CareSearch: Supporting  Nurses in Primary HealthcareThis event is part of the Quality Use ofCareSearch Project
Palliative Care• Palliative care is an approach that improves the  quality of life of patients and their families facing t...
Nurses and Palliative Care• Palliative care patients at the end of life will often  spend the majority of their time at ho...
Nurses and Palliative Care• Practice nurses will often come into contact with  patients requiring palliative care   – Over...
The Quality Use of CareSearch                Project• Created to help people to use CareSearch (palliative  care website) ...
Quality Use of CareSearch• The website has over 900 pages• It can be difficult to know what is there and/or how to  find i...
Quality Use of CareSearch• A set of resources has been developed, which can be  ordered (CD)   –   Train the trainer   –  ...
Quality Use of CareSearch• A travelling road show is underway   – Resources provided (including CD)   – Targeted to audien...
CareSearch         palliative care knowledge network• A website that enables access to information and  resources      - F...
Online Resources• The internet should be regarded as an important  tool in the suite of evidence-based resources that  nur...
www• The Web is an unregulated environment   – Anyone can create a website   – Unlike journals, websites and webpages may ...
Health Information on the internet• Google alone reports 150 million searches per day:   – If even 1 or 2% of these are he...
“palliative care”• Google “palliative care”   – 9.8 million results   – 665,000 (pages from Australia)
Quality processes• All materials on the website are developed and peer  reviewed by Australian health professionals to  en...
What is CareSearch?This event is part of the Quality Use ofCareSearch Project
CareSearch         palliative care knowledge network• There for everyone (publically available)• There when you need it (2...
What is CareSearch?• Sometimes called palliative care knowledge network• A website that enables access to information and ...
What is CareSearch?• Sometimes called palliative care knowledge  network• A website that enables access to information  an...
Who is it for?• Those providing care: specialist palliative care,  other specialties, primary care• Multidisciplinary care...
Information written for NursesInformation to help in the management of palliative care   patients in the community, with i...
Nurses[HUB] newsMonthly e-newsletter6 times a year the newsletter features:• Case scenario• Nurse in the spotlight• Clinic...
Information written for GPsInformation to help in the management of palliative carepatients in the community, with informa...
GP pages  •     On average GP’s see only 3      to 5 ‘palliative patients’ per      year  • In actual fact this number is ...
Who is it for?• Those working in other areas of Palliative Care:  Academics, Students, Researchers, Policy Makers   - Info...
Who is it for?• Those receiving care  Patients, carers, families, community   - Can affect anyone at any time   - Patient ...
Online Resources• In this age of technology, the internet is increasingly  becoming an important source of information for...
Palliative Care• Palliative care will affect most people at some stage  whether as a patient, carer, family member,  neigh...
Patient and carer needs“Families described not knowing what their informationneeds were until a crisis occurred. Lack of i...
Information written for Patients & Carers • Direct patients, families and friends to pages that   have been specifically w...
What is CareSearch?• Sometimes called palliative care knowledge network• A website that enables access to information and ...
Evidence into Practice• Rapidly developing and expanding knowledge base   – Many disciplines contribute to literature and ...
CareSearch: Introduction                 to the sections within the                 websiteThis event is part of the Quali...
CareSearch         palliative care knowledge network• A website that enables access to information and  resources      - F...
CareSearch         palliative care knowledge network• There for everyone (publically available)• There when you need it (2...
Consumer information on                 CareSearchThis event is part of the Quality Use ofCareSearch Project
Consumer information. Who is it for?• Those receiving care such as patients• Those involved in caring such as carers, fami...
Carers• A carer is an individual who provides personal care,  support and assistance to another individual who  needs it b...
For Patients and Families• Good quality information can help with decision  making• It helps to know where to access infor...
For Patients and Families• Information in this section has been sourced and  written differently to the other pages   – Th...
About palliative care• Includes :   – What palliative care is and how to access it   – That it is not just for those with ...
Living with Illness• It takes into account some of the issues that those  who have a life-limiting illness have to face, s...
How to Care• People can find themselves in a situation where they  are involved in looking after someone• People do not of...
At the End• As the end of a person’s illness approaches, some  patients will want to know what is ahead and the  majority ...
Bereavement, grief and loss• Information can be found here for the carers, families  and communities left behind when some...
Specific Groups• A population health approach has been taken to  these pages with information provided for those who  may ...
Finding out More• These pages provide information on how consumers  can be more informed• It includes facts on how to judg...
Print Resources• There are many resources available within the ‘For  patients and Families’ section and here many of them ...
CareSearch: Making it              easier to find Free Full              Text ArticlesThis event is part of the Quality Us...
CareSearch         palliative care knowledge network• A website that enables access to information and  resources      - F...
Evidence Based Practice• Applying what is known to practice   – Need to have the evidence first to then make decisions    ...
Evidence Based Practice• Finding relevant FREE full text (FFT) articles that you  can read and/or download is not always e...
Finding Evidence• Go to the Finding Evidence section of CareSearch• There is a PubMed Topic Searches Page   – Over 60 pre-...
Finding Evidence• Free Full text/Strongest Evidence   – this will search in real time and provide articles available as   ...
Finding Evidence• Free Full text/Everything   – this will search in real time and provide articles available as     FFT on...
Finding Evidence• All citations/Everything   – this will search in real time and provide all abstracts     available on ev...
Finding Evidence• All citations/ Everything   – This just shows that requesting only FFT narrows the results     you will ...
Finding and using                            CareSearch promotional                            materialsThis event is part...
Using CareSearch materials• There are a few project resourcesthat may be of interest.
Using CareSearch materials• All resources can be ordered / printed and used  to:    - Inform colleagues in education sessi...
Making your life easier:                       Computers and the                       internetThis event is part of the Q...
Computers and the Internet• Not everyone is familiar with computers• Not everyone is comfortable using computers• Not ever...
CareSearch• The following options are often found on websites  and can make life easier when navigating
Continuing Professional            Development• Find university courses, short courses, web-based  learning modules (educa...
Continuing Professional            Development• Find information on Professional Development• Find out about Journal Clubs...
CareSearch• Bridging evidence–practice gaps• Trustworthy, quality information for everyone• Always available• Recommend to...
CareSearch would like to thank the many peoplewho contribute their time and expertise to the project includingmembers of t...
Supporting Nurses in Primary Health Care
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Supporting Nurses in Primary Health Care

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From the Practice Nurse Clinical Education, 15 - 16 July 2011
CareSearch: Supporting Nurses in Primary Healthcare (2060kb pdf doc)


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Supporting Nurses in Primary Health Care

  1. 1. CareSearch: Supporting Nurses in Primary HealthcareThis event is part of the Quality Use ofCareSearch Project
  2. 2. Palliative Care• Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. World Health Organisation, 2006
  3. 3. Nurses and Palliative Care• Palliative care patients at the end of life will often spend the majority of their time at home.• Many would also like to die at home.• When at home they will usually be cared for by a GP, by community nurses or by nurses in RACF
  4. 4. Nurses and Palliative Care• Practice nurses will often come into contact with patients requiring palliative care – Over 70’s healthchecks – In clinics• Patients requiring palliative care are sometimes obvious and sometimes not – Not all cancer – What about dementia, end-stage heart failure, disabling stroke, MS, Parkinsons’?
  5. 5. The Quality Use of CareSearch Project• Created to help people to use CareSearch (palliative care website) well• CareSearch can be useful to Practice Nurses• The information provided here can be shared with colleagues within the local DGP
  6. 6. Quality Use of CareSearch• The website has over 900 pages• It can be difficult to know what is there and/or how to find it• The Quality Use of CareSearch project is about using CareSearch well
  7. 7. Quality Use of CareSearch• A set of resources has been developed, which can be ordered (CD) – Train the trainer – Power point modules (intended as ‘stand-alone’) with notes – Fact sheets – A hospital liaison kit• A Training & Support pack provides further information
  8. 8. Quality Use of CareSearch• A travelling road show is underway – Resources provided (including CD) – Targeted to audience (eg, selected modules) – Disseminate information on the website and the QU project/ resources – Evaluation
  9. 9. CareSearch palliative care knowledge network• A website that enables access to information and resources - For health professionals involved with palliative care as their major role, or as part of their health care role - AND for patients, families and community
  10. 10. Online Resources• The internet should be regarded as an important tool in the suite of evidence-based resources that nurses use (Estabrooks et al 2003)• It has been shown that over 85% of nurses use a computer for some aspect of their work, with over 49% accessing the internet for clinical use (ANF, 2007) Estabrooks CA, O’Leary KA, Ricker KL and Humphrey CK (2003) The internet and access to evidence: how are nurses positioned? Journal Advanced Nursing 42 (1) 73 -81 Hegney D, Buikstra E, Eley R, Fallon T, Gilmore V and Soar J. Nurses and Information Technology: Final Report. Commonwealth of Australia 2007.
  11. 11. www• The Web is an unregulated environment – Anyone can create a website – Unlike journals, websites and webpages may not have a peer review process – The information may be outdated – The information may be moved or removed without notice
  12. 12. Health Information on the internet• Google alone reports 150 million searches per day: – If even 1 or 2% of these are health related searches… – There are many thousands of health-related websites – A search on the internet can return thousands of possible matches – It may also return many irrelevant items
  13. 13. “palliative care”• Google “palliative care” – 9.8 million results – 665,000 (pages from Australia)
  14. 14. Quality processes• All materials on the website are developed and peer reviewed by Australian health professionals to ensure: – that they relate to palliative care – that they are trustworthy and reflect the best available evidence – that where possible the evidence relates to rigorous research work
  15. 15. What is CareSearch?This event is part of the Quality Use ofCareSearch Project
  16. 16. CareSearch palliative care knowledge network• There for everyone (publically available)• There when you need it (24 hours a day)• There at no cost (FREE) – no cost to access web pages
  17. 17. What is CareSearch?• Sometimes called palliative care knowledge network• A website that enables access to information and resources• A project to help move evidence• to practice• Funded by the Australian Government
  18. 18. What is CareSearch?• Sometimes called palliative care knowledge network• A website that enables access to information and resources• A project to help move evidence to practice• Funded by the Australian Government
  19. 19. Who is it for?• Those providing care: specialist palliative care, other specialties, primary care• Multidisciplinary care – E.g, palliative medicine trainees, practice nurses, allied health, volunteers• Provided in many settings• Provided by many agencies
  20. 20. Information written for NursesInformation to help in the management of palliative care patients in the community, with information on:• Clinical• Areas of practice• Research• Education• Policy, standards, quality• Nurses providing palliative care
  21. 21. Nurses[HUB] newsMonthly e-newsletter6 times a year the newsletter features:• Case scenario• Nurse in the spotlight• Clinical uses• Evidence-based practice
  22. 22. Information written for GPsInformation to help in the management of palliative carepatients in the community, with information on:• patients needing palliative care• managing symptoms• making it work in your practice• the dying patient• following up the bereaved, and• professional development.
  23. 23. GP pages • On average GP’s see only 3 to 5 ‘palliative patients’ per year • In actual fact this number is much larger • Direct them to the GP pages
  24. 24. Who is it for?• Those working in other areas of Palliative Care: Academics, Students, Researchers, Policy Makers - Information and resources on the National Palliative Care Program Projects - Research resources
  25. 25. Who is it for?• Those receiving care Patients, carers, families, community - Can affect anyone at any time - Patient and family as unit of care - Specific section for Patients and Families (Patient and Family pages have a different readability level to clinical pages)
  26. 26. Online Resources• In this age of technology, the internet is increasingly becoming an important source of information for patients (Penson et al, 2002)• We need to be ready for this Penson RT, Benson RC, Parles K, Chabner BA, Lynch TJ (2002) Virtual Connections: Internet Health Care The Oncologist 7: 555-568
  27. 27. Palliative Care• Palliative care will affect most people at some stage whether as a patient, carer, family member, neighbour or friend.• Patients and carers are often unprepared for living with illness or for the care giving experience.
  28. 28. Patient and carer needs“Families described not knowing what their informationneeds were until a crisis occurred. Lack of informationon a range of areas, from practical resources toproviding physical care, and managing medications,was problematic.”(Wilkes et al 2000) Wilkes L, White K and O’Riordan L. Empowerment through information: supporting rural families of oncology patients in palliative care (2000) Aust J Rural Health 8, 41-6
  29. 29. Information written for Patients & Carers • Direct patients, families and friends to pages that have been specifically written for them • Download relevant information to help facilitate conversations
  30. 30. What is CareSearch?• Sometimes called palliative care knowledge network• A website that enables access to information and resources• A project to help move evidence to practice• Funded by the Australian Government
  31. 31. Evidence into Practice• Rapidly developing and expanding knowledge base – Many disciplines contribute to literature and evidence• CareSearch can help: – Find research evidence – Content based upon evidence – Helps apply evidence to practice
  32. 32. CareSearch: Introduction to the sections within the websiteThis event is part of the Quality Use ofCareSearch Project
  33. 33. CareSearch palliative care knowledge network• A website that enables access to information and resources - For health professionals involved with palliative care as their major role, or as part of their health care role - For patients, carers, families and community
  34. 34. CareSearch palliative care knowledge network• There for everyone (publically available)• There when you need it (24 hours a day)• There at no cost (FREE) – no cost to access web pages, but there may be costs associated with more comprehensive use of the Research Data Management System
  35. 35. Consumer information on CareSearchThis event is part of the Quality Use ofCareSearch Project
  36. 36. Consumer information. Who is it for?• Those receiving care such as patients• Those involved in caring such as carers, families• Members of the community such as neighbours, friends or work colleagues
  37. 37. Carers• A carer is an individual who provides personal care, support and assistance to another individual who needs it because that other individual: (a) has a disability; or (b) has a medical condition (including a terminal or chronic illness); or (c) has a mental illness; or (d) is frail and aged. Carers Recognition Act 2010
  38. 38. For Patients and Families• Good quality information can help with decision making• It helps to know where to access information even if you don’t want to read it right now• Pages can be printed and shared with others – to help discuss issues or – for those without a computer
  39. 39. For Patients and Families• Information in this section has been sourced and written differently to the other pages – This section has been built upon evidence from the published literature – But also based on searches for relevant tools and resources accessible through the web – Readability scores have been recorded on all pages to ensure they are targeted at the right level
  40. 40. About palliative care• Includes : – What palliative care is and how to access it – That it is not just for those with a cancer diagnosis – That having information can help to make better decisions
  41. 41. Living with Illness• It takes into account some of the issues that those who have a life-limiting illness have to face, such as: – Finances – Work – Difficult emotional challenges
  42. 42. How to Care• People can find themselves in a situation where they are involved in looking after someone• People do not often identify themselves as a ‘carer’ but rather – ‘his wife’ or ‘her neighbour’• Not many people know what is involved or how to go about it
  43. 43. At the End• As the end of a person’s illness approaches, some patients will want to know what is ahead and the majority of carers certainly will.• This information can be confronting and some people will never read it, but it useful to know it is there.
  44. 44. Bereavement, grief and loss• Information can be found here for the carers, families and communities left behind when someone dies
  45. 45. Specific Groups• A population health approach has been taken to these pages with information provided for those who may not have equitable access to services and to care• Particular groups such as the homeless, prisoners and the intellectually disabled have different care needs• Information is provided here that may help them
  46. 46. Finding out More• These pages provide information on how consumers can be more informed• It includes facts on how to judge the quality of information and how to use it in decision making• There is also information on how research contributes
  47. 47. Print Resources• There are many resources available within the ‘For patients and Families’ section and here many of them are in a print-ready format
  48. 48. CareSearch: Making it easier to find Free Full Text ArticlesThis event is part of the Quality Use ofCareSearch Project
  49. 49. CareSearch palliative care knowledge network• A website that enables access to information and resources - For health professionals involved with palliative care as their major role, or as part of their health care role - For patients, families and community
  50. 50. Evidence Based Practice• Applying what is known to practice – Need to have the evidence first to then make decisions around applicability to your situation – The range of disciplines involved in palliative care can mean searching many databases or journals (eg, CINAHL or PsycINFO) – Finding the article does not necessarily mean you can access it
  51. 51. Evidence Based Practice• Finding relevant FREE full text (FFT) articles that you can read and/or download is not always easy• CareSearch has made this a more straightforward process• Follow the simple steps here• FFT articles do limit search results but are something that can be read there and then
  52. 52. Finding Evidence• Go to the Finding Evidence section of CareSearch• There is a PubMed Topic Searches Page – Over 60 pre-written searches are available – Choose your area of interest (eg, Dementia)
  53. 53. Finding Evidence• Free Full text/Strongest Evidence – this will search in real time and provide articles available as FFT on randomised controlled trials or systematic reviews on palliative care and dementia.
  54. 54. Finding Evidence• Free Full text/Everything – this will search in real time and provide articles available as FFT on everything available on palliative care and dementia.
  55. 55. Finding Evidence• All citations/Everything – this will search in real time and provide all abstracts available on everything available on palliative care and dementia – i.e these are not free full text
  56. 56. Finding Evidence• All citations/ Everything – This just shows that requesting only FFT narrows the results you will retrieve – However, if you do not have access to a database then at least being able to have the choice of reading 161 articles is better than not being able to read anything at all
  57. 57. Finding and using CareSearch promotional materialsThis event is part of the Quality Use ofCareSearch Project
  58. 58. Using CareSearch materials• There are a few project resourcesthat may be of interest.
  59. 59. Using CareSearch materials• All resources can be ordered / printed and used to: - Inform colleagues in education sessions - Display posters (e.g., nurses hub) in staff areas - Display consumer information in waiting areas / foyers - Hand consumer brochures to community members or families so that they can find out more - Use consumer brochures to initiate conversations
  60. 60. Making your life easier: Computers and the internetThis event is part of the Quality Use ofCareSearch Project
  61. 61. Computers and the Internet• Not everyone is familiar with computers• Not everyone is comfortable using computers• Not everyone knows how to effectively search the internet – Shortcuts are always useful – The following hints may help to make life easier
  62. 62. CareSearch• The following options are often found on websites and can make life easier when navigating
  63. 63. Continuing Professional Development• Find university courses, short courses, web-based learning modules (education)• Get the latest evidence to support your study
  64. 64. Continuing Professional Development• Find information on Professional Development• Find out about Journal Clubs (Nurses Hub)
  65. 65. CareSearch• Bridging evidence–practice gaps• Trustworthy, quality information for everyone• Always available• Recommend to colleagues, patients• Something for everyone
  66. 66. CareSearch would like to thank the many peoplewho contribute their time and expertise to the project includingmembers of the National Advisory Group and the KnowledgeNetwork Management Group.CareSearch is funded by the Australian GovernmentDepartment of Health and Ageing as part of the NationalPalliative Care Program.www.caresearch.com.au
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