Personal Information
Organization / Workplace
Paris, Paris France
Website
www.eurordis.org
About
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond.
Tags
rare disease
eurordis
rarediseases
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rareconnect
rare disease day
emm 2011 conference
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13 14 may 2011
congenital disorder
rareconnect.org
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networks of experts
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council of europe
eurordis membership meeting amsterdam
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quality of life
hydrocephalus
european union
orphan drug
avril daly
ulrike pypops
membership meeting amsterdam
yann le cam
pregnancy
eurordis membership meeting 2011 amsterdam 13 & 1
domenica taruscio
tsveta schyns
eurordis membership meeting 2011 amsterdam
search
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Presentations
(74)Documents
(2)Likes
(2)RareConnect.org webinar: How to start an awareness day for your rare disease
EURORDIS - Rare Diseases Europe
•
7 years ago
RareConnect.org Update 2016
EURORDIS - Rare Diseases Europe
•
7 years ago
Personal Information
Organization / Workplace
Paris, Paris France
Website
www.eurordis.org
About
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond.
Tags
rare disease
eurordis
rarediseases
raredisease
rareconnect
rare disease day
emm 2011 conference
social media
patients
13 14 may 2011
congenital disorder
rareconnect.org
onlinecommunities
rare diseases
genetic disorders
networks of experts
centres of expertise
council of europe
eurordis membership meeting amsterdam
health
neural tube defect
folic acid
spina bifida
adverse events
orphan drugs
ema
fda
european conference on rare diseases
geneticdisorders
europeanorganisationforrarediseases
raredisorders
twitter
patientgroups
patientrepresentatives
rare disorders
careforrare
ecrd2016
global genes
nord
rare
familialhibernianfever
rarediseaseday
tumornecrosisfactorreceptorassociatedperiodicfever
periodicfeversyndrome
autoinflammatoryalliance
autoinflammatory
traps
euorordis
pitthopkins
pitthopkinssyndrome
onlinecommunity
eq-5d
conditions and diseases
quality of life
hydrocephalus
european union
orphan drug
avril daly
ulrike pypops
membership meeting amsterdam
yann le cam
pregnancy
eurordis membership meeting 2011 amsterdam 13 & 1
domenica taruscio
tsveta schyns
eurordis membership meeting 2011 amsterdam
search
drug development
clinical trials
quality medical information
pubmed
side effects
See more