Combining powers:  centre treatment, home treatment and e-treatment  for families with ASD A step forward with autism Moni...
Dr. Leo Kannerhuis, Centre for autism  <ul><li>Nicolette Collet </li></ul>A step forward with autism Monique Verburg <ul><...
A step forward with autism Bibi Huskens, Ph.D. Psychologist / researcher [email_address]
Conflict of interest A step forward with autism SPEAKER COMPANY PRODUCT RESEARCH OTHER M. Verburg None None None None B.E....
Franchise partners Leo Kannerhuis Nederland A step forward with autism 1. Lentis (Groningen) 2. GGZ Noord-Holland-Noord (A...
Mission Dr. Leo Kannerhuis A step forward with autism <ul><li>Specialised psychiatric centre for treatment and expertise f...
Starting points <ul><li>Attending and coaching people and families with ASD </li></ul><ul><li>In an ASD-specific way </li>...
<ul><li>Residential treatment of children with ASD </li></ul><ul><li>Monique Verburg 20 min. </li></ul><ul><li>ABA trainin...
Clinical treatment of children with ASD: empowering child and family. An Introduction <ul><li>Monique Verburg </li></ul>A ...
Basic questions to parents <ul><li>Reasons why child can’t live at home now and is in need for clinical treatment </li></u...
Reasons for clinical treatment <ul><li>Aggression </li></ul><ul><li>Rigidity and being self-absorbed </li></ul><ul><li>Nee...
Obstacles for living at home in future <ul><li>Parental fear of repetition of negative experiences </li></ul><ul><li>Paren...
Necessary conditions for raising child at home <ul><li>able to control aggression  </li></ul><ul><li>more flexible and les...
Credo <ul><li>Our first and most important aim </li></ul><ul><li>is helping families </li></ul><ul><li>to feel capable </l...
Basic Attitude <ul><li>Making a new start </li></ul><ul><li>Tuning in on home-situation of child and family </li></ul><ul>...
Basic Attitude 2 <ul><li>Thinking out-of-the-box </li></ul><ul><li>Breaking fixed patterns </li></ul><ul><li>Supporting in...
Basic Assumptions <ul><li>The environment (siblings, school, work, etc.) can be empowered to be able to adapt to the needs...
Treatment process  <ul><li>Treatment focus = helping family to have their child back home  </li></ul><ul><li>Working toget...
Treatment goals child <ul><li>I am able to express my feelings in a proper way </li></ul><ul><li>I am able to play on myse...
Treatment goals parents <ul><li>As parents we are in charge </li></ul><ul><li>I am able to manage the aggression of my chi...
Environmental factors <ul><li>Appropriate school and leisure possibilities </li></ul><ul><li>Support from family and frien...
Treatment aspects child <ul><li>Therapeutic living environment </li></ul><ul><li>Psychoeducation </li></ul><ul><li>Trainin...
Treatment aspects family <ul><li>Parents participating in patient-staff meetings </li></ul><ul><li>Psycho-education </li><...
Potential of basic treatment method <ul><li>rigid patterns </li></ul><ul><li>↑↓ </li></ul><ul><li>learned helplessness </l...
Potential of basic treatment method <ul><li>Can be used in various settings </li></ul><ul><li>Practical, ‘playful’   </li>...
Results July 2008 –May 2011 <ul><li>Outstream of 30 children: </li></ul><ul><li>15 went home (50%) (before 30%) </li></ul>...
Results until now <ul><li>Long term perspective of child and family is central issue </li></ul><ul><li>Treatment focus is ...
The essence is not  in reaching our goal,  but is the pathway  we are walking together. A step forward with autism
<ul><li>Dr. Leo Kannerhuis Centre for Autism </li></ul><ul><li>The Netherlands </li></ul><ul><li>[email_address] </li></ul...
<ul><li>Contact </li></ul><ul><li>Cisca Aerts ( c.aerts@leokannerhuis.nl) </li></ul><ul><li>Nicolette Collet ( n.collet@le...
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Escap2011 - M. Verburg - Dr. Leo Kannerhuis 1/4

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  • Wat is het mooist: alles deze kleur blauw (en dan met gele vinkjes) of zoals dia 13: koppen zwart en de rest grijs-blauw (en met grijs-blauwe of andere bolletjes?)? Graag alle dia’s gelijk maken.
  • Graag bij deze dia zelfde invliegeffect als op dia 3 (dus 1: Cisca, 2: Saskia, 3: Monique, 4: Bibi, 5: Nicolette)
  • Onderste zin graag invliegen
  • Graag ruimte tussen regels
  • Graag punten 1 voor 1 invliegen en mogelijk alinea’s iets uit elkaar; evt. op 2 dia’s?
  • Escap2011 - M. Verburg - Dr. Leo Kannerhuis 1/4

    1. 1. Combining powers: centre treatment, home treatment and e-treatment for families with ASD A step forward with autism Monique Verburg Bibi Huskens Cisca Aerts Saskia Timmer
    2. 2. Dr. Leo Kannerhuis, Centre for autism <ul><li>Nicolette Collet </li></ul>A step forward with autism Monique Verburg <ul><li>Children’s clinic </li></ul><ul><li>Ambulant treatment </li></ul><ul><li>Research&Development </li></ul>Cisca Aerts Bibi Huskens SaskiaTimmer
    3. 3. A step forward with autism Bibi Huskens, Ph.D. Psychologist / researcher [email_address]
    4. 4. Conflict of interest A step forward with autism SPEAKER COMPANY PRODUCT RESEARCH OTHER M. Verburg None None None None B.E.B.M. Huskens None None None None C. Aerts None None None None S. Timmer None None None None
    5. 5. Franchise partners Leo Kannerhuis Nederland A step forward with autism 1. Lentis (Groningen) 2. GGZ Noord-Holland-Noord (Alkmaar) 3. Dr. Leo Kannerhuis (Doorwerth) 4. Dr. Leo Kannerhuis Brabant (Tilburg) 5. De Jutters en Lucertis (Regio Haaglanden)* 6. Mondriaan Zorggroep e.a. (Maastricht)* 7. Altrecht* (Regio Utrecht) *) Intended franchise partners
    6. 6. Mission Dr. Leo Kannerhuis A step forward with autism <ul><li>Specialised psychiatric centre for treatment and expertise for clients with ASD </li></ul><ul><li>Ensuring optimal development and participation in the community </li></ul><ul><li>Throughout the life span </li></ul>
    7. 7. Starting points <ul><li>Attending and coaching people and families with ASD </li></ul><ul><li>In an ASD-specific way </li></ul><ul><li>Selfmanagement of client and family </li></ul><ul><li>Treatment in natural environment </li></ul><ul><li>Empowerment </li></ul>A step forward with autism
    8. 8. <ul><li>Residential treatment of children with ASD </li></ul><ul><li>Monique Verburg 20 min. </li></ul><ul><li>ABA training package Monique Verburg 20 min. </li></ul><ul><li>Psychiatric family treatment for families with ASD Cisca Aerts 20 min. </li></ul><ul><li>Autism 24/7, self management 24/7 </li></ul><ul><ul><li>Saskia Timmer 20 min. </li></ul></ul><ul><ul><li>Discussion 30 min. </li></ul></ul>A step forward with autism
    9. 9. Clinical treatment of children with ASD: empowering child and family. An Introduction <ul><li>Monique Verburg </li></ul>A step forward with autism
    10. 10. Basic questions to parents <ul><li>Reasons why child can’t live at home now and is in need for clinical treatment </li></ul><ul><li>Estimate if raising child at home could be possible in the future </li></ul><ul><li>Inventarisation of conditions to make growing up at home possible in the future </li></ul>A step forward with autism
    11. 11. Reasons for clinical treatment <ul><li>Aggression </li></ul><ul><li>Rigidity and being self-absorbed </li></ul><ul><li>Need of intensive 24-hours support </li></ul><ul><li>Apparent inability to learn </li></ul><ul><li>Problems in all life domains </li></ul>A step forward with autism
    12. 12. Obstacles for living at home in future <ul><li>Parental fear of repetition of negative experiences </li></ul><ul><li>Parents feeling incapable of answering their child’s special needs </li></ul><ul><li>Lack of appropriate school, mental health care or other necessary facilities </li></ul><ul><li>Family problems </li></ul><ul><li>Caregivers say raising child at home is not a possibility </li></ul>A step forward with autism
    13. 13. Necessary conditions for raising child at home <ul><li>able to control aggression </li></ul><ul><li>more flexible and less self-absorbed </li></ul><ul><li>self - management level more appropriate to calender-age </li></ul><ul><li>parents feel confident and have more energy </li></ul><ul><li>appropriate living environment, school, etc. </li></ul><ul><li>BUT: assumption is often: ‘not realistic’ </li></ul>A step forward with autism
    14. 14. Credo <ul><li>Our first and most important aim </li></ul><ul><li>is helping families </li></ul><ul><li>to feel capable </li></ul><ul><li>to raise their child at home </li></ul>A step forward with autism
    15. 15. Basic Attitude <ul><li>Making a new start </li></ul><ul><li>Tuning in on home-situation of child and family </li></ul><ul><li>Focus: conditions needed to raise child at home </li></ul><ul><li>Analysing developmental stagnation child-related-, family-related- and environmental factors </li></ul>A step forward with autism
    16. 16. Basic Attitude 2 <ul><li>Thinking out-of-the-box </li></ul><ul><li>Breaking fixed patterns </li></ul><ul><li>Supporting in developing new behaviour </li></ul><ul><ul><li>working on key problems </li></ul></ul><ul><ul><li>helping child and family to develop their capabilities </li></ul></ul><ul><ul><li>helping adapting the environment </li></ul></ul><ul><li>Cooperating intensively with the environment of the necessary conditions. </li></ul><ul><li>= EMPOWERING child and family </li></ul>A step forward with autism
    17. 17. Basic Assumptions <ul><li>The environment (siblings, school, work, etc.) can be empowered to be able to adapt to the needs of the individual child </li></ul>A step forward with autism <ul><li>Child disruptive behaviour and handicaps and </li></ul><ul><li>current inability of parents are changeable </li></ul><ul><li>Children can learn how to integrate their </li></ul><ul><li>vulnerabilities in their daily lives </li></ul><ul><li>Parents can become adequately equipped to </li></ul><ul><li>support the development of their vulnerable child </li></ul>
    18. 18. Treatment process <ul><li>Treatment focus = helping family to have their child back home </li></ul><ul><li>Working together; partnership family-clinic </li></ul><ul><li>Focus on home-setting </li></ul><ul><li>Necessary changes = treatment goals </li></ul>A step forward with autism
    19. 19. Treatment goals child <ul><li>I am able to express my feelings in a proper way </li></ul><ul><li>I am able to play on myself for half an hour </li></ul><ul><li>I can be with my brother without excessive fighting </li></ul><ul><li>I feel good about myself </li></ul>A step forward with autism
    20. 20. Treatment goals parents <ul><li>As parents we are in charge </li></ul><ul><li>I am able to manage the aggression of my child properly </li></ul><ul><li>I know how to stimulate my child doing something I want him to </li></ul><ul><li>As (ex-) partners we are working together </li></ul>A step forward with autism
    21. 21. Environmental factors <ul><li>Appropriate school and leisure possibilities </li></ul><ul><li>Support from family and friends </li></ul><ul><li>Time-out setting for weekends and holidays </li></ul><ul><li>Treatment can continue after leaving the clinic </li></ul><ul><li>Quick access to appropriate help if needed </li></ul>A step forward with autism
    22. 22. Treatment aspects child <ul><li>Therapeutic living environment </li></ul><ul><li>Psychoeducation </li></ul><ul><li>Training modules </li></ul><ul><li>Psychotherapy </li></ul><ul><li>Medication </li></ul>A step forward with autism
    23. 23. Treatment aspects family <ul><li>Parents participating in patient-staff meetings </li></ul><ul><li>Psycho-education </li></ul><ul><li>Parental training modules </li></ul><ul><li>Parental guidance by social worker </li></ul><ul><li>Family therapy, FPA </li></ul><ul><li>Parents participating incidentally in living group </li></ul>A step forward with autism
    24. 24. Potential of basic treatment method <ul><li>rigid patterns </li></ul><ul><li>↑↓ </li></ul><ul><li>learned helplessness </li></ul><ul><li>/ l </li></ul><ul><li>child parents environment </li></ul><ul><li>Positive </li></ul><ul><li>corrective </li></ul><ul><li>experiences </li></ul>A step forward with autism
    25. 25. Potential of basic treatment method <ul><li>Can be used in various settings </li></ul><ul><li>Practical, ‘playful’ </li></ul><ul><li>Motivation driven </li></ul><ul><li>Evidence based </li></ul><ul><li>Out of the box </li></ul>A step forward with autism
    26. 26. Results July 2008 –May 2011 <ul><li>Outstream of 30 children: </li></ul><ul><li>15 went home (50%) (before 30%) </li></ul><ul><li>12 went to the adolescent clinical treatment settings of the LKH (40 %) </li></ul><ul><li>1 went back to the referring authority (3%) </li></ul><ul><li>2 went to a residential setting elsewhere (7%) </li></ul>A step forward with autism
    27. 27. Results until now <ul><li>Long term perspective of child and family is central issue </li></ul><ul><li>Treatment focus is shared by all involved </li></ul><ul><li>Parents feel confident with treatment vision </li></ul><ul><li>Better cooperation of family and staff </li></ul><ul><li>Waiting lists decreased and are in control </li></ul><ul><li>More children are going home after treatment (but less than we hoped for…) </li></ul>A step forward with autism
    28. 28. The essence is not in reaching our goal, but is the pathway we are walking together. A step forward with autism
    29. 29. <ul><li>Dr. Leo Kannerhuis Centre for Autism </li></ul><ul><li>The Netherlands </li></ul><ul><li>[email_address] </li></ul><ul><li>www.leokannerhuis.nl </li></ul>A step forward with autism
    30. 30. <ul><li>Contact </li></ul><ul><li>Cisca Aerts ( c.aerts@leokannerhuis.nl) </li></ul><ul><li>Nicolette Collet ( n.collet@leokannerhuis.nl) </li></ul><ul><li>SaskiaTimmer ( s.timmer@leokannerhuis.nl) </li></ul><ul><li>Monique Verburg ( m.verburg@leokannerhuis.nl) </li></ul><ul><li>http:// www.slideshare.net / DrLeoKannerhuis   </li></ul><ul><li>http:// www.slideshare.net / DrLeoKannerhuis </li></ul><ul><li>/ sheets-helsinki </li></ul>A step forward with autism

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