• Share
  • Email
  • Embed
  • Like
  • Save
  • Private Content
Social Networking, Online Communities and Clinical Research
 

Social Networking, Online Communities and Clinical Research

on

  • 1,083 views

 

Statistics

Views

Total Views
1,083
Views on SlideShare
804
Embed Views
279

Actions

Likes
3
Downloads
4
Comments
0

4 Embeds 279

http://www.scoop.it 150
https://twitter.com 123
https://www.linkedin.com 5
http://www.slideee.com 1

Accessibility

Upload Details

Uploaded via as Microsoft PowerPoint

Usage Rights

© All Rights Reserved

Report content

Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
  • Full Name Full Name Comment goes here.
    Are you sure you want to
    Your message goes here
    Processing…
Post Comment
Edit your comment

    Social Networking, Online Communities and Clinical Research Social Networking, Online Communities and Clinical Research Presentation Transcript

    • Social Networking, Online Communities & Research Colleen Young Manager of Engagement & Social Innovation ELLICSR, Princess Margaret Cancer Centre, UHN Founder Health Care Social Media Canada (#hcsmca)
    • 1. Overview some of the common social tools 2. Define social media vs. social networking vs. online community 3. Examine how online social connections, user- generated content and online communities can be leveraged at all phases of clinical research 4. Review the inbound value of social networking for researchers 5. Discussion Agenda
    • The media, the tools
    • Social networking is the use of technology combined with social interaction to • Learn • Collaborate • Create • Inform • Influence • Share Social networking
    • What is an online community? A group of people who share a strong common interest, form relationships and interact online.
    • Researchers & Community Managers
    • Colleen Young @colleen_young
    • Health Care Social Media Canada  3.5+ years  12,023 participants  139,777 tweets  180 chats Wednesdays at 1 pm ET Last Wednesday of the month at 9 pm ET cyhealthcommunications.wordpress.com
    • www.ellicsr.caca ELLICSR online
    • Stages of research Question Study Design Recruitment Data Analysis End of Grant KT Knowledge Application Integrated KT / Exchange
    • Examples of tools you can use What you could do and how • Search user-generated content • Engage people and/or community managers Research question
    • Exploring with #hcsmca
    • Study design Examples of tools you can use What you could do and how • Use collaborative writing tools • Host video conferences • Share resources
    • Archambault PM et al., Wikis and Collaborative Writing Applications in Health Care: A Scoping Review J Med Internet Res 2013;15(10):e210 http://www.jmir.org/2013/10/e210/ Wikis & collaborative writing tools
    • Social media used to spur research Lee Aase Medicine 2.0 Stanford, 2011
    • Recruitment Examples of tools you can use What you could do and how • Create a social media presence • Make a video and share • Reach out to community managers and leaders • Partner with relevant organizations • Use your organization’s social media channels
    • Using Twitter to recruit
    • REB concerns 1. Are users aware of the public nature of their posts? 2. Are some social media platforms better than others in terms of privacy measures? 3. Are users aware of the potential for privacy breaches and their implications? 4. How will you protect individuals from inadvertently sharing potentially identifying information about themselves? 5. Will these platforms to turn off their data mining activities associated with your study hyperlinks?
    • Discussion How will you protect individuals from inadvertently sharing potentially identifying information about themselves?
    • Data collection Examples of tools you can use What you could do and how • Study social media content publicly available • Survey members of social media platforms • Conduct online focus groups • Co-design data collection tools
    • Social network analysis of #hcsmca Gruzd A, Haythornthwaite C Enabling Community Through Social Media J Med Internet Res 2013;15(10):e248 URL: http://www.jmir.org/2013/10/e248/
    • Data analysis Examples of tools you can use What you could do and how • Crowdsource data analysis – citizen scientists • Member checking and validation
    • Engage the community to synthesize data http://www.clicktocure.net/
    • End of Grant KT Examples of tools you can use What you could do and how • Disseminate via your organization’s social media • Share on own social media channels • Find your knowledge brokers • Make a video and share • Share with online communities of practice and communities of interest • Host or be a guest an online event
    • Learn, connect & collaborate Examples of tools you can use What you could do and how • Listen and learn • Adapt and adopt • Share information • Experiment, fail and iterate • Collaborate and co-create
    • #hashtag communities www.symplur.com@symplur
    • #hcsmca chats • Chat 48 How can social media be used to raise awareness of the latest health research in Canada, and generate support for health research overall? • Chat 73 How can social media help put new research findings and/or clinical guidelines into practice? • Chat 104 Discuss the challenges of engaging on social media to inform a research agenda. Complete #hcsmca transcript archives: http://cyhealthcommunications.wordpress.com/hcsmca-archives/
    • #hcsmca Health Care Social Media Canada http://cyhealthcommunications.wordpress.com/hcsmca-2/ O’Connor A et al., Can I get a retweet please? Health research recruitment and the Twittersphere http://onlinelibrary.wiley.com/doi/10.1111/jan.12222/pdf Young C, Community Management That Works: How to Build and Sustain a Thriving Online Health Community http://www.jmir.org/2013/6/e119/ Resources
    • www.theprincessmargaret.ca www.ellicsr.ca cyhealthcommunications.wordpress.com @colleen_young @ellicsr @hcsmca colleen@colleenyoung.com Questions