Your SlideShare is downloading. ×
  • Like
Digital Health Technology: The Ultimate Patient Advocate
Upcoming SlideShare
Loading in...5

Thanks for flagging this SlideShare!

Oops! An error has occurred.


Now you can save presentations on your phone or tablet

Available for both IPhone and Android

Text the download link to your phone

Standard text messaging rates apply

Digital Health Technology: The Ultimate Patient Advocate



Published in Health & Medicine , Business
  • Full Name Full Name Comment goes here.
    Are you sure you want to
    Your message goes here
    Be the first to comment
No Downloads


Total Views
On SlideShare
From Embeds
Number of Embeds



Embeds 0

No embeds

Report content

Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

    No notes for slide
  • IMPORTANT TO CHANGEChange wording on my picwe removed the wording under blue ribbon panel as we can talk it throughDavid wants 4 categories of reviews Patient Advocate Reviewers, Nurse Reviewrs, Physician Reviewers and Other Provider Reviewers. Remove the reverse Red Crosses (too busy)Also—the apps that are showing in the bottom square make it look like we have certified Epocrates and others. We think that you can show certified or tablet without giving away promotion to apps that may not be certified.


  • 1. Digital Health Technology:The Ultimate Patient Advocate David Lee Scher, MD, FACC, FHRS DLS Healthcare Consulting, LLC Harrisburg, PA Arkansas HIMSS2012 June 1, 2012
  • 2. “The most valuable commodity that I know of is information”. –Gordon Gekko
  • 3. Patient Advocate: Definition• Wiki: “Patient advocacy is an area of lay specialization in health care concerned with patient education about the use of health plans and how to obtain needed care.”• “In its simplest terms, patient advocacy regards any activity which ultimately benefits a patient. Using that definition, it can apply to caregiving for an individual patient, to groups that develop policies and advice that help patients, to government groups that develop legislation to improve systems or processes for patients” ----Trisha Torrey
  • 4. What is the Ultimate Patient Advocate?• A human being with: – Infinite compassion, energy, time, money, patience. – Expert in medicine, healthcare law, insurance coverage issues, technology, hospital management, government regulations, logistics. – Excellent communication skills. – No personal life or regard for self.
  • 5. Digital Health Technologies: Superconvergence into Personalized Medicine• Wireless sensors• Genomics• Information systems• Mobile connectivity• Internet/social networking• Computing power + data universeTopol, E. The Creative Destruction of Medicine, 2012
  • 6. Why is Digitized Medicine Good for Patients?• Increased patient engagement (self-management).• Better doctor-patient relationship.• Improved educational resources for self-management.• Improves caregivers’ abilities.• Creates personalization => better outcome.• Convergence of many technologies (simplification, convenience).
  • 7. Wireless Sensors• Physiologic data derived directly from patient. – Vital signs: heart, respiratory rate, temp, blood pressure – Data from implantable devices: insulin pumps, pacemakers, defibrillators, pressure sensors in lungs• Medication adherence platforms• Movement/location sensors – ‘Alzheimer’ shoes – Inner sole gait sensors
  • 8. Wireless Sensors: Patient Advocacy Role• Aging at home: decreases infection, medication errors, death.• Remote patient monitoring improves outcome.• Patient engagement improves outcome.• Constant trending data more accurate than snapshot view.• Involves caregivers more directly.
  • 9. Genomics
  • 10. Genomics• Digitization of a person’s genetics: available for $2000 and sent to your smart phone.• Personalized medicine: – patient susceptibility to specific treatments. – Predict susceptibility to specific diseases. – Pool data => population studies.
  • 11. Genomics• Challenges: – Most genetic predispositions require environmental influences. – Associated counseling needed. – Genetics may change over time. – Risks may change over time. – Many diseases not mapped. – Most physicians not prepared to address.
  • 12. Genomics: Patient Advocacy Role• Gives patients vision of future-> personalized life, treatment, family planning decisions.• Crowdsourced clinical studies: ?less bias, better compliance (23andME, PatientsLikeMe).• More comprehensive understanding of cancer, other complex diseases.• Faster way to treatments of rare diseases.
  • 13. Information Systems• EHRs• Patient portals (PHRs)• HIEs• E-prescribing• Backbone of ACOs• CDS tools• Connectivity to mHealth tools
  • 14. Information Systems: Patient Advocacy Role• EHRs – Decrease unnecessary tests? – Improved outcomes? – Decrease drug, treatment errors.• PHRs – Increase patient engagement – Less mistakes-> less deaths• E-prescribing – Safer?• CDS tools – Eliminates practice variation?
  • 15. Mobile Connectivity• PHRs on phone• Mobile health apps – Mobile EHRs – Remote patient monitoring – Physician locators, appts – Telemedicine tools (3G Doctor) – Best doc, procedure, insurance pricing – Patient education tools – Wellness and fitness apps
  • 16. Mobile Connectivity: Patient Advocacy Role• Patients want mobile access• Patients want their own data• Caregivers with equal access• Rapid transmission of data/communication from physician• Promotes active engagement with patient portal
  • 17. Mobile Connectivity
  • 18. Certification Program BLUE RIBBON PANELDavid Lee Scher, MD, ChairCardiologist and Mobile Health Set Standards for App CertificationAuthority Franklin A. Shaffer, EdD, RN, APP CERTIFICATION REVIEW BOARD FAAN Head of the Nursing Advisory Council Implement Program and Oversee ReviewersShuvo Roy, PhDLeading biomedical scientist andresearcher NURSE PHYSICIAN OTHER REVIEWERS REVIEWERS PROVIDER REVIEWERS Review AppsDave deBronkartePatient DaveLeading Patient Advocate 19
  • 19. Internet/Social Networking
  • 20. Internet/Social Networking• Reference sites• Source for research• Physician/Provider ratings• Interacting with peers –patients, physicians, nurses, other providers• Fundraising• Patient-provider interactions
  • 21. Internet/Social Networking: Patient Advocacy Role• Reliable , updated information (research, advocacy resources).• Crowdsourcing adverse events of drugs, devices.• Patient rights/advocacy (Society for Participatory Medicine).• Integrates countries, cultures, and diverse healthcare systems.
  • 22. Computing Power and Data Universe (Big Data): Friend or Foe?
  • 23. Computing Power and Data Universe• Big Data: A loosely-defined term used to describe data sets so large and complex that they become awkward to work with using on-hand database management tools – EHRs – remote monitoring – HIEs – Pharma/med device companies – crowdsourcing – clinical trials – payers
  • 24. Making Big Data a Patient Advocate Tool
  • 25. Computing Power and Data Universe• Must be filtered• Value: Outsourced to commercial and academic enterprises• Requires new breed of professionals – Board certified informatics physicians – Chief Knowledge Officers – Care coordinator experts in mHealth
  • 26. Big Data: Cost Saving Opportunities • Clinical operations • Payments/pricing • R&D of drugs/devices • New business models • Public health initiatives
  • 27. Computing Power and Data Universe: Patient Advocacy Role• Personalization of care – Crowdsourced data – automated mining of EHR data – Personalized prescription of mHealth technologies• Faster path to treatment/cures
  • 28. Crowdsourced Healthcare Studies• Definition: “The practice of obtaining participants, services, ideas, or content by soliciting contributions from a large group of people, especially via the Internet”
  • 29. Crowdsourced Healthcare Studies• Types – Research-organized studies – Patient/subject organized studies • Genomics • Self-tracking
  • 30. Research-Organized Crowdsourced Studies• PatientsLikeMe: – Inspired by patient with ALS looking for rapid information. – An online community with medical condition segmentation – Business model: sell information to drug, device and medical service companies and insurers.
  • 31. PatientsLikeMe: ALS Lithium Study Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Wicks P, Vaughan TE, Massagli MP, Heywood J.Nature Biotechnology 29, 411–414 (2011) doi:10.1038/nbt.1837• Study of effect of Lithium on progression of ALS.• Proved to be a negative study.• Landmark trial of crowdsourcing technique.
  • 32. Personalized Participatory Medicine
  • 33. #S4PM: Nothing About Us Without Us
  • 34. The Walking Gallery
  • 35. SUMMARY: Can Technology Become the Ultimate Patient Advocate?• NO! But it can be the ultimate patient advocate assistant.• The need for human contact in healthcare will always exist.• Technology can improve healthcare delivery, outcomes, and facilitate the job of caregivers and advocates.
  • 36. “If you ask me a question I don’t know, I’m not going to answer” ------Yogi Berra