PatientsLikeMeCreating The Foundation For Patient-Centered Care Sebastiaan Foppema, EVP Business Operations Proprietary an...
Agenda        Peer to peer networking What is PatientsLikeMe?                          Patient value How do patients benef...
The Big 6’s        6                        A free online patient community                                 that was estab...
Share, Find, Learn, Take Control The PatientsLikeMe process is to help people share their health information in order to l...
A patient-feedback loop to the “industry”Caregivers  Government  Pharmaceutical industry  Payers  Proprietary and Confi...
Agenda        Peer to peer networking What is PatientsLikeMe?                          Patient value How do patients benef...
PatientsLikeMe by the numbers…              1/3          of respondents had no one in “the real world” with whom          ...
One more number!               1%               “Because of                                PatientsLikeMe,      I am      ...
Improving Adherence Proprietary and Confidential
2010 Epilepsy User Survey Results               Those who connect with others on PatientsLikeMe report a wider range of pe...
Agenda        Peer to peer networking What is PatientsLikeMe?                          Patient value How do patients benef...
Industry recognition of the issues                                     “We need to be closer to patients to               ...
Adherence barriers                                 •   MS patients using needle-based                                     ...
Case study: How helpful would these interventions be for improvingimmunosuppressant adherence?   Proprietary and Confident...
Providers want to point patients to…  • A trusted source of information  • A place where they can find social     support ...
Agenda        Peer to peer networking What is PatientsLikeMe?                          Patient value How do patients benef...
The issue of lithium…  Proprietary and Confidential
The aftermath…  Proprietary and Confidential
The aftermath…  Proprietary and Confidential
Scientific output and field impact  Proprietary and Confidential
Research collaborations & publications in peer reviewed journals  Proprietary and Confidential
Agenda        Peer to peer networking What is PatientsLikeMe?                          Patient value How do patients benef...
Where do we go from here?                         • Direct provider access                         • Wet science          ...
Sebastiaan Foppema – EVP, Business Operationssfoppema@patientslikeme.com
eHealth12 - Sebastiaan Foppema -  PatientsLikeMe
eHealth12 - Sebastiaan Foppema -  PatientsLikeMe
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eHealth12 - Sebastiaan Foppema - PatientsLikeMe

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eHealth12 - Sebastiaan Foppema - PatientsLikeMe

  1. 1. PatientsLikeMeCreating The Foundation For Patient-Centered Care Sebastiaan Foppema, EVP Business Operations Proprietary and Confidential
  2. 2. Agenda Peer to peer networking What is PatientsLikeMe? Patient value How do patients benefit? Industry value How do provider, payers, pharma and gov’t benefit? Scientific value How do we contribute to the science of medicine? Next Where do we go from here? Proprietary and Confidential
  3. 3. The Big 6’s 6 A free online patient community that was established six years ago 1.600 Covering more than sixteen hundred medical conditions 160.000 With more than a hundred and sixty thousand patients interacting, learning, and contributing… Proprietary and Confidential
  4. 4. Share, Find, Learn, Take Control The PatientsLikeMe process is to help people share their health information in order to learn from others like them and then use that information to discuss treatment options with their health care team Step 1: Step 2: Create/update and Find support from share your health others like you profile and compare experiences Step 5: Step 3: Play an integral Learn from part in your own aggregated health care community Treatment and Symptom Reports Step 4: Take profile to your doctor to have an improved treatment conversation Proprietary and Confidential
  5. 5. A patient-feedback loop to the “industry”Caregivers  Government  Pharmaceutical industry  Payers Proprietary and Confidential
  6. 6. Agenda Peer to peer networking What is PatientsLikeMe? Patient value How do patients benefit? Industry value How do provider, payers, pharma and gov’t benefit? Scientific value How do we contribute to the science of medicine? Next Where do we go from here? Proprietary and Confidential
  7. 7. PatientsLikeMe by the numbers… 1/3 of respondents had no one in “the real world” with whom to discuss their epilepsy. 2/3 of respondents reported a connection to at least one other person with epilepsy after joining PatientsLikeMe. 59% reported that the site has given them a better understanding of their seizures. 23% of respondents reported fewer visits to the ER. 28% reported that they felt more control over their condition after joining PatientsLikeMe. 49% of respondents reported that recording their seizures helps them manage their condition. 50% Reported that PatientsLikeMe helped them understand their side effects. Proprietary and Confidential
  8. 8. One more number! 1% “Because of PatientsLikeMe, I am engaged to be married!” Proprietary and Confidential
  9. 9. Improving Adherence Proprietary and Confidential
  10. 10. 2010 Epilepsy User Survey Results Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life 2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life Proprietary and Confidential
  11. 11. Agenda Peer to peer networking What is PatientsLikeMe? Patient value How do patients benefit? Industry value How do provider, payers, pharma and gov’t benefit? Scientific value How do we contribute to the science of medicine? Next Where do we go from here? Proprietary and Confidential
  12. 12. Industry recognition of the issues “We need to be closer to patients to understand their experience and their needs. An online experience allows patients to open up and share in a more personal and frank way. Our commitment to supporting this transplant community will shape the way we do our work, and ultimately help improve transplant patient outcomes now and in the future.” - Joe Jimenez, CEO Proprietary and Confidential
  13. 13. Adherence barriers • MS patients using needle-based treatments struggle to be adherent despite side effects and other barriers • Literature review, forum discussion review, and surveys combined to develop a new instrument (MS Treatment Adherence Questionnaire) • MSTAQ predictive of missed doses and suggests coping mechanisms for clinical use • Funded by Novartis • Instrument released open access for any use Proprietary and Confidential
  14. 14. Case study: How helpful would these interventions be for improvingimmunosuppressant adherence? Proprietary and Confidential
  15. 15. Providers want to point patients to… • A trusted source of information • A place where they can find social support • A place that allows them to capture meaningful information • A place that gives the doctor access to that information 4 out of 5 internet users go online for health information**Pew Internet & American Life Projecthttp://www.pewinternet.org/Topics/Topic-Category-2/Health.aspx Proprietary and Confidential
  16. 16. Agenda Peer to peer networking What is PatientsLikeMe? Patient value How do patients benefit? Industry value How do provider, payers, pharma and gov’t benefit? Scientific value How do we contribute to the science of medicine? Next Where do we go from here? Proprietary and Confidential
  17. 17. The issue of lithium… Proprietary and Confidential
  18. 18. The aftermath… Proprietary and Confidential
  19. 19. The aftermath… Proprietary and Confidential
  20. 20. Scientific output and field impact Proprietary and Confidential
  21. 21. Research collaborations & publications in peer reviewed journals Proprietary and Confidential
  22. 22. Agenda Peer to peer networking What is PatientsLikeMe? Patient value How do patients benefit? Industry value How do provider, payers, pharma and gov’t benefit? Scientific value How do we contribute to the science of medicine? Next Where do we go from here? Proprietary and Confidential
  23. 23. Where do we go from here? • Direct provider access • Wet science • Across the pond…. (international expansion) Proprietary and Confidential
  24. 24. Sebastiaan Foppema – EVP, Business Operationssfoppema@patientslikeme.com
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