll-free Answer Line at 877-427-2111 or email at email@example.com• Online Blogs Read stories from survivors, treatment findings from medical research, and policy news from Capitol Hill. This is a platform for survivors to be heard and discuss all issues related to colorectal cancer.• Newsletters We reach over 250 cancer centers and hospitals across the country with our quarterly newsletters. Each issue updates readers with the latest news in treatment, research, and advocacy.• Our e-news reaches 10,000 subscribers each month.• Monthly Webinars We use technology to bring people together by hosting free webinars once a month, with leading medical experts. Patients may use iPhones and other mobile devices to connect, making our program as accessible as possible.
Learn about our active online community• Website: We have everything that you need in one place at FightColorectalCancer.org, whether you wish to connect with others or donate to our cause.• We have over 1200 pages on the latest research, medical and community news in colorectal cancer, discover new ways to help deal with side effects, or find how to connect through events and activities. • Social Media: Our presence in the realm of social media reaches people across the country every day We have over 7,000 Facebook friends and 2,000 plus Twitter followers.Follow us on online, chat with other patients, survivors, and supporters, and join our social community. “Good News Tuesday”, our popular Facebook feature, allows us to lift one another up and give hope by sharing inspirational stories.
Become an advocate!Each year we host an annual event, “Call-onCongress” in March for Colorectal Cancer AwarenessMonth.Survivors, families, friends, and those who have beentouched by this disease come together to rally andunite behind a common cause. Attendees receive anintensive training before they spend a day meetingwith their Congressional members and staff on CapitolHill.By educating attendees, we empower them to be advocates. Ouradvocates and staff work year around with lawmakers and leaders of ourcountry to support research funding and better access to treatment andscreening for patients and their families.A direct result from Fight Colorectal Cancer’s advocacy efforts has been$15 million dollars in Federal funding to support a peer-reviewed cancerresearch program at the Department of Defense!
Funding ScienceEstablished in 2006, our LisaFund has raised hundreds ofthousands of dollars todirectly support theinnovative research in treatinglate-stage colorectal cancer.
Getting behind the scienceWe are bridging the gap between advocacy and the research community.The Research Advocate Training and Support (RATS) Program is open to alladvocates in the fight against colorectal cancer. This includes survivorsAND those touched by colorectal cancer. The goal of the training program isto educate and improve the ability of champions in the community toeffectively participate in the research process.Our RATS graduates continue to serve on various review panels that include:The Food and Drug Administration (FDA)National Cancer Institute (NCI)Cooperative GroupsSpecialized Programs of Research Excellence (SPOREs)Local Institutional Review Boards (IRBs) or Data Safety Monitoring Boards(DSMBs)
How can YOU help? Join One Million Strong.Give Hope:We are in this together. You are not alone.Spread Awareness:Share your story. Be an advocate for change.Redefine what is possible:Take the pledge to get screened, raise awareness,and save lives! CRCMillionStrong.org
Collage of tools and link to PSA OneMillion Strong Video Library
Contact UsFight Colorectal Cancer1414 Prince Street, Suite 204Alexandria, VA 22314(703) 548-1225 Toll-Free Answer Line: 1-877-427-2111www.FightColorectalCancer.org facebook.com/FightCRC twitter.com/FightCRC youtube.com/FightCRC pinterest.com/FightCRC