Healthtalkonline.org - Ann McPherson
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Healthtalkonline.org - Ann McPherson

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    Healthtalkonline.org - Ann McPherson Healthtalkonline.org - Ann McPherson Presentation Transcript

    •  
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    • Objectives of this talk
      • To demonstrate www.healthtalkonline.org
      • Aims of www.healthtalkonline.org
      • How we achieve our aims and why different from ‘standard’ case studies
      • Why we present the studies in this way and ooutputs
    • Aims of www.healthtalkonline.org . are to………….
      • identify the questions and problems that matter to patients when they are ill or have a health related problem using ‘case studies’ based on interviews
      • provide support and information to patients, their family and carers.
    • Continued……
      • be an educational resource for medical students, doctors in training, nurses and other health professionals
      • promote a balanced encounter between patients and health professionals
      • provide a patient centered perspective to researchers, managers and commissioners
    • How do we achieve this?
      • Based on qualitative research
      • Advisory panel
      • For each condition -sample of 40-50 plus patients from all over U.K from different backgrounds and with different experiences (maximum variation sample)
      • Keep interviewing until no new themes, ideas, or experiences are voiced using thematic analysis
      • Patients recruited via GPs, support groups, hospitals, media etc
      • Narrative interviews -‘tell us your story’ unstructured and semi-structured interviews rather than ‘tick box questionnaire’
      • Outputs as video, audio and written interviews (to avoid bias)
      • Short summaries of main themes are written which include all experiences set with other research context
    • Presentation of results
      • Research is presented on one website whether you are a patient, carer, doctor, researcher
      • Links to other relative information
      • Fora for patient feedback
      • Freely available
    • Outputs
      • 2000 interviews/patients case studies
      • 50 different illness and health issues available
      • 70+ peer reviewed papers
      • 1million hits a month
      • www.healthtalkonline.org www.youthhealthtalk.org