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How The Hepatitis C Trust got policy makers to sit up and take notice

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Jane Allen, The Hepatitis C Trust

Jane Allen, The Hepatitis C Trust

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  • Over 100 members, 50 stakeholdersParliamentary business – PQs, debates, etcMeetings and reports‘Divided Nations’The future of transplantation in the UKResearch reportsPCT audits 2006, 2008 Hospital audit

Transcript

  • 1. Communicationson a Shoestring Conference 27 June, 2012, London #shoestringcomms
  • 2. “If you think youre too small to have an impact, try going to bed with a mosquito.”Anita Roddick, founder of the body shop and campaigner
  • 3. How The Hepatitis C Trust got policy makers to sit up and take notice• The Hepatitis C Trust• What is hep C?• Changing policy: Securing a National Liver Strategy and a ‘Liver Tsar’• Keeping up with policy changes & making sure your issues remain high on the political agenda
  • 4. Key factors1. Identify policy solutions - ambitious but obtainable – Looked at successful solutions in other health areas (e.g. cancer, coronary heart disease) – Identify strategic calls – Highlight health impact of hep C – Highlight failure of existing approach – Show progress could be made
  • 5. Increasing number of liver deaths in the UKin contrast to the decreasing trend in the rest of Europe
  • 6. Episodes of, and individuals with, hepatitis C in Hospital Episode Statistics: the financial years 1997/98 to 2006/07 (HPA)
  • 7. Key factors2. Find – and nurture – political friends• All-Party Parliamentary Hepatology Group• Identify champions & those with an interest• Don’t be afraid of knock-backs• Think about their motivations • Constituency link – how will this be of interest to my constituents… and get me re-elected?! • Positive media exposure, make a mark
  • 8. • Series of All Party Group reports and meetings highlighting deficiencies (auditing health services; comparing international approaches)• Innovative meetings – testing MPs, Anita Roddick, using experts, involving public health minister• Series of parliament questions, debates, meetings with the Minister and Shadows• Work with the DH, providing evidence, building relationship
  • 9. Key factors3. Small is beautiful• Flexible• No waste• Organic, credible• Be small but use large spokespeople!
  • 10. Keeping up with policy developments• Labour Government committed to Liver Strategy April 2010• Coalition Government agreed to continue work - autumn 2010• Trust participation in NHS work-streams to develop• NHS reorganisation (Health & Social Care Act) – Ensure liver strategy will make most of new structures – Interim work – GP training, NHS Liver Care – Local influencing strategy• Expecting final publication autumn 2012
  • 11. Summary• Clear policy goals (include steps)• Understand the political environment – be ambitious and consider what is possible• Know your targets and what motivates them• Know (and use) your friends – and make more!• Capture the imagination and use small to your advantage• You CAN make policy makers sit up and take notice!
  • 12. Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, its the only thing that ever has. Margaret Mead, anthropologistjane@principleconsulting.org.uk 07779 595609