Empowering information consumers in the online digital revolution

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Presentation given by Dave Booker in Milan, Italy at the Continental European Cochrane Entities Meeting, 8 May 2008

Presentation given by Dave Booker in Milan, Italy at the Continental European Cochrane Entities Meeting, 8 May 2008

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  • 1. Empowering information consumers in the online digital revolution a focus group to explore new directions for Cochrane Dave Booker CC Web Team CECEM, Milano, May 2008
  • 2. This session
    • Argument for the need for action
    • Identify new un-met needs for which Cochrane is best positioned to respond
    • Explore some concrete ideas
    • Test new communication channels
  • 3. Empowering information consumers in the online digital revolution a focus group to explore new directions for Cochrane
  • 4. Archie Cochrane, 1979: “It is surely a great criticism of our profession hat we have not organized a critical summary, by specialty, adapted periodically, of all relevant randomized controlled trials.”
  • 5. Not a bad start …
  • 6. Our mission statement: The Cochrane Collaboration is an international organisation that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting the accessibility of systematic reviews of the effects of healthcare interventions.
  • 7. Logical extension?
    • All people
    • Should get appropriate healthcare
    • based on good evidence.
    Should we say it explicitly ?
  • 8. Do we envision a world in which healthcare decisions always imply filtering, consistently, for the best evidence, In all contexts?
  • 9. Should Cochrane provide the evidence for such filters? …or also facilitate the techniques of filtering and promote the ideas of scientific inquiry to the public?
  • 10. Why this question now?
    • Until recently, healthcare decisions were made by doctors, informed indirectly by databases of studies and reviews.
    • NOW decisions are made increasingly by healthcare users with Web 2.0 decision aids, WITHOUT good tools to filter for quality.
  • 11. Web 2.what?
    • Web 1.0:
    • 1994-2004
    • Static pages on the Web
    • Basic search
    • Little interactivity
    • Web 2.0
    • Since 2004
    • Interactive social media
    • Virtual reality
    • Information finds YOU
    • Mobile integration
  • 12. 10 years ago would you have imagined?
    • Google gives us on-target search results on nearly any topic, instantly, for free?
    • An online community exists for almost every health topic?
    • Doctors in one country will supervise surgery in another, online?
  • 13. The new technology is USED
  • 14. From desert to jungle
    • Death of the doctor?
    • Rise and fall of the ‘health’ portals
    • Rise of social media & search giants
  • 15.  
  • 16.  
  • 17.  
  • 18.  
  • 19. Are we obsolete?
  • 20. In 1992 did you imagine…
    • Half the world will own mobile phones?
    • GPS navigation devices?
    • 1 in 5 new married couples will have met online?
    • Wikipedia will be printed in paper form and REPLACE the Britanica!
  • 21.
    • Zooming down to your house in Google Earth will let you see your old yellow Honda?
    • Your local library will own real estate in a ‘virtual world’, where you’ll go to get training in diapering your baby by an avatar speaking your language?
    In 1992 did you imagine…
  • 22. Web 2.0 is forcing change
  • 23. Industries evolve:
    • Chaos and personal risk
    • Regulations, consumer protection
    • Standards, information liberation
    • Technical explosion
  • 24. Travel industry
    • Huge (like medicine)
    • Service specialists (like physicians)
    • Information-rich
    • Consumer choice has direct implications
  • 25. Chaos and risk: travel
    • Guides held the cards
    • Cheating was the rule
  • 26. Chaos and risk: health
    • Physicians held the cards
    • Superstition and quackery
  • 27. Regulation & consumer protection: travel
    • FAA, road signs, travel agency rules
    • Governments got involved
  • 28.
    • Self-regulation by medical societies
    • Government regulations weaker?
    • Is healthcare through this phase yet?
    Regulation & consumer protection: health
  • 29. Information liberation: travel
    • Travel literature spreads, goes online
    • Industry standards for databases make powerful search possible
  • 30. Information liberation: health
    • From paper to Medline to PDAs
    • Guidelines and searching for studies
    • For consumers: the health portals
  • 31. Technical explosion: travel
    • Comprehensive search: Google wins
    • Groups and blogs from the road
    • Photo-sharing sites (Flickr)
    • Google Maps and Google Earth
    • GPS
  • 32. Technical explosion: health
    • GPS = WebMD, replacing doctors?
    • Personal records managements aids
    • For consumers: the health portals
    • ?
  • 33. Which developments are on the horizon?
  • 34. Why should Cochrane care?
    • Brand
    • Data (lots of it)
    • People
  • 35. What kind of people are we?
  • 36. What’s our niche?
  • 37. Cochrane.org/ideas