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Nepveux, syracuse

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Nepveux, syracuse Nepveux, syracuse Presentation Transcript

  • Negotiating Agendas and Expectations in a Diverse University-Community Research Team ž Learning from a Sexual Health Study with LGBTQ Youth Labeled with Intellectual Disabilities ž November 4, 2010 ž Critical Junctures Conference, Guelph, Ontario
  • Presenters ž Denise Nepveux — York and Syracuse Universities ž Zack Marshall — Griffin Centre Mental Health Services ž Tess Vo — Griffin Centre Mental Health Services
  • Presentation overview ž Project overview ž Study context ž Team assets ž Unanticipated difficulties ž Suggestions for practical change ž Strategies that have worked
  • Project overview ž Focus — HIV Prevention Project for Youth with Disabilities ž Project history and context
  • Study context ž Ideal: ž Reality: — Interdisciplinary — Interdisciplinary — Research initiated by — Research initiated from university researchers; grass roots no particular push from community — Partners came in toward — Partners engaged in all end of grant steps incl. funding app. — Complementary goals, — Shared goals needs and resources — Short-term, one-off project — Long-term commitment
  • Team assets ž Multiple kinds of diversity ž University partners experienced in community-based research ž Community partners experienced in collaborative projects and research ž Shared values — Queer- and trans-positive — Sex-positive approach to HIV prevention — Youth engagement — Arts-based approaches
  • Unanticipated difficulties ž Time pressures ž Communication ž Learning and unlearning ž Differing theoretical and disciplinary perspectives
  • Suggestions for practical change ž Take time to establish a clear Memorandum of Understanding — Acknowledge Theoretical Frameworks — Establish Principles of Collaboration — Define Roles with Detailed Descriptions ž Set aside time to attend to group process ž Anticipate tensions and set up a plan for addressing them ž Clarify publication process, including authorship and decision making
  • Strategies that have worked ž Strengthening interpersonal relationships — Increasing dialogue — Demystifying the research process ž Adding specificity as project progresses — Committing through verbal written agreements which were honoured ž Explicitly value the contributions of team members and offer constructive feedback
  • Authors ž Nepveux, D.1, Marshall, Z. 2, Vo, T. 2, Proudfoot, D. 3, Nixon, S. 4, & Flicker, S5. — 1-York and Syracuse Universities — 2-Griffin Centre Mental Health Services — 3-York University, Institute for Health Research — 4-University of Toronto, Dalla Lana School of Public Health — 5-York University, Faculty of Environmental Studies
  • Acknowledgements ž This study was funded by: — Canadian Foundation for AIDS Research (CANFAR) — Centre for Urban Health Initiatives ž Additional support from: — Ontario Trillium Foundation — City of Toronto, AIDS Prevention Community Investment Program — Ontario HIV Treatment Network