Bradford W. Hesse, PhD
Chief, Health Communication and Informatics Research
Harnessing the Power of An
Intelligent Health ...
Founded: February 14, 2005
Entries: 48 hours / minute
8 years / per day
Available in: 54 languages
Reach: 37 % global Inte...
Founded: September 4, 1998
Revenue: $37.905 billion
Distribution:World wide
Reach: 48 % global Internet*
* Total Global In...
March 1876:The first telephone call
•“Youngest and most wonderful development in means
of communicating” -Watson
•“A means ...
What did the prognosticators say?
•“Really a technological toy; no business application”
• “too depersonalized” … word ‘ph...
The	
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* Hesse BW,Werner CM,Altman I.Temporal aspects of computer-mediated communication.
Computers in Human Behavior. 1988;4(2):...
19901988
* Hesse BW, Sproull L, Kiesler SB,Walsh JP. Returns to science: computer networks in oceanography. Commun.ACM. 19...
19961989
Motorola’s Consumer
Cell Phone
Consumer Internet
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Friday, September 27, 2013
How	
  do	
  we	
  accelerate	
  
successes	
  against	
  cancer	
  using	
  
the	
  affordances	
  of	
  this	
  new	
  
e...
This latest phase of the information
revolution will change the way we create
health and deliver health care … if we
are s...
Cognitive
Sciences
Cogni9ve	
  Evalua9on	
  Methods
User-Centered Design Process
Source: Brinck T, Gergle D, Wood SD. Desi...
Requirements
Analysis
Conceptual
Design
Mockups and
Prototypes
Production Launch
1 2 3 4 5
•Market scan
•Goal setting
•Aud...
ANTICIPATED
Percent	
  Consumers	
  to	
  CDC	
  Web	
  Cognitive
Sciences
Friday, September 27, 2013
ANTICIPATED
ACTUAL
Percent	
  Consumers	
  to	
  CDC	
  Web	
  Cognitive
Sciences
Friday, September 27, 2013
Bounceback Survey
Health care providers
16%
Policymakers
7%
Scientists
7%
Media reps
1%
Student
22%
Librarian
1%
Educator
...
Email Analysis
Public health
3%
Policymakers
0%
Scientists
5%
Consumers
18%
Educators
7%
Other
24%
General Consumers
CDC
0...
WHO
4% (n=58,147)
travel.state.gov
4% (69,247)
News Sites
5% (n=88,772)
hss.state.ak.us
0% (n=7,029)
NLM
1% (n=19,606)
Sea...
How	
  did	
  this	
  change	
  strategy?
20
Internet is Transformational
•  Demassified
•  Decentralized
•  Adaptable
•  ...
CDC	
  adapts
“CDC used to be in the wholesale
business of providing information to
state and local health departments.
We...
25
Redesigned with
Consumer Appeal,
2004
Link to live
help
Link to
Clinical Trials
Front Page
Access to
Descriptions
Commu...
Surveillance
July 27, 2012
Cognitive
Sciences
See also: Hesse BW, Nelson DE, Rutten LF, Moser RP, Beckjord EB, Chou W-YS. ...
Surveillance
Cognitive
Sciences
*NIH Nominee to White House for “Open
Science Champion,” May 14 2013.
Data Briefs
Statisti...
Surveillance
Cognitive
Sciences
HINTS	
  Brief	
  #1:	
  Trust	
  in	
  channels	
  
and	
  cancer	
  informa9on	
  seekin...
Surveillance
Cognitive
Sciences
Where	
  would	
  you	
  prefer	
  to	
  go	
  
for	
  cancer	
  informa9on?
Source: Hesse...
Surveillance
Cognitive
Sciences
Where	
  did	
  you	
  go	
  for	
  cancer	
  
informa9on?
Source: Hesse BW, Nelson DE, Kr...
Surveillance
Cognitive
Sciences
Where	
  did	
  you	
  go	
  for	
  cancer	
  
informa9on?
Source: Hesse BW, Nelson DE, Kr...
How	
  do	
  Survivors	
  get	
  
their	
  cancer	
  informa9on?
Surveillance
Cognitive
Sciences
Source: Hesse BW,Arora NK...
How	
  do	
  Survivors	
  get	
  
their	
  cancer	
  informa9on?
Surveillance
Cognitive
Sciences
Source: Hesse BW,Arora NK...
How	
  do	
  Survivors	
  get	
  
their	
  cancer	
  informa9on?
Surveillance
Cognitive
Sciences
Source: Hesse BW,Arora NK...
Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;3...
Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;3...
Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;3...
Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;3...
Surveillance
Cognitive
Sciences
HITECH*	
  Act	
  passed	
  in	
  2009
*Health	
  I.T.	
  for	
  Economic	
  &	
  Clinical...
Source: Jamoom E, Beatty P, Bercovitz A, Woodwell D, Palso K, Rechtsteiner E. Physician adoption of electronic health reco...
Source: Jamoom E, Beatty P, Bercovitz A, Woodwell D, Palso K, Rechtsteiner E. Physician adoption of electronic health reco...
Health Information National Trends Survey
Demand	
  SideSurveillance
Cognitive
Sciences
Friday, September 27, 2013
Health Information National Trends Survey
Demand	
  SideSurveillance
Cognitive
Sciences
Friday, September 27, 2013
Health Information National Trends Survey
Demand	
  SideSurveillance
Cognitive
Sciences
Friday, September 27, 2013
Surveillance
Cognitive
Sciences
Understanding	
  the	
  digital	
  divide
Did you use the Internet to look for medical inf...
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
Understanding	
  
knowledge	
  or	
  belief	
  gaps
Surveillance
Cognitive
Sciences
Friday, September 27, 2013
What	
  about	
  “Web	
  2.0?”Surveillance
Cognitive
Sciences
Source: Chou WY, HuntYM, Beckjord EB, Moser RP, Hesse BW. So...
Surveillance
Cognitive
Sciences
Wen-Ying (Sylvia) ChouWeb 2.0: Platforms for Participation
What	
  about	
  “Web	
  2.0?”
...
Surveillance
Cognitive
Sciences
Gary Kreps Paula Kim
Agreement between NCI (Bradford Hesse) and Health
Ministry of China (...
HINTS	
  China	
  AllianceSurveillance
Cognitive
Sciences
U.S. Death Rates
ACS Cancer Facts & Figures
Friday, September 27...
HINTS	
  China	
  Alliance:	
  PilotSurveillance
Cognitive
Sciences
Friday, September 27, 2013
HINTS	
  China	
  Alliance:	
  PilotSurveillance
Cognitive
Sciences
Friday, September 27, 2013
Surveillance	
  on	
  
Communica9on	
  
Environment
44
Friday, September 27, 2013
Iden9fying	
  System	
  
Level	
  Needs	
  /	
  Strategies
State of the Science & Practice
February 14, 2011
Synthesis of ...
NSF:	
  Technology	
  Mediated	
  
Social	
  Par9cipa9on
Surveillance Health 2.0
Cognitive
Sciences
Source: Hesse BW, Hans...
Courtesy of Oracle Systems
See: *Nelson DE, Hesse BW, Croyle RT. Making Data Talk: Communicating Health Data to the Public...
Transforming	
  Cancer	
  
Research	
  and	
  Prac9ce
Bill Chismar Abdul Shaikh
Source: Chismar W, Horan TA, Hesse BW, Fel...
ASCO’s	
  Blueprint,	
  2011
Oncology as information
science: “The Learning
Health Care System”
Hospital Based
EHR Data
Ho...
Are	
  we	
  really	
  partnering	
  
with	
  pa9ents?
Hugo	
  
Campos
Hospital Based
EHR Data
rmation Exchange
Patient
&
...
Are	
  we	
  really	
  partnering	
  
with	
  pa9ents?
Hugo	
  
Campos
Hospital Based
EHR Data
rmation Exchange
Patient
&
...
Are	
  we	
  really	
  partnering	
  
with	
  pa9ents?
Hugo	
  
Campos
Hospital Based
EHR Data
rmation Exchange
Patient
&
...
Are	
  we	
  really	
  partnering	
  
with	
  pa9ents?
Hugo	
  
Campos
Hospital Based
EHR Data
rmation Exchange
Patient
&
...
Pa9ents	
  Char9ng	
  the	
  Way
Dr. Susan Love Jamie Heywood
Patients Like Me
Surveillance
System
Sciences
Cognitive
Scie...
Partnering	
  Against	
  Cancer	
  Today
Friday, September 27, 2013
Partnering	
  Against	
  Cancer	
  Today
Friday, September 27, 2013
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Presentation to Hillman Cancer Center (University of Pittsburgh) 2013

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Presentation to Hillman Cancer Center (University of Pittsburgh) 2013

  1. 1. Bradford W. Hesse, PhD Chief, Health Communication and Informatics Research Harnessing the Power of An Intelligent Health Environment Friday, September 27, 2013
  2. 2. Founded: February 14, 2005 Entries: 48 hours / minute 8 years / per day Available in: 54 languages Reach: 37 % global Internet* Founded: January 15, 2001 Registered Users: 35,000,000 Available in: 285 languages Reach: 14 % global Internet* * Total Global Internet Users (December 31, 2011): 2,267,233,742 Friday, September 27, 2013
  3. 3. Founded: September 4, 1998 Revenue: $37.905 billion Distribution:World wide Reach: 48 % global Internet* * Total Global Internet Users (December 31, 2011): 2,267,233,742 Founded: February 4, 2004 Registered Users: 955,000,000 Distribution:World wide Reach: 45 % global Internet* Friday, September 27, 2013
  4. 4. March 1876:The first telephone call •“Youngest and most wonderful development in means of communicating” -Watson •“A means for overcoming the limitations of geography”* 1876 Learning  from  History:  Diffusion  of  Telephone First telephone call 1889 First public pay phone installed at a bank in Hartford, Conn. 1891 First Automatic Dialer *See: Brooks, J. (1975).Telephone:The First HundredYears.. Harper & Row. Friday, September 27, 2013
  5. 5. What did the prognosticators say? •“Really a technological toy; no business application” • “too depersonalized” … word ‘phony’ introduced to describe the dangers of telephone anonymity. 1876 Learning  from  History:  Diffusion  of  Telephone First telephone call 1889 First public pay phone installed at a bank in Hartford, Conn. 1891 First Automatic Dialer *See: Brooks, J. (1975).Telephone:The First HundredYears.. Harper & Row. Friday, September 27, 2013
  6. 6. The  ques9on  was  no  longer   technical,  it  was  sociotechnical.  How  could  telephones  make  a   difference  in  business  and   rela9onships? 1900 Source: www.visualizationeconomics.com 1925 1950 1975 2000 Friday, September 27, 2013
  7. 7. !" #!" $!" %!" &!" '!" (!" )!" *!" +!" #!!" #*+!" #*+'" #+!!" #+!'" #+#!" #+#'" #+$!" #+$'" #+%!" #+%'" #+&!" #+&'" #+'!" #+''" #+(!" #+('" #+)!" #+)'" #+*!" #+*'" #++!" #++'" $!!!" $!!'" $!#!" !"#$"%&'()'*+,+'-(./"0(12/' 3"4#' 5"1"60(%"'72(68(%'Telephone  Adop9on  in  the  U.S. 1900 Source: www.visualizationeconomics.com 1925 1950 1975 2000 Friday, September 27, 2013
  8. 8. !" #!" $!" %!" &!" '!" (!" )!" *!" +!" #!!" #*+!" #*+'" #+!!" #+!'" #+#!" #+#'" #+$!" #+$'" #+%!" #+%'" #+&!" #+&'" #+'!" #+''" #+(!" #+('" #+)!" #+)'" #+*!" #+*'" #++!" #++'" $!!!" $!!'" $!#!" !"#$"%&'()'*+,+'-(./"0(12/' 3"4#' 5"1"60(%"'72(68(%'Telephone  Adop9on  in  the  U.S. 1900 Source: www.visualizationeconomics.com 1925 1950 1975 2000 Experiments in value- added “use cases:” e.g., replace couriers Friday, September 27, 2013
  9. 9. !" #!" $!" %!" &!" '!" (!" )!" *!" +!" #!!" #*+!" #*+'" #+!!" #+!'" #+#!" #+#'" #+$!" #+$'" #+%!" #+%'" #+&!" #+&'" #+'!" #+''" #+(!" #+('" #+)!" #+)'" #+*!" #+*'" #++!" #++'" $!!!" $!!'" $!#!" !"#$"%&'()'*+,+'-(./"0(12/' 3"4#' 5"1"60(%"'72(68(%'Telephone  Adop9on  in  the  U.S. 1900 Source: www.visualizationeconomics.com 1925 1950 1975 2000 Experiments in value- added “use cases:” e.g., replace couriers Post War Consumerism • “Reach out touch someone” • “Let your fingers do the walking” Friday, September 27, 2013
  10. 10. !" #!" $!" %!" &!" '!" (!" )!" *!" +!" #!!" #*+!" #*+'" #+!!" #+!'" #+#!" #+#'" #+$!" #+$'" #+%!" #+%'" #+&!" #+&'" #+'!" #+''" #+(!" #+('" #+)!" #+)'" #+*!" #+*'" #++!" #++'" $!!!" $!!'" $!#!" !"#$"%&'()'*+,+'-(./"0(12/' 3"4#' 5"1"60(%"'72(68(%'Telephone  Adop9on  in  the  U.S. 1900 Source: www.visualizationeconomics.com 1925 1950 1975 2000 Experiments in value- added “use cases:” e.g., replace couriers Post War Consumerism • “Reach out touch someone” • “Let your fingers do the walking” Global competition: Launch of Sputnik Friday, September 27, 2013
  11. 11. 1982 1988 Socioetechnical  Perspec9ve: Mediated  Communica9on   * Hesse BW,Werner CM,Altman I.Temporal aspects of computer-mediated communication. Computers in Human Behavior. 1988;4(2):147-165. . Irwin Altman, PhD Vice President, University of Utah CarolWerner, PhD Psychology, University of Utah Friday, September 27, 2013
  12. 12. * Hesse BW,Werner CM,Altman I.Temporal aspects of computer-mediated communication. Computers in Human Behavior. 1988;4(2):147-165. . 1982 1988 Can technology bridge spatial constraints (e.g., telemedicine)? Can asynchrony be used to overcome temporal restraints? How do we create a better fit between information environment and healthy behavior? How do we improve human factors: i.e., safety, effectiveness, patient-centeredness, equity? Friday, September 27, 2013
  13. 13. 19901988 * Hesse BW, Sproull L, Kiesler SB,Walsh JP. Returns to science: computer networks in oceanography. Commun.ACM. 1993;36(8):90-101. ** Sproull L, Kiesler S. Connections : new ways of working in the networked organization. Cambridge, Mass.: MIT Press; 1991. Studies  of  Change  in  Communica9on   Environment  (Non  Medical) Found: 1.Geographic benefits: e.g., land- locked oceanographers who were online gained in papers written, funding obtained, and collaborations reported. 2.Temporal benefits: Shift workers in state governments and commercial business gained differential benefits in productivity over day workers. 3.Social benefits: Minority factions in decision groups participated more equally online. Friday, September 27, 2013
  14. 14. 19961989 Motorola’s Consumer Cell Phone Consumer Internet See: Boyle, L.F. (1993). Averting PC Headaches: Usability Tests Aim To Find Design Bugaboos Before They Find You. San Jose Mercury News, April 4, 1993,1F & 7F. San Jose, CA. Apple’s Newton Cogni9ve  Laboratory: User-­‐Centered  Design (Commercial) Friday, September 27, 2013
  15. 15. !" #!" $!" %!" &!" '!" (!" )!" *!" #++#" #++$" #++%" #++&" #++'" #++(" #++)" #++*" #+++" $!!!" $!!#" $!!$" $!!%" $!!&" $!!'" $!!(" $!!)" $!!*" $!!+" ,-./01"2345"67.34/08" 934:.;" ,-./01"</4/08" =438>4;;"?8;4-18" @>.-4" ?-1.4" <4.-/"A.B8"4-1"C0D.8" Source: http://data.worldbank.org/indicator/IT.NET.USER.P2 (through www.gapminder.org) Internet  Users  (per  100  people) Rapid  Diffusion Friday, September 27, 2013
  16. 16. !" #!" $!!" $#!" %!!" %#!" $&'(" $&')" $&''" $&'&" $&&!" $&&$" $&&%" $&&*" $&&+" $&&#" $&&(" $&&)" $&&'" $&&&" %!!!" %!!$" %!!%" %!!*" %!!+" %!!#" %!!(" %!!)" %!!'" %!!&" !"#$%&'(&%%)%*+',)#,(+$-."/,'0-&+'122'-&"-%&3'' ,-./01"2345"67.34/08 ,-./01"9/4/08" :438;4<<"=8<4-18" =-1.4" >;.-4" ?34@.<" 94.-/"A.B8"4-1"C0D.8" Mobile  Cellular  Subscrip9ons  (per  100  people) Friday, September 27, 2013
  17. 17. Friday, September 27, 2013
  18. 18. How  do  we  accelerate   successes  against  cancer  using   the  affordances  of  this  new   environment? Friday, September 27, 2013
  19. 19. This latest phase of the information revolution will change the way we create health and deliver health care … if we are smart enough to know how to use it. — Francis Collins, Director NIH Friday, September 27, 2013
  20. 20. Cognitive Sciences Cogni9ve  Evalua9on  Methods User-Centered Design Process Source: Brinck T, Gergle D, Wood SD. Designing Web sites that work : usability for the Web. 1st ed. San Francisco: Morgan Kaufmann Publishers; 2002. Requirements Analysis Conceptual Design Mockups and Prototypes Production Launch User Evaluation 1 2 3 4 5 ! Friday, September 27, 2013
  21. 21. Requirements Analysis Conceptual Design Mockups and Prototypes Production Launch 1 2 3 4 5 •Market scan •Goal setting •Audience analysis •Interviews •User panels •User survey •Contextual inquiry •Usage log analysis •Search log analysis •Usability tests •Expert review •Site Mapping •Brainstorming •Card sorting •Task analysis •Storyboarding •Info. architecture •Function specs •Integrate with marketing plans •Design guidelines •Expert review •Templates •Paper prototypes •Wire frames •Focus groups •Interviews •Usability testing •Behavioral coding •Usability checklists •Design guidelines •Template use •User testing •Behavioral coding •Usage log analysis •Bounce-back Surveys •Remote usability Testing •Expert review •Behavioral coding User-Centered Design Process ! Cogni9ve  Evalua9on  MethodsCognitive Sciences •Market scan •Goal setting •Audience analysis •Interviews •User panels •User survey •Contextual inquiry •Usage log analysis •Search log analysis •Usability tests •Expert review •Site Mapping •Brainstorming •Card sorting •Task analysis •Storyboarding •Info. architecture •Function specs •Integrate with marketing plans •Design guidelines •Expert review •Templates •Paper prototypes •Wire frames •Focus groups •Interviews •Usability testing •Behavioral coding •Usability checklists •Design guidelines •Template use •User testing •Behavioral coding •Usage log analysis •Bounce-back Surveys •Remote usability Testing •Expert review •Behavioral coding CDC Web 2001 National Breast & Cervical Cancer Early Detection Program Source: Hesse BW, Shaikh A, R., Toward JI, Edgar T. Final Report of the CDC Main Web Site Evaluation. Atlanta, GA: Centers for Disease Control and Prevention; April 2002. Friday, September 27, 2013
  22. 22. ANTICIPATED Percent  Consumers  to  CDC  Web  Cognitive Sciences Friday, September 27, 2013
  23. 23. ANTICIPATED ACTUAL Percent  Consumers  to  CDC  Web  Cognitive Sciences Friday, September 27, 2013
  24. 24. Bounceback Survey Health care providers 16% Policymakers 7% Scientists 7% Media reps 1% Student 22% Librarian 1% Educator 7% Not related to Occupation 15% Other 24%General Consumers Bounceback Survey Health care providers 16% Policymakers 7% Scientists 7% Media reps 1% Student 22% Librarian 1% Educator 7% Not related to Occupation 15% Other 24%General Consumers Who  were  visitors?    How  referred?Cognitive Sciences Friday, September 27, 2013
  25. 25. Email Analysis Public health 3% Policymakers 0% Scientists 5% Consumers 18% Educators 7% Other 24% General Consumers CDC 0% Media reps 1% Students 20% Providers 22% Email Analysis Public health 3% Policymakers 0% Scientists 5% Consumers 18% Educators 7% Other 24% General Consumers CDC 0% Media reps 1% Students 20% Providers 22% Who  were  visitors?    How  referred?Cognitive Sciences Friday, September 27, 2013
  26. 26. WHO 4% (n=58,147) travel.state.gov 4% (69,247) News Sites 5% (n=88,772) hss.state.ak.us 0% (n=7,029) NLM 1% (n=19,606) Search Engines 86% (n=1,406,964) WHO 4% (n=58,147) travel.state.gov 4% (69,247) News Sites 5% (n=88,772) hss.state.ak.us 0% (n=7,029) NLM 1% (n=19,606) Search Engines 86% (n=1,406,964) Who  were  visitors?    How  referred?Cognitive Sciences Content Analysis Friday, September 27, 2013
  27. 27. How  did  this  change  strategy? 20 Internet is Transformational •  Demassified •  Decentralized •  Adaptable •  Asynchronous •  Interactive •  Interconnected Traditional CommunicationTraditional Communication ChannelsChannels CDC State and Local Health Officials Media Policymakers Researchers & Practitioners Public CDC State and Local Health Officials Media Policymakers Researchers & Practitioners Public CDC State and Local Health Officials Media Policymakers Researchers & Practitioners Public Internet Enabled ChannelsInternet Enabled Channels Cognitive Sciences See: Hesse BW. Harnessing the power of an intelligent health environment in cancer control. Stud Health Technol Inform. 2005;118:159-176. Friday, September 27, 2013
  28. 28. CDC  adapts “CDC used to be in the wholesale business of providing information to state and local health departments. We are now in the business of providing health information directly to individuals.” - Dr. J. Gerberding, 2003 CDC Director Julie Gerberding, MD MPH Cognitive Sciences 2012 Statistics: • 746,222,316 page views • 2,970,449 views - CDC en Español Most Popular Topics on CDC.gov • STD FACTS • CDC Homepage, Search, A-Z • Vaccines • Health Statistics • Travelers' Health • Seasonal Flu Friday, September 27, 2013
  29. 29. 25 Redesigned with Consumer Appeal, 2004 Link to live help Link to Clinical Trials Front Page Access to Descriptions Communicating Science to the Public Spanish Site Launched 2006 NIH  -­‐  NCI  AdaptsCognitive Sciences Friday, September 27, 2013
  30. 30. Surveillance July 27, 2012 Cognitive Sciences See also: Hesse BW, Nelson DE, Rutten LF, Moser RP, Beckjord EB, Chou W-YS. National Health Communication Surveillance Systems. In: D. K. Kim ASGLK, ed. Global Health Communication Strategies in the 21st Century: Design, Implementation, and Evaluation. New York, NY: Peter Lang; In Press. . Health  Situa9onal   Awareness Friday, September 27, 2013
  31. 31. Surveillance Cognitive Sciences *NIH Nominee to White House for “Open Science Champion,” May 14 2013. Data Briefs Statistical Guides Peer Reviewed Publications Web Platform for Participation* Health  Informa9on  Na9onal   Trends  Survey  (HINTS) Friday, September 27, 2013
  32. 32. Surveillance Cognitive Sciences HINTS  Brief  #1:  Trust  in  channels   and  cancer  informa9on  seeking Source: Hesse BW, Nelson DE, Kreps GL, et al.Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information NationalTrends Survey.Arch Intern Med. Dec 12-26 2005;165(22):2618-2624. Friday, September 27, 2013
  33. 33. Surveillance Cognitive Sciences Where  would  you  prefer  to  go   for  cancer  informa9on? Source: Hesse BW, Nelson DE, Kreps GL, et al.Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information NationalTrends Survey.Arch Intern Med. Dec 12-26 2005;165(22):2618-2624. Friday, September 27, 2013
  34. 34. Surveillance Cognitive Sciences Where  did  you  go  for  cancer   informa9on? Source: Hesse BW, Nelson DE, Kreps GL, et al.Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information NationalTrends Survey.Arch Intern Med. Dec 12-26 2005;165(22):2618-2624. Friday, September 27, 2013
  35. 35. Surveillance Cognitive Sciences Where  did  you  go  for  cancer   informa9on? Source: Hesse BW, Nelson DE, Kreps GL, et al.Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information NationalTrends Survey.Arch Intern Med. Dec 12-26 2005;165(22):2618-2624. Friday, September 27, 2013
  36. 36. How  do  Survivors  get   their  cancer  informa9on? Surveillance Cognitive Sciences Source: Hesse BW,Arora NK, Beckjord EB, Finney Rutten LJ. Information Support for Cancer Survivors. Cancer. 2008;112(11S):2529-2540. Neeraj Arora NCI Cancer Survivors Friday, September 27, 2013
  37. 37. How  do  Survivors  get   their  cancer  informa9on? Surveillance Cognitive Sciences Source: Hesse BW,Arora NK, Beckjord EB, Finney Rutten LJ. Information Support for Cancer Survivors. Cancer. 2008;112(11S):2529-2540. Neeraj Arora NCI Cancer Survivors Friday, September 27, 2013
  38. 38. How  do  Survivors  get   their  cancer  informa9on? Surveillance Cognitive Sciences Source: Hesse BW,Arora NK, Beckjord EB, Finney Rutten LJ. Information Support for Cancer Survivors. Cancer. 2008;112(11S):2529-2540. Neeraj Arora NCI Cancer Survivors Patient to Survivor: Lost in Transition? Friday, September 27, 2013
  39. 39. Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Surveillance Cognitive Sciences Trends:  2002-­‐2003,  2005,  2008 Friday, September 27, 2013
  40. 40. Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Surveillance Cognitive Sciences Trends:  2002-­‐2003,  2005,  2008 Friday, September 27, 2013
  41. 41. Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Surveillance Cognitive Sciences Trends:  2002-­‐2003,  2005,  2008 Friday, September 27, 2013
  42. 42. Source: Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Surveillance Cognitive Sciences Trends:  2002-­‐2003,  2005,  2008 Friday, September 27, 2013
  43. 43. Surveillance Cognitive Sciences HITECH*  Act  passed  in  2009 *Health  I.T.  for  Economic  &  Clinical  Health  Act Health I.T. as Foundation for Evidence Implementation Source: Hesse BW, Ahern DK, Woods SS. Nudging best practice: the HITECH act and behavioral medicine Translational Behavioral Medicine. 2011;1(1):175-181. Friday, September 27, 2013
  44. 44. Source: Jamoom E, Beatty P, Bercovitz A, Woodwell D, Palso K, Rechtsteiner E. Physician adoption of electronic health record systems: United States, 2011. NCHS data brief. Jul 2012(98):1-8. Surveillance Cognitive Sciences Supply  Side Friday, September 27, 2013
  45. 45. Source: Jamoom E, Beatty P, Bercovitz A, Woodwell D, Palso K, Rechtsteiner E. Physician adoption of electronic health record systems: United States, 2011. NCHS data brief. Jul 2012(98):1-8. National Ambulatory Medical Care Survey Surveillance Cognitive Sciences Supply  Side Friday, September 27, 2013
  46. 46. Health Information National Trends Survey Demand  SideSurveillance Cognitive Sciences Friday, September 27, 2013
  47. 47. Health Information National Trends Survey Demand  SideSurveillance Cognitive Sciences Friday, September 27, 2013
  48. 48. Health Information National Trends Survey Demand  SideSurveillance Cognitive Sciences Friday, September 27, 2013
  49. 49. Surveillance Cognitive Sciences Understanding  the  digital  divide Did you use the Internet to look for medical information for yourself? 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% Less than high school High school graduate Some college (AA) College graduate (BA/BS) Education Level Percentage 2003 2005 2008 The Digital Divide See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007. Lila Rutten Mayo Clinic Rick Moser NCI Ellen Beckjord U of Pittsburgh Med School Friday, September 27, 2013
  50. 50. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  51. 51. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  52. 52. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  53. 53. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  54. 54. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  55. 55. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  56. 56. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  57. 57. Understanding   knowledge  or  belief  gaps Surveillance Cognitive Sciences Friday, September 27, 2013
  58. 58. What  about  “Web  2.0?”Surveillance Cognitive Sciences Source: Chou WY, HuntYM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: implications for health communication. J  Med  Internet  Res.  2009;11(4):e48. Wen-Ying (Sylvia) ChouWeb 2.0: Platforms for Participation Friday, September 27, 2013
  59. 59. Surveillance Cognitive Sciences Wen-Ying (Sylvia) ChouWeb 2.0: Platforms for Participation What  about  “Web  2.0?” Friday, September 27, 2013
  60. 60. Surveillance Cognitive Sciences Gary Kreps Paula Kim Agreement between NCI (Bradford Hesse) and Health Ministry of China (Mao Qu’nan) to cooperate in areas of Health Communication & Informatics Research -George Mason University, March 29 Can  we  learn  from  comparisons   across  cultures? Wen-Ying (Sylvia) Chou Friday, September 27, 2013
  61. 61. HINTS  China  AllianceSurveillance Cognitive Sciences U.S. Death Rates ACS Cancer Facts & Figures Friday, September 27, 2013
  62. 62. HINTS  China  Alliance:  PilotSurveillance Cognitive Sciences Friday, September 27, 2013
  63. 63. HINTS  China  Alliance:  PilotSurveillance Cognitive Sciences Friday, September 27, 2013
  64. 64. Surveillance  on   Communica9on   Environment 44 Friday, September 27, 2013
  65. 65. Iden9fying  System   Level  Needs  /  Strategies State of the Science & Practice February 14, 2011 Synthesis of Systematic Reviews August 20, 2012 Blueprint: Uniting Systems through Communication Science Late summer, 2013 • Health Impact Framework (CDC) • Targets across continuum • Affordable Care Act • Health Information Technology for Economic & Clinical Health:HITECH • Technology Mediated Social Participation (Health 2.0) • Dissemination and Implementation Science • Agenda-aligning communications Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  66. 66. NSF:  Technology  Mediated   Social  Par9cipa9on Surveillance Health 2.0 Cognitive Sciences Source: Hesse BW, Hansen D, Finholt T, Munson S, Kellogg W, Thomas JC. Social Participation in Health 2.0. IEEE Computer. 2010;43(11):45-52. Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  67. 67. Courtesy of Oracle Systems See: *Nelson DE, Hesse BW, Croyle RT. Making Data Talk: Communicating Health Data to the Public, Policy, and the Press. New York, NY: Oxford; 2009. **Shneiderman B, Plaisant C, Hesse BW. Improving Healthcare with Interactive Visualization. In: Catherine P, Bradford WH, eds. IEEE Computer. Vol 462013:58-66. May 2013** Surveillance System Sciences Cognitive Sciences May 2009* Communica9ng  Evidence   Friday, September 27, 2013
  68. 68. Transforming  Cancer   Research  and  Prac9ce Bill Chismar Abdul Shaikh Source: Chismar W, Horan TA, Hesse BW, Feldman SS, Shaikh AR. Health cyberinfrastructure for collaborative use-inspired research and practice. Am J Prev Med. May 2011;40(5 Suppl 2):S108-114. Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  69. 69. ASCO’s  Blueprint,  2011 Oncology as information science: “The Learning Health Care System” Hospital Based EHR Data Hospital Based EHR Data Health Information Exchange Medical Team Patient & Family Hospital System Decision Support Needs Subjective • Chief complaint • Patient Reported Outcomes • Risk modeling • Diagnostic support • Treatment selection • Guideline adherence • Error detection/correction Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Objective • Clinical measures • Laboratory findings • Sensor data Assessment • Diagnosis • Categorical reporting • Prognosis Plan • Treatment planning • Self-care planning • Post treatment • Surveillance See: Hesse BW, Ahern DK, Woods SS. Nudging best practice: the HITECH act and behavioral medicine Translational Behavioral Medicine. 2011;1(1):175-181. Hesse BW, Croyle RT, Buetow KH. Cyberinfrastructure and the biomedical sciences. Am J Prev Med. May 2011;40(5 Suppl 2):S97-102. Hospital Based EHR Data Hospital Based EHR Data Health Information Exchange Medical Team Patient & Family Hospital System Decision Support Needs Subjective • Chief complaint • Patient Reported Outcomes • Risk modeling • Diagnostic support • Treatment selection • Guideline adherence • Error detection/correction Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Objective • Clinical measures • Laboratory findings • Sensor data Assessment • Diagnosis • Categorical reporting • Prognosis Plan • Treatment planning • Self-care planning • Post treatment • Surveillance Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  70. 70. Are  we  really  partnering   with  pa9ents? Hugo   Campos Hospital Based EHR Data rmation Exchange Patient & Family Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  71. 71. Are  we  really  partnering   with  pa9ents? Hugo   Campos Hospital Based EHR Data rmation Exchange Patient & Family Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  72. 72. Are  we  really  partnering   with  pa9ents? Hugo   Campos Hospital Based EHR Data rmation Exchange Patient & Family Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  73. 73. Are  we  really  partnering   with  pa9ents? Hugo   Campos Hospital Based EHR Data rmation Exchange Patient & Family Medical Researcher • Situational awareness • Population health • Continuity of care • Identify side effects • Inform discovery Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  74. 74. Pa9ents  Char9ng  the  Way Dr. Susan Love Jamie Heywood Patients Like Me Surveillance System Sciences Cognitive Sciences Friday, September 27, 2013
  75. 75. Partnering  Against  Cancer  Today Friday, September 27, 2013
  76. 76. Partnering  Against  Cancer  Today Friday, September 27, 2013

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