Autism  24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, self management 24/7 Dr. Leo Kannerhuis  Saskia T...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Why e-health? E-health =  the use of ICT to improve health and ...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 WWW: society is  going digital Maps vs. TomTom
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 To the store or online shopping WWW: society is  going digital
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Fax vs. e-mail WWW: society is  going digital
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Teletext vs. Twitter WWW: society is  going digital
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 To the doctor vs. telehealth WWW: healthcare is  going digital
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Challenges health care autism <ul><li>Increasing prevalence: ch...
Birth Death Treatment Line / Lifeline –  guidance Autism and life course model   Information processing and integration Li...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism and life course model   Information processing and integ...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0 means:  <ul><li>Using ICT in regular care: </li><...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 ICT as a soul mate Informing, supporting, learning, regulating,...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 ICT =  Connection  to the world for people with ASD <ul><li>Inv...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 <ul><li>Invisible presence </li></ul><ul><li>Empowering </li></...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Diagnoses autism  <ul><li>Personal health record </li></ul><ul>...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, treatment 24/7  E-learning psycho-education ASD,  …
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0: Telehealth  Telehealth/  e-communication: Video,...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Coach2care: problem solving Apps  <ul><li>Supporting dialogs on...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, self management 24/7 Daily life coach <ul><li>Supp...
<ul><li>Independent travelling:  </li></ul><ul><ul><li>All clients significant improval (0 to 12/13 times a week) </li></u...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism &  self management  <ul><li>ICT applications for Life st...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Bio feedback:  Stress management
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Digital CV: finding a job  Supports you presenting yourself
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0,  Invisible (self)care   <ul><ul><li>Information ...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0:  24/7 self management with ICT Patient participa...
Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 From  June  17 th , this slideshow can be downloaded from www.s...
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Escap2011 - S.Timmer - Dr. Leo Kannerhuis 4/4

  1. 1. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, self management 24/7 Dr. Leo Kannerhuis Saskia Timmer Webber autismcare2.0 Research & Development, Dr. Leo Kannerhuis
  2. 2. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Why e-health? E-health = the use of ICT to improve health and healthcare
  3. 3. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 WWW: society is going digital Maps vs. TomTom
  4. 4. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 To the store or online shopping WWW: society is going digital
  5. 5. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Fax vs. e-mail WWW: society is going digital
  6. 6. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Teletext vs. Twitter WWW: society is going digital
  7. 7. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 To the doctor vs. telehealth WWW: healthcare is going digital
  8. 8. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Challenges health care autism <ul><li>Increasing prevalence: chronic condition </li></ul><ul><ul><li>Increasing care demand </li></ul></ul><ul><ul><li>Demand for Life course guidance/thinking </li></ul></ul><ul><li>Labour market & economy measures </li></ul><ul><li>Changing vision: health2.0 </li></ul><ul><ul><li>Empowerment </li></ul></ul><ul><ul><li>Service & quality </li></ul></ul><ul><ul><li>support any time, any place </li></ul></ul>
  9. 9. Birth Death Treatment Line / Lifeline – guidance Autism and life course model Information processing and integration Living, education, labour, social <ul><li>Executive functions: </li></ul><ul><ul><li>Keeping the overview </li></ul></ul><ul><ul><li>Planning and organisation </li></ul></ul><ul><li>Central coherence: </li></ul><ul><ul><li>Focus on details </li></ul></ul><ul><ul><li>Problems with generalisation </li></ul></ul><ul><li>Theory of Mind </li></ul><ul><ul><li>Lacking empathy and imagination </li></ul></ul>Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
  10. 10. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism and life course model Information processing and integration Living, education, labour, social Birth Death Secondary school Primary school Higher education Work and day care Retirement Nursery Lifeline <ul><li>Requires: </li></ul><ul><li>Partnership </li></ul><ul><li>Pro-active monitoring </li></ul><ul><li>Transition support </li></ul><ul><li>Participation </li></ul>Treatment Line / Lifeline – guidance
  11. 11. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0 means: <ul><li>Using ICT in regular care: </li></ul><ul><li>Treatment; improving Quality, Efficiency & Service </li></ul><ul><li>Participation / Empowerment </li></ul><ul><li>Using ICT for self management </li></ul><ul><li>Invisible support </li></ul><ul><li>Any time any place </li></ul>
  12. 12. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 ICT as a soul mate Informing, supporting, learning, regulating, emancipating
  13. 13. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 ICT = Connection to the world for people with ASD <ul><li>Invisible presence </li></ul><ul><li>Effect on empowerment </li></ul><ul><li>Cost effective </li></ul><ul><li>24/7 availability </li></ul><ul><li>Autism 24/7, self management 24/7 </li></ul>
  14. 14. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 <ul><li>Invisible presence </li></ul><ul><li>Empowering </li></ul><ul><li>24/7 availability </li></ul>Autism 24/7, self management 24/7 Screening Diagnostics Indication setting Planning healthcare Guidance Treatment Evaluation After care Self care
  15. 15. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Diagnoses autism <ul><li>Personal health record </li></ul><ul><li>Information on autism </li></ul><ul><li>Lifestory </li></ul><ul><li>Diary </li></ul><ul><li>Telehealth/care </li></ul><ul><li>E-health </li></ul><ul><li>E-self management </li></ul>
  16. 16. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, treatment 24/7 E-learning psycho-education ASD, …
  17. 17. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
  18. 18. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0: Telehealth Telehealth/ e-communication: Video, text, sound
  19. 19. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Coach2care: problem solving Apps <ul><li>Supporting dialogs on iPod </li></ul><ul><ul><li>Specific topics: </li></ul></ul><ul><ul><ul><li>Travelling with public transport </li></ul></ul></ul><ul><ul><ul><li>Scholars with autism </li></ul></ul></ul><ul><ul><li>Based on training method daily life skills and life domains </li></ul></ul><ul><li>Planning support </li></ul><ul><li>Problem solving </li></ul>
  20. 20. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism 24/7, self management 24/7 Daily life coach <ul><li>Supporting daily tasks </li></ul><ul><ul><li>Tailer made Coach </li></ul></ul><ul><ul><li>For daily life task </li></ul></ul><ul><ul><li>Structure and overview </li></ul></ul><ul><ul><li>Support for task fulfillment: checklists </li></ul></ul><ul><ul><li>Time support </li></ul></ul><ul><ul><li>Empowerment </li></ul></ul><ul><ul><li>As normal as possible </li></ul></ul><ul><ul><li>Supporting skills </li></ul></ul><ul><ul><li>Unexpected learning </li></ul></ul>
  21. 21. <ul><li>Independent travelling: </li></ul><ul><ul><li>All clients significant improval (0 to 12/13 times a week) </li></ul></ul><ul><li>Mental wellbeing </li></ul><ul><ul><li>Improvement of mental wellbeing </li></ul></ul><ul><ul><li>Experiences less stress while travelling </li></ul></ul><ul><li>Cost effective </li></ul><ul><ul><li>Less use of taxi/parental transport </li></ul></ul>Digital coach: effect Control group: No changes Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
  22. 22. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autism & self management <ul><li>ICT applications for Life stress measurement </li></ul><ul><li>Learning stress patterns </li></ul><ul><li>Reducing stress </li></ul><ul><li>Improving participation </li></ul>
  23. 23. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Bio feedback: Stress management
  24. 24. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Digital CV: finding a job Supports you presenting yourself
  25. 25. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011
  26. 26. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0, Invisible (self)care <ul><ul><li>Information = available </li></ul></ul><ul><ul><li>Clients are in control </li></ul></ul><ul><ul><li>Personal health care record </li></ul></ul><ul><ul><li>E-health </li></ul></ul><ul><ul><li>E- Self management </li></ul></ul><ul><ul><li>Availability of support: anytime & anyplace </li></ul></ul><ul><ul><li>More efficient use of resources, time: client, informal caregivers & HC professional </li></ul></ul><ul><ul><li>cooperation: 1+1=3 </li></ul></ul>
  27. 27. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 Autismcare2.0: 24/7 self management with ICT Patient participation: being in charge! More efficiency & empowerment in treatment Support self management
  28. 28. Autism 24/7, self management 24/7, Dr. Leo Kannerhuis 2011 From June 17 th , this slideshow can be downloaded from www.slideshare.net [email_address]

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