Patients and their families – I am impressed by their tenacity, their ability to overcome obstacles to advocate for themselves and their children. Doctors – I am amazed at how they are able to find the resources, time, money, and energy to care for the extremely vulnerable and poor people in their community. They are constantly innovating to do so.
General overview – I think its fair to say I am somewhat easily inspired. I get inspired by my family, my friends, my colleagues. I get inspired by my work and by the patients that we help every day. I get very inspired at every CORE Group meeting I attend – both by the passion of the attendees and the amazing programs they are implementing! I inspire me – tell my own story of needing treatment and only having a positive outcome because:Doctors were reachable/I was able to get to the hospitalDoctors were educated/able to diagnose me and perform the procedureI was able to afford itI was able to find the knowledge I needed and advocate for myselfGo on to leave a somewhat normal life. Without the care I received and all of those pieces being in place I would have likely lost my arm or possibly even died.
Smile Train has 1,100 partner hospitals and approximately 25 international staff across more than 75 countries. You may think – treatment for cleft is surgery – what could this possibly have to do with the community? Community involvement is essential to the health, survival, and successful rehabilitation of these children/patientsTo innovate we REALLY look to the hospitals, partners, and patients we work with in the field to find innovative ways to solve the problems with cleft lip and palate, since these children are often not served by the mainstream care that is available, unless it can be adapted.
Talk about how impressed I was by the boy who made his own bike in Rwanda, and then how I see these types of innovations/adaptations being made by our partners and surgeons all the time.
:50 – 2:02
There are many barriers to care in treatment for cleft:Patients and parents aren’t aware that the problem is repairable or that treatment is available (leading to abandonment, infanticide, and children being isolated and hidden away rather than seeking careChildren aren’t healthy enough for surgeryParents can’t afford the transportation to seek facility-level careWith support UNPF CCBRT build an ambassador network to identify patients in need of treatment. Transport costs are made through SMS from a CCRBT phone to the phone of the ambassador on Vodacom’s M-PESA technology. The ambassador collects the cash at an M-PESA agent and purchases the required transport for the patient.
NAMs can be extremely expensive, often must be re-molded as often as weekly for newborns, but also greatly increase the success of surgical outcomes. For our patients, the cost and repetition of visits means this is not an option for many of our patientsPartner in Argentina has developed an almost cost neutral method and base on preliminary research has seen almost the same success rate in outcomes as with conventional nam devices
Children with cleft are a significantly increased risk of being malnourished for many reasons:Children with cleft palate can’t create the suction required for breastfeedingChildren with cleft lip/cleft palate can’t latchMothers consequently lose milkBabies swallow air and appear full when they’re actually notBabies may tire easilyFeeding takes extended timeBabies may aspirate milk into the airwayBottles are often extremely hard to clean/sterilize and are expensive/often not available. Spoons don’t provide enough liquid. Diyas (made for lamp oil) are what many doctors and families have been using to feed their children with cleft
:00 - :22
Speech choirs, speech camps with task shifting for community health workers and parents, apps. Finding ways to ensure speech therapy with little or not trained speech therapy available.
1. THE INSPIRATION SHOP
Wednesday, May 7, 2014
1. Something that makes someone want to do something or that
gives someone an idea about what to do or create
2. A person, place, experience, etc., that makes someone want to
do or create something
3. A GOOD IDEA
Definition, Merriam-Webster’s Online Dictionary
3. WHAT INSPIRES ME
4. WHAT INSPIRES ME
1. The introduction of something new
2. A new idea, method, or device
Inspiring Group Creativity!
Definition, Merriam-Webster’s Online Dictionary
7. Patient Identification – Linking Communities and Facilities
8. Linking Communities and Facilities
TransportMYPatient program at
CCBRT’s Disability Hospital in Dar es
In the first year of this project patient
turnout exceed targets by four times. In
2012, 67% of all cleft lip and/or palate
patients were reached through this
With support UNPF, CCBRT build an
ambassador network to identify patients
in need of treatment and payment is
provided through Vodacom’s M-PESA
Even when treatment is
provided free of
charge, transport costs
may pose an
insurmountable barrier for
patients to obtain care.