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Diema's dream fund annual report 2008.en.indd Diema's dream fund annual report 2008.en.indd Document Transcript

  • isabled R rD us fo n si io an A Fo u n d a t www.ddfund.ru Children Diema’s Dream A Foundation for Disabled Russian Children ANNUAL REPORT 2008
  • Thank you for your support! Our Partners: Diema’s Dream America Diema’s Dream United Kingdom Diema’s Dream Canada Our Auction Sponsors: Renaissance Capital Wimm Bill Dann DeGolyer & MacNaughton BP ConocoPhillips Linklaters Coca-Cola Caterpillar Morgan Stanley Deloitte & Touche Chevron Halliburton Price Waterhouse Russia Credit Suisse Akin Gump Our Donors and Supporters: American Women’s Organization R. Ames Mr. & Mrs. Melwani Arsal trading Mr. & Mrs. Avdeev T. Mihelic Allied Pickford N. Baratiants Mr. S. Mileovic Always E. Belin Mr. & Mrs. Montencourt CAF– Russia Mr. & Mrs. Binnmyr Mr. & Mrs. Mosier Erlain LTD T. Bachvalova Mr. & Mrs. Muir Fort W. Brandt Mr. & Mrs Myers Frostmo K. E. Braun Mr. & Mrs. P. O’Brien Gazprom H. Brekelmans Mr. & Mrs. J Owen Griffiths College M. Clothier K. Parinov Industrial Management Systems J. Campbell D Pearson Irish Club A. Danielyan Mr. Pozharishensky Kaskad S. Demin H. Price Mr. Doors I. Egorova M. Roazen Mask Mr. & Mrs. K. Eisenmenger R. Sanders North Winds Distribution A.Enukaeva A. Savin Pepsi S Fischbach K. Sliger Rombus M. Franklin K. Snow Sapphire Mr. & Mrs. Fulling C. Spaulding Standard Trading Mr. & Mrs. Getvey R. Spies Stroyproectinvest Mr. & Mrs. A. Gorshkova Mr. & Mrs. P. Swaim Tehproekt Mr. & Mrs. Hellman N. Teicher Today and Tomorrow P Henshaw Mr. & Mrs. R. Tompkins Tuskani A. Kivalchuk Mr. & Mrs. Tubb United Way Russia K. Kolhmayer D. Tyrer Vnikom Mr. & Mrs. M. Koy E. Voronkova Yamal GazInvest I. Krasnikova Mr. & Mrs. Wallette D. Kuranova Mr. & Mrs. M. Wiewiorowski J. Larson R. Wilke E. Lobodina B. Spier We are forever and truly grateful to all the people, including corporate benefactors, who provide physical, financial and professional assistance in the implementation of our charity programs to support disabled orphans and children with developmental disabilities and their families! Thank you all!
  • Table of Contents Letter from Mary Dudley, Founder . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Letter from Sergey Andrushin, Director . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 History Behind Diema’s Dream . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 How we Help . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 Diema’s Dream 2008 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 Financial Year 2008 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 Foundation Structure . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Board of Guardians . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Our International Partners . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Diema’s Dream Help Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 Diema’s Dream Orphanage #8 Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Diema’s Dream Kimovsk Orphanage Program . . . . . . . . . . . . . . . . . . . . . . . . . . 14 Diema’s Dream Elat’ma Orphanage Programs . . . . . . . . . . . . . . . . . . . . . . . . . . 15 Diema’s Dream Family Center Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Diema’s Dream Village Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 24 2009 Goals and New Programs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28 Organizations that help Diema’s Dream and those we help . . . . . . . . . . . . . . . . . . . 30 Diema’s Dream Contacts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31
  • Reprinted from “Because I Care” Authors — Svetlana Sorokina, Elena Sultanova. A Donors Forum project 2009. Mary Dudley—Founder Dear Friends and Supporters! I am pleased to present to you our 2008 Annual My most poignant memory is when I showed a video, Report. filmed secretly, of conditions in one orphanage out- side Moscow to Katya. She was just a bit older than Each of us has a reason why we are involved in char- I was and had grown up in the Soviet system. I felt ity. I began volunteering at the age of 14 and contin- so bad that the film had upset her and apologized ued when I could throughout my life. As I grew older, for showing it to her. She turned to me with tears I grew to understand that the success of any system streaming down her face and said “Yes — I am upset or society was based on individuals giving back. I about the horrible conditions of the children and never set out to work with disabled orphans in Rus- their treatment but I am even more horrified that sia, it just happened. our officials never told us…perhaps we could have helped” My reason was a spunky little boy by the name of Diema. There were many other orphans that I held, I have often been asked – why do I do this? I choose fed or played with, but I always thought about the to do this because these disabled children need some- future Diema would have had if he had been born in one to fight for them to have a better life, the right the US or Europe. He was so very bright, it seemed to feel loved and the right to reach their potential in such a waste. He could have been an engineer; he life. could have been anything, only he would have been in a wheel-chair. That was Diema’s crime. To be born I could say I do it because it makes me feel good, but physically disabled in a world that did not value his I often feel so sad and helpless that it would not be intellect because he wasn’t physically whole. I mourn the complete truth. I know I do it for the wonderful the children that are mentally disabled and deplore children that I love. I know I do it for the remarkable the treatment they receive. But to be mentally aware Russian people who we meet along the way that help and able and ignored is altogether a different kind of as they can. I know I do it because I love Russia as a agony. second home. I know I do it because I want a future for these children. It’s not always easy fighting for a better life for these children. I am not sure if I have changed any minds But mainly… I do this just because or opened any hearts, but I have tried. Some people have been defensive and resistant, others have liter- “I care” ally sobbed to discover that such children existed in Russia. Very Truly Yours, Mary Dudley, Founder Diema’s Dream Foundation 4 Annual Report 2008
  • Sergey Andryushin — Director Dear Friends! Charity programs are not easy. They require a lot of ment has increased twofold. The number of children self sacrifice, patience and clear understanding of the which we take into our care increased threefold. essence of the social problem. Only thanks to like- minded people, experts, partners and volunteers are This year for the first time, we opened two study we able to achieve our goals, achieve positive change classes in the orphanage for mentally disabled chil- in the lives of disabled orphans and children, in their dren. This is a huge step forward and a result of real development and in their families. changes, which we strived for. This is the embodi- ment of Diema’s Dream – children, previously de- In 2008, many steps were taken for the first time. prived of access to education, began to study! We have extensively expanded the geography of our activities and began working with orphanages of the We made the first steps at our Village, developing Tula and Ryazan regions. There was a significant the model of integrated residence for young disabled growth in the number of organizational partners and children with the focus on psychophysical develop- in the implementation of the social direction of our ment. And as our Village will open soon, with each projects. step we are closer to our goal and the embodiment of this Dream. The number of those receiving aid also increased. The number of families supported by us with children who have severe and multiple disabilities of develop- Sergey Andryushin, Director of the Foundation Annual Report 2008 5
  • Mary Dudley Diema’s Dream — Dream of Diema The history behind the birth of the Dream The history of the Foundation began when Mary And thus the Dream was born — Diema’s and Mary’s Dudley met Diema Martinov, a small boy suffering dream about the world, which is open and kind to from hydrocephalous and living, to put it gently, “not children with severe and multiple challenges for their in the best” conditions in an orphanage. Mary visited psychological and physical development. Diema and began to help, both the child and the or- phanage. The Dream of a child to leave the social isolation and the confining walls of public institutions. When Mary returned to the US in 1998, she and her sister, Debra Cockrell (DD CFO) began raising The Dream of a child to live with his family, so he is funds to make a difference in the lives of the disabled loved, and knows the true meaning of family. children in Orphanage #8. The Dream to LIVE in this world and understand Like-minded supporters began to help the children, this world and that there are people who care! who suffer from illnesses and public indifference, liv- ing in closed spaces without toys, without walks and, Diema’s Dream is the dream for all disabled children often, without clothes nor sufficient food or treat- of Russia. ment. In order to improve the experience and care of these children, in 2006 our registration as a charity founda- tion in Russia became a reality. Diema Martinov 6 Annual Report 2008
  • How we help Mission of the Foundation Geography of the Dream To provide effective, professional and comprehensive In 2008, the Foundation began working in new support to children with serious and varied develop- regions. mental disabilities and to their families. We now are working in Moscow, Tula and Ryazan To help disabled children adapt to society and change regions! the public attitude towards disabled people. Our charitable programs Dreams of those we heard — These are the three directions of our activities: Orphans with developmental disabilities – Down’s syndrome, Cerebal Palsy, challenges in intellectual “Help Program” — aid to orphans and children with and physical development, children with complex limited capabilities, living in institutions. This year, diagnoses. for the first time, we concluded four agreements to work with orphanages. Families with children that have severe and multiple challenges of physical developmental disabilities. “Diema’s Dream Family Center” aid to families with children that have severe and multiple develop- Graduates of correctional institutions, houses for mental challenges. mentally handicapped children and young people disabled from birth. “Diema’s Dream Village” – an aid program for dis- abled youth — providing a family like environment Children with abnormal physical development. for young disabled adults as an alternate to living in state institutions. Dog-theraphy in the orphanage Sessions in the Family Center Child from the orphanage №8 Annual Report 2008 7
  • Diema’s Dream 2008 In 2008: The number of orphanages which we support grew The number of families with disabled children we from 1 to 4. support grew from 29 to 60. The number of orphans whom we support grew In total, around 600 children in difficult living from 170 to more than 500 children. conditions received highly-qualified aid. Main achievements As a result of changes supported by us, the quality It is a constant challenge to decrease the num- of life for disabled children living in institutions has ber of parents who refuse their disabled children and improved. send them to orphanages for life. Children with severe developmental challenges Therefore, we have a lot of steps ahead of us for the visiting our Center live at home with parents and not goal of having all disabled children living in loving in the orphanages! families. Child from Orphanage #8 Number of children supported 600 2008 500 400 300 200 2007 100 0 Number of familes with disabled children supported 70 2008 60 50 2007 40 30 20 10 0 8 Annual Report 2008
  • Financial Year 2008 Private foundations —3% The financial year of the Founda- tion is January 1, 2008 to Decem- Private donors —3% ber 31, 2008. The total donations for 2008 was 6,235,883 rubles. We received from private donors 213,680 rubles, cor- porate donations 5,835,352 rubles Corporate Donations —94% and donations from private founda- tions 186,850 rubles. Funds were spent 33% — Family Center for social re- 14% — administrative needs, in- in the following manner: habilitation which supports more cluding phone, Internet, web-site, than 60 families with disabled chil- events, promotional items, bank 35% — the Help Program which dren. services, software and income for provided aid to 4 orphanages, and administration personnel. The di- the visit to the New Year circus 18% — Diema’s Dream Village Pro- rector of the Foundation donated show for children. gram. his work in 2008. Remaining funds at the beginning of 2008 2 384 298 Funds received in 2008 6 235 883 Expenditures in 2008 Help Program 2 831 631 Family Center 2 611 880 Village Program 1 407 416 Expenditures for Administration needs 1 138 556 Total expenditures: 7 989 483 Remaining funds at the beginning of 2009 630 698 Expenditures for our Charity Programs in 2008 Administrative needs —14% Help Program —35% Village —18% Family Center —33% Annual Report 2008 9
  • Foundation Structure “Diema’s Dream” Foundation is a Russian charity We undergo an annual audit and at the request of our providing aid and support to disabled orphans and benefactors we present an individual report on the children. The foundation is guided in its activity ex- spending of donations. clusively by the legislation of the Russian Federation on charity and non-commercial organizations. In compliance with the Foundation’s Charter, the executive body is the Director. The Director man- The highest body of management is the General ages the current activity and implementation of the Meeting of the Foundation, which adopts decisions charity programs, which would be impossible with- on key issues of the activity of the organization. out the participation of 26 experts of the Program Department. Control and supervision over the work, use of funds and property of the Foundation is implemented by For the operation of each program, we attract highly- the Board of Guardians and the Audit Committee. qualified experts, managers, supervisors, special edu- cation teachers, speech therapists, psychologists and lawyers. Significant aid is provided by volunteers and partner organizations. 10 Annual Report 2008
  • Board of Guardians Leonid Georgievich Britaus — Director of Or- Vladimir Klavikho-Telepnev — member of the In- phanage №8 for mentally handicapped children, from ternational Association of Black and White Artists, 2004 to 3rd November 2006. member of the Union of Photo Artists of Russia. Konstantin Eduardovich Pozharishenski — Doc- Lubov Ivanovna Kats — Director of the Vladimir tor of Medical Science, Director of the Children’s Region public organization “Association of Parents of Orthopedic Department of the Federal Expertise and Disabled Children ‘SVET’”. Rehabilitation Center for the Disabled of Moscow. Olga Suvorova — Co-chairman of the Moscow Charity Meeting, Director of the company “Charity Address”. Our International Partners Diema’s Dream Russia is very fortunate to have international partners that support the efforts to help disabled children in Russia Diema’s Dream America: Established in 1998 in the USA, volunteers work throughout the country to raise funds host- ing bazaars and auctions of fine Russian crafts. All funds raised at these events are used to sup- port programs in Russia. Debra Cockrell (Exec Dir/CFO) and Mary Dudley coordinate the activities of the volunteers. They have organized 4 auctions in the US, 6 auctions in Moscow and organized 24 bazaars all around the USA. Diema’s Dream United Kingdom: Established in 2003 in the UK. The volunteers in Britain have held auctions and bazaars in support of the children programs supported by Diema’s Dream. Olga Makharinsky and Elena Ragozhina have held 4 auctions to raise funds to support the children’s programs in Russia. They approached Mary and Debra to lend their support when Mary returned to Moscow because of her husband’s work. Prior to that time, Mary and Debra organized 6 auctions and over 16 bazaars in the London area. Diema’s Dream Canada: Newly established in Nov 2008. Myra Hird felt compelled to volunteer after seeing a short segment about Diema’s Dream on NBC Nightly news on 3/11/07. She and her husband, Anthony Krivan, have been instrumental in forging this new organization. They have built a foundation with many professional volunteers in the medical field. In April 09, they are host- ing 3 young professionals from Orphanage No. 8 and our Family Center for a month’s training in Kingston and Calgary. Annual Report 2008 11
  • Help Program True charity — is the desire to bring benefit to others, without considering the benefits. (Helen Keller) Program goal to improve the quality of life of orphans suffering from serious and varied developmental disabilities. Program funding in 2008 was 2,831,631 rubles Major tasks: The ways we make our dream a reality: To optimize motor and sensory skills of special Medical and rehabilitation support in cooperation needs children with State medical institutions in Russia To enable each child to realize his full potential Medicine To enable each child to adapt to society Equipment for rehabilitation Educational materials Sharing of best practice in the area of rehabilita- tion and psychological help to disabled children We began working with three additional Seminars for orphanage specialists presented by orphanages in April, 2008 experts from medical, educational and state institu- tions from Russia and Canada We help the following orphanages: Orphanage #8 for Disabled Children Moscow 173 children ages 5 to 18 Kimovsk Orphanage Kimovsk, Tula Region 68 children ages 7 to 18 Pre-school Orphanage Elat’ma, Ryazan Region 50 children ages 3 to 8 Orphanage for Mentally Disabled Children Elat’ma, Ryazan Region 126 children ages 4 to 18 12 Annual Report 2008
  • Orphanage #8 for Disabled Children in Moscow The Program has been in operation for more than 10 years in Orphanage №8 for Intellectually Disabled Chil- dren, Moscow. Unfortunately, the budget of Moscow orphanages is greatly restricted. We always provide aid for the purchase of medicine, sterilization and treatments, educational material, as well as clothes, shoes and other necessities. Result of implementation of the Program in 2008 Leg operation, treatment and rehabilitation costs Purchased educational materials and equipment for O. Glukhov were covered — 17,550 rubles. for classes in order to educate children with intellec- tual disabilities under the framework of the Federal Purchase of removable joint-immobilizer for A.A. target program “Social Integration of the Disabled in Molodtsova — 13,400 rubles. Moscow for 2006-2009”. Post-operation treatment for O.V. Tsiplakova — For the first time in an orphanage for the intellectu- 36,600 rubles. ally disabled where the majority of children were pre- viously considered un-educable, this year two class- Children continued to make frequent trips outside rooms were installed — first and zero classes, where the orphanage, to see the world. children began learning!!! The orphanage has been visited by highly-quali- fied volunteer physio-therapists from Canada. Treatment of children (operation and rehabilitation) 67550 Medications 29910,53 Office supplies 10577,59 Educational materials 30287 Flannel swaddling clothes 99990,25 Shoes 68640 Cleaning solutions 10499,99 Furniture for studies 57106 Educational materials for groups 86025 Educational seminars for specialists of orphanages for the rehabilitation work with children 40000 Total 500586,36 Events of 2008 In January 2008, we organized a trip to the Circus. For the celebration of our 10th anniversary of the Thanks to TNK-BP free tickets were provided for Foundation, pupils prepared a concert for us. It was seventy children who were immersed in the wonder- an unforgettable day of theater, which truly ener- ful atmosphere of a New Year celebration. gized the children’s smiles and gave them such joy! We thank all who supported the theater and gave In February we organized a trip to Kimovsk. Chil- light to these smiles through their care and participa- dren for whom our village is being constructed saw tion!!! the first house built for them. A video report of the trip can be viewed on our website in the VIDEO sec- September 1st was Knowledge Day, and a cause for tion http://ddfund.ru/video/ celebration! For the first time, the children studied… it was their first day of school! Annual Report 2008 13
  • Kimovsk Orphanage, Tula Region The orphanage is 230 км from Moscow in Kimovsk, arrive, clothes wear out and new materials are always in the Tula region. This is the same area where we are needed. building our Village “Diema’s Dream”. In addition, children who are brought up in state Around 70 orphans ages 7 to 18 live and study in institutions and become accustomed to fending for Kimovsk. The orphanage is part of the state educa- themselves need to be introduced to socialization tion system, which means that all children here are skills, knowledge and normal life habits. able to study. Often, the main obstacles to fully implement social- Thanks to the efforts of the personnel and benefac- ization and development of orphans are the insuf- tors, the children enjoy good living conditions and ficient finances of state institutions, especially those education. But as children grow and new children in the regions. This is why we provide aid to the Ki- movsk orphanage. Results of Implementation of the Program in 2008 Equipment of classes. In 2008, we gave Kimovsk for the production of bulek – equipment for the pro- orphanage the following support: computers, desks duction of artificial flowers. We have purchased and and chairs for the Internet class, as well as furniture donated to the orphanage a set of bulek of 7 items, for the hall in order to make it more comfortable. All soldering guns and wood burning equipment and of these items were donated to us previously by spon- stencils. sors and supporters. Creative workshop. Handcraft education is well de- veloped here. Boys and girls knit, spin yarn, make artificial flowers and create pictures. Naturally, the freedom of creativeness always requires tools and ma- terials. With great effort, this year, we found masters Donation delivery to the Kimovsk orphanage Material for creation of artificial flowers 14 Annual Report 2008
  • Pre-school Orphanage Correctional School-Orphanages and Children’s Orphanage for Mentally Disabled Children Elatma, Ryazan Region Our charity program “Help” began operation in Elat- Throughout 2008, supplies to this orphanage includ- ma in March 2008. Elatma is a small village in the ed children’s clothing, shoes, toys, furniture, medi- Kasimovsk area of the Ryazan region, 250 kilometers cines and vitamins, as well as, gifts for holidays and from Moscow. birthdays, educational literature and puzzles. Here, in a single village, are three institutions for Each child was presented with a plastic briefcase, orphaned children: the Pre-school Orphanage, the albums, notebooks, pencils, sharpeners, eraser, rulers, Correctional School-Orphanages and Children’s Or- pens, markers, paints, and stickers. Each child re- phanage for Social Protection for the Intellectually ceived a “toiletry bag” with a tooth-brush, soap-dish Disabled. with soap, comb and hand cream. In addition, there are two homes for disabled adults The children regularly receive gifts collected pro- (male and female), where our children are directed as vided by the many supporters and benefactors. Their soon as they reach the age of 18, if they have not been kindness is greatly appreciated. able to adapt to the outside world and are unable to live independently. Children of Elat’ma’s orphanagev Children of Elat’ma’s orphanage Annual Report 2008 15
  • Result of implementation of the Program in 2008 (Elatma) In 2008 with the support from our benefactors and friends we have implemented the following: Organized a celebration on June 1, which is In- Orphanage for Disabled Children was supplied ternational Children’s Day in Russian orphanages. with medicines and vitamin supplements, offered by The entertainment industry participated and gave a group of specialists of various companies. children individual and group gifts. Funds were allocated for repairs of the orphanage Each orphanage held a competition of children’s school and repairs to buildings damaged in an arson drawings “I Dream” with awards for the winners. attack by unidentified persons. Elatma Pre-school Orphanage was provided with Gifts to individual children to celebrate the New educational literature on the adaptation and devel- Year were purchased and delivered. opment of children with Down’s Syndrome. A leading expert in child orthopedics visited chil- Children’s outdoor play equipment was purchased dren with disabilities who can not walk. Individual and installed. rehabilitation plans were formulated for each child. Lobbied for funding for the repair of children’s The cases of eight children with abnormalities of rooms at Pre-school Orphanage - the funds were al- physical development were reviewed. We invited an located by TNK-BP and Ryazan Refinery. At present, orthopedist from FSI Federal Bureau of medico-social repairs of two rooms are nearing completion. expertise — Konstantin Eduardovich Pozharischen- sky, who for many years worked with the Foundation and has successfully conducted several operations on orphans from Moscow. Medical examination New play area for the children orphans 16 Annual Report 2008
  • Result of implementation of the Program in 2008 (Elatma) Special-purpose receipts in 2008 Elatma pre-school orphanage Elatma orphanage for mentally – 241,112 rubles handicapped children Involvement of specialist for the 5 125 5 125 organization of celebrations for Children’s Day Gifts to children for Children’s 5 366 2 928 Day Purchased outside play equip- 57 178 ment Funds transferred for the repairs 50 000 of the burned orphanage building Gifts for New Year 14 795 10 024 Total: 82 464 68 077 Remaining funds 90 572 (reserve for payment of orthopedic rehabilitation equipment for disabled children) Conditions of orphans life Children from orphanage Delivered gifts Medicines and vitamins Annual Report 2008 17
  • Diema’s Dream Family Center Program Respect... pure, clear, innocent, holy childhood! (Yanush Korchak) Program goal is to provide individually roviding individually oriented psychological, educational and social aid to families, as well as, helping to bring up children with complex psychophysical development challenges and to integrate disabled children into society. The Diema’s Dream Family Center for Social Rehabilitation began operation in April 2006. At the center, chil- dren are involved in individual development programs. Children are cared for by art-teachers, psychologists and speech therapists. Thanks to support from benefactors all services in the Center are provided free of charge to families with spe- cial needs children. Program funding in 2008 was 2,611,880 rubles Activities of the Center In 2008, a total of 1829 classes were held Art therapy Educational support is used by all families, whose children visit the classes which is more than 60 chil- This is where the children with the most difficult dren. Another 30 families a year receive necessary mobility problems begin. Primarily these are children consulting support in our center. who were refused by other centers and institutions. In the classes children learn to feel, understand and Speech therapy establish the first contact with the outside world. Some children begin to walk, feel their body and the Specialists work on forming and correcting the speech world around them. Art classes were visited regularly of children. In 2008, 14 children visited the classes, by 20 children. and three families received free consultation from experts. Therapeutic pedagogy Musical education Experienced special education teachers work on the individual development of every child, analyzing This new class was introduced in 2008. Children for and monitoring the dynamics of their development. the first time studied in groups, sang, danced, learned Psychological-educational rehabilitation was experi- scenes and small performances. 13 children regularly enced by 55 children. visited this class. Educational support Service-utility activity Experts work together with an special education This new project began in 2008 and was established teacher. In addition to psychological-educational re- with the financial support of United Way Moscow. habilitation, consultation sessions are available for We are working on the children’s ability to communi- parents to answer their questions, and for receiving cate. We begin with activities that are interesting to recommendations for the development of their child the child, including games, procedural acts, sensing at home. games with elements of household chores. 16 classes are held in a week, in small groups — 12 children visited this class. 18 Annual Report 2008
  • Diema’s Dream Family Center Program Dog therapy Library of toys and books For the first time, we introduced a special class us- Our Center provides parents and children with spe- ing dogs to teach. These classes are useful for a more cialized toys, special literature and rehabilitation balanced emotional development of a special child, equipment. social adaptation and rehabilitation. This course was enjoyed by 17 children. Parent club Psychological-education support of children visit- Association of parents, organized for mutual support ing correctional schools. and cooperation. As part of the work, the club holds seminars for parents on issues of child raising, devel- Aid in searching for special pre-schools or school opment issues and rights protection. They have regu- institutions. 13 children were recommended and lar meetings where parents can discuss relevant prob- directed to special schools, kindergartens and institu- lems with the experts, share experience and organize tions for additional education. mutual help. 48 participants visited our seminars. Parents receive psychological, legal, educational and financial aid, organize song evenings together, per- form for the children and support each other in dif- ficult situations. Sessions in the Family Center “Babysitter for an hour” service — short-term tem- porary support for parents at home for the period of his/her absence. Sessions in the Family Center Dog-therapy Annual Report 2008 19
  • Family Center – Center for Joyful Events The laughter of children is heard so often in our In February our Center was visited by Smeshariki!!! Center. During 2008, many events were held here. Children were given the unique opportunity to touch Each event is a step into the world. Participation of the toy characters! The event was joined by almost each child in the event is a contribution to his or her 50 parents and children. It was simply an amazing successful socialization, as well as, support for their celebration! The dreams of many children were real- family. ized — to see the Smeshariki — come to life!! January 2008 — Trip to the Circus on Vernadski In March 2008 parents and children watched the prospect, thanks to TNK-BP who donated tickets, play «Amazing Adventure of Smeshariki in Russia», 15 families enjoyed the wonderful atmosphere of the organized by the charity foundation Marisa Liepa new year celebration! together with the foundation New Life. Children’s New Year Party 2008 In Cafe Olympia “Name day of the child book” took place in the together with MOO «Krug», parents and children of Moscow State Children’s Palace. There are many the Center celebrated the New Year together. In to- opportunities for those with limited capabilities. One tal, 40 people took part. Children sang songs, made a could purchase children’s literature at the fair, use circle-dance with the Ice Princess and recited poems the play room, visit the planetarium, the toy museum, to Santa. This happy event was enjoyed by all. etc. The children saw a play and encountered many famous characters from literature. Children received books and magazines as gifts. New Year Circus 2008 New Year party in «Olympia» Cafe Name day of the child book 20 Annual Report 2008
  • Family Center – Center for Joyful Events In the Moscow Children’s Book Theater our chil- In June, we held a celebratory morning, dedicated dren saw the play “Magic Lamp” where 17 families to the completion of the academic year. Parents attended. prepared and presented a puppet show. From May to October, 8 children, visited the Center In September, we celebrated City Day with the and participated in the competition of children’s Moscow Palace CYA. Children could jump on tram- drawings called “This Magical World”, which was polines, play organized games, make things with their held by the State Museum of L.N. Tolstoy. We pre- own hands and see the brightly costumed concert sented 19 works of our children to be judged. with the participation of «Smeshariki». On May 17 participants visited the Children’s Cele- New Year 2009 — “Be Santa for a Special Child”. bration “Multyashkino”, organized by BF New Life. Olga Lestnikh, Diema’s mother, visited the Cen- Thanks to the generosity of an anonymous benefac- ter and organized an Internet-event. Each family re- tor, 10 parents and children visited the Circus at ceived a present via email, considering the individual Tsvetnoi Boulevard. needs of the children. Santas were found for the chil- dren from DDI № 8. Such surprises bring a lot of hap- On June 1, International Child Protection Day piness!!! a celebration was held in Moscow at the Municipal Palace of Youth Art. Our children (11 children) and the Association of Parents of Disabled Children: 26 participants from our Center joined in the happy celebration. Winter name-days celebration with Smeshariki Annual Report 2008 21
  • Family Center Our children’s stories Center for Cooperation and Exchange Masha G., 7 years. Member of the Family Center of Experience since 2007. Having accumulated a large amount of experience in Diagnosis: ICP (spastic diplegia), MR. children’s rehabilitation work and work with fami- lies, our experts share it with all who find it useful. Masha is unable to stand, sit or walk without as- Our Family Center experts conduct seminars on vari- sistance. After a year of classes, Masha has become ous subjects, for both private individuals and organi- more sociable and independent. She used to cry when zations. All seminars are free for participants. left without her mother in the classroom, but now asks her mother to leave. Her hands began to adapt In 2008, we opened a new Diema’s Dream Family and she is learning how to pick up and hold objects. Center for Social Rehabilitation in Kimovsk, Tula She holds herself when sitting in Turkish style and Region. Thus, the model created by us in 2006 for pro- independently catches her balance with her hands. viding social aid began translating to other regions. Masha tries to crawl, albeit not very good at it so far, but improving. There are many new sounds. When Parent Seminars conducted in 2008 in the Diema’s asked to tell a story, she begins to tell the tale with Dream Family Center were dedicated to the subject great expression in “her own language”. She comes to of “School education — On requirements, shown in classes with a smile, always pleased to accept the pro- the enrollment of the child to the school and needs posed task. She correctly shows syllabification “Ma” of our children”. versus “Am” and tries to pronounce these syllables, at the request of the adult. These issues were relevant for 13 families, who vis- ited the Family Center in Kimovsk. The dialogue Alesha S., 8 years. Member of the Family Center identified the problems of school studies, and pos- since September 2006. sible ways of overcoming them were identified. Diagnosis: ICP atopic - astatic form. MR. SDGV. Seminars for organizations were conducted in the Alesha began walking independently by the age of field and took place twice in the city of Baranovich, four. During the visits to the Center, he significantly Republic of Belarus. expanded his vocabulary and began to speak with 3-4 word sentences (full reserve is 10 words). He is Both seminars were organized with the support of the more active and willingly communicates with other Order of Missionary Sisters of the Holy Family for children and adults. He developed play activity and parents raising children with Down’s syndrome. The comes to classes with pleasure. He finds it difficult seminar was attended by 25 people, of whom 15 were waiting for the start of the lesson and rushes to the parents and 8 special education teachers and psychol- class to study. At present, he knows all letters and ogists and 2 representatives from the host side. already tries to read the alphabet by syllables with the help of a teacher. Alesha knows all the colors and The seminar discussed issues relating to the preven- several shades, understands geometric shapes and tion of social orphanages, the methods of rehabilita- counts to 10. tion work with the families raising a disabled child, as well as remedial work with children. The seminar also In September 2008, Alesha went to grade 1 of the 8 touched on the topic of professional education for type school. young people with disabilities and their continued employment. Baluev Vova, 6 years. Member of the Family Cen- ter since 2006. Methodological and educational literature was pre- Diagnosis: ICP (severe form), severe form of the sented on the development of a child with Down’s deviation of intellect. syndrome. All books and pamphlets were donated and recommendations were made for the further for- Without assistance, Vova cannot move, sit, hold his mation of a library fund. head, retrieve or hold objects in his hands. Any ar- bitrary motor actions are virtually impossible which Advice was offered in response to individual queries relates to his articulatory system. Professionals teams from parents regarding the specific problems of child work with Vova, with the goal of increasing his activ- and family. For example, the stimulation of skills of ity, to maintain and develop his interests to the sur- independent walking, sex education for teenagers rounding environment. with Down’s syndrome and the social adaptation for the family of the disabled child. Video materials were In classes with the art teacher, Vova learns to coordi- presented to the families. nate his actions. One of the important results of these 22 Annual Report 2008
  • studies was that the child has formed a trust in adults you can compare a person only to himself at various and a positive attitude towards the collaborative ac- stages of his life. And this is the main measure of the tion. dynamics of development. Classes with the special education teachers are de- It would be a great mistake to try to make a special signed primarily to enrich the sensory experience of needs child reach standard norms. The very notion of the child. An important part of work is the search norm in the world of special people is very relative. for items such as toys, which can attract the child’s Even worse, is to consider classes with these children interest and a desire to work together with adults. as un-promising or all together leave them as un- Vova responds emotionally and positively to familiar educable. Children who attend our Center break ste- games and toys, and plays games with vocalization. reotypes of the past and teach us new opportunities! In music class, Vova not only listens to music and Parents thank Diema’s Dream singing, which is expressed by his emotional reac- tions, but also actively involves himself with the “We want to express our deep gratitude to all the staff available musical instruments. This not only con- of Diema’s Dream for the caring attitude toward our tributes to the development of tactile, kinesthetic children and for the literal approach to teaching and perception, but also makes interactions with adults rehabilitation.” even more meaningful. — Irina and Ilia, parents. Expert comments “For myself, thanks to the teachers, I learned new ways of communicating with my child, games contributing For a child with special needs there are no rules for to the development of speech and receptions (tactile, development. Each child has their own. One child playing, rhythmic). I am very satisfied with the results could learn to walk or talk at 4 years old, and another of the classes, the organizational approach to these - at the age of 8 years, some will never be able to do sessions and their attitude toward me and my child. I such things. Such people have their own way and hope that this MIRACLE will live and grow and I am afraid to become an ‘orphan’ myself if the Center will encounter problems due to the crisis. Many thanks to Sessions in the Family Center the Center and its teachers for all the happiness, joy and development of the abilities of such children as my son and for the support to mothers!” — Alla, Mother “We are very appreciative of the Diema’s Dream Cen- ter for the support and hope it offers. The very attitude to special children - it helps us psychologically. I like the atmosphere at the Center, its professionalism, friendly staff and a desire to help our grief. The center brings stability and a very friendly attitude of all staff and an individual approach to each child...” — Excerpts from Evaluation form of the Program «Center» Annual Report 2008 23
  • Diema’s Dream Village Program Charity in definition means love, love which can understand, which is not simply shared as property, but as true sympathy and wisdom aiding people to help themselves independently. (Franklin Roosevelt) Program funding in 2008 was 1,407,416 rubles This program was born from the need to accommo- will ever succeed. That is why we are so dedicated to date children supported by us for the past 10 years the “Village of Diema’s Dream”. who reach the age of 18 and are transferred to psycho neurological boarding homes for adults and the el- Now, in the Tula region, in Kimovsk, our first house derly. That sounds like a life sentence for those who stands strong. The house is so far alone, waiting for are limited in capacity and not by their own fault. other houses to rise and be filled with families with young adult disabled children. But it is already so Under this program, we create conditions so that the bright and warm inside! disabled children can feel as members of society, can realize the dream of living in their family and be able Goals of the Program to self-realize through creative work and social activ- ities. To support the children, part of the program is Creation of alternative systems to state institu- to create a Health Center and Creative Workshops. tions for young people with special needs In keeping with our dream, we have taken the first Establish family conditions for Residence, provid- step. We have built a house for people with special ing help, social adaptation and integration into the needs. society The acquisition of land, construction and execution Resurrection and support of the child-parent re- of documents require a huge amount of time, money lations in families which have a disabled child, and and effort. But if we fail to do it — perhaps nobody their social support. Our first house! 24 Annual Report 2008
  • Tasks of the Program Results of implementation of the Program in 2008: Development of the necessary infrastructure to ensure the rights and legal interests of persons with disabilities. Official registration of our plot of land. The creation of the necessary medical, psychologi- Interior decoration of the first house is finished. cal and teaching conditions for the lives of disabled children. Successfully implemented the project “Selection and training of personnel”. As a result of the project, Organization of daily life in a family setting. we have made the selection of experts in the territory of the city of Kimovsk. Provision of employment and leisure, recreational, cultural and entertainment programs. Successfully implemented a pilot project “Integra- tion 2008 Summer Camp “Diema’s Dream”. Development of methodology of work in the town with the given target group and the local commu- The new Diema’s Dream Family Center for Social nity. Rehabilitation is open in Kimovsk. This happened at a time when the local rehabilitation center has been Replication of results and exchange of experience. closed and many children with disabilities were left without any support. Involvement of predominantly Russian donors, benefactors and the public to render financial as- The construction of our building for the creative sistance and other support for the Russia’s disabled workshops has begun! children and their families. Currently, we are still waiting for an electrical connection and therefore cannot yet settle the first permanent residents. But we are using our existing premises as a Summer camp for disabled children and temporarily using it as a Family Center for Social Rehabilitation. We understand the full responsibility to the benefactors and future residents of Village and strive to take into account changes that occur in the world, using best practices in such events. During work on the village, the cost of construction materials rose by 60%. And, therefore, with the economic crisis, we have suspended further construction at this time. We are striving toward our goal, in spite of every- thing. Opening of the Integration Summer Camp Annual Report 2008 25
  • Diema’s Dream Integration Summer Camp During the period of July 21–28, 2008, for the first Results of the implementation of the project: time in the history of Diema’s Dream we held an Inte- grated Summer Camp. There is a close contact between the families-par- ticipants of the camps; Social issues There is a group of parental mutual support; In developed countries, people with disabilities are often very well integrated into society and feel a part Children got the experience of living in the chil- of it; while in Russia, people with disabilities are iso- dren’s camp, the experience of joint activities, learn- lated from society. ing to work with the natural clay, learning new songs, dances and sketches. The project participants went Our Integrated Summer Camp could serve as the on tours to the Museum of Kulikovo battle and the solution of the many social problems: Red Hill. Social isolation of families and their children with Since the Summer Camp, we have analyzed the living restricted capabilities. conditions in the new house, its level of adaptation to the needs of people with disabilities and identified Disabled children are limited in communication opportunities to improve these conditions. This will with fellow students and other adults without dis- help us better prepare the house for welcoming the abilities. permanent residents and provide all the necessities. A problematic issue for families with special need This is very important for the future development of children is the summer vacation, both in the financial the Village. and social sense. Goal of the project — integration of the children with developmental challenges in the environment of Excursion to Museum of Kulikovo normal fellow students Project was participated by 7 families, including 9 children with various dis- abilities from the ages of 3 to 22 3 teacher-special education teachers + 2 trainees (speech therapist, psychologist) and 1 master of the creative studio 3 volunteers from America assisted in the prepara- tion of the Camp Working with volunteers Teaching clay modeling 26 Annual Report 2008
  • First steps of the Village After holding our Integration Summer Camp in our residents. Since being transferred there on her 18th Village, we invited those young adults for whom we birthday, Julia did not go out for 2.5 years! developed the Village. This gave us an opportunity to asses their needs in order to provide adequate facili- In the Village, Julia made new friends — Andrey, Vil- ties, to learn life skills and to provide leisure activities lage professionals, and even a cat called Barsik. She that are fun and educational. This also allowed the watered the flowers by herself. During this time, we children to participate in the development of this conducted integration work with Julia and Andrey idea. who were engaged with teachers, helped at home and performed simple tasks. In July, another two children stayed in our Village — Julia and Andrey. For them, a trip to the Village has By the end of the month, Julia and Andrey did not become a real vacation. They spent a whole month in only feel rested, but also became more sociable and our camp, where they enjoyed nature, fresh air and learned to be more independent. learning new life skills. Currently, Julia and Andrey live in institutions for adults with disabilities. The room in the psycho neu- rological orphanage, where Julia lives, is on the 3rd floor and there is no elevator for wheelchair disabled Andrey helping the director, Natasha, in housework Julia and Andrey Annual Report 2008 27
  • Diema’s Dream 2009 — Goals and New Programs Never refuse your dream. (Paulo Coelho) In 2009, we continue to work on all three charity programs: Help Program Family Center aid to disabled orphans aid to disabled children and their families Scheduled treatment, operations and rehabilita- Developing activities of the parent club and vol- tion courses of 12 children in Orphanage #8 in Mos- unteer involvement. cow and Elyatma. To resume the service “Baby sitter for an hour” Acquisition of new rehabilitation equipment and which is a short-term baby sitting service to help the materials. parents of a disabled child at home so they can run errands and not worry about the care of their child Celebratory and educational events, assuring de- during that time. velopment programs for children. To offer the service “Home Visits” which provides Training for one month for two specialists from the visits to children with disabilities who cannot at- orphanage № 8 and one from the Family Center with tend classes, and almost never leave homes because the Diema’s Dream Canada learning physiotherapy, of physical characteristics. The home visit provider occupational therapy, speech and language pathology will develop exercises for the child to do at home and in Kingston and Calgary, Canada. assistance in adapting the environment to the needs of the child. And many more. Child from the orphanage after a surgery Family Center 28 Annual Report 2008
  • Village Program For these children, an anomaly of physical develop- aid to young adults orphans with disabilities ment can be To open the creative workshop congenital/acquired foot deformities, Develop the Diema’s Dreams Center for Social clubfoot deformity, Rehabilitation in Kimovsk. limitation of movements in the joints of hands and 2009 Summer Camp for children with disabilities, feet, residing in closed institutions for the adults with dis- abilities. arthrogryposis — fusion of fingers, radial and ulna club hand, Take a step incomplete dislocation of the wrist, In 2009, we will launch a new Charity program “Take a step” concrescence of ulnar and humerus bones. Goal of the program To support low income children with congenital anomalies of physical development and increase their quality of life. Financial plan for 2009 “Take a step” Program —13% Administrativ expenses —20% “Village” Program —17% “Help” Program —6% Even good made hastily will be forgotten very slowly. “Family center” Program —44% (Georgy Alexandrov) Even today the fate of many of these children is that The Foundation will cover the cost of conservative, they are often refused by their parents at birth. Par- operative and rehabilitative treatment to rectify the ents raising such a child experience many difficulties anomalies in physical development. of both a social and financial nature. Join Us in our dream to help many of these children The reality of these children’s physical anomalies is have the potential to live normal lives! that the only obstacle to a normal life is an operation and rehabilitation. Annual Report 2008 29
  • Organizations that help us realize the Dream! Thank you! Foundation “NGO-School” The Great Moscow State Circus on Prospekt Vernadskogo Federal State Institution “State service of medical and social examination” Moscow City Palace for Youth Creative Activity Interregional Social Organization “Krug” The “Smesharirki” Company The “Sunny Dog” Social Organization Maris Liepa Charity Foundation “New Life” Charity Foundation Order of The Missionary Sisters of the Holy Family, Baranovichi, Republic of Belarus “Not Needless Children” NGO Child Development Centre at Hotel Dieu Hospital in Kingston, Canada Association for the Rehabilitation of the Brain Injured, Alberta, Canada Children’s Hospital Development Disabilities Resource Centre, Canada The Vocational and Rehabilitation Research Institute, Canada Renfrew Educational Services Options Cause & Effect Foundation, Canada Universal Rehabilitation Services Agency, Canada Frontenac Day Care, Canada Community Living Kingston Ongwanada, H’Art School of Smiles YMCA Kingston. We are forever and truly grateful to all the organizations who provide physical, financial and professional assistance in the implementation of our charity programs to support disabled orphans and children with developmental disabilities and their families! Thank you for your support! Organizations that we help in support of the dream! Orthodox center “Life Giving Spring in Tsaritsyno” Orphanage for mentally disabled children #8, Moscow Orphanage in Kimovsk, Tula region Preschool orphanage in Elat’ma, Ryazan region Orphanage for mentally disabled children in Elat’ma, Ryazan region 30 Annual Report 2008
  • Diema’s Dream Contacts Fund in Russia International Partners Fund of the Charitable Help Diema’s Dream America To children-orphans and invalids of “Diemas Dream” Contacts 115211 Moscow Street Borisovsky Ponds, Dom16, Building 4 Mary Dudley INN 7724571178; KPP 772401001 Founder Account 40703810400001405781 mary@diemasdream.com Joint-Stock Company “Raiffeisen Bank” Moscow к/с 30101810200000000700 Debra Cockrell BIK 044525700 Exec Dir/CFO debra@diemasdream.com Contacts Sergey Petrovich Andryushin Diema’s Dream United Kingdom Director Fund «Diemas Dream» sergey@diemasdream.com Contacts Elena Volodina Olga Makharinsky Assistant Director Of Charitable Programs olga.makharinsky@googlemail.com elena@diemasdream.com Elena Ragozhina Tatyana Glazkova editor@ladies-info.com Program Head The Family Centre of Social Rehabilitation ddcenter@inbox.ru Diema’s Dream Canada Tel: +7 (495) 340 0100 Contacts Fax: +7 (495) 340 8750 Myra Hird The Annual report text is published also on our site hirdm@queensu.ca www.ddfund.ru Anthony Krivan akrivan@primus.ca The fund was registered in Russia on March, 16-th, 2006 Reg. № 1067746380096 Annual Report 2008 31
  • Make The Dream Come True! isabled R rD u fo s n si io an A Fo u n d a t Children Diema’s Dream www.ddfund.ru