Patient Consent to the Use of Data: Are We Asking the Wrong Question?

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In this presentation at #StrataRx 2013 I explore the notion of building big data analytics on top of a data store populated by health record information obtained as a result of patient requests. Why? Because doing it that way would bring the data out from under HIPAA and HITECH regulations. Patients could contribute as much or as little of the data as they wish, patients could be compensated for their contributions, and other pesky HIPAA restrictions would fall by the wayside. I used one company's newly-announced service as an example, but there are others in this space as well.

See livetweets of presentation at: http://www.healthblawg.com/2013/09/david-harlows-hipaa-and-hitech-presentation-at-stratarx.html

Press coverage of this presentation: Solving Healthcare's Big Data Analytics Security Conundrum - CIO.com – http://shrd.by/8qCxmo

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Patient Consent to the Use of Data: Are We Asking the Wrong Question?

  1. 1. Patient Consent to Use of Data Are We Asking the Wrong Question? David Harlow JD MPH THE HARLOW GROUP LLC healthblawg.com @healthblawg
  2. 2. Photo: CC: http://www.flickr.com/photos/monkeyatlarge/16645379/
  3. 3. When an Unstoppable Force Meets an Immovable Object . . .
  4. 4. Focus. Photo: CC: http://www.flickr.com/photos/danielavladimirova/4089141799
  5. 5. A Big Pile-Up of Rules is in Nobody’s Best Interest
  6. 6. Don’t Be Evil
  7. 7. Photo: CC: http://www.flickr.com/photos/aigle_dore/6672141083
  8. 8. Deidentification Photo: CC: http://www.flickr.com/photos/hape_gera/3281625420
  9. 9. Research
  10. 10. What If We Didn’t Need to be Protected?
  11. 11. What if …
  12. 12. Fix Problems Standing in the Way of Sharing ------- Identify Patients Interested in Sharing
  13. 13. Get on Board Photo: CC: http://www.flickr.com/photos/mtaphotos/8269993082
  14. 14. Shift Your Perspective Photo:CC:http://www.flickr.com/photos/victoriapeckham/9721093375
  15. 15. Patient-Controlled Sharing
  16. 16. Blue Button
  17. 17. Project Medyear
  18. 18. Photo:CC:http://www.flickr.com/photos/victoriapeckham/9721093375
  19. 19. Photo: CC: http://www.flickr.com/photos/danielavladimirova/4089141799
  20. 20. Thank You harlowgroup.net healthblawg.com twitter.com/healthblawg david@harlowgroup.net David Harlow JD MPH THE HARLOW GROUP LLC

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